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Suggested Citation:"Appendix D: Registered Attendees." National Academies of Sciences, Engineering, and Medicine. 2017. Enabling Precision Medicine: The Role of Genetics in Clinical Drug Development: Proceedings of a Workshop. Washington, DC: The National Academies Press. doi: 10.17226/24829.
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Appendix D

Registered Attendees

Oluseyi Adeniyi

U.S. Food and Drug Administration

Neha Aggarwal

Georgetown University

Diaa Ahmed

Utrecht University

Russ Altman

Stanford University

Margaret Anderson

FasterCures

Megan Anderson Brooks

CRD Associates

Naomi Aronson

Blue Cross and Blue Shield Association

Christopher Austin

National Institutes of Health

Nazneen Aziz

Kaiser Permanente Research Bank

Jeannie Baumann

Bloomberg BNA

John Belmont

Illumina, Inc.

Andrew Bergen

BioRealm, LLC

Adam Berger

U.S. Food and Drug Administration

Rebecca Blanchard

Merck & Co., Inc.

Khaled Bouri

U.S. Food and Drug Administration

Linda Brady

National Institutes of Health

Suggested Citation:"Appendix D: Registered Attendees." National Academies of Sciences, Engineering, and Medicine. 2017. Enabling Precision Medicine: The Role of Genetics in Clinical Drug Development: Proceedings of a Workshop. Washington, DC: The National Academies Press. doi: 10.17226/24829.
×

Joel Brill

Self-Employed

P. J. Brooks

National Center for Advancing Translational Sciences

Barbara Buch

U.S. Food and Drug Administration

Jonca Bull

U.S. Food and Drug Administration

Esteban Burchard

University of California, San Francisco

Robert Califf

Duke University

Karim Calis

National Institutes of Health

John Carulli

Biogen

Ann Cashion

National Institute of Nursing Research

Scott Chandler

Genentech/Roche

Henry Chang

National Institutes of Health

Aparna Chhibber

Merck & Co., Inc.

Melissa Clarke

National Human Genome Center at Howard University

Elizabeth Cohn

Columbia University

Robin Crisp

Self-Employed

Tshaka Cunningham

Veterans Health Administration

Tamara Darsow

American Diabetes Association

Claude Desjardins

Johns Hopkins University

Michael Dougherty

American Society of Human Genetics

Lee Dudka

SyTrue

Helena Duncan

College of American Pathologists

Georgia Dunston

Howard University

Marni Falk

Children’s Hospital of Philadelphia

Michael Farkouh

University of Toronto

Greg Feero

Journal of the American Medical Association

Caroline Fox

Merck Research Laboratories

Christopher Frantz

Nemours

Suggested Citation:"Appendix D: Registered Attendees." National Academies of Sciences, Engineering, and Medicine. 2017. Enabling Precision Medicine: The Role of Genetics in Clinical Drug Development: Proceedings of a Workshop. Washington, DC: The National Academies Press. doi: 10.17226/24829.
×

Andrew Freistein

Wenderoth, Lind & Ponack, LLP

Jarlath French-Mullen

Takeda

Joshua Galanter

Genentech

Steven Galson

Amgen Inc.

Taylor Gilliland

National Center for Advancing Translational Sciences

Geoffrey Ginsburg

Duke University

Jill Hagenkord

Color Genomics

Roy Herbst

Yale School of Medicine

Dennis Holl

Zachary Hornby

Ignyta

Xiaolan Hu

Consultant

Lynn Hudson

Critical Path Institute

Nina Hunter

U.S. Food and Drug Administration

Chazeman Jackson

U.S. Department of Health and Human Services

Robert Jarrin

Qualcomm Incorporated

Katie Johansen Taber

American Medical Association

S. Claiborne Johnston

The University of Texas at Austin

BG Jones

Syapse

Lyric Jorgenson

National Institutes of Health

Thea Kalebic

Takeda

Cheryl Kassed

IQ Solutions

Rusty Kelley

Burroughs Wellcome Fund

Amy Kennedy

National Cancer Institute

Muin Khoury

Centers for Disease Control and Prevention

Oliver Kim

Mousetrap

Roger Klein

Elena Koustova

National Institute on Drug Abuse

David Lanfear

American Heart Association

Suggested Citation:"Appendix D: Registered Attendees." National Academies of Sciences, Engineering, and Medicine. 2017. Enabling Precision Medicine: The Role of Genetics in Clinical Drug Development: Proceedings of a Workshop. Washington, DC: The National Academies Press. doi: 10.17226/24829.
×

Jessica Langbaum

Banner Alzheimer’s Institute

Tamar Lasky

MIE Resources

Debra Leonard

University of Vermont Medical Center

David Leventhal

Pfizer Inc.

Rebecca Lipsitz

Janssen

David Litwack

U.S. Food and Drug Administration

Lucie Low

National Center for Advancing Translational Sciences

Michelle Lowes

The Rockefeller University

Julie Lynch

Salt Lake City Veterans Affairs Medical Center

Patrick Mahoney

National Cancer Institute

Saralyn Mark

National Aeronautics and Space Administration

Sarah Martin

American Association for Cancer Research

David McCann

National Institute on Drug Abuse

Robert McCormack

Janssen

Kathleen McCormick

SciMind, LLC

Allison McHenry

The George Washington University

Ross McKinney

Association of American Medical Colleges

Melissa Miller

Pfizer Inc.

Bernard Munos

FasterCures

Richard Murray

Merck & Co., Inc.

Matthew Nelson

GlaxoSmithKline

Laura Nisenbaum

Eli Lilly and Company

Robert Nussbaum

Invitae

Sam Oh

University of California, San Francisco

Alexander Ommaya

Association of American Medical Colleges

Ward Ortmann

Genentech

Suggested Citation:"Appendix D: Registered Attendees." National Academies of Sciences, Engineering, and Medicine. 2017. Enabling Precision Medicine: The Role of Genetics in Clinical Drug Development: Proceedings of a Workshop. Washington, DC: The National Academies Press. doi: 10.17226/24829.
×

Michael Pacanowski

U.S. Food and Drug Administration

Bryan Parker

International Healthcare

Bray Patrick-Lake

Duke Clinical and Translational Science Institute

Jane Perlmutter

Gemini Group

Suzana Petanceska

National Institute on Aging

Robert Plenge

Merck & Co., Inc.

Victoria (Vicky) Pratt

Association for Molecular Pathology

Angela Qu

Parexel

Anuradha Ramamoorthy

U.S. Food and Drug Administration

Rajadhar Reddy

National Academy of Medicine

Sanjana Reddy

U.S. Department of Health and Human Services

Lorenzo Refolo

National Institute on Aging

Kyle Retterer

GeneDx

Sonia Rosenfield

National Cancer Institute

Helena Rubinstein

Freelance Health Journalist

Heiko Runz

Merck & Co., Inc.

Meredith Safford

Johns Hopkins University

Abhi Sanka

Duke University

Richard Schilsky

American Society of Clinical Oncology

Robert Schuck

U.S. Food and Drug Administration

Jessica Scott

GlaxoSmithKline

Joan Scott

Health Resources and Services Administration

Roza Selimyan

University of Maryland University College

Geetha Senthil

National Institute of Mental Health

Chun-Pyn Shen

EMD Serono

Ellen Sigal

Friends of Cancer Research

Lana Skirboll

Sanofi

Suggested Citation:"Appendix D: Registered Attendees." National Academies of Sciences, Engineering, and Medicine. 2017. Enabling Precision Medicine: The Role of Genetics in Clinical Drug Development: Proceedings of a Workshop. Washington, DC: The National Academies Press. doi: 10.17226/24829.
×

Cheryl Smith

National Institutes of Health

Jeffery Smith

American Medical Informatics Association

Olivia Spicer

Johns Hopkins University

John Staropoli

Biogen

Scott Steele

University of Rochester

MaryAnne Sterling

Connected Health Resources

Mark Stewart

Friends of Cancer Research

Theresa Strong

Foundation for Prader-Willi Research

Jielin Sun

U.S. Food and Drug Administration

Margaret Sutherland

National Institute of Neurological Disorders and Stroke

Betty Tai

National Institute on Drug Abuse

Amir Tamiz

National Institute of Neurological Disorders and Stroke

Zivana Tezak

U.S. Food and Drug Administration

Douglas Throckmorton

U.S. Food and Drug Administration

Wendy Toler

Jazz Pharmaceuticals

Sylvia Trujillo

American Medical Association

Mark Trusheim

Massachusetts Institute of Technology Sloan School of Management

Patricia Vasalos

College of American Pathologists

Carrie Wager

Pfizer Inc.

Scott Weinberg

American Medical Informatics Association

David Wierz

The OCI Group

Bob Wildin

National Human Genome Research Institute

Janet Williams

American Academy of Nursing

L. Keoki Williams

Henry Ford Health System

Julie Anne Zawisza

Merck & Co., Inc.

Dongui Zhang

Sanofi

Suggested Citation:"Appendix D: Registered Attendees." National Academies of Sciences, Engineering, and Medicine. 2017. Enabling Precision Medicine: The Role of Genetics in Clinical Drug Development: Proceedings of a Workshop. Washington, DC: The National Academies Press. doi: 10.17226/24829.
×
Page 117
Suggested Citation:"Appendix D: Registered Attendees." National Academies of Sciences, Engineering, and Medicine. 2017. Enabling Precision Medicine: The Role of Genetics in Clinical Drug Development: Proceedings of a Workshop. Washington, DC: The National Academies Press. doi: 10.17226/24829.
×
Page 118
Suggested Citation:"Appendix D: Registered Attendees." National Academies of Sciences, Engineering, and Medicine. 2017. Enabling Precision Medicine: The Role of Genetics in Clinical Drug Development: Proceedings of a Workshop. Washington, DC: The National Academies Press. doi: 10.17226/24829.
×
Page 119
Suggested Citation:"Appendix D: Registered Attendees." National Academies of Sciences, Engineering, and Medicine. 2017. Enabling Precision Medicine: The Role of Genetics in Clinical Drug Development: Proceedings of a Workshop. Washington, DC: The National Academies Press. doi: 10.17226/24829.
×
Page 120
Suggested Citation:"Appendix D: Registered Attendees." National Academies of Sciences, Engineering, and Medicine. 2017. Enabling Precision Medicine: The Role of Genetics in Clinical Drug Development: Proceedings of a Workshop. Washington, DC: The National Academies Press. doi: 10.17226/24829.
×
Page 121
Suggested Citation:"Appendix D: Registered Attendees." National Academies of Sciences, Engineering, and Medicine. 2017. Enabling Precision Medicine: The Role of Genetics in Clinical Drug Development: Proceedings of a Workshop. Washington, DC: The National Academies Press. doi: 10.17226/24829.
×
Page 122
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Those involved in the drug development process face challenges of efficiency and overall sustainability due in part to high research costs, lengthy development timelines, and late-stage drug failures. Novel clinical trial designs that enroll participants based on their genetics represent a potentially disruptive change that could improve patient outcomes, reduce costs associated with drug development, and further realize the goals of precision medicine.

On March 8, 2017, the Forum on Drug Discovery, Development, and Translation and the Roundtable on Genomics and Precision Health of the National Academies of Sciences, Engineering, and Medicine hosted the workshop Enabling Precision Medicine: The Role of Genetics in Clinical Drug Development. Participants examined successes, challenges, and possible best practices for effectively using genetic information in the design and implementation of clinical trials to support the development of precision medicines, including exploring the potential advantages and disadvantages of such trials across a variety of disease areas. This publication summarizes the presentations and discussions from the workshop.

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