National Academies Press: OpenBook
« Previous: Appendix B: Workshop Agenda
Suggested Citation:"Appendix C: Biosketches of Workshop Speakers and Moderators." National Academies of Sciences, Engineering, and Medicine. 2016. Ensuring Quality and Accessible Care for Children with Disabilities and Complex Health and Educational Needs: Proceedings of a Workshop. Washington, DC: The National Academies Press. doi: 10.17226/23598.
×

Appendix C

Biosketches of Workshop Speakers and Moderators

Kirsten Beronio is director of the Division of Behavioral Health and Intellectual Disabilities Policy in the U.S. Department of Health and Human Services’ (HHS) Office of the Assistant Secretary for Planning and Evaluation. In this role, Beronio advises agency leadership on mental health and substance use disorder policy issues regarding the implementation of new programs and new legislative requirements, oversight of existing HHS programs, development of regulations and subregulatory guidance, and issuance of public statements. She also designs and oversees research projects by contractors addressing current federal mental health and substance use disorder policy issues. Beronio was previously vice president of public policy and advocacy at Mental Health America. She received her J.D. from Georgetown University.

Shay Bilchik is the founder and director of the Center for Juvenile Justice Reform at Georgetown University’s McCourt School of Public Policy. Prior to joining Georgetown, Bilchik was the president and chief executive officer of the Child Welfare League of America. Earlier, Bilchik was the administrator of the Office of Juvenile Justice and Delinquency Prevention in the U.S. Department of Justice, where he advocated for and supported a balanced and multisystems approach to attacking juvenile crime and addressing child victimization. Bilchik was also an assistant state attorney in Miami, Florida, from 1977 to 1993, where he served as a trial lawyer, juvenile division chief, and chief assistant state attorney. He earned his B.S. and J.D. degrees from the University of Florida.

Suggested Citation:"Appendix C: Biosketches of Workshop Speakers and Moderators." National Academies of Sciences, Engineering, and Medicine. 2016. Ensuring Quality and Accessible Care for Children with Disabilities and Complex Health and Educational Needs: Proceedings of a Workshop. Washington, DC: The National Academies Press. doi: 10.17226/23598.
×

C. Hendricks Brown is professor in the Departments of Psychiatry and Behavioral Sciences, Preventive Medicine, and Medical Social Sciences in the Northwestern University Feinberg School of Medicine. He also holds adjunct appointments in the Departments of Biostatistics and Mental Health at the Johns Hopkins Bloomberg School of Public Health as well as the Department of Public Health Sciences at the Miller School of Medicine at the University of Miami. He directs the Center for Prevention Implementation Methodology for Drug Abuse and Sexual Risk Behavior and a study funded by the National Institute of Mental Health to synthesize findings from individual-level data across multiple randomized trials for adolescent depression. He is also the codirector of the Prevention of Youth Violence Center. Recently, his work has focused on the prevention of drug abuse, conduct disorder, depression, and suicide.

Nathan Call is director of the Severe Behavior Program at the Marcus Autism Center. He completed a predoctoral internship at the University of Iowa Hospitals and Clinics Center for Disabilities and Development, and he completed a postdoctoral fellowship at Marcus Autism Center and Emory University. After working as an assistant professor at Louisiana State University from 2004 to 2006, he returned to Marcus Autism Center. His current research interests include the assessment and treatment of severe behavior disorders. His interests also include identifying the basic behavioral mechanisms that influence the occurrence and maintenance of problem behavior, and developing clinical methods that incorporate these mechanisms into the assessment and treatment of problem behaviors. He received his doctorate in school psychology from the University of Iowa.

Victoria Costello combined her experience dealing with family mental illness and a science journalism career to author A Lethal Inheritance: A Mother Uncovers the Science Behind Three Generations of Mental Illness. She has served as a board member for the Mental Health Association of San Francisco, and currently as community editor for the Public Library of Science, where she edits a blog network aimed at translating biomedical research for a broad readership.

Lisa Dixon is a professor of psychiatry at the Columbia University Medical Center and the director of the Division of Mental Health Services and Policy Research within the Department of Psychiatry. She also directs the Center for Practice Innovations (CPI) at the New York State Psychiatric Institute. As CPI director, she oversees activities for the New York State Office of Mental Health in implementing evidence-based practices for people diagnosed with serious mental illness. She also leads OnTrackNY. Her grants have focused on improving the quality of care for individuals with

Suggested Citation:"Appendix C: Biosketches of Workshop Speakers and Moderators." National Academies of Sciences, Engineering, and Medicine. 2016. Ensuring Quality and Accessible Care for Children with Disabilities and Complex Health and Educational Needs: Proceedings of a Workshop. Washington, DC: The National Academies Press. doi: 10.17226/23598.
×

serious mental disorders with a particular emphasis on services that include families, reducing the negative impact of co-occurring addictions and medical problems, and improving treatment engagement and adherence.

Torrie Dunlap is an educator who found her life’s purpose when she taught a theater class for children that included a boy with Down syndrome, which connected her to the work of Kids Included Together. She started as a volunteer for the national nonprofit and is now chief executive officer. She is a regular contributor to the advocacy Website Think Inclusive, and the SWIFT schools blog SWIFTtalk and also was a frequent guest host on the podcast The Inclusive Class. She is a certified professional in learning and performance and in 2013 was selected as a social innovation fellow at Stanford’s Graduate School of Business.

Maureen Durkin is a professor of Population Health Sciences and Pediatrics, an investigator with the Waisman Center, and principal investigator of the Wisconsin Study to Explore Early Development of Autism Spectrum Disorder, all at the University of Wisconsin–Madison. Her research interests include the epidemiology, prevention, antecedents, and consequences of neurodevelopmental disabilities and childhood injuries. She has collaborated in the development of cross-cultural methods for behavioral and developmental screening and assessment and methods for the surveillance of childhood injuries, and she has directed international studies of the prevalence and causes of childhood disabilities and mental health disorders in low-resource settings. She has also directed cohort studies of the neuropsychological outcomes of neonatal brain injuries associated with preterm birth and with metabolic disorders detected on newborn screening. She holds an undergraduate degree and Ph.D. in anthropology from the University of Wisconsin–Madison and M.P.H. and Dr.P.H. degrees in epidemiology and postdoctoral fellowship training in psychiatric epidemiology from Columbia University.

Robin Everhart is an assistant professor in the Department of Psychology at Virginia Commonwealth University and a licensed clinical psychologist. Her program of research is focused on understanding childhood chronic disease management from a family systems perspective, particularly within the context of urban and cultural stressors and primarily related to pediatric asthma. She incorporates a focus on quality of life, health disparities, caregiving, and family-based models of care. She is also leading a National Institute of Health-funded community needs assessment in the Richmond area that will inform the development of a larger clinical trial to reduce pediatric asthma disparities. In maintaining her broader interest in child

Suggested Citation:"Appendix C: Biosketches of Workshop Speakers and Moderators." National Academies of Sciences, Engineering, and Medicine. 2016. Ensuring Quality and Accessible Care for Children with Disabilities and Complex Health and Educational Needs: Proceedings of a Workshop. Washington, DC: The National Academies Press. doi: 10.17226/23598.
×

health psychology and families, she has also published and presented research on adherence in pediatric cystic fibrosis.

Tony Foleno is the senior vice president for research at the Ad Council, where he advises the strategic planning of more than 40 public service communications campaigns. He also oversees campaign evaluation, establishing key performance indicators and the tools for measurement. He has conducted numerous studies on best practices in social marketing and public service communications. He cochairs the Ad Council Research Committee. Prior to joining the Ad Council in 2002, he managed projects at Public Agenda, a nonpartisan public opinion research organization. He is a graduate of Swarthmore College and holds an M.A. in sociology from Columbia University.

Mary Fristad is professor and vice chair for research and academic affairs in the Department of Psychiatry and Behavioral Health at the Ohio State University (OSU) Wexner Medical Center. She also holds appointments in Psychology and Nutrition and is the associate director for research at the OSU Center for Integrative Health and Wellness. She is board certified in clinical psychology and clinical child and adolescent psychology. Her current National Institute of Mental Health (NIMH) grant is in its 10th year examining the longitudinal course of manic symptoms in youth. She recently completed two NIMH-funded randomized, controlled trials of omega 3 fatty acids (n3) and individual-family psychoeducational psychotherapy in youth with depressive and bipolar spectrum disorders. Currently, her group is completing a long-term follow-up of participants from those trials, including testing for a genetic marker that may indicate who is more likely to be responsive to n3. She received her doctorate from the University of Kansas after completing her clinical internship at Brown University.

Robert Heinssen is director of the Division of Services and Intervention Research at the National Institute of Mental Health (NIMH), which he joined in 1999. He is NIMH science officer for the North American Prodrome Longitudinal Study and study director for the Recovery After an Initial Schizophrenia Episode initiative. From 2008 to 2010, he played a pivotal role in launching the NIMH-Army Study to Assess Risk and Resilience in Service Members. Between 2004 and 2012, he served as a major in the U.S. Army National Guard and deployed to Afghanistan in 2010 as a member of the U.S. Army Joint Mental Health Advisory Team. He earned a doctoral degree in clinical psychology from Catholic University of America. A board-certified, licensed clinical psychologist, he completed a clinical fellowship at McLean Hospital/Harvard Medical School and residency at Chestnut Lodge Hospital.

Suggested Citation:"Appendix C: Biosketches of Workshop Speakers and Moderators." National Academies of Sciences, Engineering, and Medicine. 2016. Ensuring Quality and Accessible Care for Children with Disabilities and Complex Health and Educational Needs: Proceedings of a Workshop. Washington, DC: The National Academies Press. doi: 10.17226/23598.
×

Amy Houtrow is an associate professor and vice chair in the Department of Physical Medicine and Rehabilitation for Pediatric Rehabilitation Medicine at Children’s Hospital of Pittsburgh. She also serves as the chief of its Pediatric Rehabilitation Medicine Services. She completed her residencies in physical medicine and rehabilitation and pediatrics at Cincinnati Children’s Hospital and the University of Cincinnati Medical Center in 2005. She is board certified in both disciplines with subspecialty certification in Pediatric Rehabilitation Medicine. From 2005 to 2012, she was assistant professor of clinical pediatrics at the University of California, San Francisco. Her main clinical focus is caring for children with disabling conditions. Complementing her clinical focus, her research focus is on optimizing health services for children with disabilities, with an emphasis on recognizing the impact that raising children with disabilities has on families and on developing channels to improve service delivery to reduce disparities. She has a master’s in public health from the University of Michigan, an M.D. from Michigan State University, and Ph.D. in medical sociology from the University of California, San Francisco.

J-Jaye Hurley joined Autism Speaks Family Services in 2011 as the southeast regional autism response team coordinator. She also provides special education support and resources to parents to empower them to be the best advocates they can be for their child. She is herself an advocate for her son, who has complex medical and educational needs. She graduated with a B.A. from the University of Mississippi.

Heather Johnson is a family nurse practitioner and retired Air Force lieutenant colonel. She is the acting director and chair of the Family and Women’s Health Nurse Practitioner Programs at the Uniformed Services University of the Health Sciences Daniel K. Inouye Graduate School of Nursing. She helps families navigate the complex health care and education systems for children with special health care needs, and she integrated curriculum specific to this population into Family, Women’s Health and Psychiatric Mental Health Nurse Practitioner education. She partnered with the National Center for Disaster Medicine and Public Health on projects to create multidisciplinary education initiatives for vulnerable populations in disasters and maintains an active clinical practice at the Walter Reed National Military Medical Center Cabrera Family Health Center.

Connie Kasari is professor of human development and psychiatry at the University of California, Los Angeles (UCLA). She is a founding member of the UCLA Center for Autism Research and Treatment. Her research aims to develop novel, evidence-tested interventions implemented in community

Suggested Citation:"Appendix C: Biosketches of Workshop Speakers and Moderators." National Academies of Sciences, Engineering, and Medicine. 2016. Ensuring Quality and Accessible Care for Children with Disabilities and Complex Health and Educational Needs: Proceedings of a Workshop. Washington, DC: The National Academies Press. doi: 10.17226/23598.
×

settings. Her recent projects include targeted treatments for early social communication development in at-risk infants, toddlers and preschoolers with autism, and peer relationships for school-aged children with autism. She received her Ph.D. from the University of North Carolina at Chapel Hill and was a National Institute of Mental Health postdoctoral fellow at the Neuropsychiatric Institute at UCLA.

Anne Kazak is is codirector of the Nemours Center for Healthcare Delivery Science and codirector of the Center for Pediatric Traumatic Stress at the Children’s Hospital of Philadelphia and A.I. duPont Hospital for Children in Delaware. Kazak is a licensed psychologist and a professor in the Department of Pediatrics at the Sidney Kimmel Medical College of Thomas Jefferson University in Philadelphia and adjunct professor of psychology at the University of Delaware. She is editor in chief of Health Psychology and American Psychologist. She received an undergraduate degree at Smith College and Ph.D. in clinical-community psychology from the University of Virginia, and she completed her internship training at Yale University School of Medicine, Department of Psychiatry.

Kelly Kelleher is director of the Center for Innovation in Pediatric Practice and vice president of Health Services Research at the Research Institute at Nationwide Children’s Hospital. He is also professor in the Department of Pediatrics of the Ohio State University College of Medicine. A pediatrician by training, his research interests focus on accessibility, effectiveness, and quality of health care services for children and their families, especially those affected by mental disorders, substance abuse, or violence. He has a longstanding interest in formal outcomes research for mental health and substance abuse services. He earned his M.D. from the Ohio State University.

Susan Lanzoni is a historian of science and medicine based in Cambridge, Massachusetts, where she teaches in the Division of Continuing Education at Harvard University. She was previously a resident fellow in the Newhouse Humanities Center at Wellesley College and a visiting scholar at the Massachusetts Institute of Technology. She specializes in the history of psychiatry, experimental psychology, neurology, and the mind sciences, and she is completing a book about the cultural history of empathy from aesthetics to neuroscience. She received her Ph.D. in history and philosophy of science from Harvard University.

Angela Lello is director of Housing and Community Living and a member of the Family Services and Federal Advocacy teams at Autism Speaks. She is a policy expert in Medicaid and long-term care, as well as the mother

Suggested Citation:"Appendix C: Biosketches of Workshop Speakers and Moderators." National Academies of Sciences, Engineering, and Medicine. 2016. Ensuring Quality and Accessible Care for Children with Disabilities and Complex Health and Educational Needs: Proceedings of a Workshop. Washington, DC: The National Academies Press. doi: 10.17226/23598.
×

of a child with autism. She began her career as a policy advocate at an independent living center in Austin, Texas, where she also conducted policy analysis for the Texas Department of Aging and Disability Services. She then directed and managed public policy and public information for the Texas Council for Developmental Disabilities. In 2011, she was named a Joseph P. Kennedy Jr. Foundation public policy fellow and had placements within the U.S. Senate and the U.S. Department of Health and Human Services. She holds a B.A. from Abilene Christian University and an M.P.A. from the Lyndon B. Johnson School of Public Affairs at the University of Texas at Austin.

Emily Lichvar is an applied developmental psychologist and a public health adviser in the Child, Adolescent and Family Branch of the Center for Mental Health Services in the Substance Abuse and Mental Health Services Administration (SAMHSA). She provides program oversight, guidance, and leadership to grants, contracts, and cooperative agreements that utilize a system-of-care approach to better serve children and adolescents nationwide. Prior to joining SAMHSA, she held academic appointments at Washington State University and Manhattan College. Additionally, she served as coinvestigator on a National Institute of Drug Abuse-funded study aimed at integrating pharmacological and behavioral interventions for substance-using adolescents with co-occurring attention deficit and hyperactivity disorder. She received her B.A. in psychology from University of Delaware, M.A. in clinical psychology from Teachers College, Columbia University, and Ph.D. in applied developmental psychology from Fordham University.

David Mandell is associate professor of psychiatry and pediatrics at the University of Pennsylvania’s Perelman School of Medicine, where he directs the Center for Mental Health Policy and Services Research. He also is associate director of the Center for Autism Research at the Children’s Hospital of Philadelphia. The goal of his research is to improve the quality of care individuals with autism receive in their communities. He cochaired the Commonwealth of Pennsylvania’s Autism Task Force from 2003 to 2006 and consults with Philadelphia agencies to help them develop appropriate policies to meet the needs of people with autism. He currently serves as a member of the U.S. Department of Health and Human Services Interagency Autism Coordinating Council. He holds a B.A. in psychology from Columbia University and a doctorate of science from the Johns Hopkins School of Hygiene and Public Health.

Mary Ann McCabe is associate clinical professor of pediatrics at the George Washington University School of Medicine and affiliate faculty in applied

Suggested Citation:"Appendix C: Biosketches of Workshop Speakers and Moderators." National Academies of Sciences, Engineering, and Medicine. 2016. Ensuring Quality and Accessible Care for Children with Disabilities and Complex Health and Educational Needs: Proceedings of a Workshop. Washington, DC: The National Academies Press. doi: 10.17226/23598.
×

developmental psychology at George Mason University. She is also a clinical psychologist and consultant in independent practice. She is president of the Society for Child and Family Policy and Practice and a member of a task force on integrated care for the Society of Pediatric Psychology. Her areas of research and writing have focused on neuropsychological and behavioral sequelae of medical treatments in children, as well as minors’ capacity for involvement in decision making about medical and mental health treatment and research. She earned her Ph.D. in clinical psychology from Catholic University of America.

Craig Newschaffer is founding director of the A.J. Drexel Autism Institute at Drexel University and a professor in the Department of Epidemiology and Biostatistics at the Drexel University School of Public Health. He is an epidemiologist whose main research focus is the discovery of modifiable autism risk factors. He has directed an NIH Autism Center of Excellence (ACE) project, been a site principal investigator on other major autism epidemiology initiatives, and led an NIH-funded project testing streamlined approaches to ASD case confirmation for epidemiologic research purposes. Newschaffer is also a fellow of the American College of Epidemiology, vice president of the International Society for Autism Research, associate editor of Autism Research, and interim associate dean for research at the Drexel University School of Public Health.

Jill Plevinsky is a third-year doctoral student in the clinical psychology program at Rosalind Franklin University of Medicine and Science. Her research interests include understanding barriers to various domains of self-management in adolescents and young adults with inflammatory bowel diseases, including medication adherence, risk-taking behaviors, and the transition to adult care. She has lived with Crohn’s disease for the past 20 years and, through her involvement in the Crohn’s and Colitis Foundation of America, Collaborative Chronic Care Network (C3N Project), and ImproveCareNow, has advocated for and spoken on behalf of young people with IBD.

Edward Schor is senior vice president for programs and partnerships at the Lucile Packard Foundation for Children’s Health. Previously he was a vice president at The Commonwealth Fund, where he directed the State Health Policy and Practices program and the Child Development and Preventive Care program. A pediatrician, he has held a number of positions in pediatric practice, academic pediatrics, health services research, and public health. He received postdoctoral training in social and behavioral sciences and has a special interest in the social determinants of child health and family functioning. He is editor of the book Caring for Your School-Age Child and has

Suggested Citation:"Appendix C: Biosketches of Workshop Speakers and Moderators." National Academies of Sciences, Engineering, and Medicine. 2016. Ensuring Quality and Accessible Care for Children with Disabilities and Complex Health and Educational Needs: Proceedings of a Workshop. Washington, DC: The National Academies Press. doi: 10.17226/23598.
×

chaired both the Committee on Early Childhood, Adoption and Dependent Care and the national Task Force on the Family for the American Academy of Pediatrics. He has been a member of the faculties of several major university medical schools and schools of public health.

Andy Shih is senior vice president of scientific affairs at Autism Speaks. He oversees the public health portfolio, which includes Autism Speaks’ Global Autism Public Health Initiative. He and his team serve as technical advisers to ministries and other government agencies by facilitating multistakeholder collaboration and sourcing needed content expertise and other technical resources. His research background includes published studies in gene identification and characterization, virus-cell interaction, and cell-cycle regulation. Prior to focusing on Autism Speaks’ public health/international development efforts, he oversaw the organization’s investments in genetics, environmental sciences, epidemiology, and assistive technologies.

Stephen Shore was diagnosed as a child with “atypical development and strong autistic tendencies.” He is now a professor at Adelphi University, where his research focuses on matching best practice to the needs of people with autism. In addition to working with children and talking about life on the autism spectrum, he presents and consults internationally on adult issues pertinent to education, relationships, employment, advocacy, and disclosure. He is president emeritus of the Asperger’s Association of New England and former board member of the Autism Society. He serves on the boards of the Asperger Syndrome and High Functioning Autism Association, the Autism Services Association, and other autism-related organizations.

Steve Silberman is an award-winning science writer. He is the author of NeuroTribes: The Legacy of Autism and the Future of Neurodiversity. His TED talk, “The Forgotten History of Autism,” has been viewed more than 1 million times and translated into 25 languages. His writing on science, culture, and literature has been collected in a number of major anthologies.

Deborah Klein Walker is vice president and senior fellow at Abt Associates. She is a public health leader and behavioral science researcher with more than 40 years of experience developing and implementing programs and system change, research, evaluation, policy analysis, and consulting on child and adolescent health issues. Before joining Abt Associates, she was the associate commissioner for programs and prevention at the Massachusetts Department of Public Health and a faculty member at the Harvard School of Public Health and Graduate School of Education. She is the current president of the American Orthopsychiatric Association and

Suggested Citation:"Appendix C: Biosketches of Workshop Speakers and Moderators." National Academies of Sciences, Engineering, and Medicine. 2016. Ensuring Quality and Accessible Care for Children with Disabilities and Complex Health and Educational Needs: Proceedings of a Workshop. Washington, DC: The National Academies Press. doi: 10.17226/23598.
×

board member of Family Voices and a past president of the American Public Health Association and the Association of Maternal and Child Health Programs. She earned a B.A. degree in psychology from Mount Holyoke College and Ed.D. and Ed.M. degrees in human development from Harvard University.

Donald Wertlieb is past president of the American Orthopsychiatric Association and current president of the Partnership for Early Childhood Development and Disability Rights. He is professor emeritus and former chair of the Eliot-Pearson Department of Child Development at Tufts University. Internationally, his work emphasizes collaboration in the development of mental health and integrated human services frameworks, with particular attention to fostering resiliency for children and families placed at risk. He is a pediatric psychologist whose major research interest has been in understanding the complex processes by which children and families cope with stressors. He earned his Ph.D. in pediatric psychology from Boston University.

Emily Willingham is a research scientist and freelance writer. Her writing focuses on health, especially mental health and neurobiology, and debunkery, particularly as it pertains to controversial issues around autism, genetically modified organisms, parenting, and vaccines. She has taught students of all ages, primarily as a university instructor in scientific writing and biology, focusing on physiology, developmental biology, genetics, and general science. She earned her bachelor’s degree in English and Ph.D. in biological sciences at the University of Texas at Austin and completed a postdoctoral fellowship in urology at the University of California, San Francisco.

Suggested Citation:"Appendix C: Biosketches of Workshop Speakers and Moderators." National Academies of Sciences, Engineering, and Medicine. 2016. Ensuring Quality and Accessible Care for Children with Disabilities and Complex Health and Educational Needs: Proceedings of a Workshop. Washington, DC: The National Academies Press. doi: 10.17226/23598.
×
Page 91
Suggested Citation:"Appendix C: Biosketches of Workshop Speakers and Moderators." National Academies of Sciences, Engineering, and Medicine. 2016. Ensuring Quality and Accessible Care for Children with Disabilities and Complex Health and Educational Needs: Proceedings of a Workshop. Washington, DC: The National Academies Press. doi: 10.17226/23598.
×
Page 92
Suggested Citation:"Appendix C: Biosketches of Workshop Speakers and Moderators." National Academies of Sciences, Engineering, and Medicine. 2016. Ensuring Quality and Accessible Care for Children with Disabilities and Complex Health and Educational Needs: Proceedings of a Workshop. Washington, DC: The National Academies Press. doi: 10.17226/23598.
×
Page 93
Suggested Citation:"Appendix C: Biosketches of Workshop Speakers and Moderators." National Academies of Sciences, Engineering, and Medicine. 2016. Ensuring Quality and Accessible Care for Children with Disabilities and Complex Health and Educational Needs: Proceedings of a Workshop. Washington, DC: The National Academies Press. doi: 10.17226/23598.
×
Page 94
Suggested Citation:"Appendix C: Biosketches of Workshop Speakers and Moderators." National Academies of Sciences, Engineering, and Medicine. 2016. Ensuring Quality and Accessible Care for Children with Disabilities and Complex Health and Educational Needs: Proceedings of a Workshop. Washington, DC: The National Academies Press. doi: 10.17226/23598.
×
Page 95
Suggested Citation:"Appendix C: Biosketches of Workshop Speakers and Moderators." National Academies of Sciences, Engineering, and Medicine. 2016. Ensuring Quality and Accessible Care for Children with Disabilities and Complex Health and Educational Needs: Proceedings of a Workshop. Washington, DC: The National Academies Press. doi: 10.17226/23598.
×
Page 96
Suggested Citation:"Appendix C: Biosketches of Workshop Speakers and Moderators." National Academies of Sciences, Engineering, and Medicine. 2016. Ensuring Quality and Accessible Care for Children with Disabilities and Complex Health and Educational Needs: Proceedings of a Workshop. Washington, DC: The National Academies Press. doi: 10.17226/23598.
×
Page 97
Suggested Citation:"Appendix C: Biosketches of Workshop Speakers and Moderators." National Academies of Sciences, Engineering, and Medicine. 2016. Ensuring Quality and Accessible Care for Children with Disabilities and Complex Health and Educational Needs: Proceedings of a Workshop. Washington, DC: The National Academies Press. doi: 10.17226/23598.
×
Page 98
Suggested Citation:"Appendix C: Biosketches of Workshop Speakers and Moderators." National Academies of Sciences, Engineering, and Medicine. 2016. Ensuring Quality and Accessible Care for Children with Disabilities and Complex Health and Educational Needs: Proceedings of a Workshop. Washington, DC: The National Academies Press. doi: 10.17226/23598.
×
Page 99
Suggested Citation:"Appendix C: Biosketches of Workshop Speakers and Moderators." National Academies of Sciences, Engineering, and Medicine. 2016. Ensuring Quality and Accessible Care for Children with Disabilities and Complex Health and Educational Needs: Proceedings of a Workshop. Washington, DC: The National Academies Press. doi: 10.17226/23598.
×
Page 100
Ensuring Quality and Accessible Care for Children with Disabilities and Complex Health and Educational Needs: Proceedings of a Workshop Get This Book
×
Buy Paperback | $45.00 Buy Ebook | $36.99
MyNAP members save 10% online.
Login or Register to save!
Download Free PDF

Children with disabilities and complex medical and educational needs present a special challenge for policy makers and practitioners. These children exhibit tremendous heterogeneity in their conditions and needs, requiring a varied array of services to meet those needs. Uneven public and professional awareness of their conditions and a research base marked by significant gaps have led to programs, practices, and policies that are inconsistent in quality and coverage. Parents often have to navigate and coordinate, largely on their own, a variety of social, medical, and educational support services, adding to the already daunting financial, logistical, and emotional challenges of raising children with special needs. The unmet needs of children with disabilities and complex medical and educational needs can cause great suffering for these children and for those who love and care for them.

To examine how systems can be configured to meet the needs of children and families as they struggle with disabilities and complex health and educational needs, the National Academies of Sciences, Engineering, and Medicine held a workshop in December 2015. The goal of the workshop was to highlight the main barriers and promising solutions for improving care and outcome of children with complex medical and educational needs. Workshop participants examined prevention, care, service coordination, and other topics relevant to children with disabilities and complex health and educational needs, along with their families and caregivers. More broadly, the workshop seeks actionable understanding on key research questions for enhancing the evidence base; promoting and sustaining the quality, accessibility, and use of relevant programs and services; and informing relevant policy development and implementation. By engaging in dialogue to connect the prevention, treatment, and implementation sciences with settings where children are seen and cared for, the forum seeks to improve the lives of children by improving the systems that affect those children and their families. This publications summarizes the presentations and discussions from the workshop.

  1. ×

    Welcome to OpenBook!

    You're looking at OpenBook, NAP.edu's online reading room since 1999. Based on feedback from you, our users, we've made some improvements that make it easier than ever to read thousands of publications on our website.

    Do you want to take a quick tour of the OpenBook's features?

    No Thanks Take a Tour »
  2. ×

    Show this book's table of contents, where you can jump to any chapter by name.

    « Back Next »
  3. ×

    ...or use these buttons to go back to the previous chapter or skip to the next one.

    « Back Next »
  4. ×

    Jump up to the previous page or down to the next one. Also, you can type in a page number and press Enter to go directly to that page in the book.

    « Back Next »
  5. ×

    Switch between the Original Pages, where you can read the report as it appeared in print, and Text Pages for the web version, where you can highlight and search the text.

    « Back Next »
  6. ×

    To search the entire text of this book, type in your search term here and press Enter.

    « Back Next »
  7. ×

    Share a link to this book page on your preferred social network or via email.

    « Back Next »
  8. ×

    View our suggested citation for this chapter.

    « Back Next »
  9. ×

    Ready to take your reading offline? Click here to buy this book in print or download it as a free PDF, if available.

    « Back Next »
Stay Connected!