NOTE: The biographical sketches of the speakers are as of the time of the workshops, March and April 2015, unless speakers provided updated information.
LESSONS LEARNED FROM DIVERSE EFFORTS TO CHANGE SOCIAL NORMS MARCH 18, 2015
Joan K. Austin is distinguished professor emerita at Indiana University School of Nursing. During her tenure at Indiana University, she directed the research Center for Enhancing Quality of Life in Chronic Illness and a doctoral and postdoctoral training program in health behavior research. She also held appointments in the Departments of Neurology and Psychiatry at the Indiana University School of Medicine. Dr. Austin’s research focused on children with epilepsy and their families, investigating factors associated with child mental health and academic achievement problems, including neurological variables, cognitive functioning, neuroimaging, parent and child attitudes, parenting, and family environment. Her research was recognized with awards from the National Institute of Neurological Disorders and Stroke, the American Epilepsy Society, the International Bureau for Epilepsy/International League Against Epilepsy, and the American Nurses Foundation. Dr. Austin served four terms on the Professional Advisory Board of the Epilepsy Foundation; she also served on the Advisory Council of the National Institute of Nursing Research (NINR) and is currently a
consultant to the NINR intramural program. She was inducted into the Institute of Medicine in 2000.
Joseph N. Cappella is Gerald R. Miller professor of communication at the Annenberg School for Communication, University of Pennsylvania. His research, supported by numerous governmental and nongovernmental organizations, has resulted in more than 150 articles and book chapters and four co-authored books in the areas of health and political communication, social interaction, nonverbal behavior, media effects, and statistical methods. His book Spiral of Cynicism: The Press and the Public Good, co-authored with Kathleen Hall Jamieson, has won prizes from the American Political Science Association and the International Communication Association (ICA). He has served on the editorial boards of 20 journals. Dr. Cappella is a fellow of the ICA and its past president, a distinguished scholar of the National Communication Association, and recipient of the B. Aubrey Fisher Mentorship Award. He received his Ph.D. from Michigan State University.
Tony Foleno is senior vice president for research, planning & evaluation at the Ad Council, where he advises on the strategic planning of more than 40 public service communication campaigns. Mr. Foleno and the research team are also responsible for campaign evaluation, establishing key performance indicators and the tools through which they are measured. Additionally, he leads cross-campaign analyses designed to identify best practices and to optimize Ad Council initiatives. His primary role is to leverage research-based insights into action, helping to ensure that the Ad Council remains a results-driven organization with a single-minded focus on making a measurable impact on people’s lives. Mr. Foleno cochairs the Ad Council Research Committee, a pro bono advisory body comprising thought leaders in marketing, market research, and academia. Prior to joining the Ad Council in 2002, he managed projects at Public Agenda, a nonpartisan public opinion research organization. He is a graduate of Swarthmore College and holds an M.A. in sociology from Columbia University.
Robin Koval is president and CEO of the American Legacy Foundation, the nation’s largest public health foundation and the creator of the award-winning Truth youth tobacco prevention public education program. She joined the American Legacy Foundation in November 2013. Throughout her career, Ms. Koval has developed campaigns for and provided counsel to a number of nonprofit, cause-related, and health care clients and organizations. With the Girl Scouts, she helped lead an award-winning campaign to encourage girls to stay involved in math, science, and technology. She also led a campaign that encouraged parents to speak early to their children
and young teens about the risks of underage drinking. Other efforts include projects with the Make-A-Wish Foundation and the Red Cross and work on childhood asthma. Among her many awards, she was the 2011 recipient of the New York Women in Communications Matrix Award and a Women’s Venture Fund Highest Leaf Award. She was also recognized in 2011 by Advertising Age as one of its “Most Influential Women in Advertising.” Self-Made Magazine has named her one of its Top 50 “Women Entrepreneurs Who Inspire,” and she has been honored with the “Working Mother of the Year Trailblazer Award” by Women of New York. Ms. Koval earned her B.F.A. from Syracuse University and an M.B.A. from Baruch College.
Annie Lang is distinguished professor of telecommunications and cognitive science at Indiana University. Her research seeks to explain how people process mediated messages. To date, this work has produced a general data-driven model of mediated message processing. This research has resulted in more than 100 academic publications and been supported by almost $3 million in grants. Dr. Lang is serving a 3-year term as editor of the journal Media Psychology, is a fellow of the International Communication Association (ICA), and is the recipient of ICA’s Steven H. Chaffee career productivity award. She earned her Ph.D. in mass communication from the University of Wisconsin–Madison.
Rebecca Palpant Shimkets is associate director for the Rosalynn Carter Fellowships for Mental Health Journalism of the Carter Center Mental Health Program. She developed and oversees a journalism fellowship program that each year awards stipends to approximately 10 professional journalists in the United States and Colombia to produce a significant work on mental health or mental illnesses. Within the Carter Center Mental Health Program, she also designs new initiatives related to stigma reduction and measurement and advises on programming, including the annual national symposium and new initiative development at the center. Palpant Shimkets is an active participant on advisory boards and within national work groups related to stigma and accurate portrayals of mental illnesses in the media. She received an M.S. in community counseling from Georgia State University.
Bernice A. Pescosolido is distinguished professor of sociology at Indiana University and director of the Indiana Consortium for Mental Health Services Research. In the area of stigma research, she has led a team of researchers on a series of national and international stigma studies, including the first U.S. national study in 40 years, the first national study of children’s mental health, and the first global study of 16 countries representing all six inhabited continents. Her research addresses how social networks
connect individuals to their communities and to institutional structures, providing the “wires” through which people’s attitudes and actions are influenced. Dr. Pescosolido has received numerous career, scientific, and community awards, including the Wilbur Lucius Cross Medal from Yale University, the Carl A. Taube Award for Distinguished Contributions to the Field of Mental Health Services Research from the Mental Health Section of the American Public Health Association, and the Leonard I. Pearlin Award for Distinguished Contributions to the Sociological Study of Mental Health from the American Sociological Association. She earned her M.A., M.Phil., and Ph.D. in sociology from Yale University.
Vicky Rideout is president of VJR Consulting, a firm specializing in media research and public information campaigns. She recently helped a coalition of advocacy groups develop and launch the high-profile national public education campaign NO MORE, which seeks to reduce the stigma of domestic violence and sexual assault. Prior to founding VJR Consulting, Ms. Rideout was a vice president of the Kaiser Family Foundation, where she established and directed the foundation’s Program for the Study of Media and Health. She negotiated groundbreaking partnerships with several television networks, securing high-profile donations of media time to conduct youth-oriented public education campaigns. The public service ads, original long-form programming, and online content she helped develop through these partnerships received many awards, including a National Emmy Award for best public service campaign. Her research has focused on teenagers’ experiences with the socioemotional impact of social media use, the role of media in childhood obesity, public service advertising on television, teens’ use of the Internet for health information, and the impact of health messages on the television shows Grey’s Anatomy and ER. Ms. Rideout’s work has been published in peer-reviewed journals and featured in major national newspapers. She received her M.A. from the Maxwell School of Public Affairs at Syracuse University.
Janet M. Turan is an associate professor in the Department of Health Care Organization and Policy at the University of Alabama at Birmingham (UAB) School of Public Health and co-director of the Behavioral and Community Science Core of the UAB Center for AIDS Research. Her main research interests are in the area of maternal and child health (MCH) in low-resource settings of both developing and developed countries. Her research has examined factors related to the promotion of MCH in diverse settings, including Turkey, Jordan, Italy, Eritrea, Kenya, Nigeria, Zambia, Zimbabwe, Egypt, and the United States. She is currently conducting research aimed at reducing the adverse effects of HIV infection on physical and mental health, with a special focus on reducing HIV-related stigma and
discrimination. She is the principal investigator on several National Institutes of Health-funded studies examining effects, mechanisms of action, and intervention strategies for HIV-related stigma as it relates to HIV medication adherence and engagement in HIV care. Her current research also addresses stigma as it relates to a variety of other reproductive health conditions/services, including unintended pregnancy, obstetric fistula, and gender-based violence.
Donna Vallone serves as the chief research officer at Truth Initiative’s Schroeder Institute and holds an associate professor (adjunct) appointment at the College for Global Public Health, New York University. Dr. Vallone leads a multidisciplinary team of more than 30 research staff focused on examining the influence of health communication and tobacco policy initiatives. She leads the evaluation of the national youth smoking prevention truth® campaign. Her research interests focus on examining the influence of media messages to reduce tobacco use, particularly among lower socioeconomic status and racial/ethnic minority groups. Dr. Vallone served as an editor of the National Cancer Institute Tobacco Control Monograph 22, A Social Ecological Approach to Addressing Tobacco-Related Health Disparities (2017). She also helped to establish and lead the Tobacco Research Network on Disparities and the Diversity Network, a special-interest group within the Society for Research on Nicotine and Tobacco. Dr. Vallone serves on numerous expert panels, editorial teams, and evaluation advisory committees, and is the author of more than 80 peer-reviewed academic manuscripts. Dr. Vallone holds a doctoral degree in sociomedical sciences from Columbia University and a master’s degree in public health from New York University.
Phill Wilson is founder, president, and chief executive officer of the Black AIDS Institute. Previously, he served as AIDS coordinator for the City of Los Angeles and director of policy and planning at AIDS Project Los Angeles. He was cochair of the Los Angeles County HIV Health Commission and was an appointee to the Health Resources and Services Administration (HRSA) AIDS Advisory Committee. Mr. Wilson was coordinator of the International Community Treatment and Science Workshop at several International AIDS Conferences. He also was cofounder of the National Black Lesbian and Gay Leadership Forum and the National Task Force on AIDS Prevention. He has been involved in the founding of a number of other AIDS service and community-based organizations. In 2001, the Ford Foundation named him one of 20 award recipients for Leadership for a Changing World. Mr. Wilson was a member of the U.S. delegation to the 1994 World AIDS Summit in Paris and has worked extensively on HIV/AIDS policy, research, prevention,
and treatment issues in countries around the world. He holds a B.A. in fine arts from Illinois Wesleyan University.
OPPORTUNITIES AND STRATEGIES TO PROMOTE BEHAVIOR CHANGE IN BEHAVIORAL HEALTH APRIL 15, 2015
Patrick Corrigan is distinguished professor of psychology at the Illinois Institute of Technology. Previously, he was associate dean for research in the Institute of Psychology at Illinois Institute of Technology and professor of psychiatry at the Northwestern University Feinberg School of Medicine and at the Pritzker School of Medicine at the University of Chicago. His research examines psychiatric disability and the impact of stigma on recovery and rehabilitation. Currently, he is principal investigator of the National Consortium for Stigma and Empowerment, a collaboration of investigators from more than a dozen research institutions. He has a Psy.D. in clinical psychology from the Illinois School of Professional Psychology.
Sara Evans-Lacko is assistant professor in the Health Service and Population Research Department at the Institute of Psychiatry, King’s College London. She holds an M.H.S. in psychiatric epidemiology and Ph.D. in health policy and management from the Johns Hopkins Bloomberg School of Public Health. She has a particular interest and expertise in pathways to care and social support for people with mental illness and the evaluation of antistigma interventions. From the inception of England’s nationwide antistigma program Time to Change, Dr. Evans-Lacko has led the evaluation of the national media campaign, economic evaluation, instrument development, and coordination and analysis of the National Attitudes Survey. Additionally, she was recently awarded a Starting Grant from the European Research Commission to investigate interaction with a range of services and support among two prospective community cohorts of young people in Brazil and the United Kingdom, focusing on understanding the role of stigma and the early impact and consequences of stigma and discrimination among young people as they develop mental health problems.
Helena Hansen is an assistant professor of psychiatry and anthropology at New York University and a research scientist at the Nathan Kline Institute, New York State Office of Mental Health. As a medical student and anthropology graduate student at Yale, she completed research on AIDS policy, harm reduction and needle exchange, and faith healing. During her psychiatry residency at New York University Medical Center/Bellevue Hospital, she examined the implications of clinicians’ efforts to establish addiction as a biomedical rather than a moral or social condition and the
impact on patients by ethnicity and race. As a Robert Wood Johnson Health and Society Scholars Program fellow at Columbia, she began work on a feature-length documentary on race, class, and addiction pharmaceuticals, which is now in postproduction. She is the recipient of an NIH Resident of the Year Award, a National Institute on Drug Abuse K01 Award, and the Robert Wood Johnson Health Policy Investigator Award. Her current research focuses on mainstreaming addiction treatment into general medicine settings, the corporate marketing of psychopharmaceuticals to ethnic and social groups, and the role of physicians in crafting interventions to improve population health, using an approach she calls “structural competency.”
Mark Hatzenbuehler is assistant professor of sociomedical sciences and co-director, Center for the Study of Social Inequalities and Health, Columbia University. His research focuses on the causes of mental health disparities related to sexual orientation, the health consequences of exposure to structural forms of stigma, and biopsychosocial mechanisms linking stigma to adverse health outcomes. His recent work has examined how social policies that differentially target sexual minorities affect the mental health of lesbian, gay, and bisexual (LGB) populations. He has published more than 50 peer-reviewed articles that have been published in leading journals. Dr. Hatzenbuehler’s work has been widely covered in the media, and his research has been submitted as evidence in court cases on discrimination related to sexual orientation. He recently received a Mentored Research Scientist Development Award (K01) from the National Institute on Drug Abuse to study social determinants of substance use among LGB adolescents and young adults.
Clarence Jordan is vice president for wellness and recovery at Beacon Health Options, Inc., where he leads a multidisciplinary team devoted to providing recovery-based services, including a network of peers who work directly with adults and families. Previously, he was manager of the consumer recovery services for Magellan Health Services, Inc. He has held various positions with the National Alliance of the Mentally Ill at both the state and national levels, including serving as vice chair of its Veterans Committee and a member of its National African American Leaders Group and Multicultural Action Committee, working to improve outreach initiatives to the African American community. His work focuses on peer specialist services, wellness and recovery, and the stigma of mental illness and substance abuse. He is a recipient of the Consumer Leadership Award of the Substance Abuse and Mental Health Service Administration. He has a M.B.A. from the Naval Postgraduate School and an M.S from the University of Arkansas, Fayetteville.
Anthony Jorm is a professorial fellow and a National Health and Medical Research Council Australia fellow. He leads the Population Mental Health Group within the Melbourne School of Population Health. His research focuses on building the community’s capacity for prevention and early intervention with respect to mental disorders. Dr. Jorm is the author of 20 books or monographs, more than 480 journal articles, and more than 30 chapters in edited volumes. He has been awarded a doctor of science for his research and elected a fellow of the Academy of Social Sciences in Australia. He is the chair of the Research Committee of Australian Rotary Health and past president of the Australasian Society for Psychiatric Research.
Nathaniel Kendall-Taylor is vice president for research at the Frameworks Institute, where he employs social science theory and research methods from anthropology to improve the ability of researchers, advocates, and practitioners to improve social outcomes. He leads a multidisciplinary team of social scientists in studying public understanding and exploring ways to reframe such pressing issues as criminal justice reform, immigration, taxation, early childhood development, addiction, environmental health, education, public health, and climate change. He presents findings and proposed actions from this work through workshops, formal presentations, and publications. His past research has focused on child and family health and on understanding the social and cultural factors that create health disparities and affect decision making. As a medical anthropologist, Dr. Kendall-Taylor also has conducted international fieldwork and ethnographic research. He holds a B.A. from Emory University and master’s and doctoral degrees from the University of California, Los Angeles, and is a visiting professor at the Child Studies Center at Yale.
Bruce Link is distinguished professor of sociology and public policy at the University of California, Riverside. Previously, he was research scientist at the New York State Psychiatric Institute and professor of epidemiology and sociomedical sciences (in psychiatry) at the Mailman School of Public Health, Columbia University. In 2002, he received the Leonard Pearlin Award for career achievement from the Mental Health Section of the American Sociological Association. In 2007, he received the Leo G. Reeder Award from the Medical Sociology Section of the American Sociological Association and the Rema Lapouse Award from the Mental Health Section of the American Public Health Association. He was elected to the Institute of Medicine in 2002. Dr. Link’s main abiding interest has been in the nature and consequences of stigma for people with mental illnesses. Current research focuses on health disparities by race/ethnicity and socioeconomic status, the consequences of social stigma for people with mental illnesses, the connection between mental illnesses and violent behaviors, and the effects
of outpatient commitment on people with serious mental illnesses. He is director of the Psychiatric Epidemiology Training Program; director of the Center for Violence Research and Prevention; and a director of the Robert Wood Johnson Health and Society Scholars Program, Columbia University.
Joe Powell is executive director of the Association of Persons Affected by Addiction in Dallas, a recovery community organization for people seeking or in recovery, family members, peers with mental health challenges, and the community. Mr. Powell is a licensed chemical dependency counselor who has served the Dallas community for more than 20 years. He has broad expertise in all aspects of behavioral health recovery service delivery systems and their impact on families, specializing in recovery community support services, recovery-oriented systems of care, and the holistic recovery management approach. Mr. Powell continues to provide recovery consulting and support for numerous governmental and nongovernmental organizations.
Susan Rogers is director of the National Mental Health Consumers’ Self-Help Clearinghouse, a peer-run national technical assistance center that provides nationwide support to peer-run organizations and to individuals with lived experience of a mental health condition. She is also director of special projects for the Mental Health Association of Southeastern Pennsylvania. Ms. Rogers is a writer and editor; has spoken at numerous conferences; has been interviewed in broadcast and print media to fight the prejudice and discrimination associated with mental health conditions; and helped found the Resource Center to Promote Acceptance, Dignity and Social Inclusion, Substance Abuse and Mental Health Services Administration. Ms. Rogers has been an activist in the consumer/survivor/ex-patient movement for social justice since 1984. She received the 2011 Judi Chamberlin Joy in Advocacy Award from the National Coalition for Mental Health Recovery, and in 2013 received Mental Health America’s Clifford W. Beers Award for outstanding peer advocacy.
Ruth Shim is holder of the Luke & Grace Kim Professorship in Cultural Psychiatry in the Department of Psychiatry and Behavioral Sciences at the University of California, Davis, School of Medicine. She is an associate professor of clinical psychiatry and director of cultural psychiatry at UC Davis. Previously, she was vice chair of Education and Faculty Development and chief of Outpatient Psychiatric Services in the Department of Psychiatry at Lenox Hill Hospital in New York City, a division of Northwell Health. Dr. Shim is board certified in psychiatry and is a fellow of the American Psychiatric Association, a member of the American College of Psychiatrists, and chair of the Fellowship Committee of the Group for the Advancement
of Psychiatry. She serves on the editorial board of American Psychiatric Publishing and Psychiatric Services. She is coeditor with Michael Compton of the 2015 book The Social Determinants of Mental Health. Dr. Shim received an M.P.H. in health policy from Rollins School of Public Health at Emory University and an M.D. from Emory University School of Medicine.
Peggy Swarbrick is associate professor, Rutgers University, and director, Collaborative Support Programs of New Jersey (CSPNJ) Wellness Institute. She has worked at CSPNJ, an agency run by and for people in recovery, for 16 years, and currently coordinates activities for the Wellness Institute. Dr. Swarbrick is involved in research, training, and consultation activities in the areas of wellness and health promotion, employment services, the role of peer support workers, and strategies for enhancing recovery through participation in valued occupations.
Robert Whitley is principal investigator of the Social Psychiatry Research and Interest Group, Douglas Hospital Research Center. He is also an assistant professor in the Department of Psychiatry, McGill University. His two main research (and action) interests are recovery and stigma. His research shows the importance of such factors as gainful employment, secure housing, religion/spirituality, and rewarding social connections in enhancing recovery from severe mental illness, as well as the devastating impact of stigma. He takes a social justice and human rights approach, using his research results to push for change to promote recovery and diminish stigma. He is currently the recipient of a Canadian Institutes of Health Research New Investigator Award and a Fonds de Research Santé Québec Junior 1 Research Scholar Award. Current projects include a study examining recovery in diverse ethnocultural groups in Montreal; a longitudinal analysis of the tone and content of media coverage of mental illness in Canada; and a participatory video study involving the creation, distribution, and evaluation of antistigma and prorecovery videos by people with mental illness.
Lawrence Yang is an associate professor of epidemiology at Columbia University. His research focuses on several key areas of psychiatric epidemiology, including how culture relates to stigma and implementing interventions to improve social and symptomatic recovery for different stigmatizing conditions (mental illness and HIV), with a focus on psychosis in Chinese groups; the neurocognitive and social cognitive underpinnings of the new “clinical high-risk state for psychosis” designation; the clinical and cognitive characteristics of untreated psychosis in China; and barriers and facilitators involved in scale-up of mental health interventions for psychosis in Latin America. Dr. Yang’s work has been recognized with eight Early Career
Awards, six of which are national. He received his Ph.D. in clinical psychology from Boston University and completed his clinical training at Harvard Medical School/Massachusetts Mental Health Center.
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