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Suggested Citation:"Appendix D: Registered Attendees." Institute of Medicine. 2015. Genomics-Enabled Learning Health Care Systems: Gathering and Using Genomic Information to Improve Patient Care and Research: Workshop Summary. Washington, DC: The National Academies Press. doi: 10.17226/21707.
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D

Registered Attendees

Anjene Addington

National Institute of Mental Health

National Institutes of Health

Carol Alter

AstraZeneca

Hilary Andreff

Genetic Alliance

Naomi Aronson

Blue Cross Blue Shield Association

Samuel Aronson

Partners HealthCare Personalized Medicine

Mohammed Asiri

King Abudliziz City for Science and Technology

Adam Aten

Brookings Institution

Jason Aulds

Department of Defense

David Bachinsky

Molecular Creativity

Dixie Baker

Martin, Blanck & Associates

Suzanne Bakken

Columbia University

Paul Billings

Thermo Fisher Scientific

Katherine Blizinsky

National Human Genome Research Institute

National Institutes of Health

Meryl Bloomrosen

TJG

Bruce Blumberg

Kaiser Permanente Northern California

Suggested Citation:"Appendix D: Registered Attendees." Institute of Medicine. 2015. Genomics-Enabled Learning Health Care Systems: Gathering and Using Genomic Information to Improve Patient Care and Research: Workshop Summary. Washington, DC: The National Academies Press. doi: 10.17226/21707.
×

Richard Bookman

University of Miami

Angie Botto-van Bemden

Musculoskeletal Research International

Kimberly Boucher

Inova Health System

Khaled Bouri

U.S. Food and Drug Administration

Erica Breslau

National Cancer Institute

National Institutes of Health

Joel Brill

Predictive Health, LLC

Brenda Brooks

U.S. Food and Drug Administration

Philip J. Brooks

National Center for Advancing Translational Sciences

National Institutes of Health

Suanna Bruinooge

American Society of Clinical Oncology

Nessa Bryce

Quest University Canada

John Burch

JLB Associates

Tara Burke

Association of Molecular Pathology

Leah Burns

Bristol-Myers Squibb

Robert Campbell

Brown University

Alexis Carlson

Georgetown University Program for Regulatory Science and Medicine; Center of Excellance in Regulatory Science and Innovation (PRSM/CERSI)

Lucy Carruth

Johns Hopkins Applied Physics Laboratory

Sarah Carter

J. Craig Venter Institute

Ann Cashion

National Institute of Nursing Research

National Institutes of Health

Christopher Chute

Mayo Clinic

Michael Clare-Salzler

University of Florida

Gina Clemons

Social Security Administration

Suggested Citation:"Appendix D: Registered Attendees." Institute of Medicine. 2015. Genomics-Enabled Learning Health Care Systems: Gathering and Using Genomic Information to Improve Patient Care and Research: Workshop Summary. Washington, DC: The National Academies Press. doi: 10.17226/21707.
×

Elaine Collier

National Center for Advancing Translational Sciences

National Institutes of Health

Mick Correll

GenoSpace

Anurupa Dev

Association of American Medical Colleges

Safiyya Dharssi

Pfizer

Michael Dougherty

American Society of Human Genetics

Jennifer Dreyfus

Dreyfus Consulting, LLC

Kelly Dunham

Patient-Centered Outcomes Research Institute

Emily Edelman

The Jackson Laboratory

Lynn Etheredge

Rapid Learning Project

W. Gregory Feero

JAMA

J. Michael Fitzmaurice

JMF Associates

David Flannery

American College of Medical Genetics and Genomics

Scott Fogerty

Transomics Consulting

Matthew Foster

Georgetown University

Tom Fowler

Genomics England

Charles Friedman

University of Michigan Medical School

Liz Geltman

Hunter College, City University of New York School of Public Health

Geoffrey Ginsburg

Duke University

Michael Goldstein

Social Security Administration

Peter Goodhand

Global Alliance for Genomics and Health

Eric Green

National Human Genome Research Institute

National Institutes of Health

Jennifer Hall

Lillehei Heart Institute

University of Minnesota

Suggested Citation:"Appendix D: Registered Attendees." Institute of Medicine. 2015. Genomics-Enabled Learning Health Care Systems: Gathering and Using Genomic Information to Improve Patient Care and Research: Workshop Summary. Washington, DC: The National Academies Press. doi: 10.17226/21707.
×

Gregory Hess

University of Pennsylvania

Colin Hill

GNS Healthcare

John Greg Howe

Yale University School of Medicine

Pawan Jain

U.S. Food and Drug Administration

Gail Jarvik

University of Washington

Janet Jenkins-Showalter

Genentech

Brett Johnson

One Million Solutions in Health

Nicole Johnson

Invitae

AJ Jones II

The Podesta Group

Andrew Kasarskis

Icahn School of Medicine at Mount Sinai

Marcia Kean

Feinstein Kean Healthcare

Monisha Khan

Inova

Muin Khoury

Centers for Disease Control and Prevention

Jennifer King

American Society of Clinical Oncology

Lisa Klein

Inova Translational Medicine Institute

Raluca Kurz

University of California, Los Angeles

Fielding School of Public Health

Vincent Lau

American Association of Colleges of Pharmacy

Gabriela Lavezzari

PhRMA

Stephen Leffler

University of Vermont Medical Center

Debra Leonard

College of American Pathologists

University of Vermont Medical Center

Shira Levy

Inova Health System

Rongling Li

National Institutes of Health

Suggested Citation:"Appendix D: Registered Attendees." Institute of Medicine. 2015. Genomics-Enabled Learning Health Care Systems: Gathering and Using Genomic Information to Improve Patient Care and Research: Workshop Summary. Washington, DC: The National Academies Press. doi: 10.17226/21707.
×

Nita Limdi

University of Alabama at Birmingham

Mingkuan Lin

George Mason University

Robert Lipsky

Inova Health System

Suzanne Luther

Social Security Administration

Erika Lutins

Genetic Alliance

Julie Lynch

Veterans Health Administration

Joshua Mann

American Society of Clinical Oncology

Nicholas Marko

Geisinger Medical Center

Myles Maxfield

Mathematica

Robert McCormack

Johnson & Johnson

Kathleen McCormick

SciMind, LLC

Timothy Morck

Nestlé Corporate Affairs

Jennifer Moser

Veterans Health Administration

Scott Moss

Epic

Suman Mukherjee

Genetic Alliance

Sumitra Muralidhar

Department of Veterans Affairs

Nancy Myers

Catalyst Healthcare Consulting

John David Nolen

Cerner Corporation

James O’Leary

Genetic Alliance

Alexander Ommaya

Association of American Medical Colleges

Jennifer Pacheco

Northwestern University

Ketan Paranjape

Intel

Erin Payne

Northrop Grumman Health Division

Susan Pearson

Yakima Valley Farm Workers Clinic

Michelle Penny

Eli Lilly and Company

Suggested Citation:"Appendix D: Registered Attendees." Institute of Medicine. 2015. Genomics-Enabled Learning Health Care Systems: Gathering and Using Genomic Information to Improve Patient Care and Research: Workshop Summary. Washington, DC: The National Academies Press. doi: 10.17226/21707.
×

Josh Peterson

Vanderbilt University Medical Center

Robert M. Plenge

Merck Research Laboratories

Victoria Pratt

Association for Molecular Pathology

Daryl Pritchard

Personalized Medicine Coalition

Ronald Przygodzki

Department of Veterans Affairs

Ximena Qadir

National Cancer Institute

National Institutes of Health

Nalini Raghavachari

National Institute on Aging

National Institutes of Health

Sara Reardon

Nature

Kate Reed

The Jackson Laboratory

Neil Risch

University of California, San Francisco

Samantha Roberts

Friends of Cancer Research

Laura Rodriguez

National Human Genome Research Institute

National Institutes of Health

Helena Rubinstein

Freelance Journalist

Fred Sanfilippo

Emory University

Fatoumata Sangare

George Washington University Alumni

Derek Scholes

National Human Genome Research Institute

National Institutes of Health

Sheri Schully

National Cancer Institute

National Institutes of Health

Joan Scott

Health Resources and Services Administration

Regina Searcy

Searcy Venture Group

Shahid Shah

HITSphere.com

Lalitha Shankar

Cancer Imaging Program

Sam Shekar

Northrop Grumman

Suggested Citation:"Appendix D: Registered Attendees." Institute of Medicine. 2015. Genomics-Enabled Learning Health Care Systems: Gathering and Using Genomic Information to Improve Patient Care and Research: Workshop Summary. Washington, DC: The National Academies Press. doi: 10.17226/21707.
×

Jared Stevenson

Genetic Alliance

Brad Strock

Epic

Margaret Sutherland

National Institute of Neurological Disorders and Stroke

National Institutes of Health

Devin Sutton

McGirr CO KG

Katie Johansen Taber

American Medical Association

Sharon Terry

Genetic Alliance

Zivana Tezak

U.S. Food and Drug Administration

Quynh Tran

Cystic Fibrosis Foundation

Patty Vasalos

College of American Pathologists

Jason Vassy

Harvard Medical School

Veterans Administration

Boston Healthcare System

David Veenstra

University of Washington

Wes Walker

Cerner

Michael Watson

American College of Medical Genetics and Genomics

Meredith Weaver

American College of Medical Genetics and Genomics

Jennifer Weisman

Strategic Analysis, Inc.

Angele White

Fair Chance, Inc.

Catherine Wicklund

National Society of Genetic Counselors

David Wierz

OCI Group, LLC

Bob Wildin

National Human Genome Research Institute

National Institutes of Health

Janet Williams

University of Iowa and American Academy of Nursing

Catherine Witkop

U.S. Air Force

Andrew Womack

Genentech

Janet Woollen

Columbia University

Suggested Citation:"Appendix D: Registered Attendees." Institute of Medicine. 2015. Genomics-Enabled Learning Health Care Systems: Gathering and Using Genomic Information to Improve Patient Care and Research: Workshop Summary. Washington, DC: The National Academies Press. doi: 10.17226/21707.
×

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Suggested Citation:"Appendix D: Registered Attendees." Institute of Medicine. 2015. Genomics-Enabled Learning Health Care Systems: Gathering and Using Genomic Information to Improve Patient Care and Research: Workshop Summary. Washington, DC: The National Academies Press. doi: 10.17226/21707.
×
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Suggested Citation:"Appendix D: Registered Attendees." Institute of Medicine. 2015. Genomics-Enabled Learning Health Care Systems: Gathering and Using Genomic Information to Improve Patient Care and Research: Workshop Summary. Washington, DC: The National Academies Press. doi: 10.17226/21707.
×
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Suggested Citation:"Appendix D: Registered Attendees." Institute of Medicine. 2015. Genomics-Enabled Learning Health Care Systems: Gathering and Using Genomic Information to Improve Patient Care and Research: Workshop Summary. Washington, DC: The National Academies Press. doi: 10.17226/21707.
×
Page 91
Suggested Citation:"Appendix D: Registered Attendees." Institute of Medicine. 2015. Genomics-Enabled Learning Health Care Systems: Gathering and Using Genomic Information to Improve Patient Care and Research: Workshop Summary. Washington, DC: The National Academies Press. doi: 10.17226/21707.
×
Page 92
Suggested Citation:"Appendix D: Registered Attendees." Institute of Medicine. 2015. Genomics-Enabled Learning Health Care Systems: Gathering and Using Genomic Information to Improve Patient Care and Research: Workshop Summary. Washington, DC: The National Academies Press. doi: 10.17226/21707.
×
Page 93
Suggested Citation:"Appendix D: Registered Attendees." Institute of Medicine. 2015. Genomics-Enabled Learning Health Care Systems: Gathering and Using Genomic Information to Improve Patient Care and Research: Workshop Summary. Washington, DC: The National Academies Press. doi: 10.17226/21707.
×
Page 94
Suggested Citation:"Appendix D: Registered Attendees." Institute of Medicine. 2015. Genomics-Enabled Learning Health Care Systems: Gathering and Using Genomic Information to Improve Patient Care and Research: Workshop Summary. Washington, DC: The National Academies Press. doi: 10.17226/21707.
×
Page 95
Suggested Citation:"Appendix D: Registered Attendees." Institute of Medicine. 2015. Genomics-Enabled Learning Health Care Systems: Gathering and Using Genomic Information to Improve Patient Care and Research: Workshop Summary. Washington, DC: The National Academies Press. doi: 10.17226/21707.
×
Page 96
Genomics-Enabled Learning Health Care Systems: Gathering and Using Genomic Information to Improve Patient Care and Research: Workshop Summary Get This Book
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The inclusion of genomic data in a knowledge-generating health care system infrastructure is one promising way to harness the full potential of that information to provide better patient care. In such a system, clinical practice and research influence each other with the goal of improving the efficiency and effectiveness of disease prevention, diagnosis, and treatment. To examine pragmatic approaches to incorporating genomics in learning health care systems, the Institute of Medicine Roundtable on Translating Genomic-Based Research for Health hosted a workshop which convened a variety of stakeholder groups, including commercial developers, health information technology professionals, clinical providers, academic researchers, patient groups, and government and health system representatives, to present their perspectives and participate in discussions on maximizing the value that can be obtained from genomic information. The workshop examined how a variety of systems are capturing and making use of genomic data to generate knowledge for advancing health care in the 21st century. It also sought to evaluate the challenges, opportunities, and best practices for capturing or using genomic information in knowledge-generating health care systems. Genomics-Enabled Learning Health Care Systems summarizes the presentations and discussion of the workshop.

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