National Academies Press: OpenBook
Suggested Citation:"Front Matter." National Academies of Sciences, Engineering, and Medicine. 2016. Health Literacy and Palliative Care: Workshop Summary. Washington, DC: The National Academies Press. doi: 10.17226/21839.
×

Health Literacy
AND
Palliative Care

_____________________________________

WORKSHOP SUMMARY

Joe Alper, Rapporteur

Roundtable on Health Literacy

Board on Population Health and Public Health Practice

Health and Medicine Division

image

THE NATIONAL ACADEMIES PRESS
Washington, DC
www.nap.edu

Suggested Citation:"Front Matter." National Academies of Sciences, Engineering, and Medicine. 2016. Health Literacy and Palliative Care: Workshop Summary. Washington, DC: The National Academies Press. doi: 10.17226/21839.
×

THE NATIONAL ACADEMIES PRESS     500 Fifth Street, NW     Washington, DC 20001

This activity was supported by contracts between the National Academy of Sciences and the Aetna Foundation; the Agency for Healthcare Research and Quality (HHSP233200900537P); American Dental Association; Bristol-Myers Squibb; East Bay Community Foundation (Kaiser Permanente); Eli Lilly and Company; Health Literacy Missouri; Health Literacy Partners; Health Resources and Services Administration (HHSH25034004T); Humana; Institute for Healthcare Advancement; Merck & Co., Inc.; National Institutes of Health; North Shore–Long Island Jewish Health System; Office of Disease Prevention and Health Promotion; and UnitedHealth Group. Any opinions, findings, conclusions, or recommendations expressed in this publication do not necessarily reflect the views of any organization or agency that provided support for the project.

International Standard Book Number 13: 978-0-309-38036-2
International Standard Book Number 10: 0-309-38036-7
Digital Object Identifier: 10.17226/21839

Additional copies of this workshop summary are available for sale from the National Academies Press, 500 Fifth Street, NW, Keck 360, Washington, DC 20001; (800) 624-6242 or (202) 334-3313; http://www.nap.edu.

Copyright 2016 by the National Academy of Sciences. All rights reserved.

Printed in the United States of America

Suggested citation: National Academies of Sciences, Engineering, and Medicine. 2016. Health literacy and palliative care: Workshop summary. Washington, DC: The National Academies Press. doi: 10.17226/21839.

Suggested Citation:"Front Matter." National Academies of Sciences, Engineering, and Medicine. 2016. Health Literacy and Palliative Care: Workshop Summary. Washington, DC: The National Academies Press. doi: 10.17226/21839.
×

image

The National Academy of Sciences was established in 1863 by an Act of Congress, signed by President Lincoln, as a private, nongovernmental institution to advise the nation on issues related to science and technology. Members are elected by their peers for outstanding contributions to research. Dr. Ralph J. Cicerone is president.

The National Academy of Engineering was established in 1964 under the charter of the National Academy of Sciences to bring the practices of engineering to advising the nation. Members are elected by their peers for extraordinary contributions to engineering. Dr. C. D. Mote, Jr., is president.

The National Academy of Medicine (formerly the Institute of Medicine) was established in 1970 under the charter of the National Academy of Sciences to advise the nation on medical and health issues. Members are elected by their peers for distinguished contributions to medicine and health. Dr. Victor J. Dzau is president.

The three Academies work together as the National Academies of Sciences, Engineering, and Medicine to provide independent, objective analysis and advice to the nation and conduct other activities to solve complex problems and inform public policy decisions. The Academies also encourage education and research, recognize outstanding contributions to knowledge, and increase public understanding in matters of science, engineering, and medicine.

Learn more about the National Academies of Sciences, Engineering, and Medicine at www.national-academies.org.

Suggested Citation:"Front Matter." National Academies of Sciences, Engineering, and Medicine. 2016. Health Literacy and Palliative Care: Workshop Summary. Washington, DC: The National Academies Press. doi: 10.17226/21839.
×

This page intentionally left blank.

Suggested Citation:"Front Matter." National Academies of Sciences, Engineering, and Medicine. 2016. Health Literacy and Palliative Care: Workshop Summary. Washington, DC: The National Academies Press. doi: 10.17226/21839.
×

PLANNING COMMITTEE ON HEALTH LITERACY AND PALLIATIVE CARE1

CINDY BRACH, Senior Health Policy Researcher, Agency for Healthcare Research and Quality

MARIAN GRANT, Assistant Professor of Organizational Systems and Adult Health, University of Maryland School of Nursing

RENEE McLEOD-SORDJAN, Director, Division of Medical Ethics, North Shore University Hospital, Long Island Jewish Medical Center and Nassau University Medical Center

DIANE MEIER, Director, Center to Advance Palliative Care and Vice-Chair for Public Policy and Professor of Geriatrics and Palliative Medicine, Icahn School of Medicine at Mount Sinai

YAEL SCHENKER, Assistant Professor, Division of General Internal Medicine, Section of Palliative Care and Medical Ethics, University of Pittsburgh

PAUL SCHYVE, Senior Advisor for Quality Improvement, The Joint Commission

__________________

1 The National Academies of Sciences, Engineering, and Medicine’s planning committees are solely responsible for organizing the workshop, identifying topics, and choosing speakers. The responsibility for the published workshop summary rests with the workshop rapporteur and the institution.

Suggested Citation:"Front Matter." National Academies of Sciences, Engineering, and Medicine. 2016. Health Literacy and Palliative Care: Workshop Summary. Washington, DC: The National Academies Press. doi: 10.17226/21839.
×

This page intentionally left blank.

Suggested Citation:"Front Matter." National Academies of Sciences, Engineering, and Medicine. 2016. Health Literacy and Palliative Care: Workshop Summary. Washington, DC: The National Academies Press. doi: 10.17226/21839.
×

ROUNDTABLE ON HEALTH LITERACY1

BERNARD ROSOF (Chair), Chief Executive Officer, Quality in Healthcare Advisory Group, LLC

MARIN P. ALLEN, Deputy Associate Director for Communications and Public Liason and Director of Public Information, National Institutes of Health

WILMA ALVARADO-LITTLE, Principal and Founder, Alvarado-Little Consulting, LLC

SUZANNE BAKKEN, Alumni Professor of Nursing and Professor of Biomedical Informatics, Columbia University

CINDY BRACH, Senior Health Policy Researcher, Agency for Healthcare Research and Quality

GEM DAUS, Public Health Analyst, Health Resources and Services Administration

TERRY DAVIS, Professor of Medicine and Pediatrics, Louisiana State University Health Sciences Center

CHRISTOPHER DEZII, Director, Healthcare Quality and Performance Measures, Bristol-Myers Squibb Company

JENNIFER DILLAHA, Medical Director for Immunizations, Medical Advisor, Health Literacy and Communication, Arkansas Department of Health

ALICIA FERNANDEZ, Professor of Clinical Medicine, University of California, San Francisco

LAURIE FRANCIS, Senior Director of Clinic Operations and Quality, Oregon Primary Care Association

GARTH GRAHAM, President, Aetna Foundation

LORI HALL, Consultant, Health Education, Eli Lilly and Company

LINDA HARRIS, Division Director, Health Communication and eHealth Team, U.S. Department of Health and Human Services

BETSY L. HUMPHREYS, Deputy Director, National Library of Medicine

MARGARET LOVELAND, Senior Director, Global Medical Affairs, Merck & Co.

LAURIE MYERS, Leader of Health Literacy Strategy, Merck & Co.

CATINA O’LEARY, President and Chief Executive Officer, Health Literacy Missouri

MICHAEL PAASCHE-ORLOW, Associate Professor of Medicine, Boston University School of Medicine

__________________

1 The National Academies of Sciences, Engineering, and Medicine’s forums and roundtables do not issues, review, or approve individual documents. The responsibility for the published workshop summary rests with the workshop rapporteur and the institution.

Page viii Cite
Suggested Citation:"Front Matter." National Academies of Sciences, Engineering, and Medicine. 2016. Health Literacy and Palliative Care: Workshop Summary. Washington, DC: The National Academies Press. doi: 10.17226/21839.
×

TERRI ANN PARNELL, Principal and Founder, Health Literacy Partners, LLC

KIM PARSON, Strategic Consultant, Proactive Care Strategies, Humana

KAVITA PATEL, Managing Director for Clinical Transformation and Delivery, The Brookings Institution

ANDREW PLEASANT, Senior Director for Health Literacy and Research, Canyon Ranch Institution

LINDSEY A. ROBINSON, Thirteenth District Trustee, American Dental Association

STACEY ROSEN, Associate Professor of Cardiology and Vice President, Women’s Health, The Katz Institute for Women’s Health, Hofstra North Shore–Long Island Jewish School of Medicine

RIMA RUDD, Senior Lecturer on Health Literacy, Education, and Policy, Harvard School of Public Health

STEVEN RUSH, Director, Health Literacy Innovations, UnitedHealth Group

PAUL M. SCHYVE, Senior Advisor, Healthcare Improvement, The Joint Commission

MICHAEL VILLAIRE, Chief Executive Officer, Institute for Healthcare Advancement

EARNESTINE WILLIS, Kellner Professor in Pediatrics, Medical College of Wisconsin

MICHAEL WOLF, Professor, Medicine and Learning Sciences, Associate Division Chief–Research Division of General Internal Medicine, Feinberg School of Medicine, Northwestern University

WINSTON WONG, Medical Director, Community Benefit Disparities Improvement and Quality Initiatives, Kaiser Permanente

HMD Staff

LYLA HERNANDEZ, Senior Program Officer

MELISSA FRENCH, Associate Program Officer

EMILY VOLLBRECHT, Senior Program Assistant

ROSE MARIE MARTINEZ, Director, Board on Population Health and Public Health Practice

Consultant

RUTH PARKER, Professor of Medicine, Pediatrics, and Public Health, Emory University School of Medicine

Suggested Citation:"Front Matter." National Academies of Sciences, Engineering, and Medicine. 2016. Health Literacy and Palliative Care: Workshop Summary. Washington, DC: The National Academies Press. doi: 10.17226/21839.
×

Reviewers

This workshop summary has been reviewed in draft form by individuals chosen for their diverse perspectives and technical expertise. The purpose of this independent review is to provide candid and critical comments that will assist the institution in making its published workshop summary as sound as possible and to ensure that the workshop summary meets institutional standards for objectivity, evidence, and responsiveness to the study charge. The review comments and draft manuscript remain confidential to protect the integrity of the process. We wish to thank the following individuals for their review of this workshop summary:

CONSTANCE DAHLIN, Hospice and Palliative Nurses Association

JERI L. MILLER, National Institute of Nursing Research, National Institutes of Health

CATINA O’LEARY, Health Literacy Missouri

CARDINALE B. SMITH, Icahn School of Medicine at Mount Sinai Hospital

Although the reviewers listed above have provided many constructive comments and suggestions, they did not see the final draft of the workshop summary before its release. The review of this workshop summary was overseen by Georges Benjamin, American Public Health Association. He was responsible for making certain that an independent examination of this workshop summary was carried out in accordance with institutional procedures and that all review comments were carefully considered. Responsibility for the final content of this workshop summary rests entirely with the rapporteur and the institution.

Suggested Citation:"Front Matter." National Academies of Sciences, Engineering, and Medicine. 2016. Health Literacy and Palliative Care: Workshop Summary. Washington, DC: The National Academies Press. doi: 10.17226/21839.
×

This page intentionally left blank.

Suggested Citation:"Front Matter." National Academies of Sciences, Engineering, and Medicine. 2016. Health Literacy and Palliative Care: Workshop Summary. Washington, DC: The National Academies Press. doi: 10.17226/21839.
×

Acknowledgments

The sponsors of the Roundtable on Health Literacy have made it possible to plan and conduct the workshop Health Literacy and Palliative Care, which this report summarizes. Non-federal sponsorship of the Roundtable was provided by the Aetna Foundation; American Dental Association; Bristol-Myers Squibb; East Bay Community Foundation (Kaiser Permanente); Eli Lilly and Company; Health Literacy Missouri; Health Literacy Partners; Humana; Institute for Healthcare Advancement; Merck & Co., Inc.; North Shore–Long Island Jewish Health System; and UnitedHealth Group. Federal sponsorship was provided by the Agency for Healthcare Research and Quality; Health Resources and Services Administration; National Institutes of Health; and Office of Disease Prevention and Health Promotion.

The Roundtable wishes to express its appreciation to the following speakers at the workshop for their interesting and stimulating presentations: Beverly Alves, Robert Arnold, John Cagle, Richard Freeman, Anne Kinderman, Carol Levine, Dana Lustbader, Virginia Marshall, Diane Meier, Stacie Pinderhughes, Tyrone Pitts, Justin Sanders, Thomas Smith, and Elaine Wittenberg.

Suggested Citation:"Front Matter." National Academies of Sciences, Engineering, and Medicine. 2016. Health Literacy and Palliative Care: Workshop Summary. Washington, DC: The National Academies Press. doi: 10.17226/21839.
×

This page intentionally left blank.

Page xvii Cite
Suggested Citation:"Front Matter." National Academies of Sciences, Engineering, and Medicine. 2016. Health Literacy and Palliative Care: Workshop Summary. Washington, DC: The National Academies Press. doi: 10.17226/21839.
×

Acronyms and Abbreviations

ACO accountable care organization
AHRQ Agency for Healthcare Research and Quality
CAPC Center to Advance Palliative Care
COPD chronic obstructive pulmonary disease
CT computed tomography
C-TAC Coalition to Transform Advanced Care
DNR do-not-resuscitate order
ELNEC End-of-Life Nursing Education Consortium
EMR electronic medical record
FBO faith-based organization
GERD gastroesophageal reflux disease
ICU intensive care unit
MOLST Medical Orders for Life-Sustaining Treatment
NCI National Cancer Institute
OECD Organisation for Economic Co-operation and Development
Page xviii Cite
Suggested Citation:"Front Matter." National Academies of Sciences, Engineering, and Medicine. 2016. Health Literacy and Palliative Care: Workshop Summary. Washington, DC: The National Academies Press. doi: 10.17226/21839.
×
POLST Physician Orders for Life-Sustaining Treatment
SNF skilled nursing facility
TAME time, assessment, management, and education
TPN total parenteral nutrition
UPMC University of Pittsburgh Medical Center Health System
Suggested Citation:"Front Matter." National Academies of Sciences, Engineering, and Medicine. 2016. Health Literacy and Palliative Care: Workshop Summary. Washington, DC: The National Academies Press. doi: 10.17226/21839.
×
Page R1
Suggested Citation:"Front Matter." National Academies of Sciences, Engineering, and Medicine. 2016. Health Literacy and Palliative Care: Workshop Summary. Washington, DC: The National Academies Press. doi: 10.17226/21839.
×
Page R2
Suggested Citation:"Front Matter." National Academies of Sciences, Engineering, and Medicine. 2016. Health Literacy and Palliative Care: Workshop Summary. Washington, DC: The National Academies Press. doi: 10.17226/21839.
×
Page R3
Suggested Citation:"Front Matter." National Academies of Sciences, Engineering, and Medicine. 2016. Health Literacy and Palliative Care: Workshop Summary. Washington, DC: The National Academies Press. doi: 10.17226/21839.
×
Page R4
Suggested Citation:"Front Matter." National Academies of Sciences, Engineering, and Medicine. 2016. Health Literacy and Palliative Care: Workshop Summary. Washington, DC: The National Academies Press. doi: 10.17226/21839.
×
Page R5
Suggested Citation:"Front Matter." National Academies of Sciences, Engineering, and Medicine. 2016. Health Literacy and Palliative Care: Workshop Summary. Washington, DC: The National Academies Press. doi: 10.17226/21839.
×
Page R6
Suggested Citation:"Front Matter." National Academies of Sciences, Engineering, and Medicine. 2016. Health Literacy and Palliative Care: Workshop Summary. Washington, DC: The National Academies Press. doi: 10.17226/21839.
×
Page R7
Page viii Cite
Suggested Citation:"Front Matter." National Academies of Sciences, Engineering, and Medicine. 2016. Health Literacy and Palliative Care: Workshop Summary. Washington, DC: The National Academies Press. doi: 10.17226/21839.
×
Page R8
Suggested Citation:"Front Matter." National Academies of Sciences, Engineering, and Medicine. 2016. Health Literacy and Palliative Care: Workshop Summary. Washington, DC: The National Academies Press. doi: 10.17226/21839.
×
Page R9
Suggested Citation:"Front Matter." National Academies of Sciences, Engineering, and Medicine. 2016. Health Literacy and Palliative Care: Workshop Summary. Washington, DC: The National Academies Press. doi: 10.17226/21839.
×
Page R10
Suggested Citation:"Front Matter." National Academies of Sciences, Engineering, and Medicine. 2016. Health Literacy and Palliative Care: Workshop Summary. Washington, DC: The National Academies Press. doi: 10.17226/21839.
×
Page R11
Suggested Citation:"Front Matter." National Academies of Sciences, Engineering, and Medicine. 2016. Health Literacy and Palliative Care: Workshop Summary. Washington, DC: The National Academies Press. doi: 10.17226/21839.
×
Page R12
Page xiii Cite
Suggested Citation:"Front Matter." National Academies of Sciences, Engineering, and Medicine. 2016. Health Literacy and Palliative Care: Workshop Summary. Washington, DC: The National Academies Press. doi: 10.17226/21839.
×
Page R13
Suggested Citation:"Front Matter." National Academies of Sciences, Engineering, and Medicine. 2016. Health Literacy and Palliative Care: Workshop Summary. Washington, DC: The National Academies Press. doi: 10.17226/21839.
×
Page R14
Suggested Citation:"Front Matter." National Academies of Sciences, Engineering, and Medicine. 2016. Health Literacy and Palliative Care: Workshop Summary. Washington, DC: The National Academies Press. doi: 10.17226/21839.
×
Page R15
Suggested Citation:"Front Matter." National Academies of Sciences, Engineering, and Medicine. 2016. Health Literacy and Palliative Care: Workshop Summary. Washington, DC: The National Academies Press. doi: 10.17226/21839.
×
Page R16
Page xvii Cite
Suggested Citation:"Front Matter." National Academies of Sciences, Engineering, and Medicine. 2016. Health Literacy and Palliative Care: Workshop Summary. Washington, DC: The National Academies Press. doi: 10.17226/21839.
×
Page R17
Page xviii Cite
Suggested Citation:"Front Matter." National Academies of Sciences, Engineering, and Medicine. 2016. Health Literacy and Palliative Care: Workshop Summary. Washington, DC: The National Academies Press. doi: 10.17226/21839.
×
Page R18
Next: 1 Introduction »
Health Literacy and Palliative Care: Workshop Summary Get This Book
×
Buy Paperback | $48.00 Buy Ebook | $38.99
MyNAP members save 10% online.
Login or Register to save!
Download Free PDF

The Institute of Medicine Roundtable on Health Literacy convened a 1-day public workshop to explore the relationship between palliative care and health literacy, and the importance of health literate communication in providing high-quality delivery of palliative care. Health Literacy and Palliative Care summarizes the discussions that occurred throughout the workshop and highlights the key lessons presented, practical strategies, and the needs and opportunities for improving health literacy in the United States.

  1. ×

    Welcome to OpenBook!

    You're looking at OpenBook, NAP.edu's online reading room since 1999. Based on feedback from you, our users, we've made some improvements that make it easier than ever to read thousands of publications on our website.

    Do you want to take a quick tour of the OpenBook's features?

    No Thanks Take a Tour »
  2. ×

    Show this book's table of contents, where you can jump to any chapter by name.

    « Back Next »
  3. ×

    ...or use these buttons to go back to the previous chapter or skip to the next one.

    « Back Next »
  4. ×

    Jump up to the previous page or down to the next one. Also, you can type in a page number and press Enter to go directly to that page in the book.

    « Back Next »
  5. ×

    Switch between the Original Pages, where you can read the report as it appeared in print, and Text Pages for the web version, where you can highlight and search the text.

    « Back Next »
  6. ×

    To search the entire text of this book, type in your search term here and press Enter.

    « Back Next »
  7. ×

    Share a link to this book page on your preferred social network or via email.

    « Back Next »
  8. ×

    View our suggested citation for this chapter.

    « Back Next »
  9. ×

    Ready to take your reading offline? Click here to buy this book in print or download it as a free PDF, if available.

    « Back Next »
Stay Connected!