Appendix B
Workshop Agenda
Understanding Disparities in Access to Genomic Medicine:
A Workshop
June 27, 2018
Keck Building of the National Academies
500 Fifth Street, NW
Room 100
Washington, DC 20001
8:30 a.m. |
Opening Remarks |
GEOFFREY GINSBURG, Roundtable Co-Chair |
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Director, Duke Center for Applied Genomics & Precision Medicine |
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Professor, Medicine, Pathology, and Biomedical Engineering Duke University Medical Center |
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MICHELLE PENNY, Roundtable Co-Chair |
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Director and Head of Computational Biology and Genomics Biogen |
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8:35 a.m. |
Charge to Workshop Speakers and Participants |
VENCE BONHAM, Workshop Co-Chair |
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Senior Advisor to the Director on Genomics and Health Disparities |
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National Human Genome Research Institute |
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National Institutes of Health |
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CATHY WICKLUND, Workshop Co-Chair |
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Past President, National Society of Genetic Counselors |
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Director, Graduate Program in Genetic Counseling |
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Feinberg School of Medicine, Center for Genetic Medicine Northwestern University |
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8:50 a.m. |
Opening Keynote Lecture |
OTIS BRAWLEY |
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Chief Medical and Scientific Officer |
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American Cancer Society |
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9:10 a.m. |
Clarifying Questions from Workshop Participants |
SESSION I: VOICES OF THE COMMUNITY—EXPLORING THE BARRIERS TO ACCESSING GENOMIC/GENETIC SERVICES |
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Session Objective: |
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Session Moderator: Elda Railey, Co-Founder, Research Advocacy Network |
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9:20 a.m. |
CANDACE HENLEY |
Executive Director and Founder |
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The Blue Hat Foundation |
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9:35 a.m. |
SUE FRIEDMAN |
Executive Director and Founder |
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Facing Our Risk of Cancer Empowered (FORCE) |
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9:50 a.m. |
PAT JOLLEY |
Director, Clinical Initiatives |
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Patient Advocate Foundation |
10:05 a.m. |
JOHN MOESCHLER |
Professor of Pediatrics, Geisel School of Medicine Dartmouth College |
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10:20 a.m. |
Panel Discussion with Speakers and Workshop Participants |
Discussant: |
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NATASHA BONHOMME |
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Chief Strategy Officer |
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Genetic Alliance |
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10:50 a.m. |
Break |
SESSION II: THE ROLE OF HEALTH SYSTEMS IN DELIVERING EQUITABLE ACCESS |
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Session Objective: | |
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Session Moderator: Bruce Quinn, Founder, Bruce Quinn Associates LLC |
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11:05 a.m. |
LARRY MEYER |
National Director, Genomic Medicine |
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Veterans Affairs Medical Center |
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11:20 a.m. |
KATHERINE ANDERSON |
Primary Care Specialist |
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Denver Health |
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11:35 a.m. |
KENT HOSKINS |
Associate Professor of Medicine |
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Director, Familial Breast Cancer Program |
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University of Illinois at Chicago |
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11:50 a.m. |
Panel Discussion with Speakers and Audience Members |
12:20 p.m. |
Working Lunch |
SESSION III: HOW CAN PROVIDERS MAKE GENOMIC MEDICINE MORE ACCESSIBLE? |
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Session Objective: | |
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Session Moderator: S. Malia Fullerton, Associate Professor, University of Washington |
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1:20 p.m. |
SEAN TUNIS |
Founder and Chief Executive Officer |
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Center for Medical Technology Policy |
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1:35 p.m. |
BRIAN AHMEDANI |
Director of Psychiatry Research |
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Research Scientist, Center for Health Policy & Health Services Research |
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Henry Ford Health System |
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1:50 p.m. |
KATRINA ARMSTRONG |
Physician-in-Chief, Department of Medicine |
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Massachusetts General Hospital |
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2:05 p.m. |
PREETI MALANI |
Chief Health Officer, University of Michigan |
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Professor of Medicine, University of Michigan Medical School |
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2:20 p.m. |
Panel Discussion with Speakers and Workshop Participants |
2:50 p.m. |
Break |
SESSION IV: EXPLORING INNOVATIVE SOLUTIONS AND MODELS OF SUCCESS |
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Session Objectives: | |
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Session Moderator: W. Gregory Feero, Faculty, Maine–Dartmouth Family Medicine Residency Program |
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3:05 p.m. |
MARC SCHWARTZ |
Professor of Oncology |
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Co-Director of the Cancer Prevention and Control Program |
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Research Director, Fisher Center for Hereditary Cancer and Clinical Genomics Research |
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Georgetown University |
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3:20 p.m. |
RENA PASICK |
Professor, Department of Medicine |
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Director, Office of Community Engagement |
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University of California, San Francisco, Helen Diller Family Comprehensive Cancer Center |
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3:35 p.m. |
JACQUELYN TAYLOR |
Associate Professor and Vernice D. Ferguson Chair in Health Equity |
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New York University Rory Meyers College of Nursing |
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3:50 p.m. |
TODD SKAAR |
Associate Professor of Medicine |
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Indiana University School of Medicine |
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4:05 p.m. |
Panel Discussion with Speakers and Workshop Participants |
SESSION V: IDENTIFYING UNMET NEEDS TO ALLEVIATE HEALTH CARE DISPARITIES IN GENOMIC MEDICINE |
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Session Objectives: | |
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Session Moderators: Vence Bonham, Senior Advisor to the Director on Genomics and Health Disparities, National Human Genome Research Institute, and Cathy Wicklund, Director, Graduate Program in Genetic Counseling, Northwestern University |
4:35 p.m. |
Concluding Keynote Lecture |
REED TUCKSON |
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Managing Director |
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Tuckson Health Connections, LLC |
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4:50 p.m. |
Final Panel Discussion |
KATHERINE ANDERSON |
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OTIS BRAWLEY |
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SUE FRIEDMAN |
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JACQUELYN TAYLOR |
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REED TUCKSON |
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5:20 p.m. |
Final Remarks from Workshop Co-Chairs |
VENCE BONHAM, Workshop Co-Chair |
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Senior Advisor to the Director on Genomics and Health Disparities |
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National Human Genome Research Institute |
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National Institutes of Health |
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CATHY WICKLUND, Workshop Co-Chair |
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Director, Graduate Program in Genetic Counseling |
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Past President, National Society of Genetic Counselors |
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Feinberg School of Medicine, Center for Genetic Medicine |
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Northwestern University |
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5:30 p.m. |
Adjourn |