The inclusion of genomic data in a knowledge-generating health care system infrastructure is one promising way to harness the full potential of that information to provide better patient care. In such a system, clinical practice and research influence each other with the goal of improving the efficiency and effectiveness of disease prevention, diagnosis, and treatment. To examine pragmatic approaches to incorporating genomics in learning health care systems, the Institute of Medicine Roundtable on Translating Genomic-Based Research for Health hosted a workshop which convened a variety of stakeholder groups, including commercial developers, health information technology professionals, clinical providers, academic researchers, patient groups, and government and health system representatives, to present their perspectives and participate in discussions on maximizing the value that can be obtained from genomic information. The workshop examined how a variety of systems are capturing and making use of genomic data to generate knowledge for advancing health care in the 21st century. It also sought to evaluate the challenges, opportunities, and best practices for capturing or using genomic information in knowledge-generating health care systems. Genomics-Enabled Learning Health Care Systems summarizes the presentations and discussion of the workshop.
Table of Contents |
skim chapter | |
---|---|---|
Front Matter | i-xx | |
1 Introduction and Themes of the Workshop | 1-8 | |
2 Advancing Patient Care and Research with Genomic Information | 9-18 | |
3 Translation of Genomics for Patient Care and Research | 19-36 | |
4 Genomics and the EHR in a Learning Health Care System | 37-46 | |
5 Representing Genomic Information in the EHR Ecosystem | 47-52 | |
6 Possible Next Steps | 53-60 | |
References | 61-64 | |
Appendix A: Workshop Agenda | 65-72 | |
Appendix B: Speaker Biographical Sketches | 73-86 | |
Appendix C: Statement of Task | 87-88 | |
Appendix D: Registered Attendees | 89-96 |
The National Academies Press and the Transportation Research Board have partnered with Copyright Clearance Center to offer a variety of options for reusing our content. You may request permission to:
For most Academic and Educational uses no royalties will be charged although you are required to obtain a license and comply with the license terms and conditions.
For information on how to request permission to translate our work and for any other rights related query please click here.
For questions about using the Copyright.com service, please contact:
Copyright Clearance Center
22 Rosewood Drive
Danvers, MA 01923
Tel (toll free): 855/239-3415 (select option 1)
E-mail: info@copyright.com
Web: https://www.copyright.com
Loading stats for Genomics-Enabled Learning Health Care Systems: Gathering and Using Genomic Information to Improve Patient Care and Research: Workshop Summary...