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Suggested Citation:"Appendix A: Statement of Task." National Academies of Sciences, Engineering, and Medicine. 2018. Implementing Quality Measures for Accountability in Community-Based Care for People with Serious Illness: Proceedings of a Workshop. Washington, DC: The National Academies Press. doi: 10.17226/25202.
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Page 81
Suggested Citation:"Appendix A: Statement of Task." National Academies of Sciences, Engineering, and Medicine. 2018. Implementing Quality Measures for Accountability in Community-Based Care for People with Serious Illness: Proceedings of a Workshop. Washington, DC: The National Academies Press. doi: 10.17226/25202.
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Page 82

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Appendix A Statement of Task An ad hoc committee will plan and host a 1-day public workshop to examine strategies, approaches, and key challenges to implementation of quality measures for community-based care programs for serious illness. The workshop will feature invited presentations and panel discussions on topics that may include • An overview of the role of patient experience and shared decision making in defining quality across a range of evolving care settings, including community-based organizations and home-based care. • Model programs such as those developed by Blue Cross Blue Shield of Massachusetts and the Veterans Health Administration, as well as international efforts such as the Harvard Global Equity Initiative on Pain Control. • The roles of key stakeholders driving implementation of quality measures, including private and public payers; accreditation organizations; and the National Quality Forum’s National Quality Partners. • Potential tools and mechanisms for implementation, such as public report cards (i.e., Centers for Medicare & Medicaid Services, state based), and quality improvement efforts undertaken by care programs for serious illness. 81

82 IMPLEMENTING QUALITY MEASURES FOR ACCOUNTABILITY • Challenges and opportunities for using potential data sources, including electronic health records; claims; registries; patient- reported data; and crowdsourcing. • Ways to develop a feasible approach and timeline for implementing quality measures. The planning committee will develop the agenda for the workshop, select speakers and discussants, and moderate the discussions. Proceedings of the presentations and discussions at the workshop will be prepared by a designated rapporteur in accordance with institutional guidelines.

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Millions of Americans of all ages face the challenge of living with serious illnesses such as advanced cancer, heart, or lung disease. Many people with serious illness are increasingly cared for in community settings. While the number of community-based programs to provide care for those with serious illness has grown significantly, the quality of care provided is not consistent across geographic locations or care settings. Care for the serious illness population often features gaps in coordination across sites of care and poor patient and family perceptions as to the quality of care provided.

In an effort to better understand and facilitate discussions about the challenges and opportunities related to identifying and implementing quality measures for accountability purposes in community-based serious illness care, the National Academies of Sciences, Engineering, and Medicine held a public workshop on April 17, 2018, in Washington, DC. Workshop participants explored the current state of quality measurement for people with serious illness, their families, and caregivers, with the aim of identifying next steps toward effectively implementing measures to drive improvement in the quality of community-based care for those facing serious illness. This publication summarizes the presentations and discussions from the workshop.

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