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The National Children's Study 2014: An Assessment (2014)

Chapter: References: National Institute of Child Health and Human Development

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Suggested Citation:"References: National Institute of Child Health and Human Development." Institute of Medicine and National Research Council. 2014. The National Children's Study 2014: An Assessment. Washington, DC: The National Academies Press. doi: 10.17226/18826.
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References: National Institute of Child Health and Human Development

NOTE: The documents that have been published can be identified by a Website address. The documents that were provided directly to the panel are available in the Public Access File (PAF) in the Public Access Records Office at the National Academies.

National Institute of Child Health and Human Development (2012). National Children’s Study: Potential Sampling Strategies. Draft 3.0 April 16, 2002. Available: http://www.nationalchildrensstudy.gov/about/organization/advisorycommittee/Pages/Potential-Sampling-Strategies-NCS-4-16-12-Draft-3.0.pdf [May 2014].

National Institute of Child Health and Human Development. (2013a). The National Children’s Study Federal Advisory Committee Briefing Book. National Children’s Study Program Office. Available: http://www.nationalchildrensstudy.gov/about/organization/advisorycommittee/Pages/july_2013.aspx [December 2013].

National Institute of Child Health and Human Development. (2013b). The National Children’s Study: Description of Proposed Methods for the Main Study. National Children’s Study Program Office. Available: http://www.nationalchildrensstudy.gov/research/workshops/Pages/IOM-Workshop-on-the-Design-of-the-National-Childrens-Study-and-Implications-for-the-Generalizability-of-Results.aspx [December 2013].

National Institute of Child Health and Human Development. (2013c). The National Children’s Study Federal Advisory Committee Briefing Book (October 22). National Children’s Study Program Office. Available: http://www.nationalchildrensstudy.gov/about/organization/advisorycommittee/Pages/october_2013.aspx [December 2013].

National Institute of Child Health and Human Development. (2013d). IOM/NRC Review: Design of the National Children’s Study and Implications for Generalizability of Results. Responses to questions from the review committee (October 25). National Children’s Study Program Office. Available: PAF.

National Institute of Child Health and Human Development. (2013e). Miscellaneous Questions for NCS from Study Panel (October 23). National Children’s Study Program Office. Available: PAF.

Suggested Citation:"References: National Institute of Child Health and Human Development." Institute of Medicine and National Research Council. 2014. The National Children's Study 2014: An Assessment. Washington, DC: The National Academies Press. doi: 10.17226/18826.
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National Institute of Child Health and Human Development. (2013f). Responses to Questions on Design of the NCS Main Study (November 8). National Children’s Study Program Office. Available: PAF.

National Institute of Child Health and Human Development. (2013g). NCS Responses to Panel Questions (November 26). National Children’s Study Program Office. Available: PAF.

National Institute of Child Health and Human Development. (2013h). Questions and Responses to NCS IOM Review Panel Questions 11-27-2013(as revised on December 17, 2013). National Children’s Study Program Office. Available: PAF.

National Institute of Child Health and Human Development. (2013i). PSU Study (December 17). National Children’s Study Program Office. Available: PAF.

National Institute of Child Health and Human Development. (2013j). Cost questions (December 4). National Children’s Study Program Office. Available: PAF.

National Institute of Child Health and Human Development. (2013k). The National Children’s Study Data Access and Confidentiality—Concepts of Operations v1.0. National Children’s Study Program Office. Available: http://www.nationalchildrensstudy.gov/about/overview/Pages/NCS-CONOPS-Data-Access-and-Confidentiality.pdf [February 2014].

National Institute of Child Health and Human Development. (2014a). Cost Assessment Responses (January 15). National Children’s Study Program Office. Available: PAF.

National Institute of Child Health and Human Development. (2014b). National Children’s Study Federal Advisory Committee Briefing Document. National Children’s Study Program Office. Available: http://www.nationalchildrensstudy.gov/about/organization/advisorycommittee/Pages/January-2014-NCSAC-Briefing-Document.pdf [February 2014].

Suggested Citation:"References: National Institute of Child Health and Human Development." Institute of Medicine and National Research Council. 2014. The National Children's Study 2014: An Assessment. Washington, DC: The National Academies Press. doi: 10.17226/18826.
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Page 133
Suggested Citation:"References: National Institute of Child Health and Human Development." Institute of Medicine and National Research Council. 2014. The National Children's Study 2014: An Assessment. Washington, DC: The National Academies Press. doi: 10.17226/18826.
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Page 134
Next: Appendix A: Communications Between the Panel and the NCS Program Office »
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The National Children's Study (NCS) was authorized by the Children's Health Act of 2000 and is being implemented by a dedicated Program Office in the Eunice Kennedy Shriver National Institute of Child Health and Human Development (NICHD). The NCS is planned to be a longitudinal observational birth cohort study to evaluate the effects of chronic and intermittent exposures on child health and development in the U.S.. The NCS would be the first study to collect a broad range of environmental exposure measures for a national probability sample of about 100,000 children, followed from birth or before birth to age 21.

Detailed plans for the NCS were developed by 2007 and reviewed by a National Research Council / Institute of Medicine panel. At that time, sample recruitment for the NCS Main Study was scheduled to begin in 2009 and to be completed within about 5 years. However, results from the initial seven pilot locations, which recruited sample cases in 2009-2010, indicated that the proposed household-based recruitment approach would be more costly and time consuming than planned. In response, the Program Office implemented a number of pilot tests in 2011 to evaluate alternative recruitment methods and pilot testing continues to date.

At the request of Congress, The National Children's Study 2014 reviews the revised study design and proposed methodologies for the NCS Main Study. This report assesses the study's plan to determine whether it is likely to produce scientifically sound results that are generalizable to the United States population and appropriate subpopulations. The report makes recommendations about the overall study framework, sample design, timing, content and need for scientific expertise and oversight.

The National Children's Study has the potential to add immeasurably to scientific knowledge about the impact of environmental exposures, broadly defined, on children's health and development in the United States. The recommendations of this report will help the NCS will achieve its intended objective to examine the effects of environmental influences on the health and development of American children.

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