National Academies Press: OpenBook
« Previous: Appendix C: Committee Member and Staff Biographies
Suggested Citation:"Abbrevations and Acronyms." Institute of Medicine. 2009. Beyond the HIPAA Privacy Rule: Enhancing Privacy, Improving Health Through Research. Washington, DC: The National Academies Press. doi: 10.17226/12458.
×
Page 311
Suggested Citation:"Abbrevations and Acronyms." Institute of Medicine. 2009. Beyond the HIPAA Privacy Rule: Enhancing Privacy, Improving Health Through Research. Washington, DC: The National Academies Press. doi: 10.17226/12458.
×
Page 312
Suggested Citation:"Abbrevations and Acronyms." Institute of Medicine. 2009. Beyond the HIPAA Privacy Rule: Enhancing Privacy, Improving Health Through Research. Washington, DC: The National Academies Press. doi: 10.17226/12458.
×
Page 313
Suggested Citation:"Abbrevations and Acronyms." Institute of Medicine. 2009. Beyond the HIPAA Privacy Rule: Enhancing Privacy, Improving Health Through Research. Washington, DC: The National Academies Press. doi: 10.17226/12458.
×
Page 314

Below is the uncorrected machine-read text of this chapter, intended to provide our own search engines and external engines with highly rich, chapter-representative searchable text of each book. Because it is UNCORRECTED material, please consider the following text as a useful but insufficient proxy for the authoritative book pages.

Abbrevations and Acronyms AAHRPP Association for the Accreditation of Human Research Protection Programs AAMC Association of American Medical Colleges ACC American College of Cardiology AHA American Heart Association AHIMA American Health Information Management Association AHRQ Agency for Healthcare Research and Quality AOD Accounting of disclosure ASCO American Society for Clinical Oncology BA Business associate CaBIG Cancer Biomedical Informatics Grid CCW Chronic Conditions Warehouse CDC Centers for Disease Control and Prevention CMS Centers for Medicare & Medicaid Services DES Diethylstilbestrol DUA Data use agreement ELSO Extracorporeal Life Support Organization EPHI Electronic protected health information EPHR Electronic personal health records EU European Union 

 BEYOND THE HIPAA PRIVACY RULE FDA Food and Drug Administration FOIA Freedom of Information Act GAO Government Accountability Office GINA Genetic Information Nondiscrimination Act HAS Health Assessment Survey HEW U.S. Department of Health, Education and Welfare HHS U.S. Department of Health and Human Services HIC Health information custodians HIPAA Health Insurance Portability and Accountability Act HIT Health information technology HMAC Keyed-hash message authentication code HMO Health maintenance organization HMORN HMO Research Network ICMJE International Committee of Medical Journal Editors ICU Intensive care units INTERMACS Interagency Registry for Mechanically Assisted Circulatory Support IOM Institute of Medicine IPC Information and Privacy Commissioner IRB Institutional Review Board JHU Johns Hopkins University NAACCR North American Association of Central Cancer Registries NCAB National Cancer Advisory Board NCI National Cancer Institute NCVHS National Committee on Vital and Health Statistics NIH National Institutes of Health NIST National Institute of Standards and Technology NPDB National Practitioner Data Bank NTD Neural tube birth defects OCR Office for Civil Rights OECD Organisation for Economic Co-operation and Development OHRP Office for Human Research Protections PCPS Partners for Child Passenger Safety PDA Personal digital assistant

 ABBREVIATIONS AND ACRONYMS PHI In HIPAA, protected health information; in PHIPA, personal health information PHIPA Personal Health Information Protection Act PRIM&R Public Responsibility in Medicine and Research REB Research ethics board SACHRP Secretary’s Advisory Committee on Human Research Protections SELECT Selenium and Vitamin E Cancer Prevention Trial SMOG Simple Measure of Gobbledegook UDE Unique data elements UNOS United Network for Organ Sharing VA U.S. Department of Veterans Affairs

Next: Glossary »
Beyond the HIPAA Privacy Rule: Enhancing Privacy, Improving Health Through Research Get This Book
×
Buy Paperback | $43.00 Buy Ebook | $34.99
MyNAP members save 10% online.
Login or Register to save!
Download Free PDF

In the realm of health care, privacy protections are needed to preserve patients' dignity and prevent possible harms. Ten years ago, to address these concerns as well as set guidelines for ethical health research, Congress called for a set of federal standards now known as the HIPAA Privacy Rule.

In its 2009 report, Beyond the HIPAA Privacy Rule: Enhancing Privacy, Improving Health Through Research, the Institute of Medicine's Committee on Health Research and the Privacy of Health Information concludes that the HIPAA Privacy Rule does not protect privacy as well as it should, and that it impedes important health research.

  1. ×

    Welcome to OpenBook!

    You're looking at OpenBook, NAP.edu's online reading room since 1999. Based on feedback from you, our users, we've made some improvements that make it easier than ever to read thousands of publications on our website.

    Do you want to take a quick tour of the OpenBook's features?

    No Thanks Take a Tour »
  2. ×

    Show this book's table of contents, where you can jump to any chapter by name.

    « Back Next »
  3. ×

    ...or use these buttons to go back to the previous chapter or skip to the next one.

    « Back Next »
  4. ×

    Jump up to the previous page or down to the next one. Also, you can type in a page number and press Enter to go directly to that page in the book.

    « Back Next »
  5. ×

    To search the entire text of this book, type in your search term here and press Enter.

    « Back Next »
  6. ×

    Share a link to this book page on your preferred social network or via email.

    « Back Next »
  7. ×

    View our suggested citation for this chapter.

    « Back Next »
  8. ×

    Ready to take your reading offline? Click here to buy this book in print or download it as a free PDF, if available.

    « Back Next »
Stay Connected!