National Academies Press: OpenBook
« Previous: 5 Brainstorming on a Service Delivery Model for the Future
Suggested Citation:"6 Concluding Remarks." Institute of Medicine. 2009. Innovations in Service Delivery in the Age of Genomics: Workshop Summary. Washington, DC: The National Academies Press. doi: 10.17226/12601.
×
Page 51
Suggested Citation:"6 Concluding Remarks." Institute of Medicine. 2009. Innovations in Service Delivery in the Age of Genomics: Workshop Summary. Washington, DC: The National Academies Press. doi: 10.17226/12601.
×
Page 52

Below is the uncorrected machine-read text of this chapter, intended to provide our own search engines and external engines with highly rich, chapter-representative searchable text of each book. Because it is UNCORRECTED material, please consider the following text as a useful but insufficient proxy for the authoritative book pages.

6 Concluding Remarks Wylie Burke, M.D., Ph.D. Catherine Wicklund, M.S., C.G.C. Burke and Wicklund were asked to list the main themes they had heard throughout the day’s discussions. Burke remarked that she noted five main themes: 1. The issues for genomic translation are embedded in issues for trans- lation and health in general in our system. The problems that exist in the system are inescapably part of genomic translation. 2. Innovation should be supported, and technology can help reduce cost and increase patient convenience, but it should never entirely replace the opportunity for doctors and patients to interact. 3. There is a lack of robust methods for collecting and assessing data on innovative services in order to determine which ones are ben- eficial and which are not. 4. There is a potential need for a public–private partnership to gener- ate data, particularly data from health systems with large popula- tions in electronic databases (e.g., Veterans Administration). 5. Health technology assessments need to be deliberative processes that are prospective in nature. Wicklund observed that discussion seemed to center around five dif- ferent tensions: 1. “First, do no harm” versus encouraging innovation 2. Gathering data versus moving forward with “enough” data 3. Information technology versus the human element of medicine 51

52 INNOVATIONS IN SERVICE DELIVERY IN THE AGE OF GENOMICS 4. Providing services that are appropriate versus providing services that are reimbursable 5. Providing access to genomic services to those who can afford them now versus the potential to exacerbate disparities As a final point, one participant suggested that rather than trying to collect data on patients during their physician visits, genomics researchers might try to find a Framingham of their own to study an entire population over many years. She posited that many people in this nation would volun- teer for such an endeavor. She noted that “the perfect is the enemy of the good” and cautioned against doing nothing for fear of not fixing the system entirely. She encouraged the Roundtable members to do what they can do, rather than what they should do—at least they will have done something. The meeting was adjourned.

Next: References »
Innovations in Service Delivery in the Age of Genomics: Workshop Summary Get This Book
×
Buy Paperback | $29.00 Buy Ebook | $23.99
MyNAP members save 10% online.
Login or Register to save!
Download Free PDF

New discoveries in genomics--that is, the study of the entire human genome--are changing how we diagnose and treat diseases. As the trend shifts from genetic testing largely being undertaken for rare genetic disorders to, increasingly, individuals being screened for common diseases, general practitioners, pediatricians, obstetricians/gynecologists, and other providers need to be knowledgeable about and comfortable using genetic information to improve their patients' health. To address these changes, the Roundtable on Translating Genomic-Based Research for Health held the public workshop "Innovations in Service Delivery in the Age of Genomics" on July 27, 2008.

  1. ×

    Welcome to OpenBook!

    You're looking at OpenBook, NAP.edu's online reading room since 1999. Based on feedback from you, our users, we've made some improvements that make it easier than ever to read thousands of publications on our website.

    Do you want to take a quick tour of the OpenBook's features?

    No Thanks Take a Tour »
  2. ×

    Show this book's table of contents, where you can jump to any chapter by name.

    « Back Next »
  3. ×

    ...or use these buttons to go back to the previous chapter or skip to the next one.

    « Back Next »
  4. ×

    Jump up to the previous page or down to the next one. Also, you can type in a page number and press Enter to go directly to that page in the book.

    « Back Next »
  5. ×

    To search the entire text of this book, type in your search term here and press Enter.

    « Back Next »
  6. ×

    Share a link to this book page on your preferred social network or via email.

    « Back Next »
  7. ×

    View our suggested citation for this chapter.

    « Back Next »
  8. ×

    Ready to take your reading offline? Click here to buy this book in print or download it as a free PDF, if available.

    « Back Next »
Stay Connected!