National Academies Press: OpenBook
« Previous: Appendix E: Reporting Requirements, NPCR, NCDB, SEER
Suggested Citation:"Index." Institute of Medicine and National Research Council. 2000. Enhancing Data Systems to Improve the Quality of Cancer Care. Washington, DC: The National Academies Press. doi: 10.17226/9970.
×

Index

A

Access to care, 8, 9, 67, 109, 110, 120–122

patient attitudes and, 48, 121

Accreditation of health care organizations, 5–6, 27, 68–69, 84, 116, 125–126

Accreditation of insurance organizations, 5–6, 27, 48, 68–69, 84, 116, 125–126

National Committee for Quality Assurance (NCQA), 5, 48, 66–68, 83–84, 85, 86, 116

Accreditation of providers, 23, 27, 67, 116, 125–126

Accountability, 1, 8, 9, 11, 18, 25, 66, 73, 86, 94, 110, 111, 115, 125–126

Foundation for Accountability (FACCT), 26, 36, 83, 85

Achievable Benchmarks of Care, 63

Adaptability, see Technological innovations (adaptability)

Adjuvant therapies, 59, 119

breast cancer, 19, 25, 33, 81, 112, 133, 136

colon cancer, 32, 33, 47,

see also Chemotherapy; Radiation therapy

African Americans, 59, 136

Age factors, 33, 65, 132–134 (passim),

see also Elderly persons

Agency for Healthcare Research and Quality (AHRQ), 6, 7, 34, 44, 45, 48, 49, 71, 84–85, 89, 90, 91, 92, 117, 126

Aggregate quality scores, 3, 12, 16, 17, 30, 46, 69, 71, 78

AIDS Cost and Services Utilization Study, 43

Ambulatory care, 3, 5, 6, 34, 43, 65, 85, 88, 89, 118, 119, 142–143

American Association of Family Physicians, 85

American Cancer Society (ACS), 41–42, 44, 58, 126

see also National Cancer Data Base

American College of Physicians, 85

American College of Radiology, 20, 23–24

American College of Surgeons' Commission on Cancer, 4, 31, 33, 116, 126

see also National Cancer Data Base

American Diabetes Association, 85

American Indians, 59

Suggested Citation:"Index." Institute of Medicine and National Research Council. 2000. Enhancing Data Systems to Improve the Quality of Cancer Care. Washington, DC: The National Academies Press. doi: 10.17226/9970.
×

American Medical Association, 66

American Society of Clinical Oncology (ASCO), 22, 49, 83, 91

Attitudes and beliefs

patient satisfaction, see Patient satisfaction

patients, other, 48, 121

providers, general, 13, 29, 110

providers, toward elderly, 121–122

public opinion, 109, 110

B

Benchmarks, 3, 6, 9, 12, 16, 46, 48, 55, 63, 66, 75, 76, 78, 80, 81, 88, 90, 125

case studies, 21, 36

Biopsies, 25, 30, 47, 70, 112, 137

Black persons, see African Americans

Breast cancer, 12, 19, 41, 42, 63, 70, 92, 112, 120, 132–140

adjuvant therapies, 19, 25, 33, 81, 112, 133, 136

case studies, 19, 20, 21, 25–36 (passim),

diagnosis, not mammography, 12, 28, 30, 47, 50, 70, 112, 132–140

mammography, 28, 21, 43, 47, 51, 62–63, 66, 111, 112, 137

patient satisfaction, 25, 29, 51

quality-of-care measures, 47, 49, 50–51, 83

radiation therapy, 25, 26, 27, 28, 31, 33, 47, 89, 112, 133, 134, 136, 139

surgery, 25, 26, 28, 30–31, 43, 44, 47, 50, 70, 81, 89, 112, 113, 132–140

survival rates and durations, 21, 26, 29, 139, 140

treatment, 12, 20, 39, 50, 79, 132, 133, 134;

see also“radiation therapy” and “surgery” supra

C

Cancer Registries Amendment Act, 57, 72

Cancer Research Network, 42–43, 126

Case-control studies, 13

Case studies, 10, 18–36, 79, 80

benchmarks, 21, 36

breast cancer, 19, 20, 21, 25–36 (passim),

chemotherapy, 21, 22, 25, 26, 33

clinical practice guidelines, 19, 20, 21, 22, 23, 27, 30, 34–35, 79

colorectal cancer, 20, 24, 27, 31, 32–33

comorbidity, 19, 27, 33

computer-based patient records, 19, 20, 22, 30, 79

diagnosis, 20, 21, 25, 28, 30, 34, 79

end-of-life care, 20, 21, 36, 79

health insurance, 20, 26–27, 28, 30–31, 33, 34, 55, 79

hospitals and hospitalization, 21, 25, 33, 79

medical charts and records, 20, 23, 26, 28, 32–33, 34

outcome measures, 22, 23, 25, 26, 27

pain control, 21, 36

patient satisfaction, 21, 25, 26, 29, 34

performance standards, 22, 27, 28–29, 36

privacy and confidentiality, 27, 32–33

process standards, 23, 26

quality-of-care measures, 21, 24–26, 34, 36, 79

radiation therapy, 23–24, 24, 25, 26, 27, 28, 31, 33

registries, 20, 28, 29, 34

stages of cancer, 19, 25, 26–27, 28, 33, 34

treatment, general, 20, 21, 27, 79

Centers for Disease Control and Prevention (CDC), 4, 6, 85, 87, 89, 90, 121

see also National Program of Cancer Registries

Cervical and uterine cancer, 24, 41, 42, 49, 63, 85, 121

Cervical Cancer Early Detection Program, 121

Charts, see Medical charts and records

Chemotherapy, 5, 12, 40, 41, 47, 48, 50, 81, 85, 112, 113, 134

case studies, 21, 22, 25, 26, 33

registries, 58

Clinical practice guidelines, 14, 80, 85, 90, 113–114, 133

case studies, 19, 20, 21, 22, 23, 27, 30, 34–35, 79

Suggested Citation:"Index." Institute of Medicine and National Research Council. 2000. Enhancing Data Systems to Improve the Quality of Cancer Care. Washington, DC: The National Academies Press. doi: 10.17226/9970.
×

Clinical trials, 12, 13, 41, 43, 47, 81, 111, 116, 117

Cohort studies, 13, 15, 58

Colorectal cancer, 39, 40, 47, 49, 70, 92

adjuvant therapies, 32, 33, 47, 79

case studies, 20, 24, 27, 31, 32–33

surgery, 33, 44, 70

Communications, 4, 14

Intranets, 6, 14, 53, 90

see also Internet

Comorbidity, 3, 6, 9, 40, 45, 48, 119

case studies, 19, 27, 33

registries, 58, 92, 135, 136, 140

reporting standardized, 6, 12, 14, 19, 54–55, 77, 84, 85–86, 87, 90

secondary (metastatic) cancer, 12, 53, 117

Computer-based patient records, 2, 3, 4, 6, 10, 12, 13–14, 38, 52–53, 75, 77, 80–81, 90, 93

case studies, 19, 20, 22, 30, 79

Intranets, 6, 14, 53, 90

privacy and confidentiality, 4, 71, 73, 81, 93

Confidentiality, see Privacy and confidentiality

Consent, see Informed consent

Consumer Assessment of Health Plans Survey, 34

Cost factors, see Economic factors

Cross-sectional studies, 3, 12, 42, 46, 77

D

Demographic factors, 11, 33, 40, 57, 58, 59, 60, 118, 119, 120, 121

socioeconomic status, 15, 40

see also Age factors;

Elderly persons;

Geographic factors;

Population-based studies;

Race/ethnicity

Demonstration projects, 6, 7, 94

see also Case studies

Department of Health and Human Services, 5–6, 43, 49, 73, 74, 84, 86, 93

see also Agency for Healthcare Research and Quality;

Centers for Disease Control and Prevention;

Food and Drug Administration;

Health Care Financing Administration;

National Center for Health Statistics;

National Institutes of Health

Department of Veterans Affairs, 6, 7, 38, 84–85, 90, 92

Diabetes, 52, 63, 85

Diagnosis, 4–5, 8, 9, 12, 39, 70, 92, 110, 114–115, 121

biopsies, 25, 30, 47, 70, 112, 137

breast cancer, 12, 28, 30, 47, 50, 70, 112, 132–140;

see also Mammography

case studies, 20, 21, 25, 28, 30, 34, 79

cervical cancer, 121

recently diagnosed patients, 1–2, 9, 15, 31, 42, 46, 76, 118, 119, 135

registry data, 37–38, 40, 41, 42, 45, 92, 132–137

secondary cancer, 12, 53, 117

see also Stage of cancer

Drug treatment, see Chemotherapy; Medication

E

Economic factors, 2, 43, 52, 115

costs of assessment, 19, 31, 59, 75, 80, 119, 127

costs of care, 19, 21, 25, 38, 39, 44, 116, 120, 126, 134

socioeconomic status, 15

see also Funding;

Health Care Financing Administration;

Health insurance

Educational attainment, 121

Education and training

funding, 23, 90, 119

patient, 49, 69, 71, 112, 116, 117

professional, 1, 22, 23, 52, 59,67, 90, 94, 110, 119

Elderly persons, 39, 69, 92, 111, 115, 120, 121–122, 125, 132, 135, 136, 139

Medicare, 32–33, 38, 39, 40, 43, 58, 69, 75, 87,91, 93, 115, 118, 120, 125, 133, 135

Electronic Communications Privacy Act, 73

Electronic patient records, see Computer-based patient records

Suggested Citation:"Index." Institute of Medicine and National Research Council. 2000. Enhancing Data Systems to Improve the Quality of Cancer Care. Washington, DC: The National Academies Press. doi: 10.17226/9970.
×

Employer-based health insurance, 31, 34, 66, 71, 115

HEDIS, 48, 66–68, 89

End-of-life care, 8, 12, 39, 44, 51, 80, 117

case studies, 20, 21, 36, 79

Ensuring Quality Cancer Care, 1, 8–10, 48, 71, 76, 83, 91, 109

Ethnicity, see Race/ethnicity

Expert opinion, 13, 22, 23, 43, 81, 85, 90

peer review organizations (PROs), 27, 32, 69, 92, 125

F

Federal government, 2, 6–7, 18, 43–44, 45, 49, 86, 89, 90–91, 94

clinical trials, 117

national data systems, 2, 11, 14–16, 77, 86–88, 94, 111, 119

privacy and confidentiality, 72, 74, 93

see also Department of Health and Human Services; Department of Veterans Affairs; Funding; Legislation

Fee-for-service plans, 33, 37, 38, 39, 40, 119

Females, see Breast cancer; Cervical and uterine cancer; Gender factors

Food and Drug Administration, 6, 90

Foundation for Accountability (FACCT), 26, 36, 83, 85

Freedom of Information Act, 72

Funding, 6–7, 18, 37, 43, 89, 119

education and training, 23, 90, 119

National Program of Cancer Registries, 6, 7, 57, 61, 87, 88, 92–93

peer review organizations, 92

registries, 42, 57, 59, 88, 89

G

Gender factors, 33, 65, 132, 146

see also Breast cancer; Cervical and uterine cancer; Prostate cancer

Geographic factors, 9, 11, 15, 16, 46, 57, 59, 61, 65, 66, 77, 81, 82, 93, 115, 125, 135, 146

rural areas, 59, 138

urban areas, 33, 65, 133, 138

H

Healthcare Cost and Utilization Project, 44, 45

Health Care Financing Administration (HCFA), 6, 7, 63, 84–85, 88, 89, 92, 115, 125

case studies, 27, 32

linkage studies, 7, 38, 57

see also Medicaid; Medicare

Health insurance, 5, 9, 55, 69, 71, 77, 84, 86, 93, 117, 120

accreditation, 5–6, 27, 48, 68–69, 84, 116, 125–126

case studies, 20, 26–27, 28, 30–31, 33, 34, 55, 79

computer-based patient records, 53

fee-for-service plans, 33, 37, 38, 39, 40, 119

registries, linkage to, 37–38, 40–42, 45, 57–65(passim),

uninsured and underinsured persons, 11, 15, 120, 139

see also Employer-based health insurance; Managed care; Medicaid; Medicare

Health Insurance Portability and Accountability Act, 73, 74, 93

Health maintenance organizations, 33, 37, 38, 39, 42–43, 67, 68, 126

Healthy People 2010, 56, 66

HEDIS (Health Plan Employer Data Information Set), 48, 66–68, 89

Hospice care, see End-of-life care

Hospitals and hospitalization, 38, 44, 69, 125, 126

benchmarks, 9, 63

case studies, 21, 25, 33, 79

hospital-based data retrieval, 3, 5, 6, 89, 92, 133, 134, 138, 139, 140

registries, 20, 25, 34, 38, 56(n.5), 58, 60, 61, 65, 78, 79, 133, 134, 138, 139, 140

pain control, 21

see also Medical charts and records

I

IMSystem, 69, 70

Suggested Citation:"Index." Institute of Medicine and National Research Council. 2000. Enhancing Data Systems to Improve the Quality of Cancer Care. Washington, DC: The National Academies Press. doi: 10.17226/9970.
×

Independent Health Association, 30

Informed consent, 42, 45

Insurance, see Health insurance

International Association of Cancer Registries, 62

Internet, 2, 27, 48

Agency for Health Research and Quality (AHRQ), 85

computer-based patient records, 53

Healthcare Cost and Utilization Project, 44

HEDIS, 67

Joint Commission for the Accreditation of Healthcare Organizations , 68

National Center for Health Statistics, 44

National Forum for Health Care Quality Measurement and Reporting, 52

Quality Compass, 68

Quality Interagency Coordination Task Force, 49

SEER, 93

Intranets, 6, 14, 53, 90

J

Joint Commission for the Accreditation of Healthcare Organizations (JCAHO), 5–6, 33(n.1),

L

Legal issues, 124

informed consent, 42, 45

malpractice, 137

see also Privacy and confidentiality

Legislation

Cancer Registries Amendment Act, 57, 72

Electronic Communications Privacy Act, 73

Freedom of Information Act, 72

Health Insurance Portability and Accountability Act, 73, 74, 93

Privacy Act, 72

Linkage studies, 7, 37–39, 40–42, 45, 57–65 (passim),

Health Care Financing Administration (HCFA), 7, 38, 57

health insurance, 37–38, 40–42, 45, 57-65 (passim),

National Cancer Institute, 7, 34, 37–39

SEER, 7, 38–39, 41, 4–5, 57, 62–63, 87, 91, 92–93, 118

Local systems of care, 12, 16, 42, 46, 66–75, 92, 125

case studies, 20–22

see also Health insurance; Hospitals and hospitalization; Provider groups

Lung cancer, 21, 39, 44, 47, 49, 70, 81, 85, 120, 135

M

Males, see Gender factors; Prostate cancer

Malpractice, 137

Mammography, 28, 21, 43, 47, 51, 62–63, 66, 111, 112, 137

Managed care, 40, 42–43, 45, 48–49, 68, 80–81, 119, 126

benchmarks, 9

case studies, 26, 30

geographic variation, 15

National Committee for Quality Assurance (NCQA), 5, 48, 66–68, 83–84, 85, 86, 116

see also Health insurance; Health maintenance organizations

Medicaid, 69, 115, 139

Medical charts and records, 3, 5, 12, 40, 54–55, 78, 79, 80, 92, 112

case studies, 20, 23, 26, 28, 32–33, 34

see also Computer-based patient records; Privacy and confidentiality

Medical Expenditure Panel Survey, 43

Medicare, 32–33, 38, 39, 40, 43, 58, 69, 75, 87, 91, 93, 115, 118, 120, 125, 133, 135

Medication, 19, 23, 27, 40, 43, 63, 113, 120, 132, 133, 138, 140

see also Chemotherapy; Pain and pain control (palliative care)

MEDSTAT, 69

Men, see Gender factors; Prostate cancer

Minority groups, see Race/ethnicity

Suggested Citation:"Index." Institute of Medicine and National Research Council. 2000. Enhancing Data Systems to Improve the Quality of Cancer Care. Washington, DC: The National Academies Press. doi: 10.17226/9970.
×

Models and modeling, 6, 85

see also Case studies; Demonstration projects

N

National Ambulatory Medical Care Survey, 43

National Cancer Data Base (NCDB), 4, 6, 31, 55, 59–62 (passim),

National Cancer Institute (NCI), 23, 42, 45, 48, 71, 75, 83, 84, 87, 89, 91, 117

educational efforts, 7, 23

demonstration projects, 7

funding, 6, 7, 59

linkage studies, 7, 34, 37–39

registries, general, 4, 38, 39, 40, 41, 92

;

see also Surveillance, Epidemiology, and End Results (SEER) program

National Center for Health Statistics, 44, 59, 126

National Committee for Quality Assurance (NCQA), 5, 48, 66–68, 83–84, 85, 86, 116

National Comprehensive Cancer Network (NCCN), 26, 27, 30, 35, 81, 84

National Coordinating Council for Cancer Surveillance, 62

National Death Index, 57

National Forum for Health Care Quality Measurement and Reporting, 49, 52, 86

National Health Interview Survey, 43

National Home and Hospice Care Survey, 44

National Hospital Discharge Survey, 44

National Institutes of Health, 6, 90

see also National Cancer Institute

National Mortality Followback Survey, 44

National Program of Cancer Registries (NPCR), 4, 39, 55, 56-64(passim),

funding, 6, 7, 57, 61, 87, 88, 92–93

Nationwide Inpatient Sample, 44

Native Americans, see American Indians

North American Association of Central Cancer Registries, 56, 62, 146–147

O

Organizational factors, 1, 15, 112, 127

accreditation of health care organizations, 5–6, 27, 33(n.1), 68–69, 84, 116, 125–126

provider practice management, 19, 22, 34, 79, 80

research consortiums, 37, 42–43, 45, 93, 114

Outcome measures, 2, 12, 14, 41, 44, 47, 48, 110, 112, 118, 119, 121

case studies, 22, 23, 25, 26, 27

computer-based patient records, 46

registries, 37, 58

see also Quality of life; Survival rates and durations

Outpatient care, see Ambulatory care

P

Pain and pain control (palliative care), 2, 8, 12, 16, 44, 50, 51, 80, 110, 117

case studies, 21, 36

see also End-of-life care

Patient attitudes and beliefs, general, 48, 121

see also Patient satisfaction

Patient education, 49, 69, 71, 112, 116, 117

educational attainment of patients, 121

Patient records, see Computer-based patient records; Medical charts and records

Patient satisfaction, 13, 40–41, 67, 71, 80, 110, 115–116, 119

breast cancer patients, 25, 29, 51

case studies, 21, 25, 26, 29, 34

end-of-life care, 21

see also Quality of life

Patterns of care studies, 23–24, 81

Peer review organizations (PROs), 27, 32, 69, 92, 125

Performance standards, 1, 6, 48, 69, 78, 80, 85, 86, 94, 135

Suggested Citation:"Index." Institute of Medicine and National Research Council. 2000. Enhancing Data Systems to Improve the Quality of Cancer Care. Washington, DC: The National Academies Press. doi: 10.17226/9970.
×

case studies, 22, 27, 28–29, 36

see also Benchmarks; Outcome measures

Pharmaceuticals, see Medication

Political factors, 1

Population-based studies, 3, 12, 14–16, 45, 46, 55–63, 77, 81–82, 87, 88, 126, 142–145

cohort studies, 13, 15, 58

mammography, 63, 66

workshop agenda, 123–124

see also Demographic factors; National Cancer Data Base; National Program of Cancer Registries; Registries; Surveillance, Epidemiology, and End Results (SEER) program

Poverty, see Socioeconomic status

President's Advisory Commission on Consumer Protection and Quality in the Health Care Industry, 49, 86, 114

Preventive Services Task Force, 13

Privacy Act, 72

Privacy and confidentiality, 3, 4, 7, 12, 45, 46, 71–75, 77, 94

case studies, 27, 32–33

computer-based records, 4, 71, 73, 81, 93

legislation, 72, 73, 74, 93

registries, 71–72, 73, 74, 93, 124

state government, 73, 74–75, 92

Process standards, 12, 13, 37, 46, 48, 66, 77, 80, 112, 118

case studies, 23, 26

see also Benchmarks

Professional education and training, 1, 22, 23, 52, 59, 67, 90, 94, 110, 119

PROs,see Peer review organizations

Prostate cancer, 24, 31, 39, 41, 42, 45, 47, 49, 60, 85, 113, 133, 136

surgery, 45, 85, 133

Provider groups, 9, 16, 19–23, 25, 34

Public opinion, 109, 110

Q

Q-SPAN, 85

Quality Compass, 68

Quality Interagency Coordination Task Force, 49, 86

Quality-of-case measures, 2, 5, 40, 51, 61, 67, 77, 78, 83–86, 109, 111–118, 119–120, 124

adaptability, 3, 17

aggregate quality scores, 3, 12, 16, 17, 30, 46, 69, 71, 78

case studies, 21, 24–26, 34, 36, 79

core set, 5–6, 12–13, 36, 46, 47–52, 114–116

discrete populations, 16

lacking, 3, 19, 75, 80, 81, 83

risk-adjusted, 39

time-series analysis, 3, 13, 16, 23–24

workshop agenda, 123

see also Accountability;Benchmarks;Outcome measures;Performance standards;Process standards;Standards, general

Quality of life, 25, 27, 29, 41, 44, 45, 111

see also End-of-life care

R

Race/ethnicity, 11, 24, 33, 59, 60, 65, 120, 121, 132, 133, 136, 140, 146

African Americans, 59, 136

American Indians, 59

language factors, 67

Radiation therapy, 5, 24, 26, 40, 119, 133

American College of Radiology, 20, 23–24

breast cancer, 25, 26, 27, 28, 31, 33, 47, 89, 112, 133, 134, 136, 139

case studies, 23–24, 24, 25, 26, 27, 28, 31, 33

RAND, 91

Records,see Computer-based patient records;Medical charts and records;Privacy and confidentiality

Registries, 3, 5, 39–42, 61, 77, 78, 87–89, 91–92

administrative data and, 37–39

case studies, 20, 28, 29, 34

comorbidity, 58, 92, 135, 136, 140

computer-based patient records, 14, 53

diagnosis, 37–38, 40, 41, 42, 45, 92, 132–137

funding, 42, 57, 59, 88, 89

Suggested Citation:"Index." Institute of Medicine and National Research Council. 2000. Enhancing Data Systems to Improve the Quality of Cancer Care. Washington, DC: The National Academies Press. doi: 10.17226/9970.
×

health insurance records and, 37–38, 40–42, 45, 57–65 (passim),

hospital, 20, 25, 34, 38, 56(n.5),

linkage efforts, 7, 37–39, 40–42, 45, 57–65 (passim),

National Cancer Institute, general, 4, 38, 39, 40, 41, 92;

see also Surveillance, Epidemiology, and End Results (SEER) program

North American Association of Central

Cancer Registries, 56, 62, 146–147

outcome measures, 37, 58

privacy and confidentiality, 71–72, 73, 74, 93, 124

special studies, 37, 39, 41–42, 45, 87, 91–92

stage of cancer, 37, 40, 45, 58, 84, 92, 136, 139

standards, general, 39, 57, 59, 64, 146–147

state government role, 5, 6, 20, 32–33, 39, 40–42, 45, 56–60, 64–65, 72, 74–75, 84, 88, 91–93

indicators of data quality, by state, 142–146

individual state studies, 132–140

survival rates, 58, 65, 139, 140

workshop agenda, 123–124

see also National Cancer Data Base; National Program of Cancer Registries

Reporting requirements, 3, 6, 14, 15, 17, 53–55, 79, 112

aggregate quality scores, 3, 12, 16, 17, 30, 46, 69, 71, 78

comorbidity, standards, 6, 12, 14, 19, 54–55, 77, 84, 85–86, 87, 90

stage of cancer, standards, 3, 6, 12, 14, 19, 46, 53–54, 77, 84, 85–86, 90

standards, general, 3, 14, 39, 69, 75, 77, 79, 80

treatment, standards, 20, 46, 87

see also Computer-based patient records; Registries

Risk factors, 39, 42, 43, 49

smoking, 42, 43, 63, 117

Rural areas, 59, 138

S

Sampling, 15–16, 24, 41, 43, 44, 49, 83

Secondary (metastatic) cancer, 12, 53, 117

SEER, see Surveillance, Epidemiology, and End Results (SEER) program

Skin cancer, 41, 49, 53, 60

Smoking, 42, 43, 63, 117

Socioeconomic status, 15, 40, 65, 77, 119, 132, 133, 134, 140, 146

Medicaid, 69, 115, 139

Special studies, 6, 37, 39, 41–42, 45, 87, 91–92

Stage of cancer, 12, 15, 42, 43, 44, 50, 70, 113, 119

case studies, 19, 25, 26–27, 28, 33, 34

recently diagnosed patients, 1–2, 9, 15, 31, 42, 46, 76, 118, 119, 135

registry data, 37, 40, 45, 58, 84, 92, 136, 139

reporting standardized, 3, 6, 12, 14, 19, 46, 53–54, 77, 84, 85–86, 90

secondary (metastatic) cancer, 12, 53, 117

Standards, general, 13, 18, 21, 43, 73, 110

accreditation of health care organizations, 5–6, 27, 33(n.1),

accreditation of insurance organizations, 5–6, 27, 48, 68–69, 84, 116, 125–126

National Committee for Quality Assurance (NCQA), 5, 48, 66–68, 83–84, 85, 86, 116

accreditation of providers, 23, 27, 67, 116, 125–126

computer-based records, 13–14, 80–81

quality of life, 25, 27, 29, 41, 44, 45, 111

registries, 39, 57, 59, 64, 146–147

see also Benchmarks; Clinical practice guidelines; Outcome measures; Performance standards; Process standards; Quality-of-care measures; Reporting requirements

State government, 2, 4, 15, 16

Suggested Citation:"Index." Institute of Medicine and National Research Council. 2000. Enhancing Data Systems to Improve the Quality of Cancer Care. Washington, DC: The National Academies Press. doi: 10.17226/9970.
×

Medicaid, 69, 115

peer review organizations (PROs), 27, 32, 69, 92, 125

privacy and confidentiality, 73, 74–75, 92

registries, 5, 6, 20, 32–33, 39, 40–42, 45, 56–60, 64–65, 72, 74–75, 84, 88, 91–93

indicators of data quality, by state, 142–146

individual state studies, 132–140

see also National Cancer Data Base; National Program of Cancer Registries; Surveillance, Epidemiology, and End Results (SEER) program

State Inpatient Database, 44

Statistical analyses, 13, 15, 49, 136

aggregate quality scores, 3, 12, 16, 17, 30, 46, 69, 71, 78

case-control studies, 13

clinical trials, 12, 13, 41, 43, 47, 81, 111, 116, 117

cohort studies, 13, 15, 58

cross-sectional studies, 3, 12, 42, 46, 77

sampling, 15–16, 24, 41, 43, 44, 49, 83

time-series analysis, 3, 13, 16, 23–24

Supportive care, 9, 20, 43

Surgery, 44, 70, 113, 135, 142–143

breast cancer, 25, 26, 28, 30–31, 43, 44, 47, 50, 70, 81, 89, 112, 113, 132–140

colon cancer, 33, 44, 70

prostate cancer, 45, 85, 133

Surveillance, 118–119

see also National Cancer Data Base; National Program of Cancer Registries; Registries; Reporting requirements; Surveillance, Epidemiology, and End Results (SEER) program

Surveillance, Epidemiology, and End Results (SEER) program, 4, 6, 45, 55, 59–65 (passim),

linkage efforts, 7, 38–39, 41, 45, 57, 62–63, 87, 91, 92–93, 118

Survival rates and durations, 21, 23, 39, 40, 42, 55, 59, 111, 113, 119

breast cancer, 21, 26, 29, 139, 140

registries, 58, 65, 139, 140

Survivorship issues, 43, 44, 45, 116–117, 126

T

Technological innovations (adaptability), 3, 5, 12, 17, 46, 78

see also Computer-based patient records; Internet; Intranets

Telecommunications, 4

Intranets, 6, 14, 53, 90

see also Internet

Time-series analysis, 3, 13, 16

Patterns of care studies, 23–24

Tobacco use, see Smoking

Training, see Education and training

Treatment, 4–5, 9, 12, 40, 43, 44, 58, 85, 110, 111, 113, 118

breast cancer, 12, 20, 39, 50, 79, 132, 133, 134

case studies, 20, 21, 27, 79

clinical trials, 12, 13, 41, 43, 47, 81, 111, 116, 117

elderly persons, 121–122, 132, 135, 136, 139

provider groups, 20, 21

reporting standardized, 20, 46, 87

see also Adjuvant therapies; Chemotherapy; Medication; Pain and pain control (palliative care); Radiation therapy; Surgery

U

Uninsured and underinsured persons, 11, 15, 120, 139

Urban areas, 33, 65, 133, 138

V

Veterans Affairs, see Department of Veterans Affairs

W

Women, see Breast cancer; Cervical and uterine cancer; Gender factors

World Wide Web, see Internet

Suggested Citation:"Index." Institute of Medicine and National Research Council. 2000. Enhancing Data Systems to Improve the Quality of Cancer Care. Washington, DC: The National Academies Press. doi: 10.17226/9970.
×
Page 155
Suggested Citation:"Index." Institute of Medicine and National Research Council. 2000. Enhancing Data Systems to Improve the Quality of Cancer Care. Washington, DC: The National Academies Press. doi: 10.17226/9970.
×
Page 156
Suggested Citation:"Index." Institute of Medicine and National Research Council. 2000. Enhancing Data Systems to Improve the Quality of Cancer Care. Washington, DC: The National Academies Press. doi: 10.17226/9970.
×
Page 157
Suggested Citation:"Index." Institute of Medicine and National Research Council. 2000. Enhancing Data Systems to Improve the Quality of Cancer Care. Washington, DC: The National Academies Press. doi: 10.17226/9970.
×
Page 158
Suggested Citation:"Index." Institute of Medicine and National Research Council. 2000. Enhancing Data Systems to Improve the Quality of Cancer Care. Washington, DC: The National Academies Press. doi: 10.17226/9970.
×
Page 159
Suggested Citation:"Index." Institute of Medicine and National Research Council. 2000. Enhancing Data Systems to Improve the Quality of Cancer Care. Washington, DC: The National Academies Press. doi: 10.17226/9970.
×
Page 160
Suggested Citation:"Index." Institute of Medicine and National Research Council. 2000. Enhancing Data Systems to Improve the Quality of Cancer Care. Washington, DC: The National Academies Press. doi: 10.17226/9970.
×
Page 161
Suggested Citation:"Index." Institute of Medicine and National Research Council. 2000. Enhancing Data Systems to Improve the Quality of Cancer Care. Washington, DC: The National Academies Press. doi: 10.17226/9970.
×
Page 162
Suggested Citation:"Index." Institute of Medicine and National Research Council. 2000. Enhancing Data Systems to Improve the Quality of Cancer Care. Washington, DC: The National Academies Press. doi: 10.17226/9970.
×
Page 163
Enhancing Data Systems to Improve the Quality of Cancer Care Get This Book
×
Buy Paperback | $60.00 Buy Ebook | $47.99
MyNAP members save 10% online.
Login or Register to save!
Download Free PDF

One of the barriers to improving the quality of cancer care in the United States is the inadequacy of data systems. Out-of-date or incomplete information about the performance of doctors, hospitals, health plans, and public agencies makes it hard to gauge the quality of care. Augmenting today's data systems could start to fill the gap.

This report examines the strengths and weaknesses of current systems and makes recommendations for enhancing data systems to improve the quality of cancer care. The board's recommendations fall into three key areas:

  • Enhance key elements of the data system infrastructure (i.e., quality-of-care measures, cancer registries and databases, data collection technologies, and analytic capacity).
  • Expand support for analyses of quality of cancer care using existing data systems.
  • Monitor the effectiveness of data systems to promote quality improvement within health systems.
  1. ×

    Welcome to OpenBook!

    You're looking at OpenBook, NAP.edu's online reading room since 1999. Based on feedback from you, our users, we've made some improvements that make it easier than ever to read thousands of publications on our website.

    Do you want to take a quick tour of the OpenBook's features?

    No Thanks Take a Tour »
  2. ×

    Show this book's table of contents, where you can jump to any chapter by name.

    « Back Next »
  3. ×

    ...or use these buttons to go back to the previous chapter or skip to the next one.

    « Back Next »
  4. ×

    Jump up to the previous page or down to the next one. Also, you can type in a page number and press Enter to go directly to that page in the book.

    « Back Next »
  5. ×

    Switch between the Original Pages, where you can read the report as it appeared in print, and Text Pages for the web version, where you can highlight and search the text.

    « Back Next »
  6. ×

    To search the entire text of this book, type in your search term here and press Enter.

    « Back Next »
  7. ×

    Share a link to this book page on your preferred social network or via email.

    « Back Next »
  8. ×

    View our suggested citation for this chapter.

    « Back Next »
  9. ×

    Ready to take your reading offline? Click here to buy this book in print or download it as a free PDF, if available.

    « Back Next »
Stay Connected!