Appendix C
Workshop Participants
Partnering with Patients to Drive Shared Decisions, Better Value, and Care Improvement
Terry Adirim, MD, MPH
Director, Office of Special Health Affairs
Health Resources and Services
Administration
Charles Alston
Senior Vice President and Director of Public
Affairs
MSL Washington
Clinton W. Anderson, PhD, Director
Associate Executive Director, Public Interest
Directorate
Lesbian, Gay, Bisexual, and Transgender Concerns Office
American Psychological Association
David Arterburn, MD, MPH
Associate Investigator
Group Health Research Institute
Anne-Marie J. Audet, MD, MSc, SM
Vice President
Health System Quality and Efficiency
The Commonwealth Fund
Kim Bailey
Research Director
Families USA
Michael J. Barry, MD
President
Informed Medical Decisions Foundation
Christine Bechtel, MA
Vice President
National Partnership for Women & Families
Jeffrey Belkora, PhD
Associate Professor, Surgery and Health
Policy
Director, Decision Services
University of California, San Francisco
Greg Biggers
Council Member and CEO, Genomera
Genetic Alliance
Paige Bingham
Manager
PatientLink Programs
Medtronic Foundation
Meryl Bloomrosen, MBA
Vice President
Public Policy and Government Relations
American Medical Informatics Association
David Blumenthal, MD, MPP
President
The Commonwealth Fund
Marilyn Sue Bogner, PhD
Chief Scientist
Institute for the Study of Human Error, LLC
Crystal Brown-Tatum
Chapter President
Sisters Network
Diane Bruessow, PA-C, DFAAPA
Government Affairs Committee, Chair, 2012-13
Gay and Lesbian Medical Association
Janet Campbell
Software Developer
Epic Systems
Dottie Caplan, MBA
Director, Partners in Patient Health
Sanofi U.S.
Kristin L. Carman, PhD
Co-Director
Health Policy & Research Program
American Institutes for Research
Carolyn Carroll, PhD
Senior Statistician
STAT Tech, Inc.
Mary Teresa Casey, RD, LD
Director, Division of ESRD,
Population and Community Health
Center for Clinical Standards and Quality
Centers for Medicare & Medicaid Services
Bowen Chung, MD, MSHS
Adjunct Scientist, RAND Corporation
Assistant Professor, Department of
Psychiatry Harbor-UCLA Medical Center
David Clifford
Independent Consultant
PatientsLikeMe
Perry D. Cohen, PhD
Director
Parkinson Pipeline Project
Megan Collado, MPH
Associate, Health Care Financing and
Organization
AcademyHealth
Kathleen Connors de Laguna, RN, MSPH
Health Insurance Specialist
Office of Electronic Health, Standards and Systems
Centers for Medicare & Medicaid Services
Richard Conroy, PhD
Program Director
Division of Applied Science and Technology
National Institute of Biomedical Imaging and
Bioengineering
Jonathan Darer, MD, MPH
Chief Innovation Officer
Division of Clinical Innovation
Geisinger Health System
Helen Darling
President
National Business Group on Health
Kathy Day, RN
Patient Safety Advocate and Activist
Dave DeBronkart
e-Patient Dave
James E. Delaney, MSPA PA-C President
American Academy of Physician Assistants
Melissa Dorsey, MHA
Health Insurance Specialist/Government Task Leader
Division of ESRD Population and Community Health
Center for Clinical Standards & Quality
Centers for Medicare & Medicaid Services
Joyce Dubow
Senior Health Care Reform Director
Office of Policy and Strategy
AARP
Rosemarie Filart, MD, MPH, MBA
Medical Officer
National Center for Advancing Translational Science
National Institutes of Health
Sylvia K. Fisher, PhD
Director, Office of Research and Evaluation
Office of the Administrator
Health Resources and Services
Administration
Lindsay Forbes
Research Program Coordinator
Johns Hopkins Berman Institute of Bioethics
Laura P. Forsythe, PhD, MPH
Program Officer
Patient-Centered Outcomes Research
Institute
Emily C. Freeman, MSc, PhD
Associate Director
U.S. Medical-Health Services
Bristol-Myers Squibb
Susan M. Friedman
Deputy Director, Department of Government Relations
American Osteopathic Association
Dominick L. Frosch, PhD
Fellow, Patient Care Program
Gordon and Betty Moore Foundation
Tamyra C. Garcia, MPH
Special Assistant, Quality Improvement Group
Center for Clinical Standards and Quality
Centers for Medicare & Medicaid Services
John S. Gardenier, DBA
Statistical Ethicist
National Center for Health Statistics, Retired
Turkan K. Gardenier, PhD
Director of Research
Pragmatica Corporation
Rosemary Gibson
Section Editor
JAMA Internal Medicine
Marge Ginsburg
Executive Director
Center for Healthcare Decisions
David Goldhill
President and Chief Executive Officer
Game Show Network
Mark Gorman
Patient Advocate
Former Director of Survivorship Policy
National Coalition for Cancer Survivorship
Elizabeth Goss, JD
Partner
Turner & Goss
Katherine Green
Development Project Coordinator
Family Medicine Education Consortium
Sheldon Greenfield, MD
Professor of Medicine and Executive Co-Director
Health Policy Research Institute
University of California, Irvine
Paul Grundy, MD, MPH
Global Director of Healthcare
Transformation
IBM
Jim Hansen
Vice President
Accountable Delivery System Institute
Lumeris
Judith H. Hibbard, DrPH
Professor of Health Policy
Department of Planning, Public Policy & Management
University of Oregon
Eric Holmboe, MD
Chief Medical Officer and Senior Vice President
American Board of Internal Medicine
Lisa Hopp, PhD, RN, FAAN
Professor, School of Nursing
Director, Indiana Center for Evidence-Based
Nursing Practice
Purdue University Calumet
Ralph I. Horwitz, MD
Senior Vice President
Clinical Sciences Evaluation
GlaxoSmithKline
Linda House, RN, BSN, MSM
Executive Vice President, External Affairs
Cancer Support Community
Andrew Hu
Senior Director
Policy & Research
PhRMA
Thomas E. Hubbard
Vice President of Policy Research
Network for Excellence in Health Innovation
Holly B. Jimison, PhD, FACMI
Office of Behavioral and Social Sciences Research
Office of the Director
National Institutes of Health
Jesse Joad, MD, MS
Professor Emeritus,
University of California, Davis
Vice President for Education,
Gay and Lesbian Medical Association
Sherrie H. Kaplan, PhD
Executive Co-Director
Health Policy Research Institute
University of California, Irvine
Nancy E. Kass, ScD
Professor of Bioethics and Public Health
Berman Institute of Bioethics
Johns Hopkins Bloomberg School of Public Health
Michael W. Kelleher
Senior Program Director
Network for Excellence in Health Innovation
Barbara L. Kornblau, JD, OTR
Executive Director
Society for Participatory Medicine
Gary Langer
Founder and President
Langer Research Associates
Emily Oshima Lee
Policy Analyst, Health Policy
Center for American Progress
Alice Leiter, JD
Policy Counsel
Center for Democracy & Technology
Art Levin, MPH
Director
Center for Medical Consumers
Grace Lin, MD
Assistant Professor in Residence, Division of General Internal Medicine
University of California, San Francisco
Cristin Lind
Family Leader
E-caregiver, www.DurgasToolbox.com
Federation for Children with Special Needs
Evette J. Ludman, PhD
Senior Research Associate
Group Health Research Institute
Wendy Lynch, PhD
Co-Director
Center for Consumer Choice in Health Care
Altarum Institute
Katy Mahraj, MSI
Analyst, Information & Technology Strategies
Altarum Institute
Kenneth D. Mandl, MD, MPH
Associate Professor
Children’s Hospital Boston, Harvard
Medical School, and Harvard-MIT Health
Sciences and Technology
Brigitte Manteuffel, PhD
Advisory Council Member
Children’s Mental Health Network
Peter Margolis, MD, PhD
Professor of Pediatrics and Director of Research
James M. Anderson Center for Health Systems Excellence
Cincinnati Children’s Hospital Medical Center
J. Michael McGinnis, MD, MPP, MA
Senior Scholar
Institute of Medicine
Coles Markis Mercier, MS
Health Insurance Specialist, BHIS
Center for Clinical Standards and Quality
Centers for Medicare & Medicaid Services
Anne Michaels
President, MNA Inc.
Special Projects, National Foundation for Mental Health
Erica Mobley
Communications & Membership Manager
The Leapfrog Group
Victor M. Montori, MD, MSc
Professor of Medicine and Director, Healthcare Delivery Research Program
Divisions of Endocrinology and Diabetes and Health Care and Policy Research
Mayo Clinic
Liz Morgan
Head of Community
PatientsLikeMe
Linda M. Morgan, MBA, RPh
Research Advocate
Parkinson’s Disease Foundation
Nancy Morris
Communications and Member Services Director
Maine Health Management Coalition
Ben Moulton, JD, MPH
Senior Legal Advisor
Informed Medical Decisions Foundation
Michael (Mick) D. Murray, PharmD, MPH
Professor
Regenstrief Institute and Purdue University
Shelley Fuld Nasso
Health Policy Consultant
National Coalition for Cancer Survivorship
Daniel Nugent, Esq.
Senior Policy Manager
National Minority AIDS Council
Ekene Obi-Okoye
Premedical Intern, Decision Services
University of California, San Francisco
Sally Okun, RN, MMHS
Vice President, Advocacy, Policy & Patient Safety
PatientsLikeMe
Lyn Paget, MPH
Managing Partner
Health Policy Partners
Jumin Park
PhD Candidate, Nursing
University of Maryland, Baltimore
Douglas W. Phillips
Caregiver
Laura M. Phillips
Patient
PatientsLikeMe
William F. Pilkington
Chief Executive Officer
Cabarrus Health Alliance
Jill Mara Plevinsky, MA
Clinical Research Coordinator, Center for Inflammatory Bowel Disease
Boston Children’s Hospital
Chair, The Patient Advisory Council for ImproveCareNow and C3N Project
Cincinnati Children’s Hospital
Holly Potter
Vice President, Brand Communication
Kaiser Permanente
Barbra G. Rabson
Executive Director
Massachusetts Health Quality Partners
Susan C. Reinhard, RN, PhD
Director
Public Policy Institute
AARP
Lygeia Ricciardi, EdM
Acting Director, Office of Consumer eHealth
Office of the National Coordinator for Health Information Technology
Pamela Rich, MPH
Senior Analyst
Institute on Health Care Costs and Solutions
National Business Group on Health
Bob Roehr
Reporter
BMJ
Susan W. Salmond, EdD, RN, ANEF, FAAN
Dean and Professor
UMDNJ–School of Nursing
John Santa, MD, MPH
Director
Consumer Reports Health Ratings Center
Consumer Reports
Suzanne Schrandt, JD
Deputy Director, Patient Engagement
Patient-Centered Outcomes Research Institute
Susan Sheridan, MBA, MIM
Director, Patient Engagement
Patient-Centered Outcomes Research Institute
Joanna E. Siegel, SD
Senior Health Research Scientist
Agency for Healthcare Research and Quality
Melissa A. Simon, MD, MPH
Director of Patient Navigation
Lurie Comprehensive Cancer Center
Northwestern University
Brad Smith
Co-Director
Center for Consumer Choice in Health Care
Altarum Institute
Mary Smith, MSHS
Guidelines Analyst
American Society for Radiation Oncology
Shoshanna Sofaer, MD, DrPH
Professor and Robert P. Luciano Chair of Health Care Policy
School of Public Affairs
Baruch College/City University of New York
Mary Anne Sterling, CEA
Principal Consultant
Sterling Health IT Consulting
Ellen Stovall
Senior Health Policy Advisor
National Coalition for Cancer Survivorship
Danielle Tarino
Public Health Advisor
Performance Measurement Branch
Substance Abuse and Mental Health Services Administration
Richard Thomason, MA
Director, Health Care and Coverage
Blue Shield of California Foundation
Veronica Todaro, MPH
Director of National Programs
Parkinson’s Disease Foundation
Amy Traver
Villers Fellow
Familes USA
Susan Brown Trinidad, MA
Research Scientist, Center for Genomics & Healthcare Equality
Department of Bioethics & Humanities
University of Washington
Tresa Undem
Partner
PerryUndem
George Velasco
Guidelines Analyst
American Society for Radiation Oncology
Kevin Volpp, MD, PhD
Staff Physician, Philadelphia VA Medical Center
Director, Center for Health Incentives and Behavioral Economics
Leonard Davis Institute
University of Pennsylvania
Lola A. Walker
Technical Officer, Community Mobilization
Program Innovation and Policy Unit
Elizabeth Glaser Pediatric AIDS Foundation
Sandy Walsh
President
California Breast Cancer Organizations
Jonathan Welch, MD
Instructor in Medicine
Research Scientist
Brigham and Women’s Hospital
Ross White
Public Policy Associate
The Hastings Center
Daniel Wolfson
Executive Vice President and Chief Operating Officer
American Board of Internal Medicine Foundation
Matthew K. Wynia, MD, MPH, FACP
Director, Physician Engagement for
Improving Health Outcomes
American Medical Association
Kelly Young
Rheumatoid Arthritis Warrior
Margot Zarin-Pass
Medical Student
University of California, San Francisco
IOM Staff
Daniel Bethea
Web Content Assistant
Claudia Grossmann, PhD
Senior Program Officer
Elizabeth Johnston
Program Assistant
Valerie Rohrbach
Senior Program Assistant
Julia Sanders
Senior Program Assistant
Robert Saunders
Senior Program Officer
Barret Zimmermann
Program Assistant
