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Suggested Citation:"Front Matter." National Academies of Sciences, Engineering, and Medicine. 2018. Improving Health Research on Small Populations: Proceedings of a Workshop. Washington, DC: The National Academies Press. doi: 10.17226/25112.
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Improving Health Research
on Small Populations

PROCEEDINGS OF A WORKSHOP

Nancy Kirkendall and Jordyn White, Rapporteurs

Committee on National Statistics
Division of Behavioral and Social Sciences and Education

Board on Health Care Services
Health and Medicine Division

images

THE NATIONAL ACADEMIES PRESS
Washington, DC
www.nap.edu

Suggested Citation:"Front Matter." National Academies of Sciences, Engineering, and Medicine. 2018. Improving Health Research on Small Populations: Proceedings of a Workshop. Washington, DC: The National Academies Press. doi: 10.17226/25112.
×

THE NATIONAL ACADEMIES PRESS 500 Fifth Street, NW Washington, DC 20001

This activity was supported by contracts between the National Academy of Sciences and the Robert Wood Johnson Foundation (Contract No. 10003839/Sponsor Award No. #75001) and the U.S. National Institutes of Health (Contract No. 10003551/Sponsor Award No. HHSN26300116). Any opinions, findings, conclusions, or recommendations expressed in this publication do not necessarily reflect the views of any organization or agency that provided support for the project.

International Standard Book Number-13: 978-0-309-47609-6
International Standard Book Number-10: 0-309-47609-7
Digital Object Identifier: https://doi.org/10.17226/25112

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Suggested citation: National Academies of Sciences, Engineering, and Medicine. (2018). Improving Health Research on Small Populations: Proceedings of a Workshop. Washington, DC: The National Academies Press. doi: https://doi.org/10.17226/25112.

Suggested Citation:"Front Matter." National Academies of Sciences, Engineering, and Medicine. 2018. Improving Health Research on Small Populations: Proceedings of a Workshop. Washington, DC: The National Academies Press. doi: 10.17226/25112.
×

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The National Academy of Sciences was established in 1863 by an Act of Congress, signed by President Lincoln, as a private, nongovernmental institution to advise the nation on issues related to science and technology. Members are elected by their peers for outstanding contributions to research. Dr. Marcia McNutt is president.

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Learn more about the National Academies of Sciences, Engineering, and Medicine at www.nationalacademies.org.

Suggested Citation:"Front Matter." National Academies of Sciences, Engineering, and Medicine. 2018. Improving Health Research on Small Populations: Proceedings of a Workshop. Washington, DC: The National Academies Press. doi: 10.17226/25112.
×

Image

Consensus Study Reports published by the National Academies of Sciences, Engineering, and Medicine document the evidence-based consensus on the study’s statement of task by an authoring committee of experts. Reports typically include findings, conclusions, and recommendations based on information gathered by the committee and the committee’s deliberations. Each report has been subjected to a rigorous and independent peer-review process and it represents the position of the National Academies on the statement of task.

Proceedings published by the National Academies of Sciences, Engineering, and Medicine chronicle the presentations and discussions at a workshop, symposium, or other event convened by the National Academies. The statements and opinions contained in proceedings are those of the participants and are not endorsed by other participants, the planning committee, or the National Academies.

For information about other products and activities of the National Academies, please visit www.nationalacademies.org/about/whatwedo.

Suggested Citation:"Front Matter." National Academies of Sciences, Engineering, and Medicine. 2018. Improving Health Research on Small Populations: Proceedings of a Workshop. Washington, DC: The National Academies Press. doi: 10.17226/25112.
×

STEERING COMMITTEE FOR IMPROVING HEALTH RESEARCH ON SMALL POPULATIONS: A WORKSHOP

GRAHAM A. COLDITZ (Chair), Washington University School of Medicine

JAMES ALLEN, University of Minnesota Medical School

GRAHAM KALTON, Westat

JANICE C. PROBST, University of South Carolina, Arnold School of Public Health

LANCE A. WALLER, Emory University, Rollins School of Public Health

NANCY J. KIRKENDALL, Project Director

JORDYN WHITE, Senior Program Officer

ANTHONY S. MANN, Program Associate

Suggested Citation:"Front Matter." National Academies of Sciences, Engineering, and Medicine. 2018. Improving Health Research on Small Populations: Proceedings of a Workshop. Washington, DC: The National Academies Press. doi: 10.17226/25112.
×

COMMITTEE ON NATIONAL STATISTICS

ROBERT M. GROVES (Chair), Office of the Provost, Department of Mathematics and Statistics and Department of Sociology, Georgetown University

FRANCINE BLAU, School of Industrial and Labor Relations, Cornell University

MARY ELLEN BOCK, Department of Statistics (emerita), Purdue University

ANNE C. CASE, Woodrow Wilson School of Public and International Affairs, Princeton University

MICHAEL E. CHERNEW, Department of Health Care Policy, Harvard Medical School

JANET CURRIE, Woodrow Wilson School of Public and International Affairs, Princeton University

DONALD A. DILLMAN, Social and Economic Sciences Research Center, Washington State University

CONSTANTINE GATSONIS, Center for Statistical Sciences, Brown University

JAMES S. HOUSE, Survey Research Center, Institute for Social Research, University of Michigan

THOMAS L. MESENBOURG, U.S. Census Bureau (retired)

SARAH M. NUSSER, Office of the Vice President for Research and Department of Statistics, Iowa State University

COLM O’MUIRCHEARTAIGH, Harris School of Public Policy Studies, University of Chicago

JEROME P. REITER, Department of Statistical Science, Duke University

ROBERTO RIGOBON, Sloan School of Management, Massachusetts Institute of Technology

JUDITH A. SELTZER, Department of Sociology, University of California, Los Angeles

EDWARD H. SHORTLIFFE, Department of Biomedical Informatics, Columbia University and Arizona State University

BRIAN HARRIS-KOJETIN, Director

CONSTANCE F. CITRO, Senior Scholar

Suggested Citation:"Front Matter." National Academies of Sciences, Engineering, and Medicine. 2018. Improving Health Research on Small Populations: Proceedings of a Workshop. Washington, DC: The National Academies Press. doi: 10.17226/25112.
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BOARD ON HEALTH CARE SERVICES

DAVID BLUMENTHAL (Chair), The Commonwealth Fund

PETER BACH, Center for Health Policy and Outcomes, Memorial Sloan Kettering Cancer Center

NIRANJAN BOSE, Gates Foundation, bgC3

OTIS BRAWLEY, American Cancer Society

MELINDA J. BEEUWKES BUNTIN, Department of Health Policy, Vanderbilt University School of Medicine

NEIL S. CALMAN, The Institute for Family Health; Family Medicine and Community Health, Icahn School of Medicine at Mount Sinai

CAROLYN CLANCY, U.S. Veterans Health Administration

PATRICIA M. DAVIDSON, Department of Acute and Chronic Care, School of Nursing, Johns Hopkins University

JANE DELGADO, National Alliance for Hispanic Health

JENNIFER E. DEVOE, Department of Family Medicine, Oregon Health & Science University

R. ADAMS DUDLEY, University of California, San Francisco, Center for Healthcare Value, Philip R. Lee Institute for Health Policy Studies, Medicine and Health Policy, University of California, San Francisco

RICHARD G. FRANK, Department of Health Care Policy, Harvard Medical School

TERRY FULMER, The John A. Hartford Foundation

CINDY GILLESPIE, Arkansas Department of Human Services

NADINE KASLOW, Department of Psychiatry and Behavioral Science, Emory University School of Medicine; Grady Memorial Hospital

CHRISTOPHER KOLLER, Milbank Memorial Fund

DAVID B. PRYOR, Ascension, Ascension Clinical Holdings

TRISH RILEY, National Academy for State Health Policy

WILLIAM SAGE, Dell Medical School, University of Texas at Austin School of Law

SHARYL NASS, Director

Page viii Cite
Suggested Citation:"Front Matter." National Academies of Sciences, Engineering, and Medicine. 2018. Improving Health Research on Small Populations: Proceedings of a Workshop. Washington, DC: The National Academies Press. doi: 10.17226/25112.
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Suggested Citation:"Front Matter." National Academies of Sciences, Engineering, and Medicine. 2018. Improving Health Research on Small Populations: Proceedings of a Workshop. Washington, DC: The National Academies Press. doi: 10.17226/25112.
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Acknowledgments

This Proceedings of a Workshop was reviewed in draft form by individuals chosen for their diverse perspectives and technical expertise. The purpose of this independent review is to provide candid and critical comments that will assist the National Academies of Sciences, Engineering, and Medicine in making each published proceedings as sound as possible and to ensure that it meets the institutional standards for quality, objectivity, evidence, and responsiveness to the charge. The review comments and draft manuscript remain confidential to protect the integrity of the process.

We thank the following individuals for their review of this proceedings: Graham A. Colditz, Prevention and Control, Siteman Cancer Center, Washington University School of Medicine; Kelly J. Devers, Health Care, NORC at the University of Chicago; Peggye Dilworth-Anderson, Gillings School of Global Public Health, University of North Carolina at Chapel Hill; and Amy Kilbourne, Department of Psychiatry, University of Michigan, and Quality Enhancement Research Initiative, Department of Veterans Affairs.

Although the reviewers listed above provided many constructive comments and suggestions, they were not asked to endorse the content of the proceedings nor did they see the final draft before its release. The review of this proceedings was overseen by Constantine Gatsonis, School of Public Health, Brown University. He was responsible for making certain that an independent examination of this proceedings was carried out in accordance with standards of the National Academies and that all review comments were carefully considered. Responsibility for the final content rests entirely with the rapporteurs and the National Academies.

Suggested Citation:"Front Matter." National Academies of Sciences, Engineering, and Medicine. 2018. Improving Health Research on Small Populations: Proceedings of a Workshop. Washington, DC: The National Academies Press. doi: 10.17226/25112.
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Suggested Citation:"Front Matter." National Academies of Sciences, Engineering, and Medicine. 2018. Improving Health Research on Small Populations: Proceedings of a Workshop. Washington, DC: The National Academies Press. doi: 10.17226/25112.
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Suggested Citation:"Front Matter." National Academies of Sciences, Engineering, and Medicine. 2018. Improving Health Research on Small Populations: Proceedings of a Workshop. Washington, DC: The National Academies Press. doi: 10.17226/25112.
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Suggested Citation:"Front Matter." National Academies of Sciences, Engineering, and Medicine. 2018. Improving Health Research on Small Populations: Proceedings of a Workshop. Washington, DC: The National Academies Press. doi: 10.17226/25112.
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Suggested Citation:"Front Matter." National Academies of Sciences, Engineering, and Medicine. 2018. Improving Health Research on Small Populations: Proceedings of a Workshop. Washington, DC: The National Academies Press. doi: 10.17226/25112.
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Suggested Citation:"Front Matter." National Academies of Sciences, Engineering, and Medicine. 2018. Improving Health Research on Small Populations: Proceedings of a Workshop. Washington, DC: The National Academies Press. doi: 10.17226/25112.
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Suggested Citation:"Front Matter." National Academies of Sciences, Engineering, and Medicine. 2018. Improving Health Research on Small Populations: Proceedings of a Workshop. Washington, DC: The National Academies Press. doi: 10.17226/25112.
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Suggested Citation:"Front Matter." National Academies of Sciences, Engineering, and Medicine. 2018. Improving Health Research on Small Populations: Proceedings of a Workshop. Washington, DC: The National Academies Press. doi: 10.17226/25112.
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Suggested Citation:"Front Matter." National Academies of Sciences, Engineering, and Medicine. 2018. Improving Health Research on Small Populations: Proceedings of a Workshop. Washington, DC: The National Academies Press. doi: 10.17226/25112.
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Page viii Cite
Suggested Citation:"Front Matter." National Academies of Sciences, Engineering, and Medicine. 2018. Improving Health Research on Small Populations: Proceedings of a Workshop. Washington, DC: The National Academies Press. doi: 10.17226/25112.
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Suggested Citation:"Front Matter." National Academies of Sciences, Engineering, and Medicine. 2018. Improving Health Research on Small Populations: Proceedings of a Workshop. Washington, DC: The National Academies Press. doi: 10.17226/25112.
×
Page R9
Suggested Citation:"Front Matter." National Academies of Sciences, Engineering, and Medicine. 2018. Improving Health Research on Small Populations: Proceedings of a Workshop. Washington, DC: The National Academies Press. doi: 10.17226/25112.
×
Page R10
Suggested Citation:"Front Matter." National Academies of Sciences, Engineering, and Medicine. 2018. Improving Health Research on Small Populations: Proceedings of a Workshop. Washington, DC: The National Academies Press. doi: 10.17226/25112.
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Suggested Citation:"Front Matter." National Academies of Sciences, Engineering, and Medicine. 2018. Improving Health Research on Small Populations: Proceedings of a Workshop. Washington, DC: The National Academies Press. doi: 10.17226/25112.
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The increasing diversity of population of the United States presents many challenges to conducting health research that is representative and informative. Dispersion and accessibility issues can increase logistical costs; populations for which it is difficult to obtain adequate sample size are also likely to be expensive to study. Hence, even if it is technically feasible to study a small population, it may not be easy to obtain the funding to do so. In order to address the issues associated with improving health research of small populations, the National Academies of Sciences, Engineering, and Medicine convened a workshop in January 2018. Participants considered ways of addressing the challenges of conducting epidemiological studies or intervention research with small population groups, including alternative study designs, innovative methodologies for data collection, and innovative statistical techniques for analysis.

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