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Life-Cycle Decisions for Biomedical Data: The Challenge of Forecasting Costs (2020)

Chapter: Appendix H: Acronyms

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Suggested Citation:"Appendix H: Acronyms." National Academies of Sciences, Engineering, and Medicine. 2020. Life-Cycle Decisions for Biomedical Data: The Challenge of Forecasting Costs. Washington, DC: The National Academies Press. doi: 10.17226/25639.
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H

Acronyms

ABIDE Autism Brain Imaging Data Exchange
ADNI Alzheimer’s Disease Neuroimaging Initiative
AI artificial intelligence
BCBC Beta Cell Biology Consortium
BIDS Brain Imaging Data Structure
BLAST Basic Local Alignment Search Tool
BRAIN Brain Research Through Advancing Innovative Neurotechnologies
BVI business value of information
CCPA California Consumer Privacy Act
CERN European Organization for Nuclear Research
CITI Collaborative Institutional Training Initiative
COMBINE Computational Modeling in Biology Network
CVI cost value of information
DICOM Digital Imaging and Communications in Medicine
DMP data management plan
DNA Deoxyribonucleic acid
DOI Digital Object Identifier
DUOS Data Use Oversight System
EAB external advisory board
ERC European Research Council
FAIR findable, accessible, interoperable, and reusable
FASTQ A text-based format used for storing biological sequence data and quality scores
Page 168 Cite
Suggested Citation:"Appendix H: Acronyms." National Academies of Sciences, Engineering, and Medicine. 2020. Life-Cycle Decisions for Biomedical Data: The Challenge of Forecasting Costs. Washington, DC: The National Academies Press. doi: 10.17226/25639.
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FedRAMP Federal Risk and Authorization Management Plan
FISMA Federal Information Security Act
fMRI functional magnetic resonance imaging
FSRDC Federal Statistical Research Data Center
GB gigabyte
GDPR General Data Privacy Regulation
HDF hierarchical data format
HIPAA Health Insurance Portability and Accountability Act of 1996
HSR human-subjects research
IEDA Interdisciplinary Earth Data Alliance
IGERT Integrative Graduate Education and Research Traineeship
INCF International Neuroinformatics Coordinating Facility
IRB Institutional Review Board
IT information technology
IVI intrinsic value of information
maDMP machine-actionable data management plan
MeSH Medical Subject Headings
NCBI National Center for Biotechnology Information
NDA National Institute of Mental Health Data Archive
NEMO Neuroscience Multi ‘Omic Archive
NIA National Institute on Aging
NIDDK National Institute of Diabetes and Digestive and Kidney Diseases
NIDM Neuro Imaging Data Model
NIF Neuroscience Information Framework
NIH National Institutes of Health
NIH RePORTER NIH Research Portfolio Online Reporting Tools
NIMH National Institute of Mental Health
NITRC NeuroImaging Tools and Resources Collaboratory
NLM National Library of Medicine
NNLM National Network of Libraries of Medicine
NSF National Science Foundation
NWB Neurodata Without Borders
O*NET Occupational Information Network
OASIS Open Access Series of Imaging Studies
ORCID Open Researcher and Contributor Identifier
PB petabyte
PID persistent identifier, personal identifier
RFA request for application
RNA ribonucleic acid
Page 169 Cite
Suggested Citation:"Appendix H: Acronyms." National Academies of Sciences, Engineering, and Medicine. 2020. Life-Cycle Decisions for Biomedical Data: The Challenge of Forecasting Costs. Washington, DC: The National Academies Press. doi: 10.17226/25639.
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SOC Standard Occupational Classification
TB terabyte
UMLS Unified Medical Language System
XML Extensible Markup Language
Page 170 Cite
Suggested Citation:"Appendix H: Acronyms." National Academies of Sciences, Engineering, and Medicine. 2020. Life-Cycle Decisions for Biomedical Data: The Challenge of Forecasting Costs. Washington, DC: The National Academies Press. doi: 10.17226/25639.
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Page 167 Cite
Suggested Citation:"Appendix H: Acronyms." National Academies of Sciences, Engineering, and Medicine. 2020. Life-Cycle Decisions for Biomedical Data: The Challenge of Forecasting Costs. Washington, DC: The National Academies Press. doi: 10.17226/25639.
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Page 168 Cite
Suggested Citation:"Appendix H: Acronyms." National Academies of Sciences, Engineering, and Medicine. 2020. Life-Cycle Decisions for Biomedical Data: The Challenge of Forecasting Costs. Washington, DC: The National Academies Press. doi: 10.17226/25639.
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Page 169 Cite
Suggested Citation:"Appendix H: Acronyms." National Academies of Sciences, Engineering, and Medicine. 2020. Life-Cycle Decisions for Biomedical Data: The Challenge of Forecasting Costs. Washington, DC: The National Academies Press. doi: 10.17226/25639.
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Page 170 Cite
Suggested Citation:"Appendix H: Acronyms." National Academies of Sciences, Engineering, and Medicine. 2020. Life-Cycle Decisions for Biomedical Data: The Challenge of Forecasting Costs. Washington, DC: The National Academies Press. doi: 10.17226/25639.
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Life-Cycle Decisions for Biomedical Data: The Challenge of Forecasting Costs
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Biomedical research results in the collection and storage of increasingly large and complex data sets. Preserving those data so that they are discoverable, accessible, and interpretable accelerates scientific discovery and improves health outcomes, but requires that researchers, data curators, and data archivists consider the long-term disposition of data and the costs of preserving, archiving, and promoting access to them.

Life Cycle Decisions for Biomedical Data examines and assesses approaches and considerations for forecasting costs for preserving, archiving, and promoting access to biomedical research data. This report provides a comprehensive conceptual framework for cost-effective decision making that encourages data accessibility and reuse for researchers, data managers, data archivists, data scientists, and institutions that support platforms that enable biomedical research data preservation, discoverability, and use.

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