Appendix B
Statement of Task
An ad hoc committee will plan and conduct a 2.5-day public workshop designed to consider the ethical underpinnings of data-related activities and how perspectives differ across the globe. Ethics is a lens through which the issues of data (collection, sharing, curation, access, protection, and use) can be viewed and will be the focus of this workshop. The workshop will explore the changing opportunities and risks of data management and use across disciplinary domains to examine advisory principles for consideration when developing international research agreements. The goal is to highlight promising practices for sustaining and enabling international research collaborations at the highest ethical level possible. Two central themes to be considered throughout are (1) privacy and confidentiality (the timeliness of the privacy discussion, especially international implications of divergent national approaches to privacy) and (2) addressing the changing technology landscape (how new and emerging technologies can help in mapping the complex technology landscape of future research agreements with potential data management challenges). Diverse perspectives with respect to sector, region, and discipline will be represented throughout the workshop to increase the likelihood of identifying common challenges. An individually authored workshop proceedings will be published.
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