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Suggested Citation:"Appendix C: Statement of Task." Institute of Medicine. 2015. Genomics-Enabled Learning Health Care Systems: Gathering and Using Genomic Information to Improve Patient Care and Research: Workshop Summary. Washington, DC: The National Academies Press. doi: 10.17226/21707.
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C

Statement of Task

An ad hoc planning committee will organize and conduct a public workshop to examine how various systems are capturing and making use of genomic data to advance patient care and research. The workshop goal will be to evaluate the challenges, opportunities, and best practices for translating genomic data into knowledge that can inform both basic research and clinical care. In this context, various sources, tools, and methodology for the assessment of data related to the health care system may be considered. A diverse stakeholder group which may be composed of electronic health record developers and health information technology professionals, clinical providers, academic researchers, patient groups, and government representatives will be invited to present their perspectives. The planning committee will develop the workshop agenda, select speakers and discussants, and moderate the discussions. An individually authored summary of the workshop will be prepared by a designated rapporteur in accordance with institutional policy and procedures.

Suggested Citation:"Appendix C: Statement of Task." Institute of Medicine. 2015. Genomics-Enabled Learning Health Care Systems: Gathering and Using Genomic Information to Improve Patient Care and Research: Workshop Summary. Washington, DC: The National Academies Press. doi: 10.17226/21707.
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Suggested Citation:"Appendix C: Statement of Task." Institute of Medicine. 2015. Genomics-Enabled Learning Health Care Systems: Gathering and Using Genomic Information to Improve Patient Care and Research: Workshop Summary. Washington, DC: The National Academies Press. doi: 10.17226/21707.
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Page 87
Suggested Citation:"Appendix C: Statement of Task." Institute of Medicine. 2015. Genomics-Enabled Learning Health Care Systems: Gathering and Using Genomic Information to Improve Patient Care and Research: Workshop Summary. Washington, DC: The National Academies Press. doi: 10.17226/21707.
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Page 88
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The inclusion of genomic data in a knowledge-generating health care system infrastructure is one promising way to harness the full potential of that information to provide better patient care. In such a system, clinical practice and research influence each other with the goal of improving the efficiency and effectiveness of disease prevention, diagnosis, and treatment. To examine pragmatic approaches to incorporating genomics in learning health care systems, the Institute of Medicine Roundtable on Translating Genomic-Based Research for Health hosted a workshop which convened a variety of stakeholder groups, including commercial developers, health information technology professionals, clinical providers, academic researchers, patient groups, and government and health system representatives, to present their perspectives and participate in discussions on maximizing the value that can be obtained from genomic information. The workshop examined how a variety of systems are capturing and making use of genomic data to generate knowledge for advancing health care in the 21st century. It also sought to evaluate the challenges, opportunities, and best practices for capturing or using genomic information in knowledge-generating health care systems. Genomics-Enabled Learning Health Care Systems summarizes the presentations and discussion of the workshop.

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