Appendix M
Summary Table of Sickle Cell Trait Discussion in Report
Chapter | Description of Information |
---|---|
3 | Newborn screening and sickle cell trait (SCT) |
Communicating results from screening | |
State-level approaches to screening | |
Role of genetic counseling | |
Reproductive decision making | |
Screening of subpopulations (National Collegiate Athletic Association | |
athletes; service members) | |
4 | SCT health complications |
Future research needed for SCT | |
Need for a national approach to SCT | |
Conclusion 4-4 | |
Recommendation 4-4 | |
5 | Services for individuals living with SCT |
Sickle Cell Disease Treatment Demonstration Program | |
6 | Importance of using appropriate screening test |
Lack of quality indicators or consensus guidelines for genetic counseling | |
Need for national reporting guidelines | |
Committee proposed SCT core measures set | |
8 | Relevant federal agencies involved with SCT activities |
Confusion between diagnoses of SCT and sickle cell disease | |
Community-based organization services available for individuals living with SCT | |
Public education and awareness about SCT |
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