Appendix A
Administrative Information for Relevant Datasets
ADMINISTRATIVE INFORMATION
dataset parent study |
Health and Retirement Study |
abbrev HRS |
first year |
1992 |
last year |
2000 |
sponsor |
NIA |
||
collector |
Institute for Social Research, University of Michigan |
||
PI |
Robert J. Willis |
||
purpose |
to explain the antecedents and consequences of retirement; to examine the relationship between health, income, and wealth over time; to examine life cycle patterns of wealth accumulation and consumption; to monitor work disability; and to examine how the mix and distribution of economic, family and program resources affect key outcomes, including retirement, savings, health declines and institutionalization |
||
topics |
health and cognitive conditions, status; retirement plans and perspectives; attitudes, preferences, expectations, and subjective probabilities; family structure and trans |
|
fers; employment status and job history; job demands and requirements; disability, demographic background, housing, income and net worth, health insurance and pension plans |
||
design |
national panel study |
||
baseline |
in home, face-to-face in 1992 for the 1931-1941 birth cohort and in 1998 for newly added 1924-1930 and 1942-1947 birth cohorts |
||
followup |
follow-ups by telephone every second year, with proxy interviews after death |
||
design notes |
merged with AHEAD in 1998 |
||
sample |
12,600 persons in 7,600 households |
% proxy |
|
sample notes |
100% oversamples of Hispanics, Blacks, and Florida residents |
||
number of decedents |
|
||
questionnaire available |
coding information available |
bibliography |
|
links |
Employer Pension Study (1993, 1999); National Death Index, Social Security Administration |
||
availability of data |
publicly available data on www.umich.edu/~hrswww includes HRS Wave 1,2,3 (soon 4) |
||
contacts |
|
ADMINISTRATIVE INFORMATION
dataset |
Longitudinal Study of Aging |
abbrev |
LSOA |
||
parent study |
National Health Interview Survey (NHIS) 1984 Supplement on Aging |
||||
first year |
1984 |
last year |
1990 |
|
|
sponsor |
collector |
PI |
||
purpose |
to measure transitions in functional status and living arrangements for a national representative cohort of Americans who were aged 70 and older in 1984 and lived in the community; a second survey was field on a cohort derived from the 1994 NHIS |
||
topics |
functioning, family structure, housing and living arrangements, health care, economic and retirement indicators, vital status |
||
design |
longitudinal panel |
||
baseline |
1984 baseline personal interviews called the Supplement on Aging (SOA) were conducted with 16,148 subjects; The LSOA followed 7,527 of these subjects who were 70+ |
||
followup |
LSOA reinterviews in 1986 (5,151), 1988 (7,541), 1990 (5,978); LSOA II reinterviews were conducted in 1997-1998 and 1999-2000 |
||
design notes |
used personal interviews in 1984; telephone interviews and mailed questionnaires in 1986-1990; plus record linkage |
||
sample |
7,527 |
% proxy |
8.5% |
sample notes |
the LSOA followed those participants in the Supplement on Aging (SOA) to the 1984 NHIS who were 70 years of age and over. The SOA was a systematic one-half sample of people 55-64 in the 1984 NHIS and all people 65+; In 1986, the LSOA interviewed all SOA households with participants 80+; all households with Hispanic or black persons and their relatives 70-79; and half of households with whites aged 70-79. In 1988 and 1990, all participants; The LSOA II used the same methodology |
||
number of decedents |
|
||
questionnaire available |
coding information available |
bibliography |
|
links |
National Death Index and Medicare administrative records |
availability of data |
contacts |
ADMINISTRATIVE INFORMATION
dataset |
National Mortality Followback Survey |
abbrev NMFS |
|
parent study |
|||
first year |
1961 |
last year |
1993 |
sponsor |
National Center for Health Statistics |
||
collector |
NCHS |
PI |
|
purpose |
to supplement information from death certificates in the vital statistics file with information on important characteristics of the decedent which affect mortality. Objectives vary with each survey round |
||
topics |
include use of health services prior to death, socioeconomic status, aspects of life style, health care utilization prior to death, and other factors that affect when and how death occurs; 1993 topics: demographics, SES, manner of death, firearm related injury, motor vehicle/driving behavior, problem behaviors, use of alcohol, drugs, and tobacco, medical examiner/coroner abstract file |
||
design |
multicomponent stratified list-based survey |
||
baseline |
one time survey of next of kin, with linked data obtained from health care facilities used in the last year of life |
||
followup |
n/a |
||
design notes |
complexity of questionnaire necessitated telephone or in person interviews; 83% response rate; 1,000 items focused in 23 domains |
||
sample |
22,957 |
% proxy |
100% |
sample notes |
drawn from 1993 Current Mortality Sample (10% systematic random sample of death certificates): sampling strata: age, race, gender, and cause of death; 45% of sample se |
|
lected with certainty; oversampling of blacks, females, decedents under age 35 and over age 99 (South Dakota declined to participate) |
|
number of decedents |
22,957 |
|
questionnaire available |
coding information available |
bibliography |
links |
|
|
availability of data |
data tapes can be purchased through NTIS: four linked data files (death certificate file; proxy respondent survey questionnaire; nursing home, hospital, and hospice questionnaire; and facility abstract record) |
|
contacts |
Mortality Statistics Branch, NCHS, Hyattsville, MD (301)458-4666 |
ADMINISTRATIVE INFORMATION
dataset |
National Health and Nutrition Examination |
||
abbrev |
NHANES |
||
parent study |
|
||
first year |
1960 |
last year |
ongoing |
sponsor |
NCHS |
|
|
collector |
NCHS |
PI |
Dr. Raynard Kington |
purpose |
to assess the health and nutritional status of adults and children in the United States; to estimate disease prevalence, awareness, treatment and control; to monitor trends in risk behaviors; to study the relationship between diet, nutrition, and health; to establish a national probability sample of genetic material |
||
topics |
demographics, acculturation, SES and education; diet, dietary supplements, and food security; medical conditions, health care utilization, health insurance and prescription drugs used; physical activity, fitness and function; alcohol, drug, and tobacco use; pesticide use; |
|
includes medical examination and special substudy collecting hair |
|
design |
annual survey |
|
baseline |
“snapshot” only, but now linked to Medicare and NDI for longitudinal and historical purposes |
|
followup |
linked to the NDI and Medicare |
|
design notes |
now linked to the NHIS at the Primary Sampling Unit (PSU); linked to NHIS with regard to questionnaire content; household screening interview; detailed household interview, individual physical exam and health and dietary interviews in mobile examination centers (or at home if necessary) |
|
sample |
approx 6,000 per year (5,000 with PE) |
% proxy |
sample notes |
now each year’s data are representative |
|
number of decedents |
link to NDI; passive mortality study 1976-1980; cohort followup study (NHEFS) |
|
questionnaire available |
coding information available |
bibliography |
links |
National Death Index, Medicare |
|
availability of data |
data can be ordered from NCHS or downloaded from Web (lag time there) |
|
contacts |
Raynard Kington, Director NHANES, NCHS, 6525 Belcrest Road, Room 1000, Hyattsville, MD 20782 |
ADMINISTRATIVE INFORMATION
dataset |
Medical Expenditure Panel Survey |
abbrev MEPS |
|
parent study |
National Medical Care Expenditure Survey (NMCES or NMES) |
||
first year |
1977 |
last year |
ongoing |
sponsor |
AHRQ & NCHS |
||
collector |
PI |
purpose |
provide comprehensive data that estimate the level and distribution of health care use and expenditures, monitor the dynamics of the health care delivery and insurance systems, and assess health care policy implications |
|
topics |
health care use, expenditures, sources of payment, insurance coverage, health care status, and disability |
|
design |
overlapping panel design |
|
baseline |
||
followup |
||
design notes |
First two surveys (1977 and 1987) were studies of 14,500 households; 1996 (n = 10,000 households) changed to begin phase in of overlapping panel; will evolve to be 4,000 households brought in each year and followed for 2 years (so 10,000 households in any 2 1/2 year frame) |
|
sample |
10,000 households |
% proxy |
sample notes |
linked to NHIS PSU |
|
number of decedents |
|
|
questionnaire available |
coding information available |
bibliography |
links |
linked to NHIS |
|
availability of data |
PUFS on Web |
|
contacts |
ADMINISTRATIVE INFORMATION
dataset |
Panel Study of Income Dynamics |
abbrev PSID |
||
parent study |
|
|||
first year |
1968 |
last year |
2001 |
|
sponsor |
NIA, NSF, DHHS/ASPE |
|||
collector |
University of Michigan Institute for Social Research Sandra Hofferth and Frank Russell |
|||
|
|
PI |
|
|
purpose |
to provide economic and demographic data at the family and individual level, as well as household |
|
topics |
income sources and amounts, employment, family composition changes, childbirth and marriage histories, and residential location; NIA funded supplement on health; some sociological and psychological data in some waves |
|
design |
every other year interview |
|
baseline |
Initial sample = 2,930 households and 1,872 low income families; households formed by earlier panel members are included in subsequent waves; 1996 sample = 8,885 then reduced by suspending some low income and added new post-1968 immigrant sample |
|
followup |
annual interviews conducted 1968-1997; every other year interviewing began 1999 |
|
design notes |
long-term cumulative response rate was approximately 60% as of 1994 |
|
sample % proxy |
8,895 households in 1997 head of household interviewed |
|
sample notes |
||
number of decedents |
|
|
questionnaire available |
coding information available |
bibliography |
links |
|
|
availability of data |
main data files updated with each wave; www.umich.edu/~psid |
|
contacts |
|
ADMINISTRATIVE INFORMATION
dataset |
Outcome and Assessment Information Set |
abbrev |
OASIS |
parent study |
|
first year |
2000 |
last year |
|
sponsor |
Center for Medicare and Medicaid Services |
||
collector |
agencies submit to CMS |
PI |
|
purpose |
form the core set of data items of a comprehensive assessment of an adult home care patient and form the basis for measuring patient outcomes for purposes of quality improvement |
||
topics |
demographics, finances, current illness, therapies, living arrangements, physical assessments, symptoms, function |
||
design |
longitudinal |
||
baseline |
start of care assessment |
||
followup |
follow-up assessment |
||
design notes |
either incorporated into agency’s data collection forms or can be stand alone data collection |
||
sample |
% proxy |
||
sample notes |
|
||
number of decedents |
|
||
questionnaire available |
coding information available |
bibliography |
|
links |
|
||
availability of data |
|||
contacts |
ADMINISTRATIVE INFORMATION
dataset |
Nursing Home Minimum Data Set (Resident) |
||
abbrev |
MDS |
||
parent study |
IOM Committee on Nursing Home Regulation |
||
first year |
1990 |
last year |
ongoing |
sponsor |
CMS (formerly HCFA) |
collector |
each agency |
PI |
purpose |
to provide a comprehensive assessment of nursing home residents in a standardized format to transmit to HCFA |
|
topics |
demographics, customary routine, cognitive patterns, comunication, mood and behavior, physical functioning, continence, disease, nutrition, medications, procedures, therapy |
|
design |
longitudinal |
|
baseline |
on admission |
|
followup |
quarterly or with significant change in status |
|
design notes |
research indicates that staff can produce research-quality data, but in practice facilities differ in their commitment to ensuring that staff are trained and adhere to assessment protocols |
|
sample |
% proxy |
|
sample notes |
all nursing home residents |
|
number of decedents |
can be identified by discharge assessment |
|
questionnaire available |
coding information available |
bibliography |
links |
||
availability of data |
||
contacts |
ADMINISTRATIVE INFORMATION
dataset |
Surveillance, Edpidemiology, and End Results Program |
||
abbrev |
SEER |
||
parent study |
|
||
first year |
1973 |
last year |
ongoing |
sponsor |
National Cancer Institute |
collector |
PI |
|
purpose |
to provide information on cancer incidence and survival in the United States |
|
topics |
patient demographics, primary tumor site, morphology, stage at diagnosis, first course of treatment, and follow-up for vital status |
|
design |
registry of all tumors reported in a geographic area |
|
baseline |
standard for case ascertainment is 98% |
|
followup |
||
design notes |
in additon to registry information, there is an ongoing program of special studies that collect information through surveys, interviews, record abstraction, and biological materials |
|
sample |
14% of U.S. population |
% proxy |
sample notes |
geographic areas were selected for inclusion based on their ability to operate and maintain a high quality reporting system |
|
number of decedents |
|
|
questionnaire available |
coding information available |
bibliography |
links |
||
availability of data |
updated annually and provided in print and electronic formats |
|
contacts |
ADMINISTRATIVE INFORMATION
dataset |
National Home and Hospice Care Survey |
||
abbrev |
NHHCS |
||
parent study |
National Health Care Survey |
||
first year |
1992 |
last year |
1998 |
sponsor |
NCHS |
|
collector |
PI |
|
purpose |
to document the availability and utilization of home and hospice care |
|
topics |
agency characteristics: ownership, affiliation, geographic region, location, certification status; Patient characteristics: age, race, marital status, living arrangements, caregiver status, services received, service providers, reason for discharge |
|
design |
cross-sectional survey |
|
baseline |
|
|
followup |
||
design notes |
data collected through personal interviews with administrators and staff |
|
sample |
16,500 agencies (1998) |
% proxy |
sample notes |
Stratified, two stage probability design (agency type, MSA, region, ownership, certification) In 1996, 13,500 agencies provided services to 2,486,800 patients, with 8,168,900 discharges; in 1996, 1,800 agencies provided hospice care to 59,400 current patients and had 393,200 discharges (322,200 or 82% = deaths) |
|
number of decedents |
1996:322,200 |
|
questionnaire available |
coding information available |
bibliography |
links |
can be linked to OASIS |
|
availability of data |
public use data files available through 1998 |
|
contacts |
Dr. Barbara Haupt |
ADMINISTRATIVE INFORMATION
dataset |
National Nursing Home Survey |
abbrev NNHS |
parent study |
National Health Care Survey |
|
first year |
1973 |
last year |
1999 |
sponsor |
NCHS |
||
collector |
PI |
||
purpose |
provide information on nursing homes from the perspective of the provider of services and from the recipient |
||
topics |
facilities: size, ownership, certification, occupancy rate, number of days of care provided, expenses; residents: demographic characteristics, health status, and services received |
||
design |
cross-sectional survey |
||
baseline |
1973-1974, 1977, 1985, 1995, 1997, 1999; consist of facility files, discharge files, resident files, and staff files |
||
followup |
|
||
design notes |
data obtained through personal interviews with administrators and staff (note: information about residents provided by staff member familiar with care provided to resident) |
||
sample |
1,500 facilities |
% proxy |
|
sample notes |
up to six current residents and up to six charges are selected for individual level interviews |
||
number of decedents |
|
||
questionnaire available |
coding information available |
bibliography |
|
links |
|
||
availability of data |
public use data files |
||
contacts |
|
ADMINISTRATIVE INFORMATION
dataset |
National Hospital Discharge Survey |
abbrev NHDS |
parent study |
National Health Care Survey |
first year |
1965 |
last year |
annually |
|
sponsor |
NCHS |
|||
collector |
PI |
|||
purpose |
provide information on the characteristics of inpatients discharged from non-federal short-stay hospitals |
|||
topics |
age, sex, race, ethnicity, marital status, expected sources of payment, admission and discharge dates, discharge status |
|||
design |
|
|||
baseline |
|
|||
followup |
|
|||
design notes |
note: cannot use individual level data because individuals could have multiple discharges in one year and thus be sampled more than once. |
|||
sample |
500 hospitals and 270,000 inpatient beds |
% proxy |
||
sample notes |
Excludes federal, military, VA, prison hospitals, and hospitals with fewer than six beds. All hospitals with 1,000 or more beds are sampled with certainty. Non-certain hospitals selected randomly from PSU sampling units of NHIS |
|||
number of decedents |
in 1996, deaths accounted for 3% of discharges |
|||
questionnaire available |
coding information available |
bibliography |
|
|
links |
|
|||
availability of data |
electronic files from FTP server |
|||
contacts |
|
ADMINISTRATIVE INFORMATION
dataset |
Healthcare Cost and Utilization Project abbrev HCUP |
||
parent study |
|
||
first year |
1988 |
last year |
sponsor |
Agency for Healthcare Research and Quality |
|
collector |
PI |
|
purpose |
to build a multi-state health care data system about discharges from hospital |
|
topics |
primary and secondary diagnoses, primary and secondary procedures, admission and discharge status, demographics, expected payment source, total charges, length of stay |
|
design |
coordinated all payer databases |
|
baseline |
|
|
followup |
|
|
design notes |
|
|
sample |
7 million hospital stays |
% proxy |
sample notes |
22 states participate, approximating a 20% stratified sample of U.S. community hospitals. National Inpatient Sample = 1,000 hospitals |
|
number of decedents |
|
|
questionnaire available |
coding information available |
bibliography |
links |
|
|
availability of data |
|
|
contacts |
|
ADMINISTRATIVE INFORMATION
dataset |
National Vital Statistics Death Certificates |
|||
abbrev |
NVS |
|||
parent study |
|
|||
first year |
1930 |
last year |
1998 |
|
sponsor |
National Center for Health Statistics |
|||
collector |
NCHS, CDC |
PI |
purpose |
to provide national mortality statistics |
||
topics |
immediate cause of death, intermediate cause of death, underlying cause of death, other coexisting conditions; age, race, marital status, educational attainment, occupation |
||
design |
continuous reporting by states to Bureau of Census |
||
baseline |
|
||
followup |
|
||
design notes |
|
||
sample |
2.3 million in 1998 |
% proxy |
|
sample notes |
|
||
number of decedents |
|
||
questionnaire available |
coding information available |
bibliography |
|
links |
|
||
availability of data |
|
||
contacts |
|
ADMINISTRATIVE INFORMATION
dataset |
Medicare Claims |
abbrev Medicare |
|
parent study |
|
||
first year |
last year |
1999 |
|
sponsor |
Health Care Financing Administration |
||
collector |
Westat |
PI |
|
purpose |
to track billing for health care services provided under the Medicare benefit to those eligible by age (65 years or older), disability, or end stage renal disease |
||
topics |
age, gender, race, geographic region, utilization to include hospitalizations, hospice, services, stays in skilled nursing facilities, outpatient, physician, and home health visits |
design |
continuous |
||
baseline |
|
||
followup |
|||
design notes |
|||
sample |
41 million in 1998 |
% proxy |
|
sample notes |
|
||
number of decedents |
approximately 1,700 decedents per year |
||
questionnaire available |
coding information available |
bibliography |
|
links |
linked to Social Security Administration records for purposes of capturing decedents |
||
availability of data |
Medicare Continous History File is available on 5% of beneficiaries each year |
||
contacts |
|
ADMINISTRATIVE INFORMATION
dataset |
Medicare Current Beneficiary Survey |
abbrev MCBS |
||
parent study |
Medicare Claims |
|||
first year |
1991 |
last year |
1998 |
|
sponsor |
HCFA |
|||
collector |
Westat |
PI |
|
|
purpose |
determine expenditures and sources of payment for all health care services used by Medicare beneficiaries (including noncovered services) and to trace changes in health status and spending over time |
|||
topics |
use of health services, expenditures, insurance coverage, sources of payment, health status and functioning, and a variety of demographic and behavioral information, such as income, assets, living arrangements, family supports, and access to medical care |
|||
design |
four-year rotating panel |
|||
baseline |
6,000 new beneficiaires are added each year |
followup |
interviewed every four months |
||
design notes |
originally not a rotating panel, but problems with follow up |
||
sample |
12,000 |
% proxy |
|
sample notes |
107 primary geographic sampling units, with oversampling in areas with high growth in population of elders |
||
number of decedents |
700 per year |
||
questionnaire available |
coding information available |
bibliography |
|
links |
Medicare claims and administrative data (in turn linked to Social Security Administration) |
||
availability of data |
purchased through HCFA |
||
contacts |
Director, Enterprises Databases Group, Office of Information and Systems, HCFA, 7500 Security Boulevard, Baltimore, MD 21244-1850; 410-786-3690 |
ADMINISTRATIVE INFORMATION
dataset |
National Long Term Care Survey |
abbrev NLTCS |
||
parent study |
companion to the National Long-Term Care Channeling Demonstration (DHHS) |
|||
first year |
1982 |
last year |
1999 |
|
sponsor |
Office of the Assistant Secretary for Planning and Evaluation (ASPE) |
|||
collector PI |
Census administered; Duke University Kenneth Manton |
|||
purpose |
to learn more about health, functioning, and social and economic factors among community-based disabled. The purpose of the Next of Kin Survey on decedents is to estimate the total long-term care costs and the extent of spend-down to qualify for Medicaid |
|||
topics |
prevalence and patterns of functional limitations, both physical and cognitive; medical conditions and recent medical problems; use of health care services; kinds and |
|
amounts of formal and informal long-term care services used; demographic characteristics; public and private expenditures for health care services; and housing and neighborhood characteristics |
||
design |
list-based, longitudinal, panel design |
||
baseline |
In 1982, a random sample of 35,008 Medicare-eligible people >65 yr were screened for disability, yielding 6,393 chronically disabled community residents who qualified for in-person interviews. 1,925 interviews were completed with informal caregivers of disabled elders (of 2,349 identified) |
||
followup |
In 1984, all survivors were contacted to be reinterviewed. In addition, a sample of community residents who were not disabled in 1982 was added and a new sample of people who reached 65 years of age between 1982 and 1984 was added. This process was repeated in 1989, 1994, and 1999 |
||
design notes |
Overall response rates ranged from 97.1% in 1982 to 95.4% in 1989; informal care supplement in 1982, 1989, 1999; next of kin decedents 1994; nursing home resident follow-back 1989; nutritional status 1994 |
||
sample |
36,000 |
% proxy |
23% 1984; 20% 1989 |
sample notes |
55,000 screen interviews; 21,000 community detailed interviews, and 5,000 detailed institutional interviews in total for the 1982-1993 surveys; 1982: Medicare HISKEW file stratified geographically into LTC Primary Sampling Units, which were grouped into 173 long term care strata; one LTC PSU selected from each stratum |
||
number of decedents |
17,000 deaths identified from Medicare admin records (1982-1996): Next of Kin Supplement |
||
questionnaire available |
coding information available |
bibliography |
|
links |
linked to Medicare Part A and B most years; Medicare mortality records |
||
availability of data |
public use files available from Duke University (http://cds.duke.edu) |
contacts |
Richard Suzman at NIA; William Marton at DALTCPT (wmarton@osaspe.dhhs.gov) |
ADMINISTRATIVE INFORMATION
dataset |
National Health and Nutrition Examination NHFES |
abbrev |
||
parent study |
NHANES I |
|||
first year |
1971 |
last year |
1992 |
|
sponsor |
NCHS/NIA |
|||
collector |
PI |
|||
purpose |
to investigate the association between factors measured at baseline and the development of specific health conditions. The three major objects are to study morbidity and mortality associated with suspected risk factors, changes over time in participant characteristics, and the natural history of chronic disease and functional impairments |
|||
topics |
self-reported medical conditions, activities of daily living, health and nutrition habits and weight, physical examinations, laboratory tests, facility medical records, death certificates |
|||
design |
longitudinal follow up to a multistage, stratified sample |
|||
baseline |
NHANES I data (1971-1975) included subsample that received detailed study and an augmentation survey 1974-1975. |
|||
followup |
In 1982-1984, interviews were conducted with subject or proxy for 84.8% of the eligible 14,407 cohort (11,361 alive, 2,022 deceased, 1,024 not traced); in 1986, those over 55 years old (n = 3,980) included 3,132 alive, 635 dead, and 213 not traced. In 1987, all ages cohort = 11,750 with 10,463 alive, 555 dead, and 732 not traced. In 1992, n = 11,195, with 8,687 still alive, 1,392 dead, 1,116 not traced. Interviews in 1982-1984 were conducted in person; remaining years by phone with no physical assessment |
|||
design notes |
four follow up waves: 1982, 1986, 1987, and 1992 |
|||
sample |
14,407 |
% proxy |
1982-1984:7.4% |
|
sample notes |
12,220 (84.8%) interviewed (or 91.3% of those traced); the NHANES I adults (25-74) civilian noninstitutionalized population who completed a medical examination; included oversampling of persons living in poverty areas, women of childbearing age, and elderly (65+); a subsample of 6,913 were examined in greater depth and asked additional questions; an augmentation survey was conducted in 1974-1975 |
|
number of decedents |
4,604 decedents: death certificates for 98%; interviews in 1992 with 1,130 (81.2%) of 1,392 decedents |
|
questionnaire available |
coding information available |
bibliography |
links |
a study ID number links any NHANES files |
|
availability of data |
Mortality Data tape includes death certificate info on all decedents |
|
contacts |
|
ADMINISTRATIVE INFORMATION
dataset |
National Health Interview Survey |
abbrev NHIS |
|||
parent study |
|
||||
first year |
1957 |
last year |
2000 |
|
|
sponsor |
NCHS |
||||
collector |
U.S. Bureau of the Census |
PI |
|
||
purpose |
to produce statistics on disease, injury, impairment, disability, and related health topics on a uniform basis for the nation |
||||
topics |
|
||||
design |
cross sectional (area based household survey) |
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baseline |
About 40,000 households are interviewed in person each year (800 representative households selected each week to avoid seasonal bias), representing over 100,000 people Responsible adult interviewed and asked about household members; core set of questions plus varying supplemental questions |
followup |
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design notes |
substantially redesigned in 1997; changes to capture outpatient surgery, services provided by other than MD providers; mental health services; improvements in measuring health status; symptoms instead of naming conditions; family-level data |
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sample |
100,000 each year |
% proxy |
sample notes |
area-based households; U.S. civilian, noninstitutionalized population; response rates 94.9% to 96.7%; coordinated with other Census surveys to avoid double survey of same household; Westat, Inc., studied sampling options for 1995 redesign |
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number of decedents |
32,431 decedents 1986-1994 (10,407 died within two years of interview); linked to National Death Index |
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questionnaire available |
coding information available |
bibliography |
links |
National Death Index system beginning survey year 1986; vital status known through 1997 |
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availability of data |
Public use files on NCHS Website |
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contacts |
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ADMINISTRATIVE INFORMATION
dataset |
Asset and Health Dynamics of the Oldest Old |
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abbrev |
AHEAD |
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parent study |
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first year |
1993 |
last year |
sponsor |
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collector |
PI |
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purpose |
to provide an understanding of the implications of health dynamics in old age for transtitions in economic well-being, changes in family and martial status, and for reliance on public and private support systems |
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topics |
demographic info; health, cognition, family structure and transfers, use and cost of health services, job status, in |
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come, net worth, subjective expectations, and insurance; these included physical tasks and personal care activities |
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design |
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baseline |
Wave 1 conducted in 1993; response rate of 80%; those 70-79 were generally interviewed by telephone; those 80+ were generally interviewed in person |
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followup |
Wave 2 took place in 1995 and 1996; reinterview rate of 95%; combined HRS/AHEAD in 1998 |
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design notes |
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sample |
8,222 % proxy avg 10.4% (increases with age; more men) |
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sample notes |
initially noninstitutionalized persons born in 1923 or earlier (aged 70 years or older); Wave 1 = 8,222 respondents (and spouses). Wave 2 interviews were conducted with 7,039 of the 8,222 Wave I respondents and approximately 775 exit interviews with next of kin; multistage sample plan, with oversampling of Blacks, Hispanics, and Florida residents; dual sampliing frame using 81 of the 93 PSUs in HRS, then deleting half and replacing with selections from the HCFA-EDB file; compared to census files, the sample reflected population except for females aged 80 and over (more likely to be in nursing homes) |
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number of decedents |
775 from Wave 1 |
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questionnaire available |
coding information available |
bibliography |
links |
Medicare (80% gave permission); Medicaid (fewer gave permission) |
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availability of data |
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contacts |
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