Appendix K
Sickle Cell Community-Based Organizations and Patient Groups in the United States
State | Sickle Cell Associations, Nonprofits, and Foundations |
---|---|
National Resources** |
|
Professional Organization Resources |
|
Alabama |
|
Arizona |
|
Arkansas |
|
continued
State | Sickle Cell Associations, Nonprofits, and Foundations |
---|---|
California |
|
Colorado |
|
Connecticut | |
Delaware |
|
Florida |
|
Georgia |
|
Illinois |
|
State | Sickle Cell Associations, Nonprofits, and Foundations |
---|---|
Indiana |
|
Kansas |
|
Kentucky |
|
Louisiana |
|
Maryland | |
Massachusetts |
|
Michigan |
|
Minnesota |
|
Mississippi |
|
Missouri |
|
Nevada |
|
New Jersey |
|
New Mexico |
|
New York | |
North Carolina |
|
Ohio |
continued
State | Sickle Cell Associations, Nonprofits, and Foundations |
---|---|
Oklahoma |
|
Oregon |
|
Pennsylvania | |
South Carolina |
|
Tennessee |
|
Texas | |
Virginia |
|
Washington |
|
Washington, DC |
|
Other Advocacy Organizations |
|
Virtual Only Organization |
|
* A member of the Sickle Cell Disease Association of America.
** National Resources as identified on the Centers for Disease Control and Prevention’s website.
NOTES: List compiled on October 7, 2019. The committee was unable to identify sickle cell associations, nonprofits, or foundations for the following states: Alaska, Hawaii, Idaho, Iowa, Maine, Montana, Nebraska, New Hampshire, North Dakota, Rhode Island, South Dakota, Utah, Vermont, West Virginia, Wisconsin, and Wyoming. Organizations listed here are not all-inclusive and represent organizations that were identifiable on public online platforms. Although the committee is aware of additional groups, there is no available comprehensive list or registry of sickle cell disease community-based organizations or advocacy groups.
SOURCES: CDC, 2019; SCDAA, 2019.
REFERENCES
CDC (Centers for Disease Control and Prevention). 2017. Sickle cell disease (SCD): National resources directory. http://medbox.iiab.me/modules/en-cdc/www.cdc.gov/ncbddd/sicklecell/map/map-nationalresourcedirectory.html (accessed August 28, 2020).
SCDAA (Sickle Cell Disease Association of America). 2019. Find member organizations. https://www.sicklecelldisease.org/support-and-community/find-member-organizations (accessed August 28, 2020).
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