Appendix B
Information on Selected Variables
INFORMATION ON SELECTED VARIABLES
dataset: |
LSOA |
site of death: |
|
cause of death: |
|
demographics: |
SES |
household: |
household composition (age, relationship) |
social supports: |
social history |
illnesses: |
list of 13 serious conditions |
physical symptoms: |
|
physical function: |
6 ADLS, 6 IADLs, mobility, falling, dizziness, incontinence |
psychological symptoms: |
|
quality of life: |
|
cognition: |
|
health services utilization support services: |
|
satisfaction with care: |
family care: |
helpers with key activities |
out-of-pocket costs: |
|
INFORMATION ON SELECTED VARIABLES
dataset: |
NMFS |
site of death: |
cause of death: |
demographics: |
SES |
household: |
relationship of people living with |
social supports: |
|
illnesses: |
hypertension, heart attack, angina, stroke, Alzheimer, dementia, mental health, diabetes, cancer, asthma, emphysema, bronchitis, cirrhosis, arthritis |
physical symptoms: |
|
physical function: |
mobility, ADL, IADL |
psychological symptoms: |
|
quality of life: |
|
cognition: |
trouble understanding, remembering, recognizing, problem behaviors |
health services utilization support services: |
|
satisfaction with care: |
|
family care: |
did family members help/live with/help pay for care |
out-of-pocket costs: |
decedent funds and family expenses includes “help at home” |
INFORMATION ON SELECTED VARIABLES
dataset: |
NHANES |
site of death: |
cause of death: |
demographics: |
SES |
household: |
delineates all members of household |
social supports: |
|
illnesses: |
extensive list of conditions |
physical symptoms: |
extensive pain questionnaire |
physical function: |
difficulty doing 19 activities |
psychological symptoms: |
|
quality of life: |
|
cognition: |
self reported memory problems or confusion |
health services utilization support services: |
|
satisfaction with care: |
|
family care: |
|
out-of-pocket costs: |
INFORMATION ON SELECTED VARIABLES
dataset: |
MEPS |
site of death: |
cause of death: |
demographics: |
SES |
household: |
|
social supports: |
|
illnesses: |
respondent lists conditions for each family member |
physical symptoms: |
pain |
physical function: |
ADL, IADL, mobility questions |
psychological symptoms: |
feeling anxious or blue |
quality of life: |
|
cognition: |
memory loss, confusion, decision making, supervision for safety |
health services utilization support services: |
|
satisfaction with care: |
general satisfaction, experience any difficulty, delay or lack of care |
family care: |
detail info about caregivers |
out-of-pocket costs: |
purchased medicines; alternative care (total expenditures only) |
INFORMATION ON SELECTED VARIABLES
dataset: |
MDS |
site of death: |
cause of death: |
demographics: |
SES |
household: |
marital status; lived alone prior to adm |
social supports: |
family involvement; contact with relatives and close friends |
illnesses: |
checklist plus open ICD coding |
physical symptoms: |
pain, shortness of breath |
physical function: |
ADLS specificially and pattern |
psychological symptoms: |
mood, psychological well-being |
quality of life: |
|
cognition: |
memory, skills, delirium |
health services utilization support services: |
|
satisfaction with care: |
|
family care: |
|
out-of-pocket costs: |
INFORMATION ON SELECTED VARIABLES
dataset: |
PSID |
site of death: |
cause of death: |
demographics: |
SES |
household: |
relationships |
social supports: |
|
illnesses: |
physical symptoms: |
|
physical function: |
basic needs like dressing, bathing , eating |
psychological symptoms: |
|
quality of life: |
|
cognition: |
|
health services utilization support services: |
|
satisfaction with care: |
|
family care: |
|
out-of-pocket costs: |
incl paid paid nurse/aide coming to home |
INFORMATION ON SELECTED VARIABLES
dataset: |
OASIS |
site of death: |
cause of death: |
demographics: |
SES |
household: |
spouse, other family, friend, paid help |
social supports: |
|
illnesses: |
diagnostic codes |
physical symptoms: |
pain, shortness of breath, nausea, bowel function |
physical function: |
ADLS, IADS |
psychological symptoms: |
“emotional” problems |
quality of life: |
|
cognition: |
alter, requires prompting, requires assistance, confused |
health services utilization support services: |
|
satisfaction with care: |
|
family care: |
who is caring, what types of assistance |
out-of-pocket costs: |
INFORMATION ON SELECTED VARIABLES
dataset: |
NDI |
site of death: |
cause of death: |
demographics: |
SES |
household: |
|
social supports: |
|
illnesses: |
|
physical symptoms: |
|
physical function: |
|
psychological symptoms: |
|
quality of life: |
|
cognition: |
|
health services utilization support services: |
|
satisfaction with care: |
|
family car : |
|
out-of-pocket costs: |
INFORMATION ON SELECTED VARIABLES
dataset: |
NHHCS |
site of death: |
cause of death: |
demographics: |
SES |
household: |
family, nonfamily |
social supports: |
|
illnesses: |
primary or other diagnoses |
physical symptoms: |
|
physical function: |
receives help from this agency regarding ADLs, IADLs |
psychological symptoms: |
|
quality of life: |
cognition: |
|
health services utilization support services: |
|
satisfaction with care: |
|
family care: |
relationship to primary caregiver |
out-of-pocket costs: |
only as primary or secondary source of payment |
INFORMATION ON SELECTED VARIABLES
dataset: |
NNHS |
site of death: |
cause of death: |
demographics: |
SES |
household: |
before adm to facility |
social supports: |
|
illnesses: |
primary and “other” diagnoses |
physical symptoms: |
|
physical function: |
ADLs, limited IALDs |
psychological symptoms: |
|
quality of life: |
|
cognition: |
|
health services utilization support services: |
|
satisfaction with care: |
|
family care: |
|
out-of-pocket costs: |
INFORMATION ON SELECTED VARIABLES
dataset: |
MCBS |
site of death: |
cause of death: |
demographics: |
SES |
household: |
persons staying in the household |
social supports: |
|
illnesses: |
long list |
physical symptoms: |
|
physical function: |
6 ADLs, 6 IADLs |
psychological symptoms: |
|
quality of life: |
|
cognition: |
memory, making decisions, concentrating |
health services utilization support services: |
|
satisfaction with care: |
general satisfaction, availability, convenience, information received, costs, etc. |
family care : |
who helps with ADLs/IADLs |
out-of-pocket costs: |
equipment, prescriptions, alterations to house |
INFORMATION ON SELECTED VARIABLES
dataset: |
NHIS |
site of death: |
cause of death: |
demographics: |
SES |
household: |
relationships among all in household |
social supports: |
|
illnesses: |
“have you ever been told” broad domains: cardiovascular disease, respiratory conditions, etc. |
physical symptoms: |
fatigue, tiredness, pain |
physical function: |
single item about “major activity limitation”; ADLs, IADLs, Nagi |
psychological symptoms: |
depression, anxiety, emotional problem |
quality of life: |
|
cognition: |
limited by difficulty remembering or confusions |
health services utilization support services: |
|
satisfaction with care: |
|
family care: |
|
out-of-pocket costs: |
how much spent for medical care (exc hlth insurance, over counter |
INFORMATION ON SELECTED VARIABLES
dataset: |
NHEFS |
site of death: |
cause of death: |
demographics: |
SES |
household: |
# in household |
social supports: |
|
illnesses: |
ever had; doctor ever told arthritis, heart attack, stroke, diabetes, cancer, fx hip, osteoporosis, etc. |
physical symptoms: |
just arthritis (swelling, stiffness, pain) |
physical function: |
Katz ADL; Rosow-Breslau, and Fries Functional |
psychological symptoms: |
|
quality of life: |
|
cognition: |
|
health services utilization support services: |
|
satisfaction with care: |
|
family care: |
|
out-of-pocket costs: |
INFORMATION ON SELECTED VARIABLES
dataset: |
Medicare |
site of death: |
cause of death: |
demographics: |
SES |
household: |
|
social supports: |
|
illnesses: |
only as inferred from diagnostic codes on visits and stays |
physical symptoms: |
|
physical function: |
|
psychological symptoms: |
|
quality of life: |
|
cognition: |
|
health services utilization support services: |
|
satisfaction with care: |
|
family care: |
|
out-of-pocket costs: |
INFORMATION ON SELECTED VARIABLES
dataset: |
NLTCS |
site of death: |
cause of death: |
demographics: |
SES |
household: |
identification of caregiver |
social supports: |
how many times did see/talk with friends |
illnesses: |
does … now have [30] conditions |
physical symptoms: |
|
physical function: |
6 ADLs; 7 IADLs; Nagi items on range of motion and impairment; activity list |
psychological symptoms: |
confusion or emotional problem |
quality of life: |
|
cognition: |
mini mental |
health services utilization support services: |
|
satisfaction with care: |
family care: |
many details about who helps with ADLs and IADLs |
out-of-pocket costs: |
who pays for help with ADLs/IADLs; payment for nursing home, homecare |
INFORMATION ON SELECTED VARIABLES
dataset: |
AHEAD |
site of death: |
cause of death: |
demographics: |
SES |
household: |
spouse, children, other |
social supports: |
asked in HRS 1994 module |
illnesses: |
major illnesses; severity reflected in type and intensity of care |
physical symptoms: |
pain, shortness of breath, fatigue |
physical function: |
difficulty with 12 physical tasks; if + then asked difficulty with 6 personal care activities |
psychological symptoms: |
CESD used in HRS 1994 |
quality of life: |
14 questions on AHEAD Wave 1 |
cognition: |
dementia screening instrument, memory, reasoning |
health services utilization support services: |
|
satisfaction with care: |
|
family care : |
living with, assisting ADLS |
out-of-pocket costs: |
nursing home, prescriptions, in-home medical care, assistance with ADLs and IADLS |