Guidelines for Returning Individual Results from Genome Research
Using Population-Based Banked Specimens
National Academy of Sciences
2101 Constitution Ave, NW
Washington, DC
Lecture Room
February 10-11, 2014
Day One–February 10
8:15-8:45 am | Registration (East Court) |
Continental breakfast available from 8:15 am | |
8:45-9:00 am | Welcome and Opening Remarks |
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9:00-10:00 am | Genomics in Population-Based Data Collection: The Example of the National Health and Nutrition Examination Survey (NHANES) |
Session chair: Wylie Burke, University of Washington | |
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10:00-11:00 am | Perspectives on Returning Genome-Based Research Results |
Session chair: Jeffrey Botkin, University of Utah | |
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11:00-11:15 am | Break |
11:15 am-12:30 pm | Framing the Discussion Session chair: Ellen Clayton, Vanderbilt University |
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12:30-1:15 pm | Lunch |
1:15-3:15 pm | How Is NHANES Similar to/Different from Other Population-Based Studies? |
Session chair: Eileen Crimmins, University of Southern California | |
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3:15-3:30 pm | Break |
3:30-5:00 pm | Issues for NHANES |
Session chair: Adam Berger, Institute of Medicine | |
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6:30 pm | Dinner (Steering Committee and Invited Speakers) |
Day Two–February 11 | |
8:30-9:00 am | Registration (East Court) Continental breakfast available from 8:30 am |
9:00-10:45 am | The Logistics of Returning Genomic Results from NHANES |
Session chair: Wylie Burke, University of Washington | |
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10:45-11:00 am | Break |
11:00 am-12:00 pm | Special Considerations for Reporting of Results in NHANES and Similar Surveys |
Session chair: Les Biesecker, National Human Genome Research Institute | |
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12:00-1:00 pm | Lunch |
1:00-3:00 pm | Summary of Presentations and Discussion Session chair: Wylie Burke, University of Washington |
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3:00 pm | Adjourn |