Appendix B
Workshop Agenda
Neuroscience Data in the Cloud—A Workshop
September 24, 2019
The Keck Center, Room 100
500 Fifth Street, NW, Washington, DC 20001
Workshop Objectives:
This public workshop will convene stakeholders involved in cloud-based neuroscience initiatives and research. The workshop will explore the burgeoning use of cloud technology to advance neuroscience research and share approaches to addressing current barriers. Participants will include individuals from academia, government, foundations, pharmaceutical and information technology industries, and the legal system.
Invited presentations and discussions will be designed to:
- Review the landscape of major neuroscience cloud-based initiatives and other uses of cloud technology within neuroscience research.
- Discuss aspirational goals for maximizing benefit from data and compute in the cloud by empowering broad and meaningful data sharing and fostering open science.
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Consider best practices and policies that would increase efficiencies within and across cloud resources, including around aspects such as:
- Authorization by data sources for and accessibility to a variety of data types by a variety of users
- Resharing of derived data
- Funding, sustainability, and governance
- Protection of privacy
(Scope of distribution and type of data may affect the degree of privacy protection)
- Regulatory compliance (HIPAA, Common Rule, FDA, etc.)
- Consent to allow broad sharing and use of data
- Data use agreements
- Assignment of credit, ownership, and licensing
- Ownership of data sources (participants, researchers, agencies)
- Authorization for derivative uses
- Acknowledgment of funding sources
- Publication: scope and form of citation
- Technical issues
- Formatting standards (where they exist)
- Validation standards (where they exist)
- IT standards (communication and security protocols)
- Archiving practices (types, locations, and parties responsible)
- Researcher support and training
- Authorization by data sources for and accessibility to a variety of data types by a variety of users
- Explore potential next steps to move the field forward to develop and deploy best practices in the service of achieving aspirational goals.
SEPTEMBER 24, 2019
| 8:30 a.m. | Welcome and Opening Remarks |
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DEANNA BARCH, Washington University in St. Louis, Workshop Co-Chair |
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MICHAEL HUERTA, National Library of Medicine, National Institutes of Health, Workshop Co-Chair |
Session I: The Use of Cloud-Based Technology for Neuroscience Research: An Overview of Successes and Current Barriers
Objectives: Explore the range of neuroscience cloud-based initiatives and other uses of cloud technology within neuroscience research. Discuss current successes and barriers in the field.
| 8:40 a.m. | Session Overview |
|
ADAM FERGUSON, University of California, San Francisco |
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| 8:45 a.m. | Harnessing the Power of Cloud Technology to Propel Neuroscience Research Forward |
| Speakers: | |
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MARYANN MARTONE, University of California, San Diego; International Neuroinformatics Coordinating Facility |
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RUSSELL POLDRACK (via webcast), Stanford University |
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NICK WEBER, National Institutes of Health |
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| 9:30 a.m. | General Discussion with Speakers |
| 10:00 a.m. | Introduction to Breakout Discussion |
| Workshop Co-Chairs | |
| 10:15 a.m. | BREAK |
| Participants will go to their designated breakout group location as indicated on the meeting handouts. |
Session II: Breakout Discussions
Objectives: In small groups, identify potential best practices and policies that will address current challenges to using cloud-based technologies to advance neuroscience research. Consider variations in best practices as a function of use case (i.e., basic versus clinical research in academia, commercial, and government settings). Discuss implications for researcher support and training.
| 10:30 a.m. | Breakout Sessions |
| Protection of Privacy | |
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Moderator: KRISTEN ROSATI, Coppersmith Brockelman, PLC |
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Rapporteur: MAGALI HAAS, Cohen Veterans Bioscience |
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Discussants: C. WILLIAM HANSON III, University of Pennsylvania |
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CLARE MACKAY, University of Oxford |
| Assignment of Credit, Ownership, and Licensing | |
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Moderator: JONATHAN COHEN, Princeton University |
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Rapporteur and Discussant: LEA SHANLEY, University of Wisconsin–Madison |
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Discussants: CAROL HAMILTON, RTI International |
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SEAN HILL, Centre for Addiction and Mental Health (CAMH) |
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| Data Management | |
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Moderator: MICHAEL HAWRYLYCZ, Allen Institute for Brain Science |
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Rapporteur: MICHAEL HUERTA, National Library of Medicine |
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Discussants: DANIEL MARCUS, Washington University School of Medicine in St. Louis |
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RACHEL RAMONI, Department of Veterans Affairs |
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JANAINA MOURAO-MIRANDA, University College London |
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| Platform Governance, Funding, and Sustainability | |
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Moderator: GREGORY FARBER, National Institute of Mental Health |
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Rapporteur: ROSA CANET-AVILÉS, Foundation for the National Institutes of Health |
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Discussants: SEAN HORGAN, Verily |
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RUTH MARINSHAW, Stanford University |
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ANTHONY PHILIPPAKIS, Broad Institute of the Massachusetts Institute of Technology and Harvard |
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| 12:00 p.m. | LUNCH |
| All participants reconvene in Keck 100 following lunch. | |
| 1:00 p.m. | Report Out from Each Breakout Group (10 minutes each) Breakout Session Moderators and Rapporteurs |
| 1:40 p.m. | General Discussion |
| 2:10 p.m. | Overview of the Afternoon Breakout Discussions |
| Workshop Co-Chairs | |
| 2:15 p.m. | BREAK |
| Participants will go to their designated breakout group location as indicated on the meeting handouts. |
| 2:30 p.m. | Breakout Discussions |
| All participants reconvene in Keck 100 at 3:25 p.m. | |
| Clinical Trial and Research Data | |
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Moderator: LEE LANCASHIRE, Cohen Veterans Bioscience |
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Rapporteur: DAVID ALONSO, The Michael J. Fox Foundation for Parkinson’s Research |
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Discussants: LARA MANGRAVITE, Sage Bionetworks |
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REBECCA LI, Vivli |
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| Genetic Data | |
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Moderator: BENJAMIN NEALE, Massachusetts General Hospital; Broad Institute |
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Rapporteur and Discussant: ARPANA AGRAWAL, Washington University in St. Louis |
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Discussant: MICHAEL NALLS, National Institute on Aging |
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| Neuroimaging Data | |
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Moderator: MICHAEL MILHAM, Child Mind Institute |
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Rapporteur: DEANNA BARCH, Washington University in St. Louis |
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Discussants: JESSICA TURNER, Georgia State University |
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ALAN EVANS, McGill University |
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| Real-World Data | |
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Moderator: MARGARET SUTHERLAND, Chan Zuckerberg Initiative |
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Rapporteur: STUART HOFFMAN, Department of Veterans Affairs |
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Discussants: ADRIANA DI MARTINO, Child Mind Institute |
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PETER WAHL, Optum Analytics |
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| 3:30 p.m. | Report Out from Each Breakout Group (10 minutes each) |
| Breakout Session Moderators and Rapporteurs | |
| 4:10 p.m. | General Discussion |
Session III: Future Directions
Objective: Synthesize key highlights from the workshop discussions, including identifying next steps and promising areas for future action.
| 4:30 p.m. | Session Overview |
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MAGALI HAAS, Cohen Veterans Bioscience |
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| 4:35 p.m. | Moving the Field Forward: Reflections on Tangible Next Steps (5 minutes each) |
| Lightning round of comments from a diverse group of panelists across multiple sectors (e.g., academia, government, industry, and nonprofits), including | |
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TED WILLKE, Intel Labs; Portland State University |
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DOUGLAS LANDSMAN, National Multiple Sclerosis Society |
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SILVANA BORGES, Food and Drug Administration |
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| 4:50 p.m. | General Discussion |
| 5:25 p.m. | Synthesis of Workshop Themes and Future Directions |
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DEANNA BARCH, Washington University in St. Louis, Workshop Co-Chair |
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MICHAEL HUERTA, National Library of Medicine, National Institutes of Health, Workshop Co-Chair |
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| 5:30 p.m. | ADJOURN WORKSHOP |
