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Suggested Citation:"Appendix: Workshop Materials." National Research Council. 2001. Toward a Health Statistics System for the 21st Century: Summary of a Workshop. Washington, DC: The National Academies Press. doi: 10.17226/10171.
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Appendix: Workshop Materials

AGENDA

THURSDAY, NOVEMBER 4, 1999

8:30 a.m.

WELCOME/INTRODUCTIONS/GOALS OF THE WORKSHOP

Edward Perrin, University of Washington, Workshop Chair

Margaret Hamburg, Assistant Secretary for Planning and Evaluation, DHHS, and Co-chair, DHHS Data Council

Edward Sondik, Director, National Center for Health Statistics and DHHS Statistical Advisor

8:45–9:30 a.m.

OVERVIEW PAPER/PRESENTATION

8:45 a.m.

Health Statistics: Past, Present, and Future

Presenter: Dorothy Rice, University of California, San Francisco

This session will provide an overview and historical perspective on the elements of the nation’s health statistics system.

• Who has used health statistics, and what have their information needs been?

• How do the various producers of health data

Suggested Citation:"Appendix: Workshop Materials." National Research Council. 2001. Toward a Health Statistics System for the 21st Century: Summary of a Workshop. Washington, DC: The National Academies Press. doi: 10.17226/10171.
×

 

and statistics collectively comprise the nation’s health statistics system?

• What have been some of the main challenges (technical, operational, resources, etc.) in producing health statistics? Have health statistics been fully utilized? Have they been responsive to information needs? What efforts have been made to deal with limitations in the health statistics system? How successful have they been?

9:10 a.m.

Comments from invited discussant

Janet Norwood, former U.S. Commissioner of Labor Statistics

9:20 a.m.

Questions/Discussion

9:30–11:45 a.m.

BACKGROUND PAPERS/PRESENTATIONS

9:30 a.m.

Health Statistics Systems in Other Countries

Jennifer Zelmer, Canadian Institute for Health Information

This presentation will be based on a paper comparing how different countries organize their health statistics systems. The focus will be on Canada, Australia, and the United Kingdom. The paper will identify common models, trends, and future directions in the evolution of the vision for and management of national health statistics in these countries. (NCVHS commissioned paper)

9:45 a.m.

From National Health Statistics to Health Information Systems

Charlyn Black, University of Manitoba

This presentation will be based on a paper discussing key assumptions and critical components of a health information system; outlines the importance of being able to make

Suggested Citation:"Appendix: Workshop Materials." National Research Council. 2001. Toward a Health Statistics System for the 21st Century: Summary of a Workshop. Washington, DC: The National Academies Press. doi: 10.17226/10171.
×

 

links across key areas and to examine various types and levels of investment in medical care for different populations; describes the Manitoba experience with the POPULIS system; and discusses possibilities for developing such systems in the future. (NCVHS commissioned paper)

10:00 a.m.

Discussion

10:30–10:45 a.m.

Break

10:45 a.m.

The Numbers We Need: Health Statistics and Health Policy

Richard Kronick, University of California at San Diego

This presentation will focus on the health statistics needed for improving health policy, emphasizing the financing and delivery of care to the uninsured, and policy concerning managed care. The need for timely and detailed measurement of health-related quality of life will be considered. (NCVHS commissioned paper)

11:00a.m.

The Children’s Health Insurance Program and Other Efforts to Respond to Children’s Health Needs

Lorraine Klerman, University of Alabama at Birmingham

This presentation will use the State Children’s Health Insurance Program (SCHIP) to illustrate the role health statistics played in determining a need for SCHIP and developing its provisions. Also discussed will be the health statistics that policy makers at the state and federal levels believe will be essential to demonstrate the impact of SCHIP. The need for additional statistics about children’s health status and use of services will be considered. (NCVHS commissioned paper)

Suggested Citation:"Appendix: Workshop Materials." National Research Council. 2001. Toward a Health Statistics System for the 21st Century: Summary of a Workshop. Washington, DC: The National Academies Press. doi: 10.17226/10171.
×

11:15 a.m.

Discussion

11:45 a.m.–1:00p.m.

Lunch

1:00–5:00 p.m.

DEVELOPMENTS SHAPING FUTURE NEEDS FOR HEALTH STATISTICS

Moderator: Edward Perrin, Workshop Chair

In each session, these 15-minute presentations will highlight new developments, changing priorities, newly emerging concerns, and specific opportunities and challenges for the health statistics system in the 21st century. The presentations are intended to combine a “visionary” consideration of these issues with observations on how current research or operational experience relates to these views of the future.

1:00 p.m.

Health Status and the Determinants of Health

• Population-based assessments of health status, surveillance of illness, assessing well-being (positive health, psychosocial aspects of health, physical environment)

Presentations:

Determinants of health: Clyde Hertzman, University of British Columbia

Positive health: Burton Singer, Princeton University

Disease and risk factor surveillance: David Fleming, Oregon Health Division

Health status assessment/instruments: Robert Kaplan, University of California at San Diego

2:00 p.m.

Discussion

Suggested Citation:"Appendix: Workshop Materials." National Research Council. 2001. Toward a Health Statistics System for the 21st Century: Summary of a Workshop. Washington, DC: The National Academies Press. doi: 10.17226/10171.
×

2:20 p.m.

Organization, Delivery, and Financing of Health Services

• Supporting the management and analysis of the organization, delivery, and financing of personal and population-based health services and their relationship to health status and health outcomes

Presentations:

Health economics: Joseph Newhouse, Harvard University

Health system change: Merwyn Greenlick, Oregon Health Sciences University

Proprietary databases: Jacqueline Kosecoff, Protocarey Inc.

3:20 p.m.

Discussion

3:40–4:00 p.m.

Break

4:00 p.m.

The Data Policy and Technology Environment

• Innovations in information technology for collecting, analyzing, and disseminating health data; issues of privacy, confidentiality, and security of health data

Presentations:

Survey methods: Sandra Berry, RAND

Information technologies: William Eddy, Carnegie Mellon University

Data policy issues: John Eisenberg, Agency for Healthcare Research and Quality

Privacy and confidentiality issues: George Duncan, Carnegie Mellon University

5:00 p.m.

Discussion

5:20 p.m.

ADJOURN

Suggested Citation:"Appendix: Workshop Materials." National Research Council. 2001. Toward a Health Statistics System for the 21st Century: Summary of a Workshop. Washington, DC: The National Academies Press. doi: 10.17226/10171.
×

FRIDAY, NOVEMBER 5, 1999

8:15–9:45 a.m.

PANEL DISCUSSION

Changing Roles and Responsibilities in the Health Statistics System

Moderator: Edward Perrin, Workshop Chair

This panel will bring together panelists from several segments of the health statistics system to address priorities for

• changes in the health statistics system to meet new and continuing information needs and to respond to changing roles and responsibilities;

• research to respond to changing needs in the health statistics system.

Panelists will be asked to present for discussion specific proposals regarding steps that might be taken to meet evolving needs for health statistics. Panelists should consider needs/requirements of users and producers of health statistics and should draw on the background papers, the previous day’s discussions, and their own experiences in framing their proposals.

The moderator will guide the discussion toward specific conclusions that can contribute to framing an overall agenda for steps to ready the health statistics system for the 21 st century.

Panelists (from federal, state, local, and private sectors)

Edward Sondik, Director, National Center for Health Statistics, and DHHS Statistical Advisor

John Lumpkin, Illinois Department of Public Health

Suggested Citation:"Appendix: Workshop Materials." National Research Council. 2001. Toward a Health Statistics System for the 21st Century: Summary of a Workshop. Washington, DC: The National Academies Press. doi: 10.17226/10171.
×

 

Kenneth Thorpe, Rollins School of Public Health, Emory University

Eileen Peterson, United Health Group

9:45–10:00 a.m.

Break

10:00 a.m.–1:15 p.m.

WRAP-UP SESSION

Developing an Agenda for the Health Statistics System in the 21st Century

Moderator: Edward Perrin, Workshop Chair

10:00–10:15 a.m.

Reviewing the Issues

Presenter: Miron Straf, Director (on leave), Committee on National Statistics

This session will provide a brief overview of the key issues covered during the workshop sessions, setting the stage for discussion of opportunities for change and research needs.

10:15–11:15 a.m.

Comments from Invited Discussants

Invited discussants will reflect on implications of emerging health data needs for the health statistics system (15 minutes each).

Discussants:

Dorothy Rice, University of California, San Francisco

Richard Kronick, University of California at San Diego

Daniel Friedman, Massachusetts Department of Public Health

Michael Wolfson, Statistics Canada

11:15–1:15 p.m.

Identifying Opportunities for Change and Research Needs

Discussion by all workshop participants to outline

• an agenda for key changes to respond to needs across the health statistics system

Suggested Citation:"Appendix: Workshop Materials." National Research Council. 2001. Toward a Health Statistics System for the 21st Century: Summary of a Workshop. Washington, DC: The National Academies Press. doi: 10.17226/10171.
×

 

• a research agenda to respond to needs across the health statistics system

• priorities for HHS and its agencies engaged in health statistics activities

1:15 p.m.

ADJOURN

Suggested Citation:"Appendix: Workshop Materials." National Research Council. 2001. Toward a Health Statistics System for the 21st Century: Summary of a Workshop. Washington, DC: The National Academies Press. doi: 10.17226/10171.
×

PAPERS PRESENTED

The workshop papers were commissioned by the U.S. National Committee on Vital and Health Statistics (NCVHS). They are available at: <http://www.ncvhs.hhs.gov/hsvision/visiondocuments.html>.

“Recent Developments in Health Information: An International Perspective,” Jennifer Zelmer, Shazeen Virani, and Richard Alvarez, Canadian Institute for Health Information.

“From Health Statistics to Health Information Systems: A New Path for The 21st Century,” Charlyn Black, Noralou Roos, and Leslie Roos, University of Manitoba.

“Numbers We Need: Health Statistics and Health Policy,” Richard Kronick, Department of Family and Preventive Medicine, University of California, San Diego.

“The State Children’s Health Insurance Program: A Case Study,” with additional material on data needs in the area of child health, Lorraine V.Klerman, Department of Maternal and Child Health, School of Public Health, University of Alabama at Birmingham.

“Building Robust Statistical Systems for Health,” Daniel Melnick, Dan Melnick Research, Inc.

Suggested Citation:"Appendix: Workshop Materials." National Research Council. 2001. Toward a Health Statistics System for the 21st Century: Summary of a Workshop. Washington, DC: The National Academies Press. doi: 10.17226/10171.
×

PARTICIPANTS

Presenters and Discussants

Edward B.Perrin (Workshop Chair), University of Washington, and Member, Committee on National Statistics

Sandra H.Berry, RAND, Santa Monica, California

Charlyn Black, University of Manitoba

George Duncan, Carnegie Mellon University

William F.Eddy, Carnegie Mellon University, and Member, Committee on National Statistics

John M.Eisenberg, Agency for Healthcare Research and Quality, U.S. Department of Health and Human Services

David W.Fleming, Oregon Health Division

Daniel J.Friedman, Massachusetts Department of Public Health

Merwyn R.Greenlick, Oregon Health Sciences University

Margaret Hamburg, U.S. Department of Health and Human Services

Clyde Hertzman, University of British Columbia

Robert M.Kaplan, University of California at San Diego

Lorraine V.Klerman, University of Alabama, Birmingham

Jacqueline Kosecoff, Protocare Inc., Santa Monica, California

Richard Kronick, University of California, San Diego

John R.Lumpkin, Illinois Department of Public Health

Joseph P.Newhouse, Harvard University

Janet L.Norwood, former U.S. Commissioner of Labor Statistics

Eileen Peterson, Center for Health Care Policy and Evaluation, United Health Group

Alonzo Plough,* Seattle-King County Health Department

Dorothy P.Rice, School of Nursing, University of California, San Francisco

Burton H.Singer, Office of Population Research, Princeton University

Edward Sondik, National Center for Health Statistics, U.S. Department of Health and Human Services

Kenneth E.Thorpe, Rollins School of Public Health, Emory University

Michael C.Wolfson, Statistics Canada

Jennifer Zelmer, Canadian Institute for Health Information

*  

Unable to attend workshop, but graciously sent presentation materials that were distributed and discussed among workshop particpants.

Suggested Citation:"Appendix: Workshop Materials." National Research Council. 2001. Toward a Health Statistics System for the 21st Century: Summary of a Workshop. Washington, DC: The National Academies Press. doi: 10.17226/10171.
×

Invited Guests

Ross Arnett, Agency for Health Care Policy and Research

Ruth Berkelman, Centers for Disease Control and Prevention, U.S. Department of Health and Human Services

Linda Blankenbaker, National Center for Health Statistics, U.S. Department of Health and Human Services

James Bost, National Committee for Quality Assurance

Lisa Broitman, National Center for Health Statistics, U.S. Department of Health and Human Services

Claire Broome, Centers for Disease Control and Prevention, U.S. Department of Health and Human Services

Brett Brown, Child Trends, Inc.

Olivia Carter-Pokras, Division of Policy and Data, Office of Minority Health, National Institutes of Health, U.S. Department of Health and Human Services

Kathryn Coltin, Harvard Pilgrim Health Care

Linda K.Demlo, National Center for Health Statistics, U.S. Department of Health and Human Services

John Drabok, U.S. Department of Health and Human Services

Rachel Duguay, The Lewin Group

J.Michael Fitzmaurice, Agency for Healthcare Research and Quality, U.S. Department of Health and Human Services

Manning Feinleib, Johns Hopkins School of Public Health

Daniel J.Friedman, Bureau of Health Statistics, Research and Evaluation, U.S. Department of Health and Human Services

Dan Gaylin, U.S. Department of Health and Human Services

Marsha Gold, Mathematica Policy Research

Marthe Gold, City University of New York Medical School

Donald Goldstone, Substance Abuse and Mental Health Services Administration, U.S. Department of Health and Human Services

Marjorie S.Greenberg, National Center for Health Statistics, U.S. Department of Health and Human Services

Jan Heinrich, U.S. General Accounting Office

Gerry Hendershot, National Center for Health Statistics, U.S. Department of Health and Human Services

Betsy L.Humphreys, National Library of Medicine, U.S. Department of Health and Human Services

Suggested Citation:"Appendix: Workshop Materials." National Research Council. 2001. Toward a Health Statistics System for the 21st Century: Summary of a Workshop. Washington, DC: The National Academies Press. doi: 10.17226/10171.
×

Edward Hunter, National Center for Health Statistics, U.S. Department of Health and Human Services

William Hven, The Lewin Group

Raynard Kington, National Center for Health Statistics, U.S. Department of Health and Human Services

Mary Grace Kovar, National Opinion Research Center, Washington, DC

Andrew Kram, National Committee on Vital and Health Statistics

Thomas Louis, RAND, Arlington, VA, and Member, Committee on National Statistics

Jennifer Madans, National Center for Health Statistics, U.S. Department of Health and Human Services

Daniel Melnick, Dan Melnick Research, Inc.

Michael Millman, U.S. Department of Health and Human Services

Leyla Mohadjer, Westat, Rockville, MD

Robert S.Murphy, Westat, Rockville, MD

Paul Newacheck, University of California, San Francisco

Roy Gibson Parrish, Centers for Disease Control and Prevention, Atlanta

Steve Perente, University of Minnesota

Mark Rothstein, National Committee on Vital and Health Statistics

Patricia Ruggles, U.S. Department of Health and Human Services

James Scanlon, U.S. Department of Health and Human Services

Susan Schechter, U.S. Office of Management and Budget

Paul Scheible, National Compensation Survey

Elliot M.Stone, Massachusetts Health Data Consortium, Inc.

Michael Stoto, The George Washington University

Daniel Waldo, Health Care Financing Administration, U.S. Department of Health and Human Services

Elizabeth Ward, National Committee on Vital and Health Statistics

Robert Weinzimer, National Center for Health Statistics, U.S. Department of Health and Human Services

National Academies’ Staff

Miron L.Straf, Committee on National Statistics, National Research Council

Andrew A.White, Committee on National Statistics, National Research Council

Terri Scanlan, Committee on National Statistics, National Research Council

Suggested Citation:"Appendix: Workshop Materials." National Research Council. 2001. Toward a Health Statistics System for the 21st Century: Summary of a Workshop. Washington, DC: The National Academies Press. doi: 10.17226/10171.
×

Agnes Gaskin, Committee on National Statistics, National Research Council

Jane Durch, Institute of Medicine

Maria Hewitt, Institute of Medicine

Margarita Hurtado, Institute of Medicine

Gooloo Wunderlich, Institute of Medicine

Jonathan Zaff, Committee on Population, National Research Council

Suggested Citation:"Appendix: Workshop Materials." National Research Council. 2001. Toward a Health Statistics System for the 21st Century: Summary of a Workshop. Washington, DC: The National Academies Press. doi: 10.17226/10171.
×
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Suggested Citation:"Appendix: Workshop Materials." National Research Council. 2001. Toward a Health Statistics System for the 21st Century: Summary of a Workshop. Washington, DC: The National Academies Press. doi: 10.17226/10171.
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Suggested Citation:"Appendix: Workshop Materials." National Research Council. 2001. Toward a Health Statistics System for the 21st Century: Summary of a Workshop. Washington, DC: The National Academies Press. doi: 10.17226/10171.
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Suggested Citation:"Appendix: Workshop Materials." National Research Council. 2001. Toward a Health Statistics System for the 21st Century: Summary of a Workshop. Washington, DC: The National Academies Press. doi: 10.17226/10171.
×
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Suggested Citation:"Appendix: Workshop Materials." National Research Council. 2001. Toward a Health Statistics System for the 21st Century: Summary of a Workshop. Washington, DC: The National Academies Press. doi: 10.17226/10171.
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Suggested Citation:"Appendix: Workshop Materials." National Research Council. 2001. Toward a Health Statistics System for the 21st Century: Summary of a Workshop. Washington, DC: The National Academies Press. doi: 10.17226/10171.
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Suggested Citation:"Appendix: Workshop Materials." National Research Council. 2001. Toward a Health Statistics System for the 21st Century: Summary of a Workshop. Washington, DC: The National Academies Press. doi: 10.17226/10171.
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Suggested Citation:"Appendix: Workshop Materials." National Research Council. 2001. Toward a Health Statistics System for the 21st Century: Summary of a Workshop. Washington, DC: The National Academies Press. doi: 10.17226/10171.
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Suggested Citation:"Appendix: Workshop Materials." National Research Council. 2001. Toward a Health Statistics System for the 21st Century: Summary of a Workshop. Washington, DC: The National Academies Press. doi: 10.17226/10171.
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Suggested Citation:"Appendix: Workshop Materials." National Research Council. 2001. Toward a Health Statistics System for the 21st Century: Summary of a Workshop. Washington, DC: The National Academies Press. doi: 10.17226/10171.
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Suggested Citation:"Appendix: Workshop Materials." National Research Council. 2001. Toward a Health Statistics System for the 21st Century: Summary of a Workshop. Washington, DC: The National Academies Press. doi: 10.17226/10171.
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Suggested Citation:"Appendix: Workshop Materials." National Research Council. 2001. Toward a Health Statistics System for the 21st Century: Summary of a Workshop. Washington, DC: The National Academies Press. doi: 10.17226/10171.
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Suggested Citation:"Appendix: Workshop Materials." National Research Council. 2001. Toward a Health Statistics System for the 21st Century: Summary of a Workshop. Washington, DC: The National Academies Press. doi: 10.17226/10171.
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The Committee on National Statistics (CNSTAT) convened a workshop on November 4-5, 1999, to identify new directions for health statistics and the implications for health data of changes in the health arena faced by DHHS; state and local health departments; the consumers, developers, and providers of health care products and services; and other health policy makers. Changes in our understanding of health, in health care (managed care, Medicaid, Medicare), in welfare reform, in federal-state relations, in the availability of administrative data, in advanced genetic data, in information technology, in confidentiality issues, and in data integration are examples of recent developments that may play a significant role for DHHS in making future policy decisions.

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