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Suggested Citation:"Appendix B: Workshop Agenda." National Academies of Sciences, Engineering, and Medicine. 2020. Neuroscience Data in the Cloud: Opportunities and Challenges: Proceedings of a Workshop. Washington, DC: The National Academies Press. doi: 10.17226/25653.
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Appendix B

Workshop Agenda

Neuroscience Data in the Cloud—A Workshop
September 24, 2019
The Keck Center, Room 100
500 Fifth Street, NW, Washington, DC 20001

Workshop Objectives:

This public workshop will convene stakeholders involved in cloud-based neuroscience initiatives and research. The workshop will explore the burgeoning use of cloud technology to advance neuroscience research and share approaches to addressing current barriers. Participants will include individuals from academia, government, foundations, pharmaceutical and information technology industries, and the legal system.

Invited presentations and discussions will be designed to:

  • Review the landscape of major neuroscience cloud-based initiatives and other uses of cloud technology within neuroscience research.
  • Discuss aspirational goals for maximizing benefit from data and compute in the cloud by empowering broad and meaningful data sharing and fostering open science.
Suggested Citation:"Appendix B: Workshop Agenda." National Academies of Sciences, Engineering, and Medicine. 2020. Neuroscience Data in the Cloud: Opportunities and Challenges: Proceedings of a Workshop. Washington, DC: The National Academies Press. doi: 10.17226/25653.
×
  • Consider best practices and policies that would increase efficiencies within and across cloud resources, including around aspects such as:
    • Authorization by data sources for and accessibility to a variety of data types by a variety of users
      • Resharing of derived data
      • Funding, sustainability, and governance
    • Protection of privacy

      (Scope of distribution and type of data may affect the degree of privacy protection)

      • Regulatory compliance (HIPAA, Common Rule, FDA, etc.)
      • Consent to allow broad sharing and use of data
      • Data use agreements
    • Assignment of credit, ownership, and licensing
      • Ownership of data sources (participants, researchers, agencies)
      • Authorization for derivative uses
      • Acknowledgment of funding sources
      • Publication: scope and form of citation
    • Technical issues
      • Formatting standards (where they exist)
      • Validation standards (where they exist)
      • IT standards (communication and security protocols)
      • Archiving practices (types, locations, and parties responsible)
    • Researcher support and training
  • Explore potential next steps to move the field forward to develop and deploy best practices in the service of achieving aspirational goals.

SEPTEMBER 24, 2019

8:30 a.m. Welcome and Opening Remarks

DEANNA BARCH, Washington University in St. Louis, Workshop Co-Chair

MICHAEL HUERTA, National Library of Medicine, National Institutes of Health, Workshop Co-Chair

Suggested Citation:"Appendix B: Workshop Agenda." National Academies of Sciences, Engineering, and Medicine. 2020. Neuroscience Data in the Cloud: Opportunities and Challenges: Proceedings of a Workshop. Washington, DC: The National Academies Press. doi: 10.17226/25653.
×

Session I: The Use of Cloud-Based Technology for Neuroscience Research: An Overview of Successes and Current Barriers

Objectives: Explore the range of neuroscience cloud-based initiatives and other uses of cloud technology within neuroscience research. Discuss current successes and barriers in the field.

8:40 a.m. Session Overview

ADAM FERGUSON, University of California, San Francisco

8:45 a.m. Harnessing the Power of Cloud Technology to Propel Neuroscience Research Forward
Speakers:

MARYANN MARTONE, University of California, San Diego; International Neuroinformatics Coordinating Facility

RUSSELL POLDRACK (via webcast), Stanford University

NICK WEBER, National Institutes of Health

9:30 a.m. General Discussion with Speakers
10:00 a.m. Introduction to Breakout Discussion
Workshop Co-Chairs
10:15 a.m. BREAK
Participants will go to their designated breakout group location as indicated on the meeting handouts.

Session II: Breakout Discussions

Objectives: In small groups, identify potential best practices and policies that will address current challenges to using cloud-based technologies to advance neuroscience research. Consider variations in best practices as a function of use case (i.e., basic versus clinical research in academia, commercial, and government settings). Discuss implications for researcher support and training.

10:30 a.m. Breakout Sessions
Protection of Privacy

Moderator: KRISTEN ROSATI, Coppersmith Brockelman, PLC

Rapporteur: MAGALI HAAS, Cohen Veterans Bioscience

Discussants: C. WILLIAM HANSON III, University of Pennsylvania

CLARE MACKAY, University of Oxford

Suggested Citation:"Appendix B: Workshop Agenda." National Academies of Sciences, Engineering, and Medicine. 2020. Neuroscience Data in the Cloud: Opportunities and Challenges: Proceedings of a Workshop. Washington, DC: The National Academies Press. doi: 10.17226/25653.
×
Assignment of Credit, Ownership, and Licensing

Moderator: JONATHAN COHEN, Princeton University

Rapporteur and Discussant: LEA SHANLEY, University of Wisconsin–Madison

Discussants: CAROL HAMILTON, RTI International

SEAN HILL, Centre for Addiction and Mental Health (CAMH)

Data Management

Moderator: MICHAEL HAWRYLYCZ, Allen Institute for Brain Science

Rapporteur: MICHAEL HUERTA, National Library of Medicine

Discussants: DANIEL MARCUS, Washington University School of Medicine in St. Louis

RACHEL RAMONI, Department of Veterans Affairs

JANAINA MOURAO-MIRANDA, University College London

Platform Governance, Funding, and Sustainability

Moderator: GREGORY FARBER, National Institute of Mental Health

Rapporteur: ROSA CANET-AVILÉS, Foundation for the National Institutes of Health

Discussants: SEAN HORGAN, Verily

RUTH MARINSHAW, Stanford University

ANTHONY PHILIPPAKIS, Broad Institute of the Massachusetts Institute of Technology and Harvard

12:00 p.m. LUNCH
All participants reconvene in Keck 100 following lunch.
1:00 p.m. Report Out from Each Breakout Group (10 minutes each) Breakout Session Moderators and Rapporteurs
1:40 p.m. General Discussion
2:10 p.m. Overview of the Afternoon Breakout Discussions
Workshop Co-Chairs
2:15 p.m. BREAK
Participants will go to their designated breakout group location as indicated on the meeting handouts.
Suggested Citation:"Appendix B: Workshop Agenda." National Academies of Sciences, Engineering, and Medicine. 2020. Neuroscience Data in the Cloud: Opportunities and Challenges: Proceedings of a Workshop. Washington, DC: The National Academies Press. doi: 10.17226/25653.
×
2:30 p.m. Breakout Discussions
All participants reconvene in Keck 100 at 3:25 p.m.
Clinical Trial and Research Data

Moderator: LEE LANCASHIRE, Cohen Veterans Bioscience

Rapporteur: DAVID ALONSO, The Michael J. Fox Foundation for Parkinson’s Research

Discussants: LARA MANGRAVITE, Sage Bionetworks

REBECCA LI, Vivli

Genetic Data

Moderator: BENJAMIN NEALE, Massachusetts General Hospital; Broad Institute

Rapporteur and Discussant: ARPANA AGRAWAL, Washington University in St. Louis

Discussant: MICHAEL NALLS, National Institute on Aging

Neuroimaging Data

Moderator: MICHAEL MILHAM, Child Mind Institute

Rapporteur: DEANNA BARCH, Washington University in St. Louis

Discussants: JESSICA TURNER, Georgia State University

ALAN EVANS, McGill University

Real-World Data

Moderator: MARGARET SUTHERLAND, Chan Zuckerberg Initiative

Rapporteur: STUART HOFFMAN, Department of Veterans Affairs

Discussants: ADRIANA DI MARTINO, Child Mind Institute

PETER WAHL, Optum Analytics

3:30 p.m. Report Out from Each Breakout Group (10 minutes each)
Breakout Session Moderators and Rapporteurs
4:10 p.m. General Discussion
Suggested Citation:"Appendix B: Workshop Agenda." National Academies of Sciences, Engineering, and Medicine. 2020. Neuroscience Data in the Cloud: Opportunities and Challenges: Proceedings of a Workshop. Washington, DC: The National Academies Press. doi: 10.17226/25653.
×

Session III: Future Directions

Objective: Synthesize key highlights from the workshop discussions, including identifying next steps and promising areas for future action.

4:30 p.m. Session Overview

MAGALI HAAS, Cohen Veterans Bioscience

4:35 p.m. Moving the Field Forward: Reflections on Tangible Next Steps (5 minutes each)
Lightning round of comments from a diverse group of panelists across multiple sectors (e.g., academia, government, industry, and nonprofits), including

TED WILLKE, Intel Labs; Portland State University

DOUGLAS LANDSMAN, National Multiple Sclerosis Society

SILVANA BORGES, Food and Drug Administration

4:50 p.m. General Discussion
5:25 p.m. Synthesis of Workshop Themes and Future Directions

DEANNA BARCH, Washington University in St. Louis, Workshop Co-Chair

MICHAEL HUERTA, National Library of Medicine, National Institutes of Health, Workshop Co-Chair

5:30 p.m. ADJOURN WORKSHOP
Suggested Citation:"Appendix B: Workshop Agenda." National Academies of Sciences, Engineering, and Medicine. 2020. Neuroscience Data in the Cloud: Opportunities and Challenges: Proceedings of a Workshop. Washington, DC: The National Academies Press. doi: 10.17226/25653.
×
Page 75
Suggested Citation:"Appendix B: Workshop Agenda." National Academies of Sciences, Engineering, and Medicine. 2020. Neuroscience Data in the Cloud: Opportunities and Challenges: Proceedings of a Workshop. Washington, DC: The National Academies Press. doi: 10.17226/25653.
×
Page 76
Suggested Citation:"Appendix B: Workshop Agenda." National Academies of Sciences, Engineering, and Medicine. 2020. Neuroscience Data in the Cloud: Opportunities and Challenges: Proceedings of a Workshop. Washington, DC: The National Academies Press. doi: 10.17226/25653.
×
Page 77
Suggested Citation:"Appendix B: Workshop Agenda." National Academies of Sciences, Engineering, and Medicine. 2020. Neuroscience Data in the Cloud: Opportunities and Challenges: Proceedings of a Workshop. Washington, DC: The National Academies Press. doi: 10.17226/25653.
×
Page 78
Suggested Citation:"Appendix B: Workshop Agenda." National Academies of Sciences, Engineering, and Medicine. 2020. Neuroscience Data in the Cloud: Opportunities and Challenges: Proceedings of a Workshop. Washington, DC: The National Academies Press. doi: 10.17226/25653.
×
Page 79
Suggested Citation:"Appendix B: Workshop Agenda." National Academies of Sciences, Engineering, and Medicine. 2020. Neuroscience Data in the Cloud: Opportunities and Challenges: Proceedings of a Workshop. Washington, DC: The National Academies Press. doi: 10.17226/25653.
×
Page 80
Next: Appendix C: Registered In-Person Attendees »
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The cloud model of data sharing has led to a vast increase in the quantity and complexity of data and expanded access to these data, which has attracted many more researchers, enabled multi-national neuroscience collaborations, and facilitated the development of many new tools. Yet, the cloud model has also produced new challenges related to data storage, organization, and protection. Merely switching the technical infrastructure from local repositories to cloud repositories is not enough to optimize data use.

To explore the burgeoning use of cloud computing in neuroscience, the National Academies Forum on Neuroscience and Nervous System Disorders hosted a workshop on September 24, 2019. A broad range of stakeholders involved in cloud-based neuroscience initiatives and research explored the use of cloud technology to advance neuroscience research and shared approaches to address current barriers. This publication summarizes the presentation and discussion of the workshop.

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