Speech and Language Disorders in Children: Implications for the Social Security Administration's Supplemental Security Income Program (2016)

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Appendix H Committee Member Biographies Sara Rosenbaum, J.D. (Chair), is Harold and Jane Hirsh professor of health law and policy and founding chair of the Department of Health Policy, Milken Institute School of Public Health, George Washington University. She also holds a professorship by courtesy in the George Washington Law School and is a member of the faculty of the School of Medicine and Health Sciences. A graduate of Wesleyan University and Boston University Law School, Ms. Rosenbaum has devoted her professional career to issues of health justice for populations who are medically underserved as a result of race, poverty, disability, or cultural exclusion. An honored teacher and scholar, a highly popular speaker, and a widely read writer on many as- pects of health law and policy, she has emphasized public engagement as a core element of her professional life, providing public service to six presi- dential administrations and 15 Congresses since 1977. Ms. Rosenbaum is best known for her work on the expansion of Medicaid, the expansion of community health centers, patients’ rights in managed care, civil rights and health care, and national health reform. Between 1993 and 1994, she worked for President Clinton, directing the drafting of the Health Security Act and designing the Vaccines for Children program, which offers near- universal coverage of vaccines for low-income and medically underserved children. She also regularly advises state governments on health policy matters and has served as a testifying expert in legal actions involving the rights of children under Medicaid. Professor Rosenbaum is the lead author of Law and the American Health Care System, 2nd edition (May 2012), a landmark textbook that provides an in-depth exploration of the interac- tion of American law and the U.S. health care system. She has received 279 

280 SPEECH AND LANGUAGE DISORDERS IN CHILDREN national awards for her work, serves on governmental advisory commit- tees and private organizational and foundation boards, and is a past chair of AcademyHealth. She is a member of the Centers for Disease Control and Prevention (CDC) Director’s Advisory Committee; has served as a member of CDC’s Advisory Committee on Immunization Practice (ACIP); and is a commissioner on the Medicaid and Children’s Health Insurance Program (CHIP) Payment and Access Commission (MACPAC), which ad- vises Congress on federal Medicaid policy. Ms. Rosenbaum was elected to the National Academy of Medicine in 2012. William J. Barbaresi, M.D., is director of the Developmental Medicine Center and associate chief, Division of Developmental Medicine, at Boston Children’s Hospital, where he holds the Wade Family Foundation Chair in Developmental Medicine. He is associate professor of pediatrics at Harvard Medical School. Prior to his appointment at Boston Children’s Hospital, Dr. Barbaresi was an associate professor in the division of developmental and behavioral pediatrics, Mayo Clinic College of Medicine. He earned his B.A. in psychology from Dartmouth College and his M.D. from the University at Buffalo School of Medicine and Biomedical Sciences. Dr. Barbaresi’s research and clinical practice focus on childhood and adult at- tention deficit hyperactivity disorder (ADHD) and autism spectrum disorder and the co-occurrence of these conditions with other neurodevelopmental conditions and developmental disabilities. He serves as medical director for the University Centers for Excellence in Developmental Disabilities Education, Research, and Service, a collaborative effort of the Division of Developmental Medicine and the Institute for Community Inclusion at Boston Children’s Hospital and the University of Massachusetts Boston to support training and education in the field of intellectual and developmental disabilities. Stephen M. Camarata, Ph.D., is professor of hearing and speech sciences and former acting director of the Vanderbilt Kennedy Center for Research on Human Development, where he directed the research program on communication and learning in the Test and Technology Center. He is a nationally renowned researcher on speech and language development and intervention. Much of Dr. Camarata’s work is focused on the Child Language Intervention Project (CLIP), which he also directs. CLIP pro- vides individualized treatments for children with a variety of speech and language disorders, serving 200 children locally and more than 1,500 children in other states and countries. The National Institutes of Health (NIH) designated CLIP as a National Center for the Study of Language Intervention during 1998-2003. Dr. Camarata received B.A. and M.A. de- grees in speech pathology and audiology from San Diego State University 

APPENDIX H 281 and a Ph.D. in 1984 from Purdue University. He was a postdoctoral fel- low at the Early Childhood Language Laboratory in the Department of Hearing and Speech Sciences at the University of Arizona. He was a faculty member in special education and communication disorders at Pennsylvania State University from 1985 to 1988, and was on the faculty of Speech and Hearing Sciences at the University of California, Santa Barbara, from 1988 to 1990. He joined the Vanderbilt Hearing and Speech Sciences faculty in 1990. Dr. Camarata teaches graduate courses on how children acquire language, on child language and speech disorders, and on research design. Nationally, he is a member and fellow of the American Speech-Language- Hearing Association, and he previously chaired the association’s Division on Treatment Efficacy. He also is active in the International Association for the Study of Child Language. Christine Dollaghan, Ph.D., is an associate dean and professor in the School of Behavioral and Brain Sciences at the University of Texas at Dallas. Prior to joining the University of Texas at Dallas faculty in 2006, she was a professor of communicative disorders at the University of Pittsburgh. Her research focuses on diagnosis, treatment, and prediction in children with various speech and language disorders, including children with specific lan- guage impairment (SLI) and those recovering from severe traumatic brain injury. In addition to developing and exploring the validity of diagnostic measures for children of differing linguistic and demographic backgrounds, Dr. Dollaghan has reported on studies and meta-analyses concerning the accuracy of early language measures for predicting later outcomes. She is particularly interested in the quality of evidence available for clinical deci- sion making, and authored a text on evidence-based practice in communica- tion disorders in 2007. She has headed several research-related committees of the American Speech-Language-Hearing Association and received the Honors of the association in 2012. Sidney M. Gospe, Jr., M.D., Ph.D., holds the Herman and Faye Sarkowsky Endowed Chair and is head of the Division of Pediatric Neurology at the University of Washington and Seattle Children’s Hospital. Prior to joining the faculty of the University of Washington in 2000, he served on the fac- ulty of the University of California, Davis, for 13 years. Dr. Gospe received his undergraduate education at Stanford University and earned his M.D. and Ph.D. degrees from Duke University. He completed his postgraduate medical education in both pediatrics and child neurology at Baylor College of Medicine in Houston. He has more than 25 years of experience in caring for infants, children, and adolescents with neurological and neuromuscular disorders. Dr. Gospe’s laboratory research has focused on neurotoxicology, in particular on the neurodevelopmental effects of maternal exposure to 

282 SPEECH AND LANGUAGE DISORDERS IN CHILDREN certain toxicants during pregnancy. His clinical research concerns pyri- doxine (vitamin B6)-dependent epilepsy (PDE), a rare familial cause of infantile seizures and associated developmental disability. He participates in biochemical, molecular, and radiological studies of patients with PDE and has established a national registry for patients with this uncommon inherited disorder. Gloria L. Krahn, Ph.D., M.P.H., holds the Barbara Emily Knudson Endowed Chair in Family in the College of Public Health and Human Sciences at Oregon State University. Previously, she served for 5 years as division director of human development and disability at CDC, and for almost 25 years on the faculty of the Oregon Health & Science University (OHSU) in clinical practice, research, and training. Positions at OHSU in Portland included professor of pediatrics in public health and preventive medicine, director of the Oregon Institute on Disability & Development/ University Center for Excellence in Developmental Disabilities, director of the Rehabilitation Research and Training Center on Health of People with Long Term Disabilities, and associate director of the Child Development and Rehabilitation Center. Dr. Krahn’s areas of expertise relate to disability and public health. She has specific expertise in public health and disability across the life span, disability and health disparities, health policy, and hu- man development. She has served in a number of national and international leadership roles, and has contributed to the growth of the field of disabili- ties and public health by co-editing the first textbook in the field (2009), supporting the development of the Disability and Health Journal and con- tinuing to serve on its editorial board, providing oversight for Healthy People 2020 objectives on disability and health, and supporting the U.S. Department of Health and Human Services’ (HHS’s) cross-agency planning on disability-related health disparities. Dr. Krahn earned an M.A. and a Ph.D. in psychology from the University of Manitoba, Canada; received an M.P.H. from the University of California, Berkeley; and completed a postdoctoral residency at OHSU. Elysa Marco, M.D., is a cognitive and behavioral child neurologist. She cares for children with all types of neurologic concerns; however, she spe- cializes in the evaluation and treatment of children with cognitive, sensory, and behavioral challenges. Dr. Marco participates in the care of children at the University of California, San Francisco (UCSF), Medical Center Pediatric Neurology Clinic and the UCSF Marin-based practice in Greenbrae. In ad- dition to her general child neurology and cognitive-behavioral focused clinics, she co-directs the monthly Autism NeuroGenetics Clinic, where children on the autism spectrum can receive coordinated evaluation and treatment from specialists in neurology and genetics. Dr. Marco also has 

APPENDIX H 283 an active neuroscience laboratory at UCSF that focuses on understanding and finding treatments for individuals with neurodevelopmental disorders. Her research is based on a thorough cognition and sensory evaluation of each child, combined with innovative functional imaging to better under- stand how children’s brains process sound, touch, and visual information. Dr. Marco’s current research involves individuals with autism disorders, sensory processing disorders, neuroanatomic disorders (such as agenesis of the corpus callosum), and specific genetic disorders (such as 16p11.2 copy number variations). In addition, she is an active collaborator with inves- tigators studying the effects of autism on maternal health and the neural underpinnings of Tourette’s syndrome. Her lab also is combining structural and functional brain imaging with computer-based training interventions to determine whether computer games can help children resist distracting information and improve visual motor planning. The overarching goal of her research is to use basic science findings to create beneficial treatments for children. Dr. Marco received her B.A. in psychology at the University of Pennsylvania and then obtained her M.D. at UCSF. She continued her residency training at UCSF in pediatrics, neurology, and child neurology. In addition, she completed a cognitive and behavioral fellowship with an emphasis on the genetics of cognitive impairment. She joined the faculty of UCSF in 2005 and is an active clinician, researcher, and educator. Mary Pat Moeller, Ph.D., is director of the Center for Childhood Deafness and the Language Development Laboratory at Boys Town National Research Hospital in Omaha, Nebraska. Following many years of clini- cal practice, she obtained a Ph.D. in child language at the University of Nebraska–Lincoln. Her current research explores factors influencing the outcomes of children who are deaf or hard of hearing. She is co-principal investigator with J. Bruce Tomblin of an National Institutes of Health (NIH)-funded, prospective, multisite, longitudinal study of spoken language development in children who are hard of hearing. In addition to her longi- tudinal research efforts, Dr. Moeller conducted NIH-funded health commu- nication research related to newborn hearing screening. She led a consensus conference in Austria in 2012 that resulted in a best practice statement on family-centered early intervention practices for children who are deaf or hard of hearing. Dr. Moeller has published and lectured internationally on topics related to developmental outcomes and early intervention practices for children who are deaf or hard of hearing. She received the Honors of the American Speech-Language-Hearing Association in 2013. She is the as- sociation’s representative to the Joint Committee on Infant Hearing. Susan L. Parish, Ph.D., is Nancy Lurie Marks professor of disability policy, director of the Lurie Institute for Disability Policy, and associate dean for 

284 SPEECH AND LANGUAGE DISORDERS IN CHILDREN research at the Heller School for Social Policy and Management, Brandeis University. Prior to joining Brandeis, she served on the faculty of the School of Social Work at the University of North Carolina at Chapel Hill. Dr. Parish’s research examines the health and financial well-being of children and adults with disabilities and their caregiving families. She is particularly interested in the impact of health, income transfer, and poverty policies on these populations. Her research has been funded by federal, state, and foundation sources, including NIH, HHS (Health Resources and Services Administration), and the U.S. Department of Education (National Institute on Disability and Rehabilitation Research). Dr. Parish teaches classes in disability policy and both quantitative and qualitative research methods. She has won numerous awards for her teaching and her research, including the Padgett Early Career Achievement Award from the Society for Social Work and Research and the Research Matters! award from the Arc of the United States. She is a fellow of the American Association of Intellectual & Developmental Disabilities. Dr. Parish received a B.A. in English and an M.S.W. from Rutgers University and her Ph.D. in public health from the University of Illinois at Chicago. She completed a National Institute of Child Health and Human Development (NICHD)-funded post- doctoral research fellowship at the University of Wisconsin–Madison. Ramesh Raghavan, M.D., Ph.D., is Professor and Associate Dean for Research in the School of Social Work at Rutgers, The State University of New Jersey. He focuses his research on access to and quality of men- tal health services for vulnerable children, especially those in the child welfare system. The instrumental focus of much of his work on access has been on Medicaid policy making, and he has examined the effects of Medicaid managed care on mental health service use, the longitudinal stability of health insurance coverage for child welfare-involved children, and insurance discontinuities for children leaving foster care. His work on quality has focused on receipt of mental health care consistent with national standards among children in the child welfare system, geographic variations in mental health services, and policy approaches to supporting implementation of mental health services. His current work focuses on developing better predictive models of the risk of mental health service use among child Medicaid beneficiaries and understanding the determinants of racial/ethnic disparities in Medicaid expenditures for child mental health services. A keen translator of research findings to policy making and vice versa, Dr. Raghavan has served on state and national commissions and advisory bodies, and conducts much of his research with active policy mak- ers as co-investigators. In early 2015, he served as Senior Advisor in the Office of the Commissioner of the Administration on Children, Youth and 

APPENDIX H 285 Families in Washington, DC. His work has received financial support from the Agency for Healthcare Research and Quality, the Administration for Children and Families, the National Institute of Mental Health (NIMH), and the State of Missouri. Dr. Raghavan is chair of NIMH’s Mental Health Services Research review committee. He is a psychiatrist and health services researcher by training. Audrey M. Sorrells, Ph.D., is associate dean of students for research in the Office of the Dean of Students, Division of Student Affairs, at the University of Texas at Austin. She is also associate professor of special education in the university’s College of Education and past fellow in the Lee Hage Jamail Regents Chair in Education, as well as senior Ford fellow, National Research Council. Prior to her appointment in the Office of the Dean of Students, Dr. Sorrells served as undergraduate advisor and minor- ity liaison officer in the Department of Special Education, as well as chair of several department, college, and university committees. She has 27 years of higher education teaching and research experience, from 1987 to 1997 at Southeastern Louisiana University and since 1997 at the University of Texas at Austin. Prior to her university appointments, Dr. Sorrells taught in K-12 settings, teaching students at risk and in high-poverty rural and urban schools, including students with learning and behavioral disabilities. Her research in higher education has focused on the first-year experience; first-generation students; veteran students with posttraumatic stress, mild traumatic brain injury (mTBI), and substance use disorders; and students with disabilities, as well as professional development and interdisciplin- ary partnerships in higher education. Other areas on which her research has focused include minority and disproportionate representation in K-12 schools for students with disabilities, reading instruction in middle and secondary schools, and college readiness. In addition to having authored and coauthored many refereed publications, Dr. Sorrells is a consultant and presenter at the local, state, and national levels, and currently serves as a principal investigator or co-investigator of several state and federally funded grants. She served as co-editor of the Journal of Multiple Voices for Ethnically Diverse Exceptional Learners and is co-author of the book Critical Issues in Special Education: Access, Diversity and Accountability. The recipient of many honors, including a doctoral leadership award from the University of Florida, Dr. Sorrells has also been a Ford Foundation postdoctoral fellow and a dean’s fellow at the University of Texas at Austin and is listed in Who’s Who Among Educators in America. She earned a B.A. in business administration and education and master of education degree in special education from Southeastern Louisiana University. She holds a Ph.D. in education from the University of Florida. 

286 SPEECH AND LANGUAGE DISORDERS IN CHILDREN J. Bruce Tomblin, Ph.D., CCC-SP, is Child Language Research Center direc- tor and an emeritus professor at the University of Iowa. His research and teaching have long been in children’s language development and disorders. In recent years, his research has been concerned with the development of and the genetic influence on the occurrence of certain forms of children’s language problems. Much of this research has been supported by NIH research grants and contracts. Dr. Tomblin earned a B.A. in psychology from the University of La Verne, an M.A. in speech from the University of Redlands, and a Ph.D. in communicative disorders from the University of Wisconsin–Madison. He is a fellow of the American Speech-Language- Hearing Association and the Iowa Speech and Hearing Association. He holds a certificate of clinical competence in speech-language pathology from the American Speech-Language-Hearing Association. Karl R. White, Ph.D., is a professor of psychology, holder of the Emma Eccles Jones Endowed Chair in Early Childhood Education, and founding director of the National Center for Hearing Assessment and Management. He has also held positions as a senior Fulbright scholar at Wilhelms Westfälische Universität in Germany, a congressional science fellow with the United States Senate, and chair of the Department of Research and Development at the National Technical Institute for the Deaf. Dr. White is recognized as one of the world’s leading authorities on early identification and treat- ment of childhood hearing loss. His work has been recognized with awards from such diverse organizations as the Deafness Research Foundation, the American Speech-Language-Hearing Association, the Swedish Society of Medicine, the Alexander Graham Bell Association for the Deaf, and the Ali Yavar Jung National Institute for the Hearing Handicapped in India. He has produced hundreds of publications and made numerous presenta- tions at scholarly meetings, and has been an invited speaker to more than 35 countries, where he has assisted in the implementation of newborn hear- ing screening and intervention programs. Dr. White has been the principal investigator or co–principal investigator for competitively funded grants and contracts at Utah State University totaling more than $60 million. He also serves on many national and international advisory groups for such organizations as HHS; the World Health Organization; the National Academies of Sciences, Engineering, and Medicine; the March of Dimes; and the American Academy of Pediatrics. CONSULTANTS Howard H. Goldman, M.D., Ph.D., is professor of psychiatry at the University of Maryland School of Medicine. He received joint M.D.-M.P.H. 

APPENDIX H 287 degrees from Harvard University in 1974 and a Ph.D. in social policy research from the Heller School at Brandeis University in 1978. He is the author or coauthor of 325 publications in the professional literature. Dr. Goldman is the editor of Psychiatric Services, a mental health services re- search and policy journal published monthly by the American Psychiatric Association. He also has served on the editorial boards of several other journals, including the American Journal of Psychiatry, Health Affairs, and the Journal of Mental Health Policy and Economics. He served as senior scientific editor of the Surgeon General’s Report on Mental Health from 1997 to 1999, for which he was awarded the Surgeon General’s Medallion. During 2002 and 2003, Dr. Goldman was a consultant to the President’s New Freedom Commission on Mental Health. In 1996 he was elected to membership in the National Academy of Social Insurance, and in 2002 he was elected to the National Academy of Medicine. He has chaired the National Academies of Sciences, Engineering, and Medicine’s Standing Committee to Provide Medical Advice to the Disability Program of the Social Security Administration since 2009. Barbara C. Sonies, Ph.D., formerly chief of the Speech-Language Pathology Section and chief of the Oral Motor Function Section, Department of Rehabilitation Medicine, NIH, is currently a research professor at the University of Maryland, Department of Hearing and Speech Sciences; she also is former adjunct professor at the George Washington University Speech and Hearing Department. She is currently a consultant to the Human Genome Research Institute at NIH on swallowing and oral motor function. Her clinical experience includes work with adults and children with a variety of cognitive, communicative, and developmental issues at the University of Minnesota Hospitals, where she was chief of speech-language pathology. She received the Honors of the American-Speech-Language Hearing Association, of which she is a fellow. Dr. Sonies founded the as- sociation’s Dysphagia Special Interest Division and developed the original plan for board certification in swallowing and swallowing disorders. She holds a specialty certification in swallowing and swallowing disorders and was secretary of the Specialty Certification Board. Dr. Sonies has published many articles and presented hundreds of seminars and workshops on dys- phagia and neurological disorders. She continues to mentor students and professionals in dysphagia practice. She originated the use of ultrasound to image the oral cavity for speech and swallowing and has conducted research on various conditions that impact swallowing function.