National Academies Press: OpenBook

Multiple Sclerosis: Current Status and Strategies for the Future (2001)

Chapter: Appendix C: Workshop Agendas

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Suggested Citation:"Appendix C: Workshop Agendas." Institute of Medicine. 2001. Multiple Sclerosis: Current Status and Strategies for the Future. Washington, DC: The National Academies Press. doi: 10.17226/10031.
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Page 379

Appendix C

Workshop Agendas

Workshop on New Prospects and Perspectives on MS Research

November 17-18, 1999
NAS Green Building and Holiday Inn Georgetown
Washington, D.C.

Agenda

Wednesday, November 17

6:00 pm

Henry McFarland

NIH, NINDS

Clinical Picture of MS, including use of imaging in diagnosis and research

7:00 pm

DINNER

Thursday, November 18

8:30 am

Continental breakfast

9:00-9:10 am

Richard Johnston, Chair

National Jewish Medical & Research Center

Introduction

Frontiers In Imaging

9:10-9:25 am

Chien Ho

Carnegie Mellon University

Tracking Immune Cell Migration Through Imaging

Suggested Citation:"Appendix C: Workshop Agendas." Institute of Medicine. 2001. Multiple Sclerosis: Current Status and Strategies for the Future. Washington, DC: The National Academies Press. doi: 10.17226/10031.
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Page 380

9:40-9:55 am

Scott Fraser

California Inst. Technology

In Vivo Imaging Of Neuronal Development

10:10-10:40 am

General Discussion of Imaging

10:40-11:00 am

BREAK

Risk Factors and Genetic Tools for Research

11:00-11:15 am

Michael Conneally

Indiana University

Identification Of Risk Factors For MS

11:30-11:45 am

John Roder

Mt. Sinai, Univ. Toronto

Inducible Gene Expression In The Nervous System

12:00-12:15 pm

Larry Steinman

Stanford University

Analysis Of Gene Expression Using Microarray Technology

12:30-1:15pm

LUNCH

1: 15-1:45 pm

General Discussion of Genetic Tools

Experimental Therapeutics and Potential Therapeutic Targets

1:45-2:00 pm

Rhona Mirsky

University College, London

Influence Of Schwann Cells On Neural Development And Repair

2: 20-2:40 pm

BREAK

2:40-2:55 pm

Marc Peschanski

INSERM, France

Cell And Gene Therapy For Neurodegenerative Diseases

3:10-3:25 pm

Larry Steinman

Stanford University

Gene Therapy Of Demyelinating Disease

3:40-4:10 pm

General Discussion of Gene Therapy

4:10-5:30 pm

REFRESHMENTS

4:30-4:50 pm

Elliott Kieff

Harvard University

Reflection on the day's discussion through the lens of another field

4:50-5:30 pm

General Discussion

6:30 pm

DINNER

Suggested Citation:"Appendix C: Workshop Agendas." Institute of Medicine. 2001. Multiple Sclerosis: Current Status and Strategies for the Future. Washington, DC: The National Academies Press. doi: 10.17226/10031.
×

Page 381

Workshop on Therapeutic Frontiers: Exploring the Options in MS Research

January 14, 2000
Hyatt Regency
Denver, Colorado

Agenda

Friday January 14

9:00-9:30 am

Continental breakfast

9:30-9:35 am

Richard Johnston, Chair

National Jewish Medical & Research Center

Introduction

9:35-10:15 am

Ole Isacson

Harvard University

Cellular Transplantation in Neurological Disease

10:15-10:30 am

BREAK

10:30-11:15 am

Jeffery Kocsis

Yale University

Neuropharmacological Approaches

11:15-12:00 pm

Joy Snider and Dennis Choi

Washington University, St. Louis

Neuroprotective Strategies

12:00-12:45 pm

LUNCH

12:45-1:30 pm

Jay Siegel

U.S. Food and Drug Administration

FDA Perspectives on Clinical Trials in MS

1:30-2:30 pm

General Discussion

2:30 pm

ADJOURN

Suggested Citation:"Appendix C: Workshop Agendas." Institute of Medicine. 2001. Multiple Sclerosis: Current Status and Strategies for the Future. Washington, DC: The National Academies Press. doi: 10.17226/10031.
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Page 382

Workshop on Quality of Life

February 23-24, 2000
National Academy of Sciences Building
Washington, D.C.

Agenda

Wednesday, February 23

9:30-10:15 am

Michael Weinrich

NIH, NICHD, National Center for Rehabilitation Research

Rehabilitation Research Strategies

10:15 am

BREAK

10:30-11:15 am

Barbara Vickrey

UCLA

Measuring the Quality of Life

11:15 am - 12:00 pm

Deborah Miller

Cleveland Clinic and Chair, MS Clinical Care Guidelines Committee

The Development and Role of Clinical Care Guidelines

12:00 pm

LUNCH

Thursday, February 24

11:15 am - 12:00 pm

Mindy Aisen

Rehabilitation Research and Development Service, Department of Veterans Affairs

Research to Maximize Function in MS Patients: Rehabilitation and Beyond

Suggested Citation:"Appendix C: Workshop Agendas." Institute of Medicine. 2001. Multiple Sclerosis: Current Status and Strategies for the Future. Washington, DC: The National Academies Press. doi: 10.17226/10031.
×

Page 383

Individuals That Spoke with the Committee About Meeting Patient Needs

January 13, 2000
Hyatt Regency
Denver, Colorado

BRIAN HUTCHINSON

Executive Vice President and Director of Medical Programs at the Jimmie Heuga Center, which provides medical and educational programs for people with MS

PAT KENNEDY

Nurse Practitioner, Rocky Mountain MS Center

CHARLOTTE ROBINSON

Director of Adventures Within, which provides outdoor experience and confidence-building challenges for individuals with MS

ERIC SIMONS

Consultant and Lecturer on living with MS for Berlex Laboratories, Inc, a subsidiary of Schering AG, Germany

PAM SORENSEN

Speech Language Pathologist and President of the Consortium of MS Centers

Suggested Citation:"Appendix C: Workshop Agendas." Institute of Medicine. 2001. Multiple Sclerosis: Current Status and Strategies for the Future. Washington, DC: The National Academies Press. doi: 10.17226/10031.
×

Page 384

Suggested Citation:"Appendix C: Workshop Agendas." Institute of Medicine. 2001. Multiple Sclerosis: Current Status and Strategies for the Future. Washington, DC: The National Academies Press. doi: 10.17226/10031.
×
Page 379
Suggested Citation:"Appendix C: Workshop Agendas." Institute of Medicine. 2001. Multiple Sclerosis: Current Status and Strategies for the Future. Washington, DC: The National Academies Press. doi: 10.17226/10031.
×
Page 380
Suggested Citation:"Appendix C: Workshop Agendas." Institute of Medicine. 2001. Multiple Sclerosis: Current Status and Strategies for the Future. Washington, DC: The National Academies Press. doi: 10.17226/10031.
×
Page 381
Suggested Citation:"Appendix C: Workshop Agendas." Institute of Medicine. 2001. Multiple Sclerosis: Current Status and Strategies for the Future. Washington, DC: The National Academies Press. doi: 10.17226/10031.
×
Page 382
Suggested Citation:"Appendix C: Workshop Agendas." Institute of Medicine. 2001. Multiple Sclerosis: Current Status and Strategies for the Future. Washington, DC: The National Academies Press. doi: 10.17226/10031.
×
Page 383
Suggested Citation:"Appendix C: Workshop Agendas." Institute of Medicine. 2001. Multiple Sclerosis: Current Status and Strategies for the Future. Washington, DC: The National Academies Press. doi: 10.17226/10031.
×
Page 384
Next: Appendix D: Kurtze's Expanded Disability Status Scale »
Multiple Sclerosis: Current Status and Strategies for the Future Get This Book
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Multiple sclerosis is a chronic and often disabling disease of the nervous system, affecting about 1 million people worldwide. Even though it has been known for over a hundred years, no cause or cure has yet been discovered-but now there is hope. New therapies have been shown to slow the disease progress in some patients, and the pace of discoveries about the cellular machinery of the brain and spinal cord has accelerated.

This book presents a comprehensive overview of multiple sclerosis today, as researchers seek to understand its processes, develop therapies that will slow or halt the disease and perhaps repair damage, offer relief for specific symptoms, and improve the abilities of MS patients to function in their daily lives.

The panel reviews existing knowledge and identifies key research questions, focusing on:

  • Research strategies that have the greatest potential to understand the bio- logical mechanisms of recovery and to translate findings into specific strategies for therapy.
  • How people adapt to MS and the research needed to improve the lives of people with MS.
  • Management of disease symptoms (cognitive impairment, depression, spasticity, vision problems, and others).

The committee also discusses ways to build and financially support the MS research enterprise, including a look at challenges inherent in designing clinical trials. This book will be important to MS researchers, research funders, health care advocates for MS research and treatment, and interested patients and their families.

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