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Suggested Citation:"Appendix B: Workshop Agenda." National Academies of Sciences, Engineering, and Medicine. 2020. Neuroscience Data in the Cloud: Opportunities and Challenges: Proceedings of a Workshop. Washington, DC: The National Academies Press. doi: 10.17226/25653.
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Page 75
Suggested Citation:"Appendix B: Workshop Agenda." National Academies of Sciences, Engineering, and Medicine. 2020. Neuroscience Data in the Cloud: Opportunities and Challenges: Proceedings of a Workshop. Washington, DC: The National Academies Press. doi: 10.17226/25653.
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Page 76
Suggested Citation:"Appendix B: Workshop Agenda." National Academies of Sciences, Engineering, and Medicine. 2020. Neuroscience Data in the Cloud: Opportunities and Challenges: Proceedings of a Workshop. Washington, DC: The National Academies Press. doi: 10.17226/25653.
×
Page 77
Suggested Citation:"Appendix B: Workshop Agenda." National Academies of Sciences, Engineering, and Medicine. 2020. Neuroscience Data in the Cloud: Opportunities and Challenges: Proceedings of a Workshop. Washington, DC: The National Academies Press. doi: 10.17226/25653.
×
Page 78
Suggested Citation:"Appendix B: Workshop Agenda." National Academies of Sciences, Engineering, and Medicine. 2020. Neuroscience Data in the Cloud: Opportunities and Challenges: Proceedings of a Workshop. Washington, DC: The National Academies Press. doi: 10.17226/25653.
×
Page 79
Suggested Citation:"Appendix B: Workshop Agenda." National Academies of Sciences, Engineering, and Medicine. 2020. Neuroscience Data in the Cloud: Opportunities and Challenges: Proceedings of a Workshop. Washington, DC: The National Academies Press. doi: 10.17226/25653.
×
Page 80

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Appendix B Workshop Agenda Neuroscience Data in the Cloud—A Workshop September 24, 2019 The Keck Center, Room 100 500 Fifth Street, NW, Washington, DC 20001 Workshop Objectives: This public workshop will convene stakeholders involved in cloud-based neuroscience initiatives and research. The workshop will explore the bur- geoning use of cloud technology to advance neuroscience research and share approaches to addressing current barriers. Participants will include individuals from academia, government, foundations, pharmaceutical and information technology industries, and the legal system. Invited presentations and discussions will be designed to: • Review the landscape of major neuroscience cloud-based initiatives and other uses of cloud technology within neuroscience research. • Discuss aspirational goals for maximizing benefit from data and compute in the cloud by empowering broad and meaningful data sharing and fostering open science. 75 PREPUBLICATION COPY—Uncorrected Proofs

76 NEUROSCIENCE DATA IN THE CLOUD • Consider best practices and policies that would increase efficiencies within and across cloud resources, including around aspects such as: o  Authorization by data sources for and accessibility to a variety of data types by a variety of users ­ Resharing of derived data — ­ Funding, sustainability, and governance — o Protection of privacy  of distribution and type of data may affect the degree (Scope of privacy protection) ­  egulatory compliance (HIPAA, Common Rule, FDA, etc.) —R ­ Consent to allow broad sharing and use of data — ­ Data use agreements — o Assignment of credit, ownership, and licensing ­  wnership of data sources (participants, researchers, agencies) —O ­ Authorization for derivative uses — ­ Acknowledgment of funding sources — ­ Publication: scope and form of citation — o Technical issues ­ Formatting standards (where they exist) — ­ Validation standards (where they exist) — ­ IT standards (communication and security protocols) — ­  rchiving practices (types, locations, and parties responsible) —A o Researcher support and training • Explore potential next steps to move the field forward to develop and deploy best practices in the service of achieving the aspirational goals. SEPTEMBER 24, 2019 8:30 a.m. Welcome and Opening Remarks Barch, Washington University in St. Louis, Deanna Workshop Co-Chair Michael Huerta, National Library of Medicine, National Institutes of Health, Workshop Co-Chair PREPUBLICATION COPY—Uncorrected Proofs

APPENDIX B 77 Session I: The Use of Cloud-Based Technology for Neuroscience Research: An Overview of Successes and Current Barriers Objectives: Explore the range of neuroscience cloud-based initiatives and other uses of cloud technology within neuroscience research. Discuss cur- rent successes and barriers in the field. 8:40 a.m. Session Overview Adam Ferguson, University of California, San Francisco Harnessing the Power of Cloud Technology to Propel Neuroscience Research Forward 8:45 a.m. Speakers Maryann Martone, University of California, San Diego; International Neuroinformatics Coordinating Facility Russell Poldrack (via webcast), Stanford University Nick Weber, National Institutes of Health 9:30 a.m. General Discussion with Speakers 10:00 a.m. Introduction to Breakout Discussion Workshop Co-Chairs 10:15 a.m. BREAK Participants will go to their designated breakout group location as indicated on the meeting handouts. Session II: Breakout Discussions Objectives: In small groups, identify potential best practices and policies that will address current challenges to using cloud-based technologies to advance neuroscience research. Consider variations in best practices as a function of use case (i.e., basic versus clinical research in academia, commercial, and gov- ernment settings). Discuss implications for researcher support and training. 10:30 a.m. Breakout Sessions Protection of Privacy Moderator: Kristen Rosati, Coppersmith Brockelman, PLC Rapporteur: Magali Haas, Cohen Veterans Bioscience Discussants:  . William Hanson III, University of C Pennsylvania Mackay, University of Oxford Clare PREPUBLICATION COPY—Uncorrected Proofs

78 NEUROSCIENCE DATA IN THE CLOUD Assignment of Credit, Ownership, and Licensing Moderator: Jonathan Cohen, Princeton University Rapporteur and Discussant: Lea Shanley, University of Wisconsin–Madison Discussants: Carol Hamilton, RTI International Sean Hill, CAMH Data Management Moderator: Michael Hawrylycz, Allen Institute for Brain Science Rapporteur: Michael Huerta, National Library of Medicine Discussants:  aniel Marcus, Washington University School D of Medicine Rachel Ramoni, Department of Veterans Affairs Janaina Mourao-Miranda, University College London Platform Governance, Funding, and Sustainability Moderator: Gregory Farber, National Institute of Mental Health Rapporteur: Rosa Canet-Avilés, Foundation for the National Institutes of Health Discussants: Sean Horgan, Verily Ruth Marinshaw, Stanford University Anthony Philippakis, Broad Institute of the Massachusetts Institute of Technology and Harvard 12:00 p.m. LUNCH All participants reconvene in Keck 100 following lunch 1:00 p.m. Report Out from Each Breakout Group (10 minutes each) Breakout Session Moderators and Rapporteurs 1:40 p.m. General Discussion 2:10 p.m. Overview of the Afternoon Breakout Discussions Workshop Co-Chairs 2:15 p.m. BREAK  Participants will go to their designated breakout group location as indicated on the meeting handouts. PREPUBLICATION COPY—Uncorrected Proofs

APPENDIX B 79 2:30 p.m. Breakout Discussions All participants reconvene in Keck 100 at 3:25 p.m. Clinical Trial and Research Data Moderator: Lee Lancashire, Cohen Veterans Bioscience Rapporteur: David Alonso, The Michael J. Fox Foundation for Parkinson’s Research Discussants: Lara Mangravite, Sage Bionetworks Rebecca Li, Vivli Genetic Data Moderator: Benjamin Neale, Massachusetts General Hospital; Broad Institute Rapporteur and Discussant: Arpana Agrawal, Washington University in St. Louis Discussant: Michael Nalls, National Institute on Aging Neuroimaging Data Moderator: Michael Milham, Child Mind Institute Rapporteur: Deanna Barch, Washington University in St. Louis Discussants: Jessica Turner, Georgia State University Alan Evans, McGill University Real-World Data Moderator: Margaret Sutherland, Chan Zuckerberg Initiative Rapporteur: Stuart Hoffman, Department of Veterans Affairs Discussants: Adriana Di Martino, Child Mind Institute Peter Wahl, Optum 3:30 p.m. Report Out from Each Breakout Group (10 minutes each) Breakout Session Moderators and Rapporteurs 4:10 p.m. General Discussion PREPUBLICATION COPY—Uncorrected Proofs

80 NEUROSCIENCE DATA IN THE CLOUD Session III: Future Directions Objective: Synthesize key highlights from the workshop discussions, includ- ing identifying next steps and promising areas for future action. 4:30 p.m. Session Overview Magali Haas, Cohen Veterans Bioscience 4:35 p.m. Moving the Field Forward: Reflections on Tangible Next Steps (5 minutes each)  Lightning round of comments from a diverse group of panelists across multiple sectors (e.g., academia, government, industry, and nonprofits), including Ted Willke, Intel Labs; Portland State University Douglas Landsman, National Multiple Sclerosis Society Silvana Borges, Food and Drug Administration 4:50 p.m. General Discussion 5:25 p.m. Synthesis of Workshop Themes and Future Directions Deanna Barch, Washington University in St. Louis, Workshop Co-Chair Michael Huerta, National Library of Medicine, National Institutes of Health, Workshop Co-Chair 5:30 p.m. ADJOURN WORKSHOP PREPUBLICATION COPY—Uncorrected Proofs

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The cloud model of data sharing has led to a vast increase in the quantity and complexity of data and expanded access to these data, which has attracted many more researchers, enabled multi-national neuroscience collaborations, and facilitated the development of many new tools. Yet, the cloud model has also produced new challenges related to data storage, organization, and protection. Merely switching the technical infrastructure from local repositories to cloud repositories is not enough to optimize data use.

To explore the burgeoning use of cloud computing in neuroscience, the National Academies Forum on Neuroscience and Nervous System Disorders hosted a workshop on September 24, 2019. A broad range of stakeholders involved in cloud-based neuroscience initiatives and research explored the use of cloud technology to advance neuroscience research and shared approaches to address current barriers. This publication summarizes the presentation and discussion of the workshop.

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