Biomedical research results in the collection and storage of increasingly large and complex data sets. Preserving those data so that they are discoverable, accessible, and interpretable accelerates scientific discovery and improves health outcomes, but requires that researchers, data curators, and data archivists consider the long-term disposition of data and the costs of preserving, archiving, and promoting access to them.
Life Cycle Decisions for Biomedical Data examines and assesses approaches and considerations for forecasting costs for preserving, archiving, and promoting access to biomedical research data. This report provides a comprehensive conceptual framework for cost-effective decision making that encourages data accessibility and reuse for researchers, data managers, data archivists, data scientists, and institutions that support platforms that enable biomedical research data preservation, discoverability, and use.
Table of Contents
|2 Framework Foundation: Data States and Associated Activities||26-35|
|3 Cost and the Value of Data||36-47|
|4 The Cost-Forecasting Framework: Identifying Cost Drivers in the Biomedical Data Life Cycle||48-82|
|5 Applying the Framework to a New State 2 Data Resource||83-104|
|6 Applying the Framework to a New Data Set||105-117|
|7 Potential Disruptors to Forecasting Costs||118-128|
|8 Fostering the Data Management Environment||129-136|
|Appendix A: Meetings and Presentations||139-145|
|Appendix B: Active Data Management Plans as a Planning Tool||146-148|
|Appendix C: Identifying Salary Ranges for Jobs Relevant to the Data Life Cycle||149-158|
|Appendix D: Soft Costs for Digital Preservation||159-161|
|Appendix E: Template to Map Cost Drivers to Data Resource Properties||162-168|
|Appendix F: Comparison of the Contents Across the Three Data States||169-173|
|Appendix G: Committee Biographical Information||174-179|
|Appendix H: Acronyms||180-182|
The National Academies Press and the Transportation Research Board have partnered with Copyright Clearance Center to offer a variety of options for reusing our content. You may request permission to:
For most Academic and Educational uses no royalties will be charged although you are required to obtain a license and comply with the license terms and conditions.
For information on how to request permission to translate our work and for any other rights related query please click here.
For questions about using the Copyright.com service, please contact:
Copyright Clearance Center
22 Rosewood Drive
Danvers, MA 01923
Tel (toll free): 855/239-3415 (select option 1)
Loading stats for Life Cycle Decisions for Biomedical Data: The Challenge of Forecasting Costs...