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Page 123
Suggested Citation:"References." National Academies of Sciences, Engineering, and Medicine. 2019. Dialysis Transportation: The Intersection of Transportation and Healthcare. Washington, DC: The National Academies Press. doi: 10.17226/25385.
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Suggested Citation:"References." National Academies of Sciences, Engineering, and Medicine. 2019. Dialysis Transportation: The Intersection of Transportation and Healthcare. Washington, DC: The National Academies Press. doi: 10.17226/25385.
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Suggested Citation:"References." National Academies of Sciences, Engineering, and Medicine. 2019. Dialysis Transportation: The Intersection of Transportation and Healthcare. Washington, DC: The National Academies Press. doi: 10.17226/25385.
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Suggested Citation:"References." National Academies of Sciences, Engineering, and Medicine. 2019. Dialysis Transportation: The Intersection of Transportation and Healthcare. Washington, DC: The National Academies Press. doi: 10.17226/25385.
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Suggested Citation:"References." National Academies of Sciences, Engineering, and Medicine. 2019. Dialysis Transportation: The Intersection of Transportation and Healthcare. Washington, DC: The National Academies Press. doi: 10.17226/25385.
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Page 128
Suggested Citation:"References." National Academies of Sciences, Engineering, and Medicine. 2019. Dialysis Transportation: The Intersection of Transportation and Healthcare. Washington, DC: The National Academies Press. doi: 10.17226/25385.
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Suggested Citation:"References." National Academies of Sciences, Engineering, and Medicine. 2019. Dialysis Transportation: The Intersection of Transportation and Healthcare. Washington, DC: The National Academies Press. doi: 10.17226/25385.
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Suggested Citation:"References." National Academies of Sciences, Engineering, and Medicine. 2019. Dialysis Transportation: The Intersection of Transportation and Healthcare. Washington, DC: The National Academies Press. doi: 10.17226/25385.
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References  R.1 References Works Cited and Resources 1. Rettig, R. A., K. Norris, and A. R. Nissenson. Chronic Kidney Disease in the United States: A Public Policy Imperative. Clinical Journal of the American Society of Nephrology, Vol. 3, No. 6, 2008, pp. 1902–1910. Available at http://cjasn.asnjournals.org/content/3/6/1902.full. 2. United States Renal Data System. 2017 USRDS Annual Data Report: Epidemiology of Kidney Disease in the United States. National Institutes of Health, National Institute of Diabetes and Digestive and Kidney Diseases, Bethesda, MD, 2017. Available at www.usrds.org/adr.aspx. 3. National Chronic Kidney Disease Fact Sheet, 2017. Available at www.cdc.gov/diabetes/pubs/pdf/kidney_factsheet.pdf. 4. Mount Sinai, Icahn School of Medicine. Chronic Kidney Disease. Available at http://www.mountsinai.org/patient-care/service-areas/kidney-diseases/areas- of-care/chronic-kidney-disease. 5. Chronic Kidney Disease. Available at http://www.worldkidneyday.org/faqs/chronic-kidney- disease/. 6. Nicholas, S. B., K. Kalantar-Zadeh, and K. C. Norris. Socioeconomic Disparities in Chronic Kidney Disease. Advanced Chronic Kidney Disease, Vol. 22, No. 1, 2015, pp. 6– 15. Available at www.Ncbi.Nlm.Nih.Gov/Pmc/Articles/PMC4291541/. 7. United States Renal Data System. 2016 USRDS Annual Data Report: Epidemiology of Kidney Disease in the United States. National Institutes of Health, National Institute of Diabetes and Digestive and Kidney Diseases, Bethesda, MD, 2016. Available at www.usrds.org/adr.aspxwww.usrds.org/adr.aspx. 8. National Kidney Foundation. Available at www.kidney.org/atoz/content/transplant-waitlist. 9. Living Kidney Donor Network. Available at www.lkdn.org/kidney_tx_waiting_list.html. 10. GAO. End-Stage Renal Disease. Medicare Payment Re�inements Could Promote Increased Use of Home Dialysis. Report to the Subcommittee on Health, Committee on Ways and Means, House of Representatives, Oct. 2015.

R.2  Dialysis Transportation: The Intersection of Transportation and Healthcare 11. National Kidney Foundation. Palliative Care Helps Patients with Kidney Disease. A to Z Health Guide. Available at www.kidney.org/atoz/content/palliative-care- helps-patients-kidney-disease. 12. Sha�i, T., and R. Jaar. Maintaining Patients on Home Hemodialysis: The Journey Matters as Does the Destination. Clinical Journal of American Society of Nephrology, Vol. 12, No. 8, 2017, pp. 1209–1211. 13. Nephrology News and Issues, Sept. 13, 2017. Available at https://www.healio.com/nephrology/arti�icial- kidney/news/online/%7Ba62bd934-70f2-46c7-9f71- 8102f5a6f8b7%7D/implantable-arti�icial-kidney-developers-working-with-patients- on-device-development. 14. Ride Connection. Improving Transportation for Patients Receiving Dialysis Treatment: A Report on the Findings. Portland, OR, Jan. 2014. Available at http://nationalcenterformobilitymanagement.org/wp- content/uploads/2013/11/RideConnection_DialysisTransportation_ACLStudy_Final- Report.pdf. 15. KFH Group, Inc. Study of Paratransit Services for Dialysis. Legislative Report J00H01.01. Prepared for the Maryland Department of Transportation, Maryland Transit Administration, Oct. 2013. 16. George Mason University School of Public Policy. An Analysis of Transportation Needs for Dialysis Patients in Fairfax County, Virginia. May 2004. 17. Chenitz, K. B., M. Fernando, and J. A. Shea. In-Center Hemodialysis Attendance: Patient Perceptions of Risks, Barriers, and Recommendations. Hemodialysis International, Vol. 18, No. 2, 2014, pp. 364–373. Available at http://opensample.info/in-center-hemodialysis-attendance-patient-perceptions-of- risks-barriers-and-recommendations. 18. Center for Interdisciplinary Health Research and Evaluation. Final Report to the Texas Department of Transportation and the El Paso County Transportation Program, College of Health Sciences, University of Texas at El Paso, El Paso, TX, May 2013. Available at http://utep.edu/chs/cihre/_Files/images/grant%20Awards/FINAL%20REPORT%20 DOT %205-10-13%20Final%20EWVAGS.pdf. 19. Chan, K. E., R. I. Thadhani, and F. W. Maddux. Adherence Barriers to Chronic Dialysis in the United States. Journal of the American Society of Nephrology, Vol. 25, No. 11, 2014, pp. 2642–2648. Available online April 24, 2014 at https://www.ncbi.nlm.nih.gov/pmc/articles/PMC4214530/.

References  R.3 20. Obialo, C., W. C. Hunt, K. Bashir, and P. G. Zager. Relationship of Missed and Shortened Hemodialysis Treatments to Hospitalization and Mortality: Observations from a US Dialysis Network. Clinical Kidney Journal, Vol. 5, No. 4, 2012, pp. 315–319. Available at https://www.ncbi.nlm.nih.gov/pmc/articles/PMC4393476/. 21. Moist, L. M., J. L. Bragg-Gresham, R. L. Pisoni, R. Saran, T. Akiba, J. H. Jacobson, S. Fukuhara, D. L. Mapes, H. C. Rayner, A. Saito, and F. K. Port. Travel Time to Dialysis as a Predictor of Health-Related Quality of Life, Adherence, and Mortality: The Dialysis Outcomes and Practice Patterns Study. American Journal of Kidney Diseases, Vol 51, No. 4, April, 2008, pp. 641–650. Available at https://www.researchgate.net/pro�ile/Hugh_Rayner/publication/5480139_Travel_Time _to_Dialysis_as_a_Predictor_of_HealthRelated_Quality_of_Life_Adherence_and_Mortality_ The_Dialysis_Outcomes_and_Practice_Patterns_Study_DOPPS/links/00b4952b1c749193160000 00.pdf. 22. Diamant, M. J., L. Harwood, S. Movva, B. Wilson, L. Stitt, R. M. Lindsay, and L. M. Moist. A Comparison of Quality of Life and Travel-Related Factors Between In-Center and Satellite-Based Hemodialysis Patients. Clinical Journal of the American Society of Nephrology, Vol. 5, 2010, pp. 268–274. Available at https://www.ncbi.nlm.nih.gov/pmc/articles/PMC2827602/. 23. Chronic Renal Disease Program. Available at http://dhss.delaware.gov/dhss/dss/crdprog.html. 24. Of�ice of the Inspector General of the Federal Department of Health and Human Services, Medicare and State Health Care Programs: Fraud and Abuse; Revisions to the Safe Harbors under the Anti-Kickback Statute and Civil Monetary Penalty Rules Regarding Bene�iciary Inducements, Dec. 2016. Available at https://www.federalregister.gov/documents/2016/12/07/2016-28297/medicare- and-state-health-care-programs-fraud-and-abuse-revisions-to-the-safe-harbors-under- the\. 25. Pronko, R. B. Geisinger Announces Free Patient Transportation Designed to Reduce “No Shows.” PA Business Central/Marcellus Business Central, April 27, 2018. Available at http://m.pabusinesscentral.com/news/2018-04- 27/News/Geisinger_announces_free_patient_transportation_de.html#.WuY8lRZOmEc. 26. Bogren, S. The Dialysis Report: Transportation Demand Outstrips Supply. Community Transportation. Community Transportation Association of America, Washington, D.C., 2011. Available at http://www.infrastructureusa.org/wp- content/uploads/2011/12/fall_winter_11_the_dialysis_report.pdf.

R.4  Dialysis Transportation: The Intersection of Transportation and Healthcare 27. Health Care Financing Administration and the National Association of State Medicaid Directors’ Non-Emergency Transportation Technical Advisory Group, Designing and Operating Cost-Effective Medicaid Non-Emergency Transportation Programs: A Guidebook for State Medicaid Agencies. Health Care Financing Administration and the National Association of State Medicaid Directors’ Non- Emergency Transportation Technical Advisory Group, Washington, D.C., Aug. 1998. 28. Obama, B. United States Health Care Reform—Progress to Data and Next Steps. Special Communication, JAMA Network, Aug. 2, 2016. Available at http://jamanetwork.com/journals/jama/fullarticle/2533698. 29. Kenney, C. Disrupting the Status Quo: Northwell Health’s Mission to Reshape the Future of Health Care. CRC Press, 2017. 30. CMS Innovation Center. Comprehensive ESRD Care Model. Available at https://innovation.cms.gov/Files/fact-sheet/cec- py2.pdf. 31. Heiman, H., and S. Artiga. Beyond Health Care: The Role of Social Determinants in Promoting Health and Health Equity. The Henry J. Kaiser Family Foundation, Nov. 4, 2015. Available at http://kff.org/disparities-policy/issue-brief/beyond-health-care- the-role-of-social-determinants-in-promoting-health-and-health-equity/. 32. Syed, S. T., B. B. Gerber, and L. K. Sharp. Traveling Towards Disease: Transportation Barriers to Health Care Access. Journal of Community Health, Vol. 38, No. 5, 2013, pp. 976–993. 33. Lewin Group. Comprehensive End-Stage Renal Disease Care (CEC) Model. Performance Year 1 Annual Evaluation Report. Prepared for Centers for Medicare and Medicaid Services. Falls Church, VA, Oct. 2017. 34. CareMore Health System’s Collaboration with Lyft Improves Access to Care, Reduces Transportation Cost and Wait Times. Business Wire, Sept. 6, 2016. Available at https://www.businesswire.com/news/home/20160906006087/en/CareMore- Health-System%E2%80%99s-Collaboration-Lyft-Improves-Access. 35. Health & Education Trust. Transportation and the Role of Hospitals. Social Determinants of Health Series, Nov. 2017. Available at www.aha.org/transportation. 36. TNCs Target Medical Transportation. The Transit Wire.com, March 6, 2018. Available at http://www.thetransitwire.com/2018/03/06/tncs-target-medical- transportation/.

References  R.5 37. Catellucci, M. Rideshare Partnerships Help Patients Get to Doctor on Time. Modern Healthcare, April 20, 2017. Available at www.modernhealthcare.com/article/20170420/news/170419851. 38. Adelberg, M., and M. Simon. Non-Emergency Medical Transportation: Will Reshaping Medicaid Sacri�ice An Important Bene�it? Health Affaires Blog, Sept. 20, 2017. Available at www.healthaffairs.org/do/10.1377/hblog20170920.062063/full/. 39. Chaiyachati, K. H., R. A. Hubbard, A. Yeager, B. Mugo, S. Lopez, E. Asch, C. Shi, J. A. Shea, R. Rosin, and D. Grande. Association of Rideshare-Based Transportation Services and Missed Primary Care Appointments: A Clinical Trial. JAMA Internal Medicine, Vol. 3, No. 3, Feb. 2018. Available at https://jamanetwork.com/journals/jamainternalmedicine/article- abstract/2671405?redirect=true. 40. Lawrence, E. D. Henry Ford Health Partners with SPLT, Lyft to Get Patients to Their Appointments. Detroit Free Press, March 10, 2018. Available at https://www.freep.com/story/money/cars/2018/03/10/henry-ford-splt-lyft- patient-rides/354559002/. 41. Director of Patient Care Management at Henry Ford Hospital, personal communication, April 3, 2018. 42. Eberth, J. M., F. Ajmal, K. Bennett, and J. C. Probst. ESRD Facility Characteristics by Rurality and Risk of Closure. South Carolina Rural Health Research Center. Findings Brief, Nov. 2017. Available at http://sc.edu/study/colleges_schools/public_health/research/research_centers/sc_rural_health _research_center/documents/161esrdfacilitycharacteristicsbyruralityandriskofclosure.pdf. 43. Walker, R. C., R. L. Morton, S. C. Palmer, M. R. Marshall, A. Tong, and K. Howard. A Discrete Choice Study of Patient Preferences for Dialysis Modalities. Clinical Journal of the American Society of Nephrology, CJASN e-Press, Oct. 19, 2017. Available at https://cjasn.asnjournals.org/content. 44. Walker, D. R., G. W. Inglese, J. A. Sloand, and P. M. Just. Dialysis Facility and Patient Characteristics Associated with Utilization of Home Dialysis. Clinical Journal of the American Society of Nephrology, Vol. 5, No. 9, Sept. 2010, pp. 1649–1654. Available at https://www.ncbi.nlm.nih.gov/pmc/articles/PMC2974407/. 45. Hercz, G. The Trauma of Dialysis Initiation. Journal of the American Society of Nephrology, Vol. 28, No. 10, 2017, pp. 2835–2837. Available at http://jasn.asnjournals.org/content/28/10/2835.

R.6  Dialysis Transportation: The Intersection of Transportation and Healthcare 46. Lockridge, R., Jr. Using a Transitional Start Dialysis Unit to Improve Modality Selection. Nephrology News and Issues, Feb. 4, 2016. Available at www.nephrologynews.com/using-a-transitional-start-dialysis-unit-to-improve- modality-selection/. 47. Bullock, A. Great News for Native Americans Battling Diabetes—End-Stage Renal Disease Rates Drop Signi�icantly. Indian Health Service, Nov. 24, 2015. Available at https://www.ihs.gov/newsroom/index.cfm/ihs-blog/november2015/great-news-for-native- americans-battling-diabetes-end-stage-renal-disease-rates-drop-signi�icantly/. 48. 49. Remarkable Progress Made Reducing Kidney Failure from Diabetes in Native American populations. Available at https://www.cdc.gov/media/releases/2017/p0110-diabetes-native- americans.html. 50. Caffrey, M. CDC Finds Huge Drop in Diabetes-Related ESRD Among Native Americans. In Focus blog, Jan. 10, 2017. Available at http://www.ajmc.com/focus-of-the- week/cdc-�inds-huge-drop-in-diabetes-related-esrd-among-native-americans. 51. Centers for Disease Control and Prevention. National Diabetes Statistics Report. 2017. Available at www.cdc.gov/diabetes/pdfs/data/statistics/national-diabetes- statistics-report.pdf. 52. American Diabetes Association. National Diabetes Prevention Program Named the First Preventive Health Initiative Eligible for Medicare Coverage via CMMI Expansion, American Diabetes Association, Alexandria, VA, March 23, 2016. Available at http://www.diabetes.org/newsroom/press- releases/2016/national-dpp-named-�irst-preventive-health-initiative-eligible-for- medicare.html. 53. Kaiser Health News KHS Morning Brie�ing. Medicare to Cover Program Pioneered by YMCA to Prevent Diabetes, Nov. 3, 2016. Available at https://khn.org/morning- breakout/medicare-to-cover-program-pioneered-by-ymca-to-prevent-diabetes/. 54. Health Resources and Services Administration. Health Center Program. 2015 National Health Center Data. Available at https://bphc.hrsa.gov/uds/datacenter.aspx?q=d. 55. About Our Health Centers. Available at http://www.nachc.org/about-our-health-centers. 56. Shin, P., and M. Regenstein. After the Affordable Care Act: Health Reform and the Safety Net. The Journal of Law, Medicine & Ethics, Vol. 44, 2016, pp. 585–588. Indian Health Service. Special Diabetes Program for Indians. Changing the Course of Diabetes: Turning Hope into Reality. Report to Congress, 2014. Available at https://www. nihb.org/sdpi/docs/05022016/SDPI_2014_Report_to_Congress.pdf.

References  R.7 57. Paradise, J., S. Rosenbaum, A. Markus, J. Sharac, C. Tran, D. Reynolds, and P. Shin. Community Health Centers: Recent Growth and the Role of the ACA. Issue Brief. Henry J. Kaiser Family Foundation, Jan. 18, 2017. 58. Health Resources & Services Administration. Health Center Program. 2016 National Health Center Data. Available at https://bphc.hrsa.gov/uds/datacenter.aspx. 59. Lynn, J. MediCaring Communities: Getting What We Want and Need in Frail OldAge at an Affordable Price. Altarum Institute, Washington, D.C., 2016. 60. Services. In Programs of All-Inclusive Care for the Elderly (PACE) Manual, Chapter 6. Available at https://www.cms.gov/Regulations-and- Guidance/Guidance/Manuals/downloads/pace111c06.pdf. 61. Bachrach, D., J. Guyer, and A. Levin. Medicaid Coverage of Social Interventions: A Road Map for States. The Milbank Memorial Fund, July 25, 2016, p. 3. Available at https://www.milbank.org/publications/medicaid-coverage-social-interventions- road-map-states/. 62. Brooks, T., and K. Whitener. Leveraging Medicaid to Address Social Determinants and Improve Child and Population Health. Georgetown University Center for Children and Families, Feb.2018. 63. Only claims analyses, such as hospitalizations, costs, and clinical services, are restricted to Medicare patients.

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Dialysis Transportation: The Intersection of Transportation and Healthcare Get This Book
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Medical literature has identified transportation as a factor in missed and shortened dialysis treatments, which leads to negative health outcomes. These adverse outcomes include, among others, increased hospitalizations because patients do not receive their scheduled treatments. For public transportation agencies, dialysis transportation has become a critical concern as increasing numbers of individuals with end stage renal disease turn to their community’s public transit service for their six trips each week for dialysis.

TCRP Research Report 203: Dialysis Transportation: The Intersection of Transportation and Healthcare responds to major concerns of public transportation agencies about the rising demand and costs to provide kidney dialysis trips and about experiences showing these trips require service more specialized than public transportation is designed to provide.

The report documents the complicated relationship of two different industries—public transportation and healthcare, each with its own perspective and requirements—to highlight problems, identify strategies addressing concerns, and suggest options that may be more appropriate for dialysis transportation.

The following additional materials accompany the report:

• A Supplemental Report that includes, among other material, the literature review and results of the project’s surveys, as well as an assessment of the comprehensive data provided through the U.S. Renal Data System, which underlies the project’s forecasting tool.

• A forecasting tool, which is the community data tool referred to in the report. The Excel forecasting tool enables communities to estimate (1) current and projected demand for public sector trips to kidney dialysis facilities, (2) current and projected costs for this transportation, and (3) potential decreases in the demand for, and cost of, public sector trips if home dialysis increases.

• Info Brief 1 of 2 and Info Brief 2 of 2 capture the key findings of the research project.

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