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Suggested Citation:"Front Matter." National Academies of Sciences, Engineering, and Medicine. 2017. Health Insurance and Insights from Health Literacy: Helping Consumers Understand: Proceedings of a Workshop. Washington, DC: The National Academies Press. doi: 10.17226/24664.
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Health Insurance and Insights from

Health Literacy

HELPING CONSUMERS UNDERSTAND

Proceedings of a Workshop

Joe Alper, Rapporteur

Roundtable on Health Literacy

Board on Population Health and Public Health Practice

Health and Medicine Division

images

THE NATIONAL ACADEMIES PRESS
Washington, DC
www.nap.edu

Suggested Citation:"Front Matter." National Academies of Sciences, Engineering, and Medicine. 2017. Health Insurance and Insights from Health Literacy: Helping Consumers Understand: Proceedings of a Workshop. Washington, DC: The National Academies Press. doi: 10.17226/24664.
×

THE NATIONAL ACADEMIES PRESS 500 Fifth Street, NW Washington, DC 20001

This activity was supported by contracts between the National Academy of Sciences and AbbVie Inc.; Aetna Foundation; Agency for Healthcare Research and Quality (HHSP23337024); American Dental Association; Bristol-Myers Squibb; East Bay Community Foundation (Kaiser Permanente); Eli Lilly and Company; Health Literacy Missouri; Health Literacy Partners; Health Resources and Services Administration (HHSH25034011T); Humana; Institute for Healthcare Advancement; Merck & Co., Inc.; National Institutes of Health (HHSN26300054); National Library of Medicine; Northwell Health; Office of Disease Prevention and Health Promotion (HHSP23337043); and UnitedHealth Group. Any opinions, findings, conclusions, or recommendations expressed in this publication do not necessarily reflect the views of any organization or agency that provided support for the project.

International Standard Book Number-13: 978-0-309-45473-5
International Standard Book Number-10: 0-309-45473-5
Digital Object Identifier: 10.17226/24664

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Suggested citation: National Academies of Sciences, Engineering, and Medicine. 2017. Health insurance and insights from health literacy: Helping consumers understand: Proceedings of a workshop. Washington, DC: The National Academies Press. doi: 10.17226/24664.

Suggested Citation:"Front Matter." National Academies of Sciences, Engineering, and Medicine. 2017. Health Insurance and Insights from Health Literacy: Helping Consumers Understand: Proceedings of a Workshop. Washington, DC: The National Academies Press. doi: 10.17226/24664.
×

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The National Academy of Sciences was established in 1863 by an Act of Congress, signed by President Lincoln, as a private, nongovernmental institution to advise the nation on issues related to science and technology. Members are elected by their peers for outstanding contributions to research. Dr. Marcia McNutt is president.

The National Academy of Engineering was established in 1964 under the charter of the National Academy of Sciences to bring the practices of engineering to advising the nation. Members are elected by their peers for extraordinary contributions to engineering. Dr. C. D. Mote, Jr., is president.

The National Academy of Medicine (formerly the Institute of Medicine) was established in 1970 under the charter of the National Academy of Sciences to advise the nation on medical and health issues. Members are elected by their peers for distinguished contributions to medicine and health. Dr. Victor J. Dzau is president.

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Learn more about the National Academies of Sciences, Engineering, and Medicine at www.national-academies.org.

Suggested Citation:"Front Matter." National Academies of Sciences, Engineering, and Medicine. 2017. Health Insurance and Insights from Health Literacy: Helping Consumers Understand: Proceedings of a Workshop. Washington, DC: The National Academies Press. doi: 10.17226/24664.
×

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Reports document the evidence-based consensus of an authoring committee of experts. Reports typically include findings, conclusions, and recommendations based on information gathered by the committee and committee deliberations. Reports are peer reviewed and are approved by the National Academies of Sciences, Engineering, and Medicine.

Proceedings chronicle the presentations and discussions at a workshop, symposium, or other convening event. The statements and opinions contained in proceedings are those of the participants and have not been endorsed by other participants, the planning committee, or the National Academies of Sciences, Engineering, and Medicine.

For information about other products and activities of the National Academies, please visit nationalacademies.org/whatwedo.

Suggested Citation:"Front Matter." National Academies of Sciences, Engineering, and Medicine. 2017. Health Insurance and Insights from Health Literacy: Helping Consumers Understand: Proceedings of a Workshop. Washington, DC: The National Academies Press. doi: 10.17226/24664.
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PLANNING COMMITTEE ON HEALTH CARE REFORM AND HEALTH LITERACY: A WORKSHOP1

JUDITH HIBBARD, Research Professor, University of Oregon

CATINA O’LEARY, President and Chief Executive Officer, Health Literacy Missouri

KAVITA PATEL, Managing Director for Clinical Transformation and Delivery, The Brookings Institution

LYNN QUINCY, Director, Healthcare Value Hub, Consumers Union

MICHAEL VILLAIRE, Chief Executive Officer, Institute for Healthcare Advancement

___________________

1 The National Academies of Sciences, Engineering, and Medicine’s planning committees are solely responsible for organizing the workshop, identifying topics, and choosing speakers. The responsibility for the published Proceedings of a Workshop rests with the workshop rapporteur and the institution.

Suggested Citation:"Front Matter." National Academies of Sciences, Engineering, and Medicine. 2017. Health Insurance and Insights from Health Literacy: Helping Consumers Understand: Proceedings of a Workshop. Washington, DC: The National Academies Press. doi: 10.17226/24664.
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Suggested Citation:"Front Matter." National Academies of Sciences, Engineering, and Medicine. 2017. Health Insurance and Insights from Health Literacy: Helping Consumers Understand: Proceedings of a Workshop. Washington, DC: The National Academies Press. doi: 10.17226/24664.
×

ROUNDTABLE ON HEALTH LITERACY1

BERNARD ROSOF (Chair), Chief Executive Officer, Quality in Healthcare Advisory Group, LLC

MARIN P. ALLEN, Deputy Associate Director for Communications and Public Liaison and Director of Public Information, National Institutes of Health

WILMA ALVARADO-LITTLE, Principal and Founder, Alvarado-Little Consulting, LLC SUZANNE BAKKEN, Alumni Professor of Nursing and Professor of Biomedical Informatics, Columbia University

CINDY BRACH, Senior Health Policy Researcher, Agency for Healthcare Research and Quality

GEM DAUS, Public Health Analyst, Office of Health Equity, Office of Special Health Affairs, Health Resources and Services Administration

TERRY DAVIS, Professor of Medicine and Pediatrics, Louisiana State University Health Sciences Center

CHRISTOPHER DEZII, Director, Healthcare Quality and Performance Measures, Bristol-Myers Squibb

JENNIFER DILLAHA, Medical Director for Immunizations, Medical Advisor, Health Literacy and Communication, Arkansas Department of Health

JAMES (JAY) DUHIG, Head, Risk Communication and Behavioral Systems, Office of Patient Safety, AbbVie Inc.

ALICIA FERNANDEZ, Professor of Clinical Medicine, Department of Medicine, Division of General Internal Medicine, University of California, San Francisco

LAURIE FRANCIS, Senior Director of Clinic Operations and Quality, Oregon Primary Care Association

LORI HALL, Advisor, Health Literacy, U.S. Medical Staff, Eli Lilly and Company

LINDA HARRIS, Director, Division of Health Communication and ehealth Team, Department of Health and Human Services

BETSY L. HUMPHREYS, Acting Director, National Library of Medicine

LAURIE MYERS, Global Health Literacy Director, Merck & Co., Inc.

CATINA O’LEARY, President and Chief Executive Officer, Health Literacy Missouri

MARYLYNN OSTROWSKI, Executive Director, Aetna Foundation

___________________

1 The National Academies of Sciences, Engineering, and Medicine’s forums and roundtables do not issue, review, or approve individual documents. The responsibility for the published Proceedings of a Workshop rests with the workshop rapporteur and the institution.

Page viii Cite
Suggested Citation:"Front Matter." National Academies of Sciences, Engineering, and Medicine. 2017. Health Insurance and Insights from Health Literacy: Helping Consumers Understand: Proceedings of a Workshop. Washington, DC: The National Academies Press. doi: 10.17226/24664.
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MICHAEL PAASCHE-ORLOW, Associate Professor of Medicine, Boston University School of Medicine

TERRI ANN PARNELL, Principal and Founder, Health Literacy Partners, LLC

KIM PARSON, Strategic Consultant, Proactive Care Strategies, Humana

KAVITA PATEL, Managing Director for Clinical Transformation and Delivery, The Brookings Institution

ANDREW PLEASANT, Senior Director for Health Literacy and Research, Canyon Ranch Institute

LINDSEY A. ROBINSON, Thirteenth District Trustee, American Dental Association

STACEY ROSEN, Associate Professor of Cardiology, Hofstra Northwell Health School of Medicine and Vice President, Women’s Health, The Katz Institute for Women’s Health

RIMA RUDD, Senior Lecturer on Health Literacy, Education, and Policy, Harvard School of Public Health

STEVEN RUSH, Director, Health Literacy Innovations, UnitedHealth Group

MICHAEL VILLAIRE, Chief Executive Officer, Institute for Healthcare Advancement

EARNESTINE WILLIS, Kellner Professor in Pediatrics, Medical College of Wisconsin

MICHAEL WOLF, Professor, Medicine and Learning Sciences, Associate Division Chief, Research Division of General Internal Medicine, Feinberg School of Medicine, Northwestern University

WINSTON WONG, Medical Director, Community Benefit, Disparities Improvement, and Quality Initiatives, Kaiser Permanente

Consultant

RUTH PARKER, Professor of Medicine, Pediatrics, and Public Health, Emory University School of Medicine

Health and Medicine Division Staff

LYLA M. HERNANDEZ, Senior Program Officer

MELISSA FRENCH, Program Officer

ALEXIS WOJTOWICZ, Senior Program Assistant

ROSE MARIE MARTINEZ, Senior Director, Board on Population Health and Public Health Practice

Suggested Citation:"Front Matter." National Academies of Sciences, Engineering, and Medicine. 2017. Health Insurance and Insights from Health Literacy: Helping Consumers Understand: Proceedings of a Workshop. Washington, DC: The National Academies Press. doi: 10.17226/24664.
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Reviewers

This Proceedings of a Workshop was reviewed in draft form by individuals chosen for their diverse perspectives and technical expertise. The purpose of this independent review is to provide candid and critical comments that will assist the institution in making its published Proceedings of a Workshop as sound as possible and to ensure that this Proceedings of a Workshop meets institutional standards for objectivity, evidence, and responsiveness to the study charge. The review comments and draft manuscript remain privileged to protect the integrity of the process. We wish to thank the following individuals for their review of this Proceedings of a Workshop:

May-Lynn Andresen, QHC (Quality in Health Care) Advisory Group

Ignatius Bau, Health Care Policy Consultant

Rima E. Rudd, Harvard School of Public Health

Carol Teutsch, University of California, Los Angeles, Anderson School of Management

Although the reviewers listed above have provided many constructive comments and suggestions, they did not see the final draft of the Proceedings of a Workshop before its release. The review of this Proceedings of a Workshop was overseen by Georges C. Benjamin, American Public Health Association. He was responsible for making certain that an independent examination of this Proceedings of a Workshop was carried out in accordance with institutional procedures and that all review comments were carefully considered. Responsibility for the final content of the Proceedings of a Workshop rests entirely with the rapporteur and the institution.

Suggested Citation:"Front Matter." National Academies of Sciences, Engineering, and Medicine. 2017. Health Insurance and Insights from Health Literacy: Helping Consumers Understand: Proceedings of a Workshop. Washington, DC: The National Academies Press. doi: 10.17226/24664.
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Suggested Citation:"Front Matter." National Academies of Sciences, Engineering, and Medicine. 2017. Health Insurance and Insights from Health Literacy: Helping Consumers Understand: Proceedings of a Workshop. Washington, DC: The National Academies Press. doi: 10.17226/24664.
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Acknowledgments

The roundtable is grateful to the sponsors of the National Academies of Sciences, Engineering, and Medicine’s Roundtable on Health Literacy who made it possible to plan and conduct the workshop on the relevance of health literacy to health insurance, which this Proceedings of a Workshop summarizes. Federal sponsors included the Agency for Healthcare Research and Quality; Health Resources and Services Administration; National Institutes of Health; National Library of Medicine; and Office of Disease Prevention and Health Promotion at the Department of Health and Human Services. Non-federal sponsorship was provided by AbbVie Inc.; Aetna Foundation; American Dental Association; Bristol-Myers Squibb; East Bay Community Foundation (Kaiser Permanente); Eli Lilly and Company; Health Literacy Missouri; Health Literacy Partners; Humana; Institute for Healthcare Advancement; Merck & Co., Inc.; Northwell Health; and UnitedHealth Group.

The workshop presentations were both interesting and stimulating, and we would like to thank each of the speakers and panel moderators for their time and effort. Speakers and moderators were, in alphabetical order, Elisabeth Benjamin, Renée Bougard, Amy Cueva, Terry Davis, Eric Ellsworth, Janette Robinson Flint, Erin Hemlin, Judith Hibbard, Cara James, Mila Kofman, Robert Krughoff, Janet Mentesane, Laura Morris, Catina O’Leary, Ruth Parker, Kim Parson, Karen Pollitz, Bernard Rosof, and Dara S. Taylor.

Suggested Citation:"Front Matter." National Academies of Sciences, Engineering, and Medicine. 2017. Health Insurance and Insights from Health Literacy: Helping Consumers Understand: Proceedings of a Workshop. Washington, DC: The National Academies Press. doi: 10.17226/24664.
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Suggested Citation:"Front Matter." National Academies of Sciences, Engineering, and Medicine. 2017. Health Insurance and Insights from Health Literacy: Helping Consumers Understand: Proceedings of a Workshop. Washington, DC: The National Academies Press. doi: 10.17226/24664.
×
Page xvii Cite
Suggested Citation:"Front Matter." National Academies of Sciences, Engineering, and Medicine. 2017. Health Insurance and Insights from Health Literacy: Helping Consumers Understand: Proceedings of a Workshop. Washington, DC: The National Academies Press. doi: 10.17226/24664.
×

Acronyms and Abbreviations

ACA Patient Protection and Affordable Care Act
ADHD attention deficit/hyperactivity disorder
CMS Centers for Medicare & Medicaid Services
CSS Consumer Service Society
FAQ frequently asked question
HHS Department of Health and Human Services
HMO health maintenance organization
NIH National Institutes of Health
NN/LM National Network of Libraries of Medicine
PPO preferred provider organization
SBC Summary of Benefits and Coverage
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Suggested Citation:"Front Matter." National Academies of Sciences, Engineering, and Medicine. 2017. Health Insurance and Insights from Health Literacy: Helping Consumers Understand: Proceedings of a Workshop. Washington, DC: The National Academies Press. doi: 10.17226/24664.
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Suggested Citation:"Front Matter." National Academies of Sciences, Engineering, and Medicine. 2017. Health Insurance and Insights from Health Literacy: Helping Consumers Understand: Proceedings of a Workshop. Washington, DC: The National Academies Press. doi: 10.17226/24664.
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Suggested Citation:"Front Matter." National Academies of Sciences, Engineering, and Medicine. 2017. Health Insurance and Insights from Health Literacy: Helping Consumers Understand: Proceedings of a Workshop. Washington, DC: The National Academies Press. doi: 10.17226/24664.
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Suggested Citation:"Front Matter." National Academies of Sciences, Engineering, and Medicine. 2017. Health Insurance and Insights from Health Literacy: Helping Consumers Understand: Proceedings of a Workshop. Washington, DC: The National Academies Press. doi: 10.17226/24664.
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Suggested Citation:"Front Matter." National Academies of Sciences, Engineering, and Medicine. 2017. Health Insurance and Insights from Health Literacy: Helping Consumers Understand: Proceedings of a Workshop. Washington, DC: The National Academies Press. doi: 10.17226/24664.
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Suggested Citation:"Front Matter." National Academies of Sciences, Engineering, and Medicine. 2017. Health Insurance and Insights from Health Literacy: Helping Consumers Understand: Proceedings of a Workshop. Washington, DC: The National Academies Press. doi: 10.17226/24664.
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Suggested Citation:"Front Matter." National Academies of Sciences, Engineering, and Medicine. 2017. Health Insurance and Insights from Health Literacy: Helping Consumers Understand: Proceedings of a Workshop. Washington, DC: The National Academies Press. doi: 10.17226/24664.
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Suggested Citation:"Front Matter." National Academies of Sciences, Engineering, and Medicine. 2017. Health Insurance and Insights from Health Literacy: Helping Consumers Understand: Proceedings of a Workshop. Washington, DC: The National Academies Press. doi: 10.17226/24664.
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Suggested Citation:"Front Matter." National Academies of Sciences, Engineering, and Medicine. 2017. Health Insurance and Insights from Health Literacy: Helping Consumers Understand: Proceedings of a Workshop. Washington, DC: The National Academies Press. doi: 10.17226/24664.
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Suggested Citation:"Front Matter." National Academies of Sciences, Engineering, and Medicine. 2017. Health Insurance and Insights from Health Literacy: Helping Consumers Understand: Proceedings of a Workshop. Washington, DC: The National Academies Press. doi: 10.17226/24664.
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Suggested Citation:"Front Matter." National Academies of Sciences, Engineering, and Medicine. 2017. Health Insurance and Insights from Health Literacy: Helping Consumers Understand: Proceedings of a Workshop. Washington, DC: The National Academies Press. doi: 10.17226/24664.
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Suggested Citation:"Front Matter." National Academies of Sciences, Engineering, and Medicine. 2017. Health Insurance and Insights from Health Literacy: Helping Consumers Understand: Proceedings of a Workshop. Washington, DC: The National Academies Press. doi: 10.17226/24664.
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Suggested Citation:"Front Matter." National Academies of Sciences, Engineering, and Medicine. 2017. Health Insurance and Insights from Health Literacy: Helping Consumers Understand: Proceedings of a Workshop. Washington, DC: The National Academies Press. doi: 10.17226/24664.
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Suggested Citation:"Front Matter." National Academies of Sciences, Engineering, and Medicine. 2017. Health Insurance and Insights from Health Literacy: Helping Consumers Understand: Proceedings of a Workshop. Washington, DC: The National Academies Press. doi: 10.17226/24664.
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Suggested Citation:"Front Matter." National Academies of Sciences, Engineering, and Medicine. 2017. Health Insurance and Insights from Health Literacy: Helping Consumers Understand: Proceedings of a Workshop. Washington, DC: The National Academies Press. doi: 10.17226/24664.
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Suggested Citation:"Front Matter." National Academies of Sciences, Engineering, and Medicine. 2017. Health Insurance and Insights from Health Literacy: Helping Consumers Understand: Proceedings of a Workshop. Washington, DC: The National Academies Press. doi: 10.17226/24664.
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Suggested Citation:"Front Matter." National Academies of Sciences, Engineering, and Medicine. 2017. Health Insurance and Insights from Health Literacy: Helping Consumers Understand: Proceedings of a Workshop. Washington, DC: The National Academies Press. doi: 10.17226/24664.
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Suggested Citation:"Front Matter." National Academies of Sciences, Engineering, and Medicine. 2017. Health Insurance and Insights from Health Literacy: Helping Consumers Understand: Proceedings of a Workshop. Washington, DC: The National Academies Press. doi: 10.17226/24664.
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Since the passage of the Patient Protection and Affordable Care Act (ACA), health care reform has created major changes in the U.S. health care system. The ACA has brought millions of people into the system who had no previous access, and many of these newly enrolled individuals have had limited experience navigating the complex and complicated U.S. health system.

In July 2016 the National Academies of Sciences, Engineering, and Medicine convened a public workshop to examine health insurance through the lens of health literacy, focusing on literacy related barriers to information and coverage as well as on possible solutions. Participants discussed the role of health literacy in accessing health care and remaining in treatment; delivery and financing system reforms that affect organizational health literacy; and quality and equity considerations. This publication summarizes the presentations and discussions from the workshop.

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