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Suggested Citation:"Appendix D: Registered Attendees." National Academies of Sciences, Engineering, and Medicine. 2018. Implementing and Evaluating Genomic Screening Programs in Health Care Systems: Proceedings of a Workshop. Washington, DC: The National Academies Press. doi: 10.17226/25048.
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Appendix D

Registered Attendees

Joanne Adelberg

American College of Medical Genetics and Genomics

Megan Anderson Brooks

CRD Associates

Thalia Ashton

Pinnacle Lab Solutions

Cynthia Bens

Personalized Medicine Coalition

Gouri Shankar Bhattacharyya

Salt Lake City Medical Center, Kolkata

Maria Blazo

Baylor, Scott & White

Eric Boerwinkle

University of Texas Health Science Center; School of Public Health

Vence Bonham

National Human Genome Research Institute

Khaled Bouri

U.S. Food and Drug Administration

Ruth Brenner

U.S. Air Force

Tara Burke

Association for Molecular Pathology

Colleen Campbell

University of Iowa

Ann Cashion

National Institute of Nursing Research

Henry Chang

National Institutes of Health

Suggested Citation:"Appendix D: Registered Attendees." National Academies of Sciences, Engineering, and Medicine. 2018. Implementing and Evaluating Genomic Screening Programs in Health Care Systems: Proceedings of a Workshop. Washington, DC: The National Academies Press. doi: 10.17226/25048.
×

Rex Chisholm

Northwestern University

Chetana Daniels

University of Iowa

Barry Dickinson

American Medical Association

Joe Donahue

Accenture

Emily Edelman

The Jackson Laboratory

Juvianee Estrada-Veras

Walter Reed National Military Medical Center

Greg Feero

Journal of the American Medical Association

Claudine Fle

AGT

Malia Fullerton

University of Washington

Arsheed Ganaie

University of Minnesota

Josh Gant

Consultant

Rachel Gatewood

University of Iowa

Gail Geller

Johns Hopkins Berman Institute of Bioethics

Geoff Ginsburg

Duke University

Katrina Goddard

Kaiser Permanente Center for Health Research

Christian Grimstein

U.S. Food and Drug Administration

Marc Grodman

Columbia University

Shenita-Ann Grymes

BrittNelle Health Services Group, LLC

Jill Hagenkord

Color Genomics

Katie Halbmaier

University of Iowa College of Nursing

Jeffrey Hankoff

Cigna

Ragan Hart

University of Washington

Lydia Hellwig

Uniformed Services University of the Health Sciences

Jonathan Holt

Physician

Gillian Hooker

Concert Genetics

Carol Horowitz

Icahn School of Medicine at Mount Sinai

Suggested Citation:"Appendix D: Registered Attendees." National Academies of Sciences, Engineering, and Medicine. 2018. Implementing and Evaluating Genomic Screening Programs in Health Care Systems: Proceedings of a Workshop. Washington, DC: The National Academies Press. doi: 10.17226/25048.
×

Geoffrey Hymans

Department of Health and Human Services

George Isham

HealthPartners

Nicole Johnson

Hayes, Inc.

Darlene Kaskie

National Network of Libraries of Medicine

Amy Kennedy

National Cancer Institute

Abel Kho

Northwestern University

Muin Khoury

Centers for Disease Control and Prevention

Shannon Kirkland

National Education Association

Elizabeth Kiscaden

National Network of Libraries of Medicine, Greater Midwest Region

Sara Knight

University of Alabama at Birmingham

Bruce Korf

University of Alabama at Birmingham

Alyson Krokosky

Walter Reed National Military Medical Center

Jennifer Krupp

American College of Medical Genetics and Genomics

Katherine Lambertson

Genetic Alliance

Erin Lambie

The George Washington University

Kristofor Langlais

National Institutes of Health

Gabriela Lavezzari

Biocerna

Grace Lawrence

Inova Genomics Laboratory

David Ledbetter

Geisinger Health System

Debra Leonard

University of Vermont Medical Center

Elissa Levin

Helix

Srisuporn Lidla

Six Senses Yao Noi

David Litwack

U.S. Food and Drug Administration

Christine Lu

Harvard Medical School

Teri Manolio

National Human Genome Research Institute

Suggested Citation:"Appendix D: Registered Attendees." National Academies of Sciences, Engineering, and Medicine. 2018. Implementing and Evaluating Genomic Screening Programs in Health Care Systems: Proceedings of a Workshop. Washington, DC: The National Academies Press. doi: 10.17226/25048.
×

Monique Mansoura

Massachusetts Institute of Technology

Jennifer McCormick

The Pennsylvania State University

Victoria Menzies

Virginia Commonwealth University

Rana Morris

National Center for Biotechnology Information

Michael Murray

Geisinger Health System

Hiromi Ono

National Institutes of Health

Lori Orlando

Duke University

Michael Pacanowski

U.S. Food and Drug Administration

Peggy Peissig

Marshfield Clinic Research Institute

Michelle Penny

Biogen

Josh Peterson

Vanderbilt University Medical Center

Bradford Powell

University of North Carolina at Chapel Hill

Vicky Pratt

Association for Molecular Pathology

Daryl Pritchard

Personalized Medicine Coalition

Natalie Pritchett

National Cancer Institute

Ronald Przygodzki

Department of Veterans Affairs

Erica Ramos

National Society of Genetic Counselors

Dean Regier

B.C. Cancer Agency/University of British Columbia

Karina Reyes Gordillo

The George Washington University

Megan Roberts

National Cancer Institute

Carol Robertson-Plouch

Biopharmaceutical Advisors and Consultants

Laura Lyman Rodriguez

National Human Genome Research Institute

Sarah Savage

FDNA

Brock Schroeder

Illumina, Inc.

Sheri Schully

National Institutes of Health

Suggested Citation:"Appendix D: Registered Attendees." National Academies of Sciences, Engineering, and Medicine. 2018. Implementing and Evaluating Genomic Screening Programs in Health Care Systems: Proceedings of a Workshop. Washington, DC: The National Academies Press. doi: 10.17226/25048.
×

Joan Scott

Health Resources and Services Administration

Geetha Senthil

National Institute of Mental Health

Sam Shekar

Northrop Grumman Information Systems

Nonniekaye Shelburne

National Cancer Institute

Lily Silayeva

The Tauri Group

Sikha Singh

Association of Public Health Laboratories

Angela Starkweather

University of Connecticut

Casey Overby Taylor

Johns Hopkins University

Zivana Tezak

U.S. Food and Drug Administration

Wendy Toler

Consultant

Scott Topper

Color Genomics

Clesson Turner

Walter Reed National Military Medical Center

Richard Turner

University of Liverpool

Dila Udum

Bahcesehir University

Dave Veenstra

University of Washington

Rashi Venkataraman

America’s Health Insurance Plans

Linda Walton

University of Iowa

Catharine Wang

Boston University

Michael Watson

American College of Medical Genetics and Genomics

Meredith Weaver

American College of Medical Genetics and Genomics

Catherine Wicklund

National Society of Genetic Counselors

David Wierz

The OCI Group

Janet Williams

American Academy of Nursing/University of Iowa

Jennifer Wilson

Stanford University

Theresa Wizemann

Wizemann Scientific Communications, LLC

Suggested Citation:"Appendix D: Registered Attendees." National Academies of Sciences, Engineering, and Medicine. 2018. Implementing and Evaluating Genomic Screening Programs in Health Care Systems: Proceedings of a Workshop. Washington, DC: The National Academies Press. doi: 10.17226/25048.
×

Kenn Wong

Counsyl

Grant Wood

Intermountain Healthcare

Guisou Zarbalian

Association of Public Health Laboratories

Suggested Citation:"Appendix D: Registered Attendees." National Academies of Sciences, Engineering, and Medicine. 2018. Implementing and Evaluating Genomic Screening Programs in Health Care Systems: Proceedings of a Workshop. Washington, DC: The National Academies Press. doi: 10.17226/25048.
×
Page 125
Suggested Citation:"Appendix D: Registered Attendees." National Academies of Sciences, Engineering, and Medicine. 2018. Implementing and Evaluating Genomic Screening Programs in Health Care Systems: Proceedings of a Workshop. Washington, DC: The National Academies Press. doi: 10.17226/25048.
×
Page 126
Suggested Citation:"Appendix D: Registered Attendees." National Academies of Sciences, Engineering, and Medicine. 2018. Implementing and Evaluating Genomic Screening Programs in Health Care Systems: Proceedings of a Workshop. Washington, DC: The National Academies Press. doi: 10.17226/25048.
×
Page 127
Suggested Citation:"Appendix D: Registered Attendees." National Academies of Sciences, Engineering, and Medicine. 2018. Implementing and Evaluating Genomic Screening Programs in Health Care Systems: Proceedings of a Workshop. Washington, DC: The National Academies Press. doi: 10.17226/25048.
×
Page 128
Suggested Citation:"Appendix D: Registered Attendees." National Academies of Sciences, Engineering, and Medicine. 2018. Implementing and Evaluating Genomic Screening Programs in Health Care Systems: Proceedings of a Workshop. Washington, DC: The National Academies Press. doi: 10.17226/25048.
×
Page 129
Suggested Citation:"Appendix D: Registered Attendees." National Academies of Sciences, Engineering, and Medicine. 2018. Implementing and Evaluating Genomic Screening Programs in Health Care Systems: Proceedings of a Workshop. Washington, DC: The National Academies Press. doi: 10.17226/25048.
×
Page 130
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Genomic applications are being integrated into a broad range of clinical and research activities at health care systems across the United States. This trend can be attributed to a variety of factors, including the declining cost of genome sequencing and the potential for improving health outcomes and cutting the costs of care. The goals of these genomics-based programs may be to identify individuals with clinically actionable variants as a way of preventing disease, providing diagnoses for patients with rare diseases, and advancing research on genetic contributions to health and disease. Of particular interest are genomics- based screening programs, which will, in this publication, be clinical screening programs that examine genes or variants in unselected populations in order to identify individuals who are at an increased risk for a particular health concern (e.g., diseases, adverse drug outcomes) and who might benefit from clinical interventions.

On November 1, 2017, the National Academies of Sciences, Engineering, and Medicine hosted a public workshop to explore the challenges and opportunities associated with integrating genomics-based screening programs into health care systems. This workshop was developed as a way to explore the challenges and opportunities associated with integrating genomics-based programs in health care systems in the areas of evidence collection, sustainability, data sharing, infrastructure, and equity of access. This publication summarizes the presentations and discussions from the workshop.

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