Newborn screening samples are used to test more than 4 million infants each year for life-threatening diseases that are treatable if found at birth. These specimens also represent a potentially invaluable resource for public health and biomedical research. The IOM held a workshop to examine issues surrounding the use of residual specimens for translational research.
Table of Contents
|2 Newborn Screening as a Public Health Program||5-8|
|3 Uses of Residual Newborn Screening Samples in Research||9-18|
|4 Concerns About the Use of Residual Newborn Screening Samples||19-30|
|5 Review and Consent in the Use of Residual Newborn Screening Samples||31-44|
|6 Parental and Public Education||45-50|
|7 Workshop Overview and Wrap-Up||51-54|
|Appendix A: Workshop Agenda||57-60|
|Appendix B: Speaker Biographical Sketches||61-68|
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