Appendix B

Biographical Sketches of Workshop Speakers and Moderators

Margaret Campbell, Ph.D., provides consulting services in aging, disability, and technology research and policy. Previously, Dr. Campbell was a senior scientist for planning and policy support with the National Institute on Disability, Independent Living, and Rehabilitation Research (NIDILRR), Office of Special Education and Rehabilitative Services, Department of Education, Washington, DC. In this capacity, her primary responsibilities involved providing scientific direction for strategic planning and priority development in the areas of aging with disability, technologies for successful aging, and health disparities; serving as a project officer for NIDILRR’s grants in these areas; and coordinating NIDILRR’s research capacity–building efforts for both the Advanced Rehabilitation Research Training program, which funds institutions of high education to conduct multidisciplinary postdoctoral rehabilitation research, and the Switzer Research Fellowship Program, which awards merit and distinguished fellowships to qualified individuals to pursue individual research and development activities, including individuals with disabilities. Dr. Campbell also managed activities under the 2011 memo of understanding between NIDILRR and the Administration on Aging (AoA) (now the Administration for Community Living [ACL]), which included two supplemental research projects and planning for the May 17–18 joint interagency conference on Aging with Disability: Demographic, Social and Policy Perspectives, sponsored by NIDILRR, AoA/ACL, and the National Institute on Aging/National Institutes of Health. In addition, Dr. Campbell represented NIDILRR and the Department of Education to

the Federal Interagency Workgroup for National Health Objectives, which oversees the planning and implementation of the Healthy People 2020. Prior joining NIDILRR in 1999, Dr. Campbell served for 9 years as the research director for the NIDILRR-funded Rehabilitation Research and Training Center on Aging with Disability at Rancho Los Amigos National Rehabilitation Center, Downey, California; and prior to that as a research associate at the Andrus Gerontology Center, University of Southern California. Dr. Campbell’s advanced degrees are in human development and family studies from Cornell University (1986) and social relations from Lehigh University (1978), with an undergraduate degree in sociology from the University of California, Davis.

Terry Fulmer, Ph.D., RN, FAAN, is the president of The John A. Hartford Foundation in New York City, a private national philanthropy dedicated to improving the care of older adults. She previously served as a distinguished professor and the dean of the Bouvé College of Health Sciences, and before that as the Erline Perkins McGriff Professor of Nursing and founding dean of the New York University (NYU) College of Nursing. Dr. Fulmer is nationally and internationally recognized as a leading expert in geriatrics and is best known for her research on the topic of elder abuse and neglect. Her clinical appointments have included the Beth Israel Hospital in Boston, the Massachusetts General Hospital, and the NYU-Langone Medical Center. She is an elected member of the National Academy of Medicine.

Robyn Golden, LCSW, serves as the director of population health and aging at Rush University Medical Center in Chicago, where she also holds academic appointments in the departments of preventive medicine, geriatric medicine, nursing, psychiatry, and health systems management and the College of Nursing. She is responsible for developing and overseeing health promotion and disease prevention, mental health, care coordination, and transitional care services for older adults, family caregivers, and people with chronic conditions. She is the principal investigator for the Health Resources and Services Administration–Funded Geriatric Workforce Enhancement Program and the Commonwealth Fund’s primary care redesign project. For more than 25 years, Ms. Golden has been actively involved in service provision, program development, education, research, and public policy aimed at developing innovative initiatives and systems integration to improve the health and well-being of older adults and their families. In 2003–2004, she was the John Heinz Senate Fellow based in the office of Senator Hillary Rodham Clinton in Washington, DC. Ms. Golden is also a past chair of American Society on Aging and currently co-chairs the National Coalition on Care Coordination. She also is a fellow of the

Gerontological Society of America. Ms. Golden holds a master’s degree from the School of Social Service Administration at the University of Chicago.

Karen Guice, M.D., M.P.P., is the (acting) assistant secretary of defense for health affairs and the principal medical advisor to the secretary of defense. In this role, she administers the Military Health System’s $50 billion budget; is responsible for providing a cost-effective, quality health benefit to 9.6 million active duty uniformed service members, retirees, survivors, and their families; and oversees congressional and legislative activities for the Military Health System. Dr. Guice also exercises authority, direction, and control over the Defense Health Agency and the Uniformed Services University of the Health Sciences. Dr. Guice graduated from the University of New Mexico School of Medicine and completed her general surgery training at the University of Washington. Dr. Guice received a master’s degree in public policy from Duke University and was selected as a 1997–1998 Robert Wood Johnson Health Policy Fellow. She served as a staff member of the Senate Committee on Labor from 1998 to 1999 and as the director of fellowship services at the American College of Surgeons from 1999 to 2001. Immediately prior to joining the Department of Defense, she served as the deputy director for the President’s Commission on Care for America’s Returning Wounded Warriors, a commission co-chaired by Senator Bob Dole and former health and human services secretary Donna Shalala.

David Gustafson, Ph.D., directs the University of Wisconsin–Madison’s Center for Health Enhancement Systems Studies, which includes the national program office for the Network for Improvement of Addiction Treatment and the Center of Excellence on Active Aging Research (Agency for Healthcare Research and Quality). His research interests focus on developing systems engineering tools to support sustainable individual and organizational improvement. His individual change research develops and tests computer systems to help people deal with significant issues affecting quality of life including addiction, cancer, and aging. He has published more than 270 reviewed publications, including 7 books. Dr. Gustafson is a member of the National Academy of Engineering and a fellow of the Association for Health Services Research, the American Medical Informatics Association, the W.K. Kellogg Foundation, and the Institute for Healthcare Improvement, which he co-founded and for which he was board vice-chair. He co-chaired the federal Science Panel on Interactive Communications in Health and serves on the National Institutes of Health’s Dissemination and Implementation in Health Study Section.

Michael P. Johnson, Ph.D., is the practice leader for home health at BAYADA Home Health Care in Moorestown, New Jersey. The Home Health Practice is composed of 90 offices in 15 states which provide care to more than 11,000 clients weekly through a multidisciplinary team approach delivered by more than 4,000 clinicians (registered nurses, physical therapists, occupational therapists, speech-language pathologists, social workers, home health aides) and staff. Through partnerships with numerous accountable care organizations and bundled payment care initiatives across the country, the leadership team has worked to evolve the ways in which staff are trained, how they function together in teams, and how their diverse skills and services can be delivered to best meet the needs of a health care system that is driving toward long-term population health management. Dr. Johnson has served as a member of the National Advisory Council for the Agency for Healthcare Research and Quality, a steering group member for the AQA Alliance, and as a consultant on the development and testing of quality measurements for use in the Physician Quality Reporting System. He has also served in multiple elected and appointed roles within the American Physical Therapy Association over the past 20 years, including currently as a member of the Physical Therapy Workforce Task Force and the Scientific Advisory Panel for the Center on Health Services Training and Research. Dr. Johnson holds a B.S. in physical therapy from Northeastern University, an M.S. in orthopedic physical therapy from MCP Hahnemann University (Philadelphia), and a Ph.D. in health policy from the University of the Sciences (Philadelphia).

H. Stephen Kaye, Ph.D., is a professor at the Institute for Health & Aging and the Department of Social and Behavioral Sciences at the University of California, San Francisco (UCSF). He serves as the director and a principal investigator of the Community Living Policy Center, a national research center funded by the National Institute on Disability, Independent Living, and Rehabilitation Research and the Administration for Community Living. Previously, he led the Center for Personal Assistance Services and was a co-director of the UCSF Disability Statistics Center. He received a Ph.D. from Stanford University in 1983. His primary research interests focus on the community-based, long-term services and supports needed by people with disabilities of all ages, employment issues among people with disabilities, use of information and assistive technology, and disability measurement and data collection.

Teresa Lee, J.D., M.P.H., is the executive director of the Alliance for Home Health Quality and Innovation (the “Alliance”). She joined the Alliance in June 2011. As a graduate of Harvard University’s School of Public

Health and with formal training as an attorney, Ms. Lee is a recognized professional in the fields of Medicare reimbursement and health law and policy. She brings to the Alliance a thorough understanding of the critical intersection between health policy, health care reform, and the law. As executive director, Ms. Lee hopes to support skilled home health’s critical and valuable role as the U.S. health care delivery system changes to improve both the quality and efficiency of patient-centered care. Ms. Lee has a strong background in health care policy and association management experience. Prior to her work for the Alliance, Ms. Lee served as a senior vice president at the Advanced Medical Technology Association (AdvaMed) in Washington, DC. Her career at AdvaMed included her tenure as the vice president and associate vice president of payment and health care delivery policy. Ms. Lee has also served as a senior counsel in the Office of the Inspector General at the Department of Health and Human Services. Ms. Lee earned her undergraduate degree from the University of California, Berkeley; a master of public health degree from the Harvard University’s School of Public Health; and a law degree from the George Washington University Law School.

Carol Levine directs the United Hospital Fund’s Families and Health Care Project, which focuses on developing partnerships between health care professionals and family caregivers. In 1993 she was awarded a MacArthur Foundation Fellowship for her work in AIDS policy and ethics. She is the editor of Living in the Land of Limbo: Fiction and Poetry About Caregiving (Vanderbilt University Press) and author of Planning for Long-Term Care for Dummies (Wiley).

David Lindeman, Ph.D., is the director of health at the Center for Information Technology Research in the Interest of Society at the University of California, Berkeley, and the director of the Center for Technology and Aging. Dr. Lindeman has worked in the field of aging and long-term care for more than 30 years as a health services researcher and gerontologist, conducting research related to health care technology, assistive technologies, chronic disease management, healthy aging, disabilities, dementia, community-based and residential services, the long-term care workforce, and family caregiving. Dr. Lindeman’s current research focus is on the incubation, start-up, and scaling of technology-enabled solutions for older adults, including initiatives that address critical health care challenges through mHealth, sensors, telehealth, assistive technologies, data analytics, and precision health. These technology-enabled solutions cover a continuum of health care and aging and disability issues, ranging from wellness to complex chronic conditions, with an emphasis on global

applications. Dr. Lindeman serves as an advisor to foundations, government agencies, businesses, and venture firms.

Sandy Markwood, M.S., the chief executive officer of the National Association of Area Agencies on Aging (n4a), has more than 30 years of experience in the development and delivery of aging, health, human services, housing, and transportation programs in counties and cities across the nation. Prior to coming to n4a in January 2002, Ms. Markwood served as the deputy director of county services at the National Association of Counties, where she took a lead role in research, training, conference planning, program development, technical assistance, and grants management. At n4a, Ms. Markwood is responsible for the association’s overall management. She sets strategic direction for the staff and oversees the implementation of all policy, grassroots advocacy, membership, and program initiatives. She also leads n4a’s fundraising efforts and engages corporate sponsors to support critical initiatives, including an aging awards/best practices program and the Leadership Institute for Area Agency on Aging staff. Externally, Ms. Markwood forms strategic partnerships with federal agencies and organizations in the aging, human services, and health care arenas to enhance the role and recognition of area agencies on aging and Title VI programs. She holds bachelor’s and master’s degrees from the University of Virginia.

Barbara E. Merrill, J.D., serves as the chief executive officer for the American Network of Community Options and Resources (ANCOR), the national association for private providers of long-term supports and services for people with autism and intellectual and developmental disabilities. Ms. Merrill, who had previously served as ANCOR’s vice president for public policy, has been involved in disability issues since 1992 as an advocate, state legislator, and attorney for people with disabilities and the providers who serve them. At ANCOR, she leads the development and implementation of all aspects of ANCOR’s public policy agenda, with a particular focus on addressing the direct support workforce crisis through ANCOR’s National Advocacy Campaign.

Luis Padilla, M.D., became the associate administrator for health workforce at the Health Resources and Services Administration in May 2016. He previously served as the deputy associate administrator. He also serves as the director of the National Health Service Corps (NHSC), the Bureau of Health Workforce’s (BHW’s) largest program, with a budget of approximately $287.3 million in fiscal year 2015 and a field strength of more than 9,600 clinicians nationwide. Prior to joining BHW, he was the senior health policy advisor to the chief executive officer of Unity Health

Care in Washington, DC, a federally qualified health center network with more than 100,000 patients. He is a former NHSC Scholar who completed his service at Upper Cardozo Health Center, where he became the medical director. A board-certified family physician, Dr. Padilla received a bachelor of arts in philosophy and a bachelor of science in biology from the University of California, Irvine. He earned his medical degree from Wake Forest School of Medicine and completed his family medicine residency at Brown University.

Fernando Torres-Gil, Ph.D., is a professor of social welfare and public policy at the University of California, Los Angeles (UCLA), an adjunct professor of gerontology at the University of Southern California, and the director of the UCLA Center for Policy Research on Aging. He has served as an associate dean and an acting dean at the UCLA School of Public Affairs and as the chair of the Social Welfare Department. His research spans topics of health and long-term care, disability, entitlement reform, and the politics of aging. He earned his first presidential appointment in 1978 when President Jimmy Carter appointed him to the Federal Council on Aging. He was selected as a White House Fellow and served under Joseph Califano, then Secretary of the Department of Health, Education, and Welfare (HEW), and continued as a special assistant to the subsequent secretary of HEW, Patricia Harris. He was appointed (with Senate confirmation) by President Bill Clinton as the first assistant secretary on aging in the Department of Health and Human Services (HHS). In this position, Dr. Torres-Gil promoted the importance of the issues of aging, long-term care and disability, community services for the elderly, and baby boomer preparation for retirement. He served under HHS Secretary Donna Shalala, managing the Administration on Aging and organizing the 1995 White House Conference on Aging, in addition to serving as a member of the President’s Welfare Reform Working Group. In 2010 he received his third presidential appointment (with Senate confirmation) when President Barack Obama appointed him as the vice chair of the National Council on Disability, an independent federal agency that reports to the Congress and White House on federal matters related to disability policy. He also served as the staff director of the U.S. House Select Committee on Aging under Congressman Edward R. Roybal. At the state level, he was appointed by former Governor Gray Davis to the Governor’s Blue Ribbon Task Force on Veterans’ Homes. He has served as a board member of the AARP Foundation. Dr. Torres-Gil earned his A.A. in political science at Hartnell Community College, a B.A. in political science from San Jose State University, and an M.S.W. and a Ph.D. in social policy, planning, and research from Brandeis University.

Joan Weiss, Ph.D., R.N., CRNP, FAAN, is an adult and gerontological nurse practitioner who serves as the senior advisor in the Division of Medicine and Dentistry at the Health Resources and Services Administration (HRSA). She is the primary advisor to the director on geriatrics-related issues and all phases of management responsibilities for the Division of Medicine and Dentistry. Her experience in inter-professional practice and education spans 30 years. She is the designated federal official for two federal advisory committees—the Advisory Committee on Interdisciplinary Community-Based Linkages and the Advisory Committee on Training in Primary Care Medicine and Dentistry. She is the HRSA representative on the Department of Health and Human Services’ (HHS’s) Advisory Council on Alzheimer’s Disease Research, Care, and Services and on HHS interagency workgroups on palliative care and elder justice. She has served in many leadership positions at HRSA, including the director of the Division of Public Health and Interdisciplinary Education and the acting director of the Division of Nursing. She is the recipient of the 2011 University of Pennsylvania School of Nursing Outstanding Nursing Alumni Award and numerous Public Health Service awards. She was inducted as a fellow into the American Academy of Nursing in 2013.

Glen W. White, Ph.D., has been involved in the rehabilitation and independent living field for more than 30 years. He currently directs the Research and Training Center on Independent Living at the University of Kansas and serves as a principal investigator of the National Institute on Disability, Independent Living, and Rehabilitation Research–funded Research and Training Center on Community Living. Dr. White has had numerous opportunities to work with consumers with disabilities in identifying, developing and shaping ongoing disability research. For the past several years he has been developing a systematic line of research in the area community participation of people with disabilities. Other research interests include the prevention of secondary health conditions and disaster planning and emergency response for people with disabilities. On an international level, Dr. White has conducted research and training activities in Japan, Korea, and Vietnam and prevention of secondary health conditions in Peru. He is the past president of the National Association of Rehabilitation Research and Training Centers and the past chair of the American Public Health Association’s Section on Disability, and he currently serves as the secretary of the United States International Council on Disability. Dr. White is a professor in the Department of Applied Behavioral Science and directs the Research Group on Rehabilitation and Independent Living at the University of Kansas, where he teaches in the areas of applied behavioral science, community psychology, and disability studies.

Amy York is the executive director of the Eldercare Workforce Alliance (EWA). EWA is a group of 31 national organizations—representing consumers, family caregivers, and health care professionals, including direct care workers—joined together to address the immediate and future workforce crisis in caring for an aging America. Ms. York collaborates with member organizations and volunteer leadership to direct the policy and communication efforts of the alliance. She looks for practical solutions to expand the eldercare workforce. “As the daughter of early baby boomers, I feel a sense of responsibility to ensure there is a well-trained workforce to care for our nation’s parents and grandparents as they age.” Ms. York joined the alliance from the Jewish Federation of Metropolitan Chicago, where she advocated on a wide range of issues, including Medicaid, Medicare, caregiving, the Older Americans Act, and other issues surrounding aging. Prior to joining the federation, she served in legislative and political capacities for two national labor unions. Throughout her professional career, she has demonstrated an ability to develop robust working relationships with federal policy makers and a strong understanding of how to advance a policy agenda through the legislative and regulatory process

Mohammed Yousuf, M.S., is a program manager for the Accessible Transportation Technology Research Initiative (ATTRI). He is leading the Universal Automated Community Transport (UACT) research project to develop a service concept for an inclusive automated community transport application for first mile/last mile, paratransit, and neighborhood travel. He is also leading research on new technology solutions for wayfinding and navigation guidance for people with vision impairments and other disabilities, under the Federal Highway Administration’s (FHWA’s) Exploratory Advanced Research. He is involved in research related to wireless communications, positioning, and navigation technologies for connected and automated vehicles. Prior to joining FHWA, he worked at General Motors and the Chrysler Group. As a member of the White House GeoAccess Challenge Team, Mr. Yousuf co-authored the report Data-Enabled Travel: How Geo-Data Can Support Inclusive Transportation, Tourism, and Navigation through Communities. He is a member of the Federal Communications Commission Disability Advisory Committee, the National Robotics Initiative, the Interagency Committee of Disability Research, and the Transportation Research Board committee on accessible transportation and mobility. He holds a B.S. in electronics and communication engineering and an M.S. in computer engineering.

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