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Suggested Citation:"Appendix B: Statement of Task." National Academies of Sciences, Engineering, and Medicine. 2018. Data Matters: Ethics, Data, and International Research Collaboration in a Changing World: Proceedings of a Workshop. Washington, DC: The National Academies Press. doi: 10.17226/25214.
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Appendix B

Statement of Task

An ad hoc committee will plan and conduct a 2.5-day public workshop designed to consider the ethical underpinnings of data-related activities and how perspectives differ across the globe. Ethics is a lens through which the issues of data (collection, sharing, curation, access, protection, and use) can be viewed and will be the focus of this workshop. The workshop will explore the changing opportunities and risks of data management and use across disciplinary domains to examine advisory principles for consideration when developing international research agreements. The goal is to highlight promising practices for sustaining and enabling international research collaborations at the highest ethical level possible. Two central themes to be considered throughout are (1) privacy and confidentiality (the timeliness of the privacy discussion, especially international implications of divergent national approaches to privacy) and (2) addressing the changing technology landscape (how new and emerging technologies can help in mapping the complex technology landscape of future research agreements with potential data management challenges). Diverse perspectives with respect to sector, region, and discipline will be represented throughout the workshop to increase the likelihood of identifying common challenges. An individually authored workshop proceedings will be published.

Suggested Citation:"Appendix B: Statement of Task." National Academies of Sciences, Engineering, and Medicine. 2018. Data Matters: Ethics, Data, and International Research Collaboration in a Changing World: Proceedings of a Workshop. Washington, DC: The National Academies Press. doi: 10.17226/25214.
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Suggested Citation:"Appendix B: Statement of Task." National Academies of Sciences, Engineering, and Medicine. 2018. Data Matters: Ethics, Data, and International Research Collaboration in a Changing World: Proceedings of a Workshop. Washington, DC: The National Academies Press. doi: 10.17226/25214.
×
Page 77
Suggested Citation:"Appendix B: Statement of Task." National Academies of Sciences, Engineering, and Medicine. 2018. Data Matters: Ethics, Data, and International Research Collaboration in a Changing World: Proceedings of a Workshop. Washington, DC: The National Academies Press. doi: 10.17226/25214.
×
Page 78
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In an increasingly interconnected world, perhaps it should come as no surprise that international collaboration in science and technology research is growing at a remarkable rate. As science and technology capabilities grow around the world, U.S.-based organizations are finding that international collaborations and partnerships provide unique opportunities to enhance research and training.

International research agreements can serve many purposes, but data are always involved in these collaborations. The kinds of data in play within international research agreements varies widely and may range from financial and consumer data, to Earth and space data, to population behavior and health data, to specific project-generated data—this is just a narrow set of examples of research data but illustrates the breadth of possibilities. The uses of these data are various and require accounting for the effects of data access, use, and sharing on many different parties. Cultural, legal, policy, and technical concerns are also important determinants of what can be done in the realms of maintaining privacy, confidentiality, and security, and ethics is a lens through which the issues of data, data sharing, and research agreements can be viewed as well.

A workshop held on March 14-16, 2018, in Washington, DC explored the changing opportunities and risks of data management and use across disciplinary domains. The third workshop in a series, participants gathered to examine advisory principles for consideration when developing international research agreements, in the pursuit of highlighting promising practices for sustaining and enabling international research collaborations at the highest ethical level possible. The intent of the workshop was to explore, through an ethical lens, the changing opportunities and risks associated with data management and use across disciplinary domains—all within the context of international research agreements. This publication summarizes the presentations and discussions from the workshop.

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