Dialysis Transportation: The Intersection of Transportation and Healthcare (2019)

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R.2  Dialysis Transportation: The Intersection of Transportation and Healthcare 11. National Kidney Foundation. Palliative Care Helps Patients with Kidney Disease. A to Z Health Guide. Available at www.kidney.org/atoz/content/palliative-care- helps-patients-kidney-disease. 12. Sha�i, T., and R. Jaar. Maintaining Patients on Home Hemodialysis: The Journey Matters as Does the Destination. Clinical Journal of American Society of Nephrology, Vol. 12, No. 8, 2017, pp. 1209–1211. 13. Nephrology News and Issues, Sept. 13, 2017. Available at https://www.healio.com/nephrology/arti�icial- kidney/news/online/%7Ba62bd934-70f2-46c7-9f71- 8102f5a6f8b7%7D/implantable-arti�icial-kidney-developers-working-with-patients- on-device-development. 14. Ride Connection. Improving Transportation for Patients Receiving Dialysis Treatment: A Report on the Findings. Portland, OR, Jan. 2014. Available at http://nationalcenterformobilitymanagement.org/wp- content/uploads/2013/11/RideConnection_DialysisTransportation_ACLStudy_Final- Report.pdf. 15. KFH Group, Inc. Study of Paratransit Services for Dialysis. Legislative Report J00H01.01. Prepared for the Maryland Department of Transportation, Maryland Transit Administration, Oct. 2013. 16. George Mason University School of Public Policy. An Analysis of Transportation Needs for Dialysis Patients in Fairfax County, Virginia. May 2004. 17. Chenitz, K. B., M. Fernando, and J. A. Shea. In-Center Hemodialysis Attendance: Patient Perceptions of Risks, Barriers, and Recommendations. Hemodialysis International, Vol. 18, No. 2, 2014, pp. 364–373. Available at http://opensample.info/in-center-hemodialysis-attendance-patient-perceptions-of- risks-barriers-and-recommendations. 18. Center for Interdisciplinary Health Research and Evaluation. Final Report to the Texas Department of Transportation and the El Paso County Transportation Program, College of Health Sciences, University of Texas at El Paso, El Paso, TX, May 2013. Available at http://utep.edu/chs/cihre/_Files/images/grant%20Awards/FINAL%20REPORT%20 DOT %205-10-13%20Final%20EWVAGS.pdf. 19. Chan, K. E., R. I. Thadhani, and F. W. Maddux. Adherence Barriers to Chronic Dialysis in the United States. Journal of the American Society of Nephrology, Vol. 25, No. 11, 2014, pp. 2642–2648. Available online April 24, 2014 at https://www.ncbi.nlm.nih.gov/pmc/articles/PMC4214530/.

References  R.3 20. Obialo, C., W. C. Hunt, K. Bashir, and P. G. Zager. Relationship of Missed and Shortened Hemodialysis Treatments to Hospitalization and Mortality: Observations from a US Dialysis Network. Clinical Kidney Journal, Vol. 5, No. 4, 2012, pp. 315–319. Available at https://www.ncbi.nlm.nih.gov/pmc/articles/PMC4393476/. 21. Moist, L. M., J. L. Bragg-Gresham, R. L. Pisoni, R. Saran, T. Akiba, J. H. Jacobson, S. Fukuhara, D. L. Mapes, H. C. Rayner, A. Saito, and F. K. Port. Travel Time to Dialysis as a Predictor of Health-Related Quality of Life, Adherence, and Mortality: The Dialysis Outcomes and Practice Patterns Study. American Journal of Kidney Diseases, Vol 51, No. 4, April, 2008, pp. 641–650. Available at https://www.researchgate.net/pro�ile/Hugh_Rayner/publication/5480139_Travel_Time _to_Dialysis_as_a_Predictor_of_HealthRelated_Quality_of_Life_Adherence_and_Mortality_ The_Dialysis_Outcomes_and_Practice_Patterns_Study_DOPPS/links/00b4952b1c749193160000 00.pdf. 22. Diamant, M. J., L. Harwood, S. Movva, B. Wilson, L. Stitt, R. M. Lindsay, and L. M. Moist. A Comparison of Quality of Life and Travel-Related Factors Between In-Center and Satellite-Based Hemodialysis Patients. Clinical Journal of the American Society of Nephrology, Vol. 5, 2010, pp. 268–274. Available at https://www.ncbi.nlm.nih.gov/pmc/articles/PMC2827602/. 23. Chronic Renal Disease Program. Available at http://dhss.delaware.gov/dhss/dss/crdprog.html. 24. Of�ice of the Inspector General of the Federal Department of Health and Human Services, Medicare and State Health Care Programs: Fraud and Abuse; Revisions to the Safe Harbors under the Anti-Kickback Statute and Civil Monetary Penalty Rules Regarding Bene�iciary Inducements, Dec. 2016. Available at https://www.federalregister.gov/documents/2016/12/07/2016-28297/medicare- and-state-health-care-programs-fraud-and-abuse-revisions-to-the-safe-harbors-under- the\. 25. Pronko, R. B. Geisinger Announces Free Patient Transportation Designed to Reduce “No Shows.” PA Business Central/Marcellus Business Central, April 27, 2018. Available at http://m.pabusinesscentral.com/news/2018-04- 27/News/Geisinger_announces_free_patient_transportation_de.html#.WuY8lRZOmEc. 26. Bogren, S. The Dialysis Report: Transportation Demand Outstrips Supply. Community Transportation. Community Transportation Association of America, Washington, D.C., 2011. Available at http://www.infrastructureusa.org/wp- content/uploads/2011/12/fall_winter_11_the_dialysis_report.pdf.

R.4  Dialysis Transportation: The Intersection of Transportation and Healthcare 27. Health Care Financing Administration and the National Association of State Medicaid Directors’ Non-Emergency Transportation Technical Advisory Group, Designing and Operating Cost-Effective Medicaid Non-Emergency Transportation Programs: A Guidebook for State Medicaid Agencies. Health Care Financing Administration and the National Association of State Medicaid Directors’ Non- Emergency Transportation Technical Advisory Group, Washington, D.C., Aug. 1998. 28. Obama, B. United States Health Care Reform—Progress to Data and Next Steps. Special Communication, JAMA Network, Aug. 2, 2016. Available at http://jamanetwork.com/journals/jama/fullarticle/2533698. 29. Kenney, C. Disrupting the Status Quo: Northwell Health’s Mission to Reshape the Future of Health Care. CRC Press, 2017. 30. CMS Innovation Center. Comprehensive ESRD Care Model. Available at https://innovation.cms.gov/Files/fact-sheet/cec- py2.pdf. 31. Heiman, H., and S. Artiga. Beyond Health Care: The Role of Social Determinants in Promoting Health and Health Equity. The Henry J. Kaiser Family Foundation, Nov. 4, 2015. Available at http://kff.org/disparities-policy/issue-brief/beyond-health-care- the-role-of-social-determinants-in-promoting-health-and-health-equity/. 32. Syed, S. T., B. B. Gerber, and L. K. Sharp. Traveling Towards Disease: Transportation Barriers to Health Care Access. Journal of Community Health, Vol. 38, No. 5, 2013, pp. 976–993. 33. Lewin Group. Comprehensive End-Stage Renal Disease Care (CEC) Model. Performance Year 1 Annual Evaluation Report. Prepared for Centers for Medicare and Medicaid Services. Falls Church, VA, Oct. 2017. 34. CareMore Health System’s Collaboration with Lyft Improves Access to Care, Reduces Transportation Cost and Wait Times. Business Wire, Sept. 6, 2016. Available at https://www.businesswire.com/news/home/20160906006087/en/CareMore- Health-System%E2%80%99s-Collaboration-Lyft-Improves-Access. 35. Health & Education Trust. Transportation and the Role of Hospitals. Social Determinants of Health Series, Nov. 2017. Available at www.aha.org/transportation. 36. TNCs Target Medical Transportation. The Transit Wire.com, March 6, 2018. Available at http://www.thetransitwire.com/2018/03/06/tncs-target-medical- transportation/.

References  R.5 37. Catellucci, M. Rideshare Partnerships Help Patients Get to Doctor on Time. Modern Healthcare, April 20, 2017. Available at www.modernhealthcare.com/article/20170420/news/170419851. 38. Adelberg, M., and M. Simon. Non-Emergency Medical Transportation: Will Reshaping Medicaid Sacri�ice An Important Bene�it? Health Affaires Blog, Sept. 20, 2017. Available at www.healthaffairs.org/do/10.1377/hblog20170920.062063/full/. 39. Chaiyachati, K. H., R. A. Hubbard, A. Yeager, B. Mugo, S. Lopez, E. Asch, C. Shi, J. A. Shea, R. Rosin, and D. Grande. Association of Rideshare-Based Transportation Services and Missed Primary Care Appointments: A Clinical Trial. JAMA Internal Medicine, Vol. 3, No. 3, Feb. 2018. Available at https://jamanetwork.com/journals/jamainternalmedicine/article- abstract/2671405?redirect=true. 40. Lawrence, E. D. Henry Ford Health Partners with SPLT, Lyft to Get Patients to Their Appointments. Detroit Free Press, March 10, 2018. Available at https://www.freep.com/story/money/cars/2018/03/10/henry-ford-splt-lyft- patient-rides/354559002/. 41. Director of Patient Care Management at Henry Ford Hospital, personal communication, April 3, 2018. 42. Eberth, J. M., F. Ajmal, K. Bennett, and J. C. Probst. ESRD Facility Characteristics by Rurality and Risk of Closure. South Carolina Rural Health Research Center. Findings Brief, Nov. 2017. Available at http://sc.edu/study/colleges_schools/public_health/research/research_centers/sc_rural_health _research_center/documents/161esrdfacilitycharacteristicsbyruralityandriskofclosure.pdf. 43. Walker, R. C., R. L. Morton, S. C. Palmer, M. R. Marshall, A. Tong, and K. Howard. A Discrete Choice Study of Patient Preferences for Dialysis Modalities. Clinical Journal of the American Society of Nephrology, CJASN e-Press, Oct. 19, 2017. Available at https://cjasn.asnjournals.org/content. 44. Walker, D. R., G. W. Inglese, J. A. Sloand, and P. M. Just. Dialysis Facility and Patient Characteristics Associated with Utilization of Home Dialysis. Clinical Journal of the American Society of Nephrology, Vol. 5, No. 9, Sept. 2010, pp. 1649–1654. Available at https://www.ncbi.nlm.nih.gov/pmc/articles/PMC2974407/. 45. Hercz, G. The Trauma of Dialysis Initiation. Journal of the American Society of Nephrology, Vol. 28, No. 10, 2017, pp. 2835–2837. Available at http://jasn.asnjournals.org/content/28/10/2835.

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