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Appendix A Meeting Psychosocial Needs of Women with Breast Cancer National Cancer Policy Board Institute of Medicine/National Research Council Supported by the Longaberger Company Through the American Cancer Society Monday, October 28, 2002 Describing Psychosocial Services 8:00- 8:30 Continental breakfast 8:30-9:30 Welcome and introduction (Jimmie Holland, Ellen Stovall, and Tom Smith) Overview: The status of mental health service delivery in the U.S. â¢ Psychosocial implications of chronic illness â¢ Delivery of psychosocial services in the U.S. Speaker: Howard H. Goldman Overview: Psychosocial interventions for women with breast cancer â¢ Psychosocial issues throughout the breast cancer trajectory â¢ Prevalence of psychosocial distress â¢ Types of interventions and their modes of delivery 229
230 MEETING PSYCHOSOCIAL NEEDS OF WOMEN WITH BREAST CANCER Speaker: Jimmie Holland 9:30-10:30 Identifying women in need of services: The effectiveness of assessment tools â¢ Discussion of commissioned paper Speaker: Patricia Ganz Reactor: Julia Rowland 10:30-10:45 Break 10:45-12:30 The effectiveness of psychosocial interventions â¢ Discussion of commissioned paper Speaker: Pamela Goodwin Reactors: Katherine DuHamel; Gary Morrow 12:30-1:30 Lunch available 1:30-3:15 Research issues: The need for applied research â¢ Status of research and funding opportunities â¢ Methodological research issues â¢ Research priorities Speaker: Barbara Andersen Reactor: Joan Bloom 3:15-3:30 Break 3:30-5:30 Delivering psychosocial interventions (Presentations from selected programs) Introduction: Ellen Stovall â¢ Psychologist in private practice, Helen Coons â¢ Oncologist in community-based practice, Lidia Schapira, BostonâBeth Israel Deaconess â¢ Managed care-based program (Breast Buddy Program), Ann Geiger, Kaiser Permanente, Southern CA â¢ Cancer center-based program, Richard McQuellon, Comprehensive Cancer Center of Wake Forest University
APPENDIX A 231 â¢ American Cancer Society programs (Reach to Recovery, I Can Cope, Look Good . . . Feel Better Program), Bonnie Teschendorf â¢ Community-based program, The Wellness Community, Mitch Golant Discussion Leader: Ellen Stovall Tuesday, October 29, 2002 Overcoming Barriers to Access 8:00-8:30 Continental breakfast 8:30-10:30 Changing provider behavior/practices Introduction: Tom Smith â¢ The structure of breast cancer care â¢ What are the barriers to providing psychosocial services in the current delivery system? â¢ How can care systems be designed to incorporate psychosocial service providers (e.g., multidisciplinary team approaches, links to community-based providers)? Discussion leader: Nina Bickell â¢ The role of guidelines â¢ What is the status of guidelines in the U.S.? â¢ How should they be designed and implemented? â¢ What is the potential for guidelines to change practice? Discussion leader: Roger Winn â¢ Quality assurance â¢ What quality assurance initiatives might be considered to improve the delivery of psychosocial services? â¢ How has measurement of patient satisfaction with breast cancer care within managed care affected practice? â¢ Could indicators of psychosocial care be incorporated into these efforts? â¢ How can national goals for improved psychosocial care be achieved? Discussion leaders: Ann Monroe and Bonnie Teschendorf â¢ Consumer roles and perspectives â¢ How can consumers affect changes in practice? Discussion leader: Christine Brunswick
232 MEETING PSYCHOSOCIAL NEEDS OF WOMEN WITH BREAST CANCER 10:30-10:45 Break 10:45-12:30 Improving professional education/training Panel Discussion with Participants: â¢ Who provides (or should provide) psychosocial interventions? â¢ How adequate is their training? â¢ What new training opportunities are needed? â¢ How can we assess the effectiveness of training? Panel: Roger Winn (physician perspective) Jamie Ostroff (psychologist and research perspective) Betty Ferrell (nursing perspective) Carolyn Messner (social work perspective) Discussion leader: Jimmie Holland 12:30-1:30 Lunch available 1:30-3:00 Reducing individual barriersâsocial stigma, economic, racial, ethnic, cultural, language, and other barriers Speakers: Alicia Matthews â¢ Reducing stigma Carolina Hinestrosa â¢ Reducing barriers to access in the Latina Community Brian Smedley â¢ Briefing on IOM report, âUnequal Treatment: Confronting Racial and Ethnic Disparities in Health Careâ Discussion leader: Jimmie Holland 3:00-3:15 Break 3:15-4:45 Addressing coverage and payment issues â¢ How are psychosocial and mental health services paid for? â¢ How do reimbursement issues limit access to services (e.g., limits set by managed care)? â¢ Are there reimbursement models to emulate? Speaker: Richard Frank (overview)
APPENDIX A 233 Panelists: -Psychiatrist, David Wellisch -American Psychological Association (APA), Rus Newman -Centers for Medicare and Medicaid Services (CMS), Madeline Ulrich and Ken Simon -Health Insurance Association of America (HIAA), Henry Desmarais -American Association of Health Plans (AAHP), Carmella Bocchino Discussion Leader: Ellen Stovall 4:45-5:30 Wrap-upâFuture directions, policy options, recommendations Discussion leaders: Tom Smith and Diana Petitti