Appendix D
Acronyms
AAMC Association of American Medical Colleges
ASCO American Society of Clinical Oncology
BNSF Burlington Northern Santa Fe Railroad
BSR Behavioral and Social Research Program
CFR Code of Federal Regulations
CLIA Clinical Laboratory Improvement Amendments
COI conflict of interest
DASL Data and Story Library
EEOC Equal Employment Opportunity Commission
ELSA English Longitudinal Study of Aging
FFPE formalin-fixed, paraffin-embedded tissue
FOIA Freedom of Information Act
GINA Genetic Information Nondiscrimination Act
GWASs genome-wide association studies
HDL high-density lipoprotein
HHS U.S. Department of Health and Human Services
HIPAA Health Insurance Portability and Accountability Act
HRS Health and Retirement Study
ICPSR Inter-university Consortium for Political and Social Research
IOM Institute of Medicine
IP intellectual property
IRB Institutional Review Board
ISBER International Society for Biological and Environmental Repositories
ISO International Organization for Standardization
LBL Lawrence Berkeley Laboratory
MiCDA Michigan Center on the Demography of Aging Data
MTA material transfer agreement
NCES National Center for Education Statistics
NCHS National Center for Health Statistics
NCI National Cancer Institute
NHANES National Health and Nutrition Examination Survey
NHGRI National Human Genome Research Institute
NIA National Institute on Aging
NICHD Eunice Kennedy Shriver National Institute of Child Health and Human Development
NIH National Institutes of Health
NORC National Opinion Research Center
NRC National Research Council
OBBR Office of Biorepositories and Biospecimen Research
OECD Organisation for Economic Co-operation and Development
OHRP Office of Human Research Protections (formerly OPRR)
OPRR Office of Protection from Research Risks
QA quality assurance
QC quality control
SDL statistical disclosure limitation
SNP single nucleotide polymorphism
SOP standard operating procedure
SWAN Study of Women’s Health Across the Nation
UNESCO United Nations Education, Scientific and Cultural Organization
