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Health Literacy and Consumer-Facing Technology: Workshop Summary (2015)

Chapter: Appendix B: Biographical Sketches of Workshop Speakers

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Suggested Citation:"Appendix B: Biographical Sketches of Workshop Speakers." National Academies of Sciences, Engineering, and Medicine. 2015. Health Literacy and Consumer-Facing Technology: Workshop Summary. Washington, DC: The National Academies Press. doi: 10.17226/21781.
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Appendix B

Biographical Sketches of Workshop Speakers

Patricia Dykes, Ph.D., M.A., RN, FAAN, FACMI, is senior nurse scientist and program director for research in the Center for Patient Safety Research and Practice and the Center for Nursing Excellence at Brigham and Women’s Hospital (BWH) and assistant professor at Harvard Medical School, where she has a program of informatics and patient safety research. Dr. Dykes and her team were funded by the Robert Wood Johnson Foundation to develop and test a Web-based fall prevention toolkit. The toolkit was found to significantly reduce falls in acute care hospitals and the results of their study were published in the Journal of the American Medical Association. Dr. Dykes and her team have expanded this research and are exploring the use of technology to provide the core set of information needed by care team members (including patients) at the bedside to provide and engage in safe patient care. Dr. Dykes is currently the Partner’s health care site principal investigator for a Patient-Centered Outcomes Research Institute (PCORI) and the National Institute on Aging–funded fall prevention clinical trial. She is the author of 2 books and more than 70 peer-reviewed publications and has presented her work related to nursing informatics, clinical documentation, and patient safety both nationally and internationally. She is a member of the National Institutes of Health Biomedical Computing and Health Informatics Study Section, Center for Scientific Review, and an elected Fellow of the American Academy of Nursing and the American College of Medical Informatics.

Read Holman, M.P.H., is a program director in the U.S. Department of Health and Human Services (HHS) Innovation, Design, Entrepreneurship and Action (IDEA) Lab and senior advisor on internal entrepreneurship to

Suggested Citation:"Appendix B: Biographical Sketches of Workshop Speakers." National Academies of Sciences, Engineering, and Medicine. 2015. Health Literacy and Consumer-Facing Technology: Workshop Summary. Washington, DC: The National Academies Press. doi: 10.17226/21781.
×

the chief technology officer. His focus is on the development of programs and services that promote the use of start-up methodologies as a means to deliberately disrupt and improve government operations and services. Among his portfolio of activities, Mr. Holman manages the HHS Ignite Accelerator and the HHS Ventures Fund.

Prior to the IDEA Lab, Mr. Holman directed the digital strategy of the Center for Medicare & Medicaid Innovation and served in public affairs within the Office of the Secretary, where he bridged the worlds of communications, policy, and Web technologies. Mr. Holman has a B.S. in Biology and an M.P.H. in Health Care Policy and Management.

Dean Hovey, M.S., has started numerous high-tech companies over the past 30 years from his base in Silicon Valley. He is known for his creativity, product design acumen, and customer insights for having co-founded IDEO and for his early work designing the mouse for Apple Computer. His roles span senior executive positions in public companies, as a venture capital general partner, and CEO/founder/entrepreneur. Mr. Hovey received his B.S./M.S. in General Engineering, Product Design from Stanford University.

Pamela R. Jeffries, Ph.D., M.S.N., RN, FAAN, ANEF, vice provost for digital initiatives at Johns Hopkins University and professor at the School of Nursing, is nationally known for her research and work in developing simulations and online teaching and learning. She is well regarded for her expertise in experiential learning, innovative teaching strategies, new pedagogies, and the delivery of content using technology in nursing education. Additionally, Dr. Jeffries is the past president of the interprofessional, international Society for Simulation in Healthcare and a member of the Institute of Medicine’s Global Intraprofessional Education Forum, among many other organizations. Dr. Jeffries was newly inducted into the prestigious Sigma Theta Tau Research Hall of Fame and is the recipient of several teaching and research awards from the Midwest Nursing Research Society and the International Nursing Association of Clinical Simulations and Learning, and teaching awards from the National League of Nursing, Sigma Theta Tau, International, and most recently, the American Association of Colleges of Nursing Scholarship of Teaching and Learning Excellence award. She has a B.S.N. from Ball State University and an M.S.N. and a Ph.D. in Nursing from Indiana University.

Elizabeth “Betty” T. Jordan, D.N.Sc., RNC, FAAN, has more than 30 years of clinical experience and significant research expertise in labor and delivery. Dr. Jordan is a recognized international nursing leader in maternal and newborn outcomes research, education, and practice. She is an associate professor and senior assistant dean of undergraduate nursing at the College

Suggested Citation:"Appendix B: Biographical Sketches of Workshop Speakers." National Academies of Sciences, Engineering, and Medicine. 2015. Health Literacy and Consumer-Facing Technology: Workshop Summary. Washington, DC: The National Academies Press. doi: 10.17226/21781.
×

of Nursing at the University of South Florida. She previously served as the co-director of the Johns Hopkins University Global mHealth Initiative and director of the Johns Hopkins University School of Nursing baccalaureate program.

Dr. Jordan currently serves as program evaluation consultant for the national Text4Baby program. Healthy Mothers, Healthy Babies Coalition launched this domestic mHealth program in 2010. Dr. Jordan serves on the editorial board and as an author for the Association of Women’s Health, Obstetric and Neonatal Nurses’ (AWHONN’s) consumer magazine and website “Healthy Mom & Baby.” She has extensive publications in peer-reviewed journals and has made presentations at regional, national, and international conferences. She served on the Board of Directors of AWHONN and the Board for the Healthy Mothers, Healthy Babies Coalition. She was recognized as 1 of the “Top 100 Women in Maryland” for her dedication and service to Maryland in helping address the issue of poor birth outcomes.

Katherine Kim, Ph.D., M.P.H., M.B.A., is an assistant professor at the Betty Irene Moore School of Nursing at the University of California, Davis (UC Davis). Her research focuses on information technology to improve community health, care coordination, and clinical research. Dr. Kim has led research projects using participatory methods to design, implement, and evaluate mobile and social technology–enabled health interventions and distributed research networks. Her areas of clinical interest include cancer, obesity, heart disease, and other chronic conditions. Her work has been funded by the Robert Wood Johnson Foundation, Agency for Healthcare Research and Quality, PCORI, McKesson Foundation, and Boston University National Cancer Institute.

Currently, Dr. Kim leads a research project at the School of Nursing exploring the use of a social networking platform in cancer care and its impact on care. She also conducts research as part of the UC Davis team contributing to a University of California–wide project exploring the connectivity of 3 networks serving more than 21 million patients. The project is funded by a nearly $7 million grant from PCORI, which supports development of a nationwide clinical research network.

Her work has been published in journals such as Medical Care, Journal of the American Medical Association, and Nursing Outlook. She has received best paper nominations from AcademyHealth and the American Medical Informatics Association. Dr. Kim also serves on advisory boards and task forces for iDASH, a National Institutes of Health National Center for Biomedical Computing, the federal Office of the National Coordinator for Health Information Technology, and PCORI.

Prior to her 2014 appointment as an assistant professor at the nurs-

Suggested Citation:"Appendix B: Biographical Sketches of Workshop Speakers." National Academies of Sciences, Engineering, and Medicine. 2015. Health Literacy and Consumer-Facing Technology: Workshop Summary. Washington, DC: The National Academies Press. doi: 10.17226/21781.
×

ing school, Dr. Kim was the first graduate of the doctoral Nursing Science and Health-Care Leadership program. Over the course of her 4 years in the doctoral program, she was recognized several times for her leadership in the health technology fields. She co-founded the Interprofessional Health Informatics Student Special Interest Group and received a number of scholarships. Previously, Dr. Kim was a professor at San Francisco State University’s Health Equity Institute. For more than 20 years, she has led teams to innovate and excel in hospitals and medical groups. She is also an entrepreneur, serving as CEO of a venture-funded start-up, leader of a business incubator, and founder and president of Kim Consultants. She received a B.A. in Biology from Harvard College and an M.P.H. and an M.B.A. from UC Berkeley.

Alex Krist, M.D., M.P.H., is an associate professor of family medicine and population health at Virginia Commonwealth University and active clinician and teacher at the Fairfax Family Practice residency program. He is co-director of the Virginia Ambulatory Care Outcomes Research Network and director of community-engaged research at the Center for Clinical and Translational Research. Dr. Krist’s research focuses on implementation of preventive recommendations, patient-centered care, shared decision making, cancer screening, and health information technology.

Lana Moriarty, M.P.H., is acting director for Consumer eHealth in the HHS Office of the National Coordinator’s Office of Programs & Engagement. Previously she managed part of the National Health Service Corps (NHSC) and the NURSE Corps programs for the Health Resources and Services Administration (HRSA). She supported participants of the NHSC and NURSE Corps, which delivered care to underserved communities. She also worked with the World Bank Group, ensuring the needs of women and girls were included in the Bank’s many overseas development operations.

Catina O’Leary, Ph.D., LMSW, serves as president and CEO of Health Literacy Missouri (HLM). Under her direction, HLM’s service network has expanded to include some of the largest employers in Missouri, including pharmaceutical companies, hospital systems, business coalitions, and community-based organizations. Chosen by the St. Louis Business Journal for professional excellence and dedication to the community, Dr. O’Leary is a member of the 2013 class of “40 Under 40” leaders. She was recently selected to join FOCUS St. Louis’ 39th Leadership St. Louis class. Before her appointment as CEO of HLM, Dr. O’Leary was a faculty member at Washington University School of Medicine in the Department of Psychiatry and the Program on Occupational Therapy. At Washington University, her

Suggested Citation:"Appendix B: Biographical Sketches of Workshop Speakers." National Academies of Sciences, Engineering, and Medicine. 2015. Health Literacy and Consumer-Facing Technology: Workshop Summary. Washington, DC: The National Academies Press. doi: 10.17226/21781.
×

community-engaged research centered on methods to engage underserved populations in health and social service programs. She focused specifically on women’s health.

Dr. O’Leary is the past president and continues to serve on the board of The Bridge, a drop-in shelter that offers daily meals and basic social services to homeless and at-risk St. Louisans. She also serves as vice president for Magdalene St. Louis, a nonprofit that helps women who have survived lives of abuse, prostitution, trafficking, and addiction by providing a community where they can recover and rebuild their lives.

Dr. O’Leary earned her B.A. in Psychology from the University of Mississippi and an M.S.W. and a Ph.D. in Social Work from the George Warren Brown School of Social Work at Washington University.

Alison Rein is a senior director for evidence generation and translation at AcademyHealth, where she oversees a portfolio that investigates how new sources of data and expanded stakeholder engagement are helping to transform health care and research. Ms. Rein is the principal investigator on a PCORI contract that actively manages and facilitates collaboration among 50 pilot projects to advance the field of patient-centered outcomes research (PCOR), and co-investigator on the Electronic Data Methods Forum. She also recently directed the Beacon Evidence and Innovation Network, which provided Beacon Community Cooperative Agreement Program participants in identifying, documenting, and disseminating the lessons and results of their individual efforts in a systematic way. Ms. Rein serves as AcademyHealth’s liaison to the innovations and “open health data” movement spearheaded by HHS, and oversees or contributes to projects that focus on building infrastructure to support quality improvement, comparative effectiveness research, and PCOR.

Ms. Rein has expertise in health information technology policy, stakeholder engagement, comparative effectiveness research, information management and governance, and community-based quality improvement, and has written and presented on a number of these topics. With more than 18 years of experience in the health care field, she brings a range of skills to her work, including technical assistance design and execution, collaborative network development, research design, and policy analysis.

Lygeia Ricciardi, Ed.M., is an expert and thought leader in consumer engagement and digital health. Her consulting practice, Clear Voice Consulting, helps clients from tech start-ups to large multinationals position themselves strategically and communicate effectively with their customers in the growing consumer digital health marketplace.

Previously Ms. Ricciardi established and directed the Office of Consumer eHealth at the Office of the National Coordinator for Health Infor-

Suggested Citation:"Appendix B: Biographical Sketches of Workshop Speakers." National Academies of Sciences, Engineering, and Medicine. 2015. Health Literacy and Consumer-Facing Technology: Workshop Summary. Washington, DC: The National Academies Press. doi: 10.17226/21781.
×

mation Technology, where she led the Blue Button Initiative and integrated the consumer perspective into Meaningful Use requirements and other federal policies and programs. She has also worked at start-ups, Harvard Business School, the Markle Foundation, and the Federal Communications Commission. Ms. Ricciardi has been voted among the “Top 10 Most Influential Women in Health IT” and featured by C-SPAN, the Wall Street Journal, and National Public Radio.

Rebecca Schnall, Ph.D., RN, has focused her work on persons living with or at high risk for HIV/AIDS (PLWHA), a disease that affects nearly 1.2 million Americans. Dr. Schnall’s research has informed New York state policy. Through federally funded research, she explored the use of informatics tools used in the implementation of the New York state HIV testing law. Her research team found that while electronic alerts increase testing rates, they do not increase the diagnosis rates of HIV. This work, published in peer-reviewed journals and presented at national and international conferences, continues to influence policy makers and clinicians in the implementation of other mandatory health screening programs.

In addition, Dr. Schnall’s research guides public health efforts to improve population health at the national level. She recently completed a Centers for Disease Control and Prevention (CDC)-funded project to inform the design of mobile applications for HIV prevention and treatment. The information from that study is foundational to CDC’s prevention efforts of HIV in high-risk men who have sex with men. Findings will also be used to inform the development of a CDC mobile application for PLWHA for the management of their disease. This study is one of the first attempts to identify the functional components and information that should be contained in an app from HIV persons and their care providers. This important work will also contribute to the knowledge base for developing informatics tools and strategies in building mobile applications that can be extended to the development of mobile health technology for managing other chronic illnesses.

Dr. Schnall’s work in the field of informatics has also contributed to the development of self-management tools for chronically ill patients. She led a feasibility study to design and test a Web-based symptom self-management tool for PLWHA. Findings from the study demonstrated the feasibility and usefulness of Web-based tailored systems for decreasing symptom frequency and intensity in PLWHA. Finally, she has contributed to the science of informatics by developing and refining innovative informatics methods to understand the usability factors associated with the use of mobile health technology. Her work has demonstrated novel methods for assessing the usability of mobile devices and validated the use of a new usability evaluation framework for mobile health technology. Importantly, these contribu-

Suggested Citation:"Appendix B: Biographical Sketches of Workshop Speakers." National Academies of Sciences, Engineering, and Medicine. 2015. Health Literacy and Consumer-Facing Technology: Workshop Summary. Washington, DC: The National Academies Press. doi: 10.17226/21781.
×

tions have been widely disseminated and contributed to the development of informatics knowledge.

Ted Vickey is the founder and president of FitWell, Inc., a fitness and wellness consulting company specializing in innovation and emerging technology. He is also currently completing a Ph.D. in Engineering, focusing on interdisciplinary research within exercise science, technology, and social networking, at the National University of Ireland at Galway. He is an emeritus member of the Board of Directors for the American Council on Exercise, the largest nonprofit accredited certification organization in the fitness industry.

Prior to his recent studies, Mr. Vickey was vice president of Comprehensive Health Services, where he led the fitness and wellness division of the largest privately held occupational medicine company in the United States.

From 1994 to 2005, he was the executive director of the White House Athletic Center, the fitness center serving the fitness, health, and wellness needs of the staff at the Executive Office of the President under the Clinton and Bush administrations. He has also consulted with companies and organizations such as the White House, Department of Commerce, Securities and Exchange Commission, Fruit of the Loom, Transportation Security Administration, Sylvania, and Allied Irish Bank.

Mr. Vickey holds a B.S. in Exercise Science from Pennsylvania State University and a master’s of Business in International Business and Entrepreneurship from the University of Limerick. He frequently presents on fitness and technology to diverse audiences around the world and is the author of four books and numerous academic papers.

Winston F. Wong, M.D., M.S., serves as Medical Director, Community Benefit, Kaiser Permanente, and is responsible for the organization’s partnerships with communities and institutions in advancing population management and evidence-based medicine, with a particular emphasis on safety net providers and the elimination of health disparities. As a Captain of the Commissioned Corp of the U.S. Public Health Service from 1993–2003, Dr. Wong was awarded the Outstanding Service Medal. Dr. Wong currently has served on a number of national advisory committees, including those sponsored by the National Quality Forum, Centers for Medicare & Medicaid Services, and the Institute of Medicine (IOM) addressing issues of access and quality for diverse populations, most recently as a member of the IOM Committee on the Integration of Primary Care and Public Health. In 2013, Dr. Wong was appointed to the IOM’s Board on Population Health and Public Health Practice. He is also a Board member of The California Endowment, the Essential Hospitals Institute, and the School Based Health Alliance. Bilingual in Cantonese and Toisan dialects, and a graduate of UC

Suggested Citation:"Appendix B: Biographical Sketches of Workshop Speakers." National Academies of Sciences, Engineering, and Medicine. 2015. Health Literacy and Consumer-Facing Technology: Workshop Summary. Washington, DC: The National Academies Press. doi: 10.17226/21781.
×

Berkeley and the UC San Francisco School of Medicine, Dr. Wong continues a small practice in Family Medicine at Asian Health Services, a federally qualified health center based in Oakland, where he previously served as Medical Director. Dr. Wong was featured as a “Face of Public Health” in the May 2010 issue of the American Journal of Public Health.

Suggested Citation:"Appendix B: Biographical Sketches of Workshop Speakers." National Academies of Sciences, Engineering, and Medicine. 2015. Health Literacy and Consumer-Facing Technology: Workshop Summary. Washington, DC: The National Academies Press. doi: 10.17226/21781.
×
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Suggested Citation:"Appendix B: Biographical Sketches of Workshop Speakers." National Academies of Sciences, Engineering, and Medicine. 2015. Health Literacy and Consumer-Facing Technology: Workshop Summary. Washington, DC: The National Academies Press. doi: 10.17226/21781.
×
Page 98
Suggested Citation:"Appendix B: Biographical Sketches of Workshop Speakers." National Academies of Sciences, Engineering, and Medicine. 2015. Health Literacy and Consumer-Facing Technology: Workshop Summary. Washington, DC: The National Academies Press. doi: 10.17226/21781.
×
Page 99
Suggested Citation:"Appendix B: Biographical Sketches of Workshop Speakers." National Academies of Sciences, Engineering, and Medicine. 2015. Health Literacy and Consumer-Facing Technology: Workshop Summary. Washington, DC: The National Academies Press. doi: 10.17226/21781.
×
Page 100
Suggested Citation:"Appendix B: Biographical Sketches of Workshop Speakers." National Academies of Sciences, Engineering, and Medicine. 2015. Health Literacy and Consumer-Facing Technology: Workshop Summary. Washington, DC: The National Academies Press. doi: 10.17226/21781.
×
Page 101
Suggested Citation:"Appendix B: Biographical Sketches of Workshop Speakers." National Academies of Sciences, Engineering, and Medicine. 2015. Health Literacy and Consumer-Facing Technology: Workshop Summary. Washington, DC: The National Academies Press. doi: 10.17226/21781.
×
Page 102
Suggested Citation:"Appendix B: Biographical Sketches of Workshop Speakers." National Academies of Sciences, Engineering, and Medicine. 2015. Health Literacy and Consumer-Facing Technology: Workshop Summary. Washington, DC: The National Academies Press. doi: 10.17226/21781.
×
Page 103
Suggested Citation:"Appendix B: Biographical Sketches of Workshop Speakers." National Academies of Sciences, Engineering, and Medicine. 2015. Health Literacy and Consumer-Facing Technology: Workshop Summary. Washington, DC: The National Academies Press. doi: 10.17226/21781.
×
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The proliferation of consumer-facing technology and personal health information technology has grown steadily over the past decade, and has certainly exploded over the past several years. Many people have embraced smartphones and wearable health-monitoring devices to track their fitness and personal health information. Providers have made it easier for patients and caregivers to access health records and communicate through online patient portals. However, the large volume of health-related information that these devices can generate and input into a health record can also lead to an increased amount of confusion on the part of users and caregivers.

The Institute of Medicine convened a workshop to explore health literate practices in health information technology and then provide and consider the ramifications of this rapidly growing field on the health literacy of users. Health Literacy and Consumer-Facing Technology summarizes the discussions and presentations from this workshop, highlighting the lessons presented, practical strategies, and the needs and opportunities for improving health literacy in consumer-facing technology.

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