A
Meetings and Presentations
FIRST COMMITTEE MEETING
Washington, D.C.
February 27-28, 2019
National Library of Medicine (NLM) Interpretation of Study Statement of Task
Patricia Brennan, Director, NLM
NLM Program Organization, Services, Products, Resources, and Current NLM Decision Processes for Preserving/Archiving/Accessing/Deaccessioning Data
Patricia Brennan, Director, NLM
Jim Ostell, Director, National Center for Biotechnology Information (NCBI) at NLM
National Institutes of Health (NIH) Strategic Plan for Data Science
Susan Gregurick, Director, Division of Biomedical Technology, Bioinformatics, and Computational Biology, National Institute of General Medical Sciences and Senior Advisor for the NIH Office of Data Science Strategy
Panel Discussion with Representatives of NLM Leadership
Ivor D’Souza, NLM Chief Information Officer
Kim Pruitt, Acting Chief, Information Engineering Branch at NCBI at NLM
Dina Paltoo, NLM Assistant Director for Policy
SECOND COMMITTEE MEETING
Washington, D.C.
March 12-13, 2019
Cost Management of Big Data: Perspectives from Outside NIH
Jeffrey Spies, Founder, 221B LLC
Anita de Waard, Vice President of Research and Collaborations, Elsevier
THIRD COMMITTEE MEETING
Washington, D.C.
May 6-7, 2019
Disruptors in Digital Archiving: Presentation from the U.S. National Archives
Leslie Johnston, Director of Digital Preservation, U.S. National Archives
Disruptors in the Cloud
Vamshidhar Kommineni, Principal Project Manager, Azure Blob Storage, Microsoft
Indicators of Data Management Costs at the European Organization for Nuclear Research
Simone Campana, Deputy Project Leader of the Worldwide Computing Grid
WORKSHOP
Washington, D.C.
July 11-12, 2019
Welcome and Introductory Remarks
David Chu, Institute for Defense Analyses
Tyler Kloefkorn, National Academies
Sammantha Magsino, National Academies
Sponsor Expectations
Patricia Flatley Brennan, NLM
The Burdens and Benefits of “Long Tail” Data Sharing
Adam Ferguson, University of California, San Francisco
Panel Discussion: Researchers’ Perspectives—Managing Risks and Forecasting Costs for Long-Term Data Preservation
Moderator: Margaret Levenstein, University of Michigan
Nuno Bandeira, University of California, San Diego
Jessie Tenenbaum, Duke University and the North Carolina Department of Health and Human Services
Georgia (Gina) Tourassi, Oak Ridge National Laboratory
Robert Williams, University of Tennessee Health Science Center
Panel Discussion: Addressing Data Risks and Their Costs
Moderator: Michelle Meyer, Geisinger
Amy O’Hara, Georgetown University
Brad Malin, Vanderbilt University Medical Center
Trevor Owens, U.S. Library of Congress
Breakout Sessions—Tools and Practices That NLM Could Use to Help Researchers and Funders Better Integrate Risk Management Practices and Considerations into Data Preservation, Archiving, and Accessing Decisions
Data—What’s It Going to Cost, and What’s in It for Me?
Phil Bourne, University of Virginia
Precisely Practicing Medicine from 700 Trillion Points of Data
Atul Butte, University of California, San Francisco
Open Discussion—Reflections, Plans for Day 2, Coordination with Study
Alexa McCray, Harvard Medical School
Panel Discussion: Incentives, Mechanisms, and Practices for Improved Awareness of Cost Consequences in Data Decisions
Moderator: Lars Vilhuber, Cornell University
John Chodacki, University of California Curation Center, California Digital Library
Melissa Cragin, San Diego Supercomputer Center
Wendy Nilsen, National Science Foundation
Lucy Ofiesh, Center for Open Science
Breakout Sessions—Methods to Encourage NIH-Funded Researchers to Consider, Update, and Track Lifetime Data Costs
Panel Discussion: Researchers’ Perspectives—Reflections and Next Steps
Moderator: Margaret Levenstein, University of Michigan
Nuno Bandeira, University of California, San Diego
Jessie Tenenbaum, Duke University and the North Carolina Department of Health and Human Services
Georgia (Gina) Tourassi, Oak Ridge National Laboratory
Robert Williams, University of Tennessee Health Science Center
Closing Remarks—Themes and Opportunities
Maryann Martone, University of California, San Diego
FOURTH COMMITTEE MEETING
Washington, D.C.
September 17-18, 2019
No open session presentations were held during this meeting.
FIFTH COMMITTEE MEETING
Washington, D.C.
October 29-30, 2019
No open session presentations were held during this meeting.
SITE VISITS
National Center for Microscopy and Imaging Research
La Jolla, California
September 11, 2019
National Center for Microscopy and Imaging Research
Mark Ellisman, Director
Steven Peltier, Deputy Director
Willy Wong, Software Technical Lead
Matthew Madany, Researcher
Sean Penticoff, Information Technology Manager
Matthias Haberl, Postdoctoral Fellow
University of California, San Diego/San Diego Supercomputer Center Advanced Cyber-Infrastructure Development Lab
La Jolla, California
September 12, 2019
UCSD/SDSC Advanced Cyber-Infrastructure Development Lab
Jim Short, San Diego Supercomputer Center
Mike Norman, San Diego Supercomputer Center
Sandeep Chandar, San Diego Supercomputer Center
Brian Balderston, San Diego Supercomputer Center
Christine Kirkpatrick, San Diego Supercomputer Center
David Minor, University of California, San Diego Library
Sibyl Schaefer, University of California, San Diego Library
Jeffrey Burke, San Diego Supercomputer Center and Retired Senior Vice President at Seagate
Scott Kahn, Chief Information Officer at LunaDNA, previously Chief Information Officer at Illumina
National Institutes of Health
Bethesda, Maryland
September 18, 2019
National Institute of Mental Health
Greg Farber, Director of the Office of Technology Development and Coordination
National Institute of Nursing Research
Jessica Gill, Lasker Clinical Research Scholar
National Institute of Allergy and Infectious Diseases
John McGowan, Deputy Director for Science Management
Jill Harper, Director for the Office of Biodefense Research and Surety
National Human Genome Research Institute
Eric Green, Director
Valentina Di Francesco, Lead Program Director, Computational Genomics and Data Science, Division of Genome Sciences
Carolyn M. Hutter, Director, Division of Genome Sciences
Ajay Pillai, Program Director, Molecular Libraries Program, Division of Genome Sciences
Shurjo K. Sen, Program Director, Division of Genome Sciences
Ken Wiley, Program Director, Division of Genomic Medicine
Dana-Farber Cancer Institute
Boston, Massachusetts
September 25, 2019
Participants
Eliezer Van Allen
Moritz Kircher
Robert Gray
Laura MacConaill
Clifford Meyer
Daphne Haas-Kogan
Hugo Aerts
Bruce Johnson
Harvard Medical School
Cambridge, Massachusetts
September 25, 2019
Participants
Hosts: Mercè Crosas, David Golan, Caroline Shamu
Faculty
Brent Coull
Chris Harvey
Jason Key
Steve McCarroll
Sean Megason
Jeremy Muhlich
Peter Park
Jon Seidman
Piotr Sliz
Artem Sokolov
Peter Sorger
Yaoyu Wang
Ista Zahn
Libraries
Steve Abrams
Ceilyn Boyd
Julie Goldman
Emily Gustainis
Meghan Kerr
Amber LaFountain
Scott Lapinski
Elaine Martin
Stuart Snydman
Amy Van Epps
Suzanne Wones
Research Computing and Information Technology
Paul Edmons
Mason Miranda
Deb Scott
Paul Williams
The Broad Institute of the Massachusetts Institute of Technology and Harvard
Cambridge, Massachusetts
September 26, 2019
Introduction to the Data Science Platform (DSP)
Anthony Philippakis
Patient Facing Platforms
Andrew Zimmer, Jen Lapan
Data Engineering
Kathleen Tibbetts, Kristian Cibulskis
Overview of Terra
Clare Bernard, Kristian Cibulskis
Meeting with Daniel MacArthur
Overview of the Genome Analysis Toolkit
Eric Banks
ML4CVD: Machine Learning for Cardiovascular Disease
Puneet Batra
Security at Broad
David Bernick
Tour of DSP and Agile Overview
Diolinda Vaz
Amazon Web Services
Seattle, Washington
October 23, 2019
Participants
Marcy Collinson
Aaron Friedman
Elliot Menschik
Ann Merrihew
Sanjay Padhi
Kam Syed
Institute for Systems Biology
Seattle, Washington
October 24, 2019
Participants
Jim Heath
Nathan Price
Sui Huang
Jennifer Hadlock
Andrew Magis
John Earls
Christian Diener
Allen Institute
Seattle, Washington
October 25, 2019
Brain Science
Michael Hawrylycz
Lydia Ng
Shoaib Mufti
Christof Koch
Carol Thompson
Tyler Mollenkopf
Rob Young
John Phillips
Cell Science
Basu Chaudhuri
Immunology
Paul Meijer
Fred Hutchinson Cancer Research Center
Seattle, Washington
October 25, 2019
Participants
Elizabeth Boyd
David Browdy
Marior Dorer
Rachel Galbraith
Jennifer Griffith
Brenda Kostelecky
Elizabeth Masnari
Anders McConachie
Dirk Petersen
Niki Robinson
Bonnie Schae
Matthew Trunnell