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Preventing Cognitive Decline and Dementia: A Way Forward (2017)

Chapter: Appendix B: Public Meeting Agendas

« Previous: Appendix A: Agency for Healthcare Research and Quality (AHRQ) Systematic Review
Suggested Citation:"Appendix B: Public Meeting Agendas ." National Academies of Sciences, Engineering, and Medicine. 2017. Preventing Cognitive Decline and Dementia: A Way Forward. Washington, DC: The National Academies Press. doi: 10.17226/24782.
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B

PUBLIC MEETING AGENDAS

Committee on Preventing Dementia and Cognitive Impairment

First Committee Meeting
Open Sessions: December 15-16, 2015

National Academy of Sciences Building
2101 Constitution Avenue, NW | Washington, DC 20418

DAY ONE—TUESDAY, DECEMBER 15

11:00 a.m. Welcome and Introductions
Alan Leshner, Chair, Committee on Preventing Dementia and Cognitive Impairment
CEO Emeritus, American Association for the Advancement of Science
11:05 a.m. Delivery of Study Charge and Q&A/Discussion with Committee
Objectives:
  • Receive study background and charge from the National Institute on Aging (NIA), discuss task with the sponsor, and determine scope of committee’s work (i.e., what is in and what is out).
  • Receive an overview of the Agency for Healthcare Research and Quality (AHRQ) process for systematic reviews.
  • Receive an update from the evidence-based practice center (EPC) on progress to date and areas for committee input.
  • Clarify issues identified by the committee and seek answers to questions.
  • Discuss report audience and expected products.
Suggested Citation:"Appendix B: Public Meeting Agendas ." National Academies of Sciences, Engineering, and Medicine. 2017. Preventing Cognitive Decline and Dementia: A Way Forward. Washington, DC: The National Academies Press. doi: 10.17226/24782.
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Delivery of Charge

Richard Hodes, Director, NIA

Overview of AHRQ Process

Kim Wittenberg, Health Scientist Administrator, AHRQ

Overview of EPC progress to date and areas for committee input

Robert Kane, Director, Minnesota Evidence-based Practice Center

Discussion
12:30 p.m. Lunch
1:15 p.m. Follow-Up Q&A/Discussion to Clarify Remaining Questions by the Committee on the Study Charge
Alan I. Leshner, Chair, Committee on Preventing Dementia and Cognitive Impairment
CEO Emeritus, American Association for the Advancement of Science
Richard Hodes, Director, NIA
Kim Wittenberg, Health Scientist Administrator, AHRQ
Robert Kane, Mary Butler, and Howard Fink, Minnesota Evidence-based Practice Center
2:30 p.m. Public Comment Period
3:15 p.m. Adjourn Open Session

DAY TWO—WEDNESDAY, DECEMBER 16

10:15 a.m. Follow-Up Discussion/Q&A Regarding the Systematic Review
Objective: Discuss any remaining issues, questions, or points of clarification for the systematic review.
Alan I. Leshner, Chair, Committee on Preventing
Dementia and Cognitive Impairment
CEO Emeritus, American Association for the Advancement of Science
Suggested Citation:"Appendix B: Public Meeting Agendas ." National Academies of Sciences, Engineering, and Medicine. 2017. Preventing Cognitive Decline and Dementia: A Way Forward. Washington, DC: The National Academies Press. doi: 10.17226/24782.
×
Marie A. Bernard, Deputy Director, NIA
Kim Wittenberg, Health Scientist Administrator, AHRQ Robert Kane, Mary Butler, and Howard Fink, Minnesota Evidence-based Practice Center
11:15 a.m. Adjourn Open Session
Suggested Citation:"Appendix B: Public Meeting Agendas ." National Academies of Sciences, Engineering, and Medicine. 2017. Preventing Cognitive Decline and Dementia: A Way Forward. Washington, DC: The National Academies Press. doi: 10.17226/24782.
×

Preventing Dementia and Cognitive Impairment: A Workshop
Open Session: October 25, 2016

National Academy of Sciences Building
2101 Constitution Avenue, NW | Washington, DC 20418

Background: Many organizations and individuals worldwide are interested in the state of the science on preventing Alzheimer’s disease and related dementias, mild cognitive impairment (MCI), and age-related cognitive decline (ARCD). To develop a better understanding of current scientific evidence, implications for public health messaging, and future research needs, the National Institute on Aging (NIA) asked the National Academies of Sciences, Engineering, and Medicine (the National Academies) to convene an expert committee to make recommendations that inform public health strategies and messaging on preventive interventions and recommendations for future research. To aid the committee in its work, NIA has asked the Agency for Healthcare Research and Quality (AHRQ) to commission and oversee a systematic review—conducted by the Minnesota Evidence-based Practice Center (EPC)—of the evidence on interventions associated with preventing, slowing, or delaying the onset of clinical Alzheimer’s-type dementia and MCI, and delaying or slowing ARCD. Other dementias such as frontotemporal dementia, Lewy body dementia, and dementias with a clear etiology, e.g., incident stroke, AIDS, traumatic brain injury will be excluded from the analysis. Interventions targeting stroke risk factors are a priority in this study. To help inform the National Academies committee’s recommendations, this public workshop will bring together key stakeholders to provide input to the committee on the draft AHRQ report. The National Academies committee’s report is expected to be released in June 2017.

Workshop Objectives:

  • Collect reactions to the draft EPC systematic review on preventive interventions that might reduce the risk of developing clinical Alzheimer’s-type dementia and mild cognitive impairment, and slow or delay age-related cognitive impairment/decline.
  • Explore the current state of evidence on preventive interventions and discuss areas where public health messaging might be warranted.
  • Discuss promising, emerging data on interventions that did not meet the evidentiary standard of the systematic review, and identify gaps and areas for future research.
Suggested Citation:"Appendix B: Public Meeting Agendas ." National Academies of Sciences, Engineering, and Medicine. 2017. Preventing Cognitive Decline and Dementia: A Way Forward. Washington, DC: The National Academies Press. doi: 10.17226/24782.
×
8:00 a.m. Welcome and Overview of Workshop
Alan Leshner, CEO Emeritus, American Association for the Advancement of Science, Committee Chair Story Landis, Director Emeritus, National Institute of Neurological Disorders and Stroke, Committee Vice-Chair
8:05 a.m. Background and Overview of the Committee’s Charge
Marie A. Bernard, Deputy Director, National Institute on Aging
8:15 a.m. Overview of the Draft EPC Systematic Review
Robert Kane, Director, Minnesota Evidence-based Practice Center
9:00 a.m. Discussion with Committee Members
Additional Respondents: Mary Butler and Howard Fink, Minnesota Evidence-based Practice Center
10:00 a.m. BREAK
10:15 a.m. Making Decisions About Areas for Public Health Messaging
  • Discuss criteria and best practices for selecting areas for public health communication efforts. Questions may include: What strength of evidence is needed to justify public health messaging? What should be taken into account when considering developing messages about interventions that may apply only to specific subgroups?
  • Discuss evidence-based approaches to public health messaging (e.g., focusing on the benefits of interventions versus the consequences of not acting)
Brian Southwell, Program Director, Science in the Public Sphere, Center for Communication Science, RTI International
10:45 a.m. Discussion with Committee Members
Suggested Citation:"Appendix B: Public Meeting Agendas ." National Academies of Sciences, Engineering, and Medicine. 2017. Preventing Cognitive Decline and Dementia: A Way Forward. Washington, DC: The National Academies Press. doi: 10.17226/24782.
×

SESSION I: PUBLIC HEALTH MESSAGING AND FUTURE RESEARCH—PERSPECTIVES FROM ACADEMIA

Session Objectives:

  • Reflect on the current state of evidence on preventive interventions (not risk factors) and where public health messaging might be warranted.
  • Discuss promising, emerging data on interventions that did not meet the evidentiary standard of the systematic review.
  • Identify gaps and priorities for future research.
11:00 a.m. Session Overview
Ronald Petersen, Director of the Alzheimer’s Disease Research Center and Mayo Clinic Study of Aging, Mayo Clinic
11:05 a.m. Public Health Trends: Understanding the Impact of Individual and Societal Factors on Delaying or Preventing the Risk of Dementia and Cognitive Impairment
Walter Rocca, Professor of Neurology and Epidemiology, Mayo Clinic
Panel I: Perspectives from Academia
11:20 a.m. Interventions on Co-Existing Conditions (e.g., blood pressure control, depressive symptoms, diabetes prevention and control, and obesity and weight loss)
Vascular Factors, Diabetes, and Obesity
Rebecca Gottesman, Associate Professor of Neurology, Johns Hopkins University
Jeff Williamson, Interim Chair of Internal Medicine; Program Director of the Sticht Center on Aging; Professor of Gerontology and Geriatric Medicine, Neurology, Epidemiology & Prevention, and Translational Science Institute, Wake Forest Baptist Health
Multimodal Interventions
Edo Richard
, Neurologist, University of Amsterdam, Academic Medical Center; Radboud University Medical Center
Suggested Citation:"Appendix B: Public Meeting Agendas ." National Academies of Sciences, Engineering, and Medicine. 2017. Preventing Cognitive Decline and Dementia: A Way Forward. Washington, DC: The National Academies Press. doi: 10.17226/24782.
×
11:50 a.m. Discussion with Committee Members
Including questions on interventions using drugs and supplements (e.g., aspirin/nonsteroidal anti-inflammatory drugs, drugs for memory, hormone therapies, nutraceuticals, and vitamins)
12:30 p.m. LUNCH
1:30 p.m. Interventions on Lifestyle and Social Support Factors
(e.g., cognitive stimulation and training, diet, physical activity, sleep quality and disorder, and substance use)
Diet and Physical Activity
Joe Verghese
, Professor of Neurology and Medicine, Director of the Division of Cognition and Motor Aging, Director of the Jack and Pearl Resnick Gerontology Center, Albert Einstein College of Medicine
Cognitive Training and Computer-Based Brain Games
Sherry Willis
, Research Professor, Department of Psychiatry and Behavioral Sciences, University of Washington
Sleep Quality and Disorders
Susan McCurry
, Research Professor and Vice Chair of Research of Psychosocial and Community Health, University of Washington
2:15 p.m. Methodological Considerations Pertaining to the Prevention of Dementia (e.g., life course perspective, timing of interventions, and characteristics of people living with dementia)
Mary Sano, Professor of Psychiatry and Director of the Alzheimer’s Disease Research Center, Mount Sinai School of Medicine
2:30 p.m. Individual Characteristics: Interventions Conducted in Minority Populations
Julene Johnson, Professor of Cognitive Neuroscience; Professor and Associate Director at the University of California, San Francisco, Institute for Health & Aging
Suggested Citation:"Appendix B: Public Meeting Agendas ." National Academies of Sciences, Engineering, and Medicine. 2017. Preventing Cognitive Decline and Dementia: A Way Forward. Washington, DC: The National Academies Press. doi: 10.17226/24782.
×
2:45 p.m. Discussion with Committee Members
3:30 p.m. BREAK

SESSION II: PERSPECTIVES FROM PEOPLE LIVING WITH DEMENTIA, ADVOCACY ORGANIZATIONS, AND PROFESSIONAL SOCIETIES

Session Objectives:

  • Comment on which preventive interventions and outcomes are of most interest to people living with dementia and their caregivers.
  • Collect input from advocacy organizations and professional societies’ on the EPC draft systematic review, the current state of evidence on preventive interventions and where public health messaging might be warranted, and areas for future research.
3:45 p.m. Session Overview
Marilyn Albert, Professor of Neurology and Director of the Division of Cognitive Neuroscience, Johns Hopkins University School of Medicine
3:50 p.m. Panel II: Comments from Alzheimer’s Disease/Dementia Advocates
Michael Ellenbogen, Alzheimer’s Disease/Dementia Advocate (video recording)
Brian LeBlanc, National Public Speaker/Alzheimer’s Advocate
4:10 p.m. Panel III: Perspectives from Advocacy Organizations
Matthew Baumgart, Senior Director of Public Policy, Alzheimer’s Association
Sarah Lenz Lock, Senior Vice President-Policy in Policy Strategy & International Affairs, AARP
Stacy Pagos Haller, President and Chief Executive Officer, BrightFocus Foundation
4:25 p.m. Discussion with Committee Members
Suggested Citation:"Appendix B: Public Meeting Agendas ." National Academies of Sciences, Engineering, and Medicine. 2017. Preventing Cognitive Decline and Dementia: A Way Forward. Washington, DC: The National Academies Press. doi: 10.17226/24782.
×
4:40 p.m. Panel IV: Perspectives from Professional Societies
James Appleby, Chief Executive Officer and Executive Director, The Gerontological Society of America
Mary Ann Forciea, Clinical Professor of Geriatric Medicine, University of Pennsylvania Perelman School of Medicine; American College of Physicians
Lisa Shulman, Eugenia Brin Professor of Parkinson’s Disease and Movement Disorders, Director of the University of Maryland Movement Disorders Center, University of Maryland; Treasurer, American Academy of Neurology
Regina Davis Moss, Associate Executive Director of Public Health Policy and Practice, American Public Health Association
5:00 p.m. Discussion with Committee Members
5:15 p.m. Public Comment Period
5:25 p.m. Closing Remarks
Alan Leshner, Committee Chair
Story Landis, Committee Vice-Chair
5:30 p.m. Public Session Adjourns
Suggested Citation:"Appendix B: Public Meeting Agendas ." National Academies of Sciences, Engineering, and Medicine. 2017. Preventing Cognitive Decline and Dementia: A Way Forward. Washington, DC: The National Academies Press. doi: 10.17226/24782.
×

Third Committee Meeting
Open Session: January 31, 2017

Meeting Objective:

  • Discuss significant changes from the draft to the final AHRQ systematic review, which forms the predominant basis for the work of the National Academies’ Committee on Preventing Dementia and Cognitive Impairment.
9:00-9:05 a.m. Welcome
Alan Leshner, CEO Emeritus, American Association for the Advancement of Science, Committee Chair
Brief Remarks
Richard Hodes, Director, NIA
Marie A. Bernard, Deputy Director, NIA
9:05-9:25 a.m. Overview of Changes from the Draft to the Final AHRQ Systematic Review
Robert Kane, Director, Minnesota Evidence-based Practice Center
9:25-10:00 a.m. Discussion with Committee Members
Additional Respondents: Mary Butler and Howard Fink, Minnesota Evidence-based Practice Center
10:00 a.m. Adjourn open session
Suggested Citation:"Appendix B: Public Meeting Agendas ." National Academies of Sciences, Engineering, and Medicine. 2017. Preventing Cognitive Decline and Dementia: A Way Forward. Washington, DC: The National Academies Press. doi: 10.17226/24782.
×
Page 143
Suggested Citation:"Appendix B: Public Meeting Agendas ." National Academies of Sciences, Engineering, and Medicine. 2017. Preventing Cognitive Decline and Dementia: A Way Forward. Washington, DC: The National Academies Press. doi: 10.17226/24782.
×
Page 144
Suggested Citation:"Appendix B: Public Meeting Agendas ." National Academies of Sciences, Engineering, and Medicine. 2017. Preventing Cognitive Decline and Dementia: A Way Forward. Washington, DC: The National Academies Press. doi: 10.17226/24782.
×
Page 145
Suggested Citation:"Appendix B: Public Meeting Agendas ." National Academies of Sciences, Engineering, and Medicine. 2017. Preventing Cognitive Decline and Dementia: A Way Forward. Washington, DC: The National Academies Press. doi: 10.17226/24782.
×
Page 146
Suggested Citation:"Appendix B: Public Meeting Agendas ." National Academies of Sciences, Engineering, and Medicine. 2017. Preventing Cognitive Decline and Dementia: A Way Forward. Washington, DC: The National Academies Press. doi: 10.17226/24782.
×
Page 147
Suggested Citation:"Appendix B: Public Meeting Agendas ." National Academies of Sciences, Engineering, and Medicine. 2017. Preventing Cognitive Decline and Dementia: A Way Forward. Washington, DC: The National Academies Press. doi: 10.17226/24782.
×
Page 148
Suggested Citation:"Appendix B: Public Meeting Agendas ." National Academies of Sciences, Engineering, and Medicine. 2017. Preventing Cognitive Decline and Dementia: A Way Forward. Washington, DC: The National Academies Press. doi: 10.17226/24782.
×
Page 149
Suggested Citation:"Appendix B: Public Meeting Agendas ." National Academies of Sciences, Engineering, and Medicine. 2017. Preventing Cognitive Decline and Dementia: A Way Forward. Washington, DC: The National Academies Press. doi: 10.17226/24782.
×
Page 150
Suggested Citation:"Appendix B: Public Meeting Agendas ." National Academies of Sciences, Engineering, and Medicine. 2017. Preventing Cognitive Decline and Dementia: A Way Forward. Washington, DC: The National Academies Press. doi: 10.17226/24782.
×
Page 151
Suggested Citation:"Appendix B: Public Meeting Agendas ." National Academies of Sciences, Engineering, and Medicine. 2017. Preventing Cognitive Decline and Dementia: A Way Forward. Washington, DC: The National Academies Press. doi: 10.17226/24782.
×
Page 152
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Societies around the world are concerned about dementia and the other forms of cognitive impairment that affect many older adults. We now know that brain changes typically begin years before people show symptoms, which suggests a window of opportunity to prevent or delay the onset of these conditions. Emerging evidence that the prevalence of dementia is declining in high-income countries offers hope that public health interventions will be effective in preventing or delaying cognitive impairments. Until recently, the research and clinical communities have focused primarily on understanding and treating these conditions after they have developed. Thus, the evidence base on how to prevent or delay these conditions has been limited at best, despite the many claims of success made in popular media and advertising. Today, however, a growing body of prevention research is emerging.

Preventing Cognitive Decline and Dementia: A Way Forward assesses the current state of knowledge on interventions to prevent cognitive decline and dementia, and informs future research in this area. This report provides recommendations of appropriate content for inclusion in public health messages from the National Institute on Aging.

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