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Suggested Citation:"Front Matter." National Academies of Sciences, Engineering, and Medicine. 2016. Measuring Specific Mental Illness Diagnoses with Functional Impairment: Workshop Summary. Washington, DC: The National Academies Press. doi: 10.17226/21920.
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MEASURING
SPECIFIC MENTAL ILLNESS
DIAGNOSES WITH
FUNCTIONAL IMPAIRMENT

WORKSHOP SUMMARY

Jeanne C. Rivard and Krisztina Marton, Rapporteurs

Committee on National Statistics and
Board on Behavioral, Cognitive, and Sensory Sciences,
Division of Behavioral and Social Sciences and Education

and

Board on Health Sciences Policy, Institute of Medicine

images

THE NATIONAL ACADEMIES PRESS

Washington, DC

www.nap.edu

Suggested Citation:"Front Matter." National Academies of Sciences, Engineering, and Medicine. 2016. Measuring Specific Mental Illness Diagnoses with Functional Impairment: Workshop Summary. Washington, DC: The National Academies Press. doi: 10.17226/21920.
×

THE NATIONAL ACADEMIES PRESS    500 Fifth Street, NW    Washington, DC 20001

This activity was supported by Contract No. HHSP233201400020B/HHSP23337002 between the National Academy of Sciences and the U.S. Department of Health and Human Services. Support of the work of the Committee on National Statistics is provided by a consortium of federal agencies through a grant from the National Science Foundation (No. SES-1024012). Any opinions, findings, conclusions, or recommendations expressed in this publication do not necessarily reflect the views of any organization or agency that provided support for the project.

International Standard Book Number-13: 978-0-309-39239-6
International Standard Book Number-10: 0-309-39239-X
Digital Object Identifier: 10.17226/21920

Additional copies of this report are available for sale from the National Academies Press, 500 Fifth Street, NW, Keck 360, Washington, DC 20001; (800) 624-6242 or (202) 334-3313; http://www.nap.edu.

Copyright 2016 by the National Academy of Sciences. All rights reserved.

Printed in the United States of America

Suggested citation: National Academies of Sciences, Engineering, and Medicine. (2016). Measuring Specific Mental Illness Diagnoses with Functional Impairment: Workshop Summary. J.C. Rivard and K. Marton, Rapporteurs. Committee on National Statistics and Board on Behavioral, Cognitive, and Sensory Sciences, Division of Behavioral and Social Sciences and Education. Board on Health Sciences Policy, Institute of Medicine. Washington, DC: The National Academies Press. doi: 10.17226/21920.

Suggested Citation:"Front Matter." National Academies of Sciences, Engineering, and Medicine. 2016. Measuring Specific Mental Illness Diagnoses with Functional Impairment: Workshop Summary. Washington, DC: The National Academies Press. doi: 10.17226/21920.
×

images

The National Academy of Sciences was established in 1863 by an Act of Congress, signed by President Lincoln, as a private, nongovernmental institution to advise the nation on issues related to science and technology. Members are elected by their peers for outstanding contributions to research. Dr. Ralph J. Cicerone is president.

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The three Academies work together as the National Academies of Sciences, Engineering, and Medicine to provide independent, objective analysis and advice to the nation and conduct other activities to solve complex problems and inform public policy decisions. The Academies also encourage education and research, recognize outstanding contributions to knowledge, and increase public understanding in matters of science, engineering, and medicine.

Learn more about the National Academies of Sciences, Engineering, and Medicine at www.national-academies.org.

Suggested Citation:"Front Matter." National Academies of Sciences, Engineering, and Medicine. 2016. Measuring Specific Mental Illness Diagnoses with Functional Impairment: Workshop Summary. Washington, DC: The National Academies Press. doi: 10.17226/21920.
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Suggested Citation:"Front Matter." National Academies of Sciences, Engineering, and Medicine. 2016. Measuring Specific Mental Illness Diagnoses with Functional Impairment: Workshop Summary. Washington, DC: The National Academies Press. doi: 10.17226/21920.
×

STEERING COMMITTEE FOR THE WORKSHOP ON
INTEGRATING NEW MEASURES OF SPECIFIC MENTAL
ILLNESS DIAGNOSES WITH FUNCTIONAL IMPAIRMENT
INTO THE SUBSTANCE ABUSE AND MENTAL HEALTH
ADMINISTRATION’S DATA COLLECTION PROGRAMS

BENJAMIN G. DRUSS (Chair), Rollins School of Public Health, Emory University

FREDERICK G. CONRAD, Institute for Social Research, University of Michigan

ROBERT F. KRUEGER, Department of Psychology, University of Minnesota

RONALD MANDERSCHEID, National Association of County Behavioral Health & Developmental Disability Directors, Washington, DC, and Johns Hopkins University

NORA CATE SCHAEFFER, Department of Sociology, University of Wisconsin–Madison

KRISZTINA MARTON, Study Director

JEANNE C. RIVARD, Senior Program Officer

MICHAEL SIRI, Program Associate

Suggested Citation:"Front Matter." National Academies of Sciences, Engineering, and Medicine. 2016. Measuring Specific Mental Illness Diagnoses with Functional Impairment: Workshop Summary. Washington, DC: The National Academies Press. doi: 10.17226/21920.
×

COMMITTEE ON NATIONAL STATISTICS

LAWRENCE D. BROWN (Chair), Department of Statistics, The Wharton School, University of Pennsylvania

JOHN M. ABOWD, School of Industrial and Labor Relations, Cornell University

FRANCINE BLAU, Department of Economics, Cornell University

MARY ELLEN BOCK, Department of Statistics (emerita), Purdue University

MICHAEL CHERNEW, Department of Health Care Policy, Harvard Medical School

DONALD DILLMAN, Social and Economic Sciences Research Center, Washington State University

CONSTANTINE GATSONIS, Department of Biostatistics and Center for Statistical Sciences, Brown University

JAMES S. HOUSE, Survey Research Center, Institute for Social Research, University of Michigan

MICHAEL HOUT, Department of Sociology, New York University

THOMAS MESENBOURG, U.S. Census Bureau (retired)

SUSAN MURPHY, Department of Statistics and Institute for Social Research, University of Michigan

SARAH NUSSER, Office of the Vice President for Research, Iowa State University

COLM O’MUIRCHEARTAIGH, Harris School of Public Policy Studies, University of Chicago

RUTH PETERSON, Criminal Justice Research Center, Ohio State University

ROBERTO RIGOBON, Sloan School of Management, Massachusetts Institute of Technology

EDWARD SHORTLIFFE, Department of Biomedical Informatics, Columbia University and Arizona State University

CONSTANCE F. CITRO, Director

BRIAN HARRIS-KOJETIN, Deputy Director

Suggested Citation:"Front Matter." National Academies of Sciences, Engineering, and Medicine. 2016. Measuring Specific Mental Illness Diagnoses with Functional Impairment: Workshop Summary. Washington, DC: The National Academies Press. doi: 10.17226/21920.
×

BOARD ON BEHAVIORAL, COGNITIVE,
AND SENSORY SCIENCES

SUSAN T. FISKE (Chair), Department of Psychology and Woodrow Wilson School of Public and International Affairs, Princeton University

LAURA L. CARSTENSEN, Department of Psychology, Stanford University

JENNIFER S. COLE, Department of Linguistics, University of Illinois at Urbana–Champaign

JUDY R. DUBNO, Department of Otolaryngology–Head and Neck Surgery, Medical University of South Carolina

ROBERT L. GOLDSTONE, Department of Psychological and Brain Sciences, Indiana University

DANIEL R. ILGEN, Department of Psychology, Michigan State University

NINA G. JABLONSKI, Department of Anthropology, Pennsylvania State University

JAMES S. JACKSON, Institute for Social Research, University of Michigan

NANCY G. KANWISHER, Department of Brain and Cognitive Sciences, Massachusetts Institute of Technology

JANICE KIECOLT-GLASER, Department of Psychology, Ohio State University College of Medicine

WILLIAM C. MAURER, School of Social Sciences, University of California, Irvine

JOHN MONAHAN, School of Law, University of Virginia

STEVEN E. PETERSEN, Department of Neurology and Neurological Surgery, Washington University School of Medicine, St. Louis

DANA M. SMALL, Department of Psychiatry, Yale University School of Medicine

TIMOTHY J. STRAUMAN, Department of Psychology and Neuroscience, Duke University

ALLAN R. WAGNER, Department of Psychology, Yale University

JEREMY M. WOLFE, Brigham and Women’s Hospital and Departments of Ophthalmology and Radiology, Harvard Medical School

BARBARA A. WANCHISEN, Director

Page viii Cite
Suggested Citation:"Front Matter." National Academies of Sciences, Engineering, and Medicine. 2016. Measuring Specific Mental Illness Diagnoses with Functional Impairment: Workshop Summary. Washington, DC: The National Academies Press. doi: 10.17226/21920.
×

BOARD ON HEALTH SCIENCES POLICY

JEFFREY KAHN (Chair), Department of Health Policy and Management and Berman Institute of Bioethics, Johns Hopkins University

ELI Y. ADASHI, The Warren Alpert Medical School, Brown University

WYLIE BURKE, Department of Bioethics and Humanities, University of Washington

R.A. CHARO, Law School and the Department of Medical History and Bioethics, University of Wisconsin–Madison

LINDA H. CLEVER, California Pacific Medical Center, San Francisco

BARRY S. COLLER, Allen and Frances Adler Laboratory of Blood and Vascular Biology, Rockefeller University

LEWIS R. GOLDFRANK, Ronald O. Perelman Department of Emergency Medicine, New York University Langone Medical Center

BERNARD A. HARRIS, JR., Vesalius Ventures, Houston, TX

MARTHA N. HILL, Department of Community-Public Health, Johns Hopkins University School of Nursing

STEVEN E. HYMAN, Stanley Center for Psychiatric Research, Broad Institute, Cambridge, MA

ALAN M. JETTE, Department of Health Law, Policy & Management, Boston University School of Public Health

PATRICIA A. KING, Georgetown University Law Center

STORY C. LANDIS, National Institute of Neurological Disorders and Stroke, U.S. Department of Health and Human Services

HARRY T. ORR, Department of Laboratory Medicine and Pathology, University of Minnesota, Minneapolis

UMAIR A. SHAH, Harris County Public Health and Environmental Services, Houston, TX

ROBYN STONE, LeadingAge, Washington, DC

SHARON TERRY, Genetic Alliance, Washington, DC

REED V. TUCKSON, Tuckson Health Connections, LLC, Sandy Springs, GA

ANDREW M. POPE, Director

Suggested Citation:"Front Matter." National Academies of Sciences, Engineering, and Medicine. 2016. Measuring Specific Mental Illness Diagnoses with Functional Impairment: Workshop Summary. Washington, DC: The National Academies Press. doi: 10.17226/21920.
×

Acknowledgment of Reviewers

This workshop summary has been reviewed in draft form by individuals chosen for their diverse perspectives and technical expertise, in accordance with procedures approved by the Report Review Committee of the National Academies of Sciences, Engineering, and Medicine. The purpose of this independent review is to provide candid and critical comments that will assist the institution in making its published report as sound as possible and to ensure that the report meets institutional standards for objectivity, evidence, and responsiveness to the charge. The review comments and draft manuscript remain confidential to protect the integrity of the process.

We thank the following individuals for their review of this report: Bruce Dohrenwend, Mailman School of Public Health, Columbia University; Robert Gibbons, Departments of Medicine and Public Health Sciences, University of Chicago; and James Wagner, Institute for Social Research, University of Michigan.

Although the reviewers listed above provided many constructive comments and suggestions, they were not asked to endorse the content of the report nor did they see the final draft of the report before its release. The review of this report was overseen by Susan A. Murphy, Department of Statistics and Institute for Social Research, University of Michigan. Appointed by the Academies, she was responsible for making certain that an independent examination of this report was carried out in accordance with institutional procedures and that all review comments were carefully considered. Responsibility for the final content of this report rests entirely with the rapporteurs and the institution.

Suggested Citation:"Front Matter." National Academies of Sciences, Engineering, and Medicine. 2016. Measuring Specific Mental Illness Diagnoses with Functional Impairment: Workshop Summary. Washington, DC: The National Academies Press. doi: 10.17226/21920.
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Suggested Citation:"Front Matter." National Academies of Sciences, Engineering, and Medicine. 2016. Measuring Specific Mental Illness Diagnoses with Functional Impairment: Workshop Summary. Washington, DC: The National Academies Press. doi: 10.17226/21920.
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Suggested Citation:"Front Matter." National Academies of Sciences, Engineering, and Medicine. 2016. Measuring Specific Mental Illness Diagnoses with Functional Impairment: Workshop Summary. Washington, DC: The National Academies Press. doi: 10.17226/21920.
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Suggested Citation:"Front Matter." National Academies of Sciences, Engineering, and Medicine. 2016. Measuring Specific Mental Illness Diagnoses with Functional Impairment: Workshop Summary. Washington, DC: The National Academies Press. doi: 10.17226/21920.
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Suggested Citation:"Front Matter." National Academies of Sciences, Engineering, and Medicine. 2016. Measuring Specific Mental Illness Diagnoses with Functional Impairment: Workshop Summary. Washington, DC: The National Academies Press. doi: 10.17226/21920.
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Suggested Citation:"Front Matter." National Academies of Sciences, Engineering, and Medicine. 2016. Measuring Specific Mental Illness Diagnoses with Functional Impairment: Workshop Summary. Washington, DC: The National Academies Press. doi: 10.17226/21920.
×
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Suggested Citation:"Front Matter." National Academies of Sciences, Engineering, and Medicine. 2016. Measuring Specific Mental Illness Diagnoses with Functional Impairment: Workshop Summary. Washington, DC: The National Academies Press. doi: 10.17226/21920.
×
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Suggested Citation:"Front Matter." National Academies of Sciences, Engineering, and Medicine. 2016. Measuring Specific Mental Illness Diagnoses with Functional Impairment: Workshop Summary. Washington, DC: The National Academies Press. doi: 10.17226/21920.
×
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Suggested Citation:"Front Matter." National Academies of Sciences, Engineering, and Medicine. 2016. Measuring Specific Mental Illness Diagnoses with Functional Impairment: Workshop Summary. Washington, DC: The National Academies Press. doi: 10.17226/21920.
×
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Page viii Cite
Suggested Citation:"Front Matter." National Academies of Sciences, Engineering, and Medicine. 2016. Measuring Specific Mental Illness Diagnoses with Functional Impairment: Workshop Summary. Washington, DC: The National Academies Press. doi: 10.17226/21920.
×
Page R8
Suggested Citation:"Front Matter." National Academies of Sciences, Engineering, and Medicine. 2016. Measuring Specific Mental Illness Diagnoses with Functional Impairment: Workshop Summary. Washington, DC: The National Academies Press. doi: 10.17226/21920.
×
Page R9
Suggested Citation:"Front Matter." National Academies of Sciences, Engineering, and Medicine. 2016. Measuring Specific Mental Illness Diagnoses with Functional Impairment: Workshop Summary. Washington, DC: The National Academies Press. doi: 10.17226/21920.
×
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Suggested Citation:"Front Matter." National Academies of Sciences, Engineering, and Medicine. 2016. Measuring Specific Mental Illness Diagnoses with Functional Impairment: Workshop Summary. Washington, DC: The National Academies Press. doi: 10.17226/21920.
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Suggested Citation:"Front Matter." National Academies of Sciences, Engineering, and Medicine. 2016. Measuring Specific Mental Illness Diagnoses with Functional Impairment: Workshop Summary. Washington, DC: The National Academies Press. doi: 10.17226/21920.
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The workshop summarized in this report was organized as part of a study sponsored by the Substance Abuse and Mental Health Services Administration (SAMHSA) and the Office of the Assistant Secretary for Planning and Evaluation of the U.S. Department of Health and Human Services, with the goal of assisting SAMHSA in its responsibilities of expanding the collection of behavioral health data in several areas. The workshop brought together experts in mental health, psychiatric epidemiology and survey methods to facilitate discussion of the most suitable measures and mechanisms for producing estimates of specific mental illness diagnoses with functional impairment. The report discusses existing measures and data on mental disorders and functional impairment, challenges associated with collecting these data in large-scale population-based studies, as well as study design and estimation options.

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