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Enhancing Data Systems to Improve the Quality of Cancer Care (2000)
Institute of Medicine (IOM)
 Commission on Life Sciences (CLS)

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. "Front Matter." Enhancing Data Systems to Improve the Quality of Cancer Care. Washington, DC: The National Academies Press, 2000.

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Enhancing DATA SYSTEMS to Improve the Quality of CANCER Care

 4

  

THE DATA INFRASTRUCTURE FOR HEALTH SERVICES RESEARCH

  

37
   

 Linkage of Cancer Registries to Administrative Data,

  

37
   

 Cancer Registries as a Sampling Frame for Special Studies,

  

39
   

 Developing Health Services Research Consortiums,

  

42
   

 Federal Health Surveys and Data,

  

43
   

 Summary,

  

45

 5

  

STATUS OF THE CANCER CARE DATA SYSTEM

  

46
   

 Well-Established Quality-of-Care Measures,

  

47
   

 Computer-Based Patient Records,

  

52
   

 Standard Reporting,

  

53
   

 National, Population-Based Case Selection,

  

55
   

 Established Benchmarks for Quality Improvement,

  

63
   

 Data Systems for Local Quality Assurance Purposes,

  

66
   

 Summary,

  

75

 6

  

FINDINGS AND RECOMMENDATIONS

  

76
   

 What Would the Ideal Cancer Care Data System Look Like?

  

77
   

 How Are Current Cancer Data Systems Meeting the Needs of Healthcare Systems?

  

78
   

 What Steps Can be Taken to Enhance Data Systems So That They Can Be Used to Monitor and Improve the Quality of Cancer Care?

  

82

 

  

REFERENCES

  

95

 

  

ACRONYMS AND ABBREVIATIONS

  

105

 

  

APPENDIXES

  

 A

  

Ensuring Quality Cancer Care, Report Summary,

  

109

 B

  

Workshop Agenda and Participants,

  

123

 C

  

Summary of Selected Registry-Based Quality Studies,

  

131

 D

  

Information on Cancer Registries, by State,

  

141

 E

  

Reporting Requirements, NPCR, NCDB, SEER,

  

148

 

  

INDEX

  

155
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