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Suggested Citation:"Appendix A: Statement of Task." National Academies of Sciences, Engineering, and Medicine. 2020. Health Literacy and Communication Strategies in Oncology: Proceedings of a Workshop. Washington, DC: The National Academies Press. doi: 10.17226/25664.
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Appendix A

Statement of Task

A planning committee will plan and host a 1.5-day public workshop that will examine opportunities, methods, and strategies to improve the communication of information about cancer care at the level of the clinic visit, the health care organization, and the community. The workshop will feature invited presentations and panel discussions on topics that may include

  • Strategies and best practices for health care professionals to improve the communication of evidence-based information regarding cancer risk, prevention, detection, or treatment to patients and their families;
  • Effective communication strategies to build trust and counter inaccurate information about cancer, especially given the evolving nature of the evidence base and the increasing complexity of cancer care;
  • Opportunities to tailor messaging strategies and information about cancer to meet the needs of diverse populations; and
  • Procedures, policies, and programs at the organizational level to assess and consistently address the diverse health literacy needs of patients and their families.

The committee will develop the agenda for the workshop sessions, select and invite speakers and discussants, and moderate the discussions. A proceedings of the presentations and discussions at the workshop will be prepared by a designated rapporteur in accordance with institutional guidelines.

Suggested Citation:"Appendix A: Statement of Task." National Academies of Sciences, Engineering, and Medicine. 2020. Health Literacy and Communication Strategies in Oncology: Proceedings of a Workshop. Washington, DC: The National Academies Press. doi: 10.17226/25664.
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Suggested Citation:"Appendix A: Statement of Task." National Academies of Sciences, Engineering, and Medicine. 2020. Health Literacy and Communication Strategies in Oncology: Proceedings of a Workshop. Washington, DC: The National Academies Press. doi: 10.17226/25664.
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Page 51
Suggested Citation:"Appendix A: Statement of Task." National Academies of Sciences, Engineering, and Medicine. 2020. Health Literacy and Communication Strategies in Oncology: Proceedings of a Workshop. Washington, DC: The National Academies Press. doi: 10.17226/25664.
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Page 52
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Health literacy is a critical skill for engaging in healthy behaviors to reduce disease risk and improve health outcomes across the continuum of cancer care. However, estimates suggest that more than one-third of the U.S. adult population has low health literacy, and nearly half of all patients with cancer have difficulty understanding information about their disease or treatment. Low health literacy among patients with cancer is associated with poor health and treatment outcomes, including lower adherence to treatment, higher rates of missed appointments, and an increased risk of hospitalization. Low health literacy can also impede informed decision making, especially as cancer care becomes increasingly complex and as patients and their families take more active roles in treatment decisions.

To examine opportunities to improve communication across the cancer care continuum, the National Cancer Policy Forum collaborated with the Roundtable on Health Literacy to host a workshop, Health Literacy and Communication Strategies in Oncology, July 15-16, 2019, in Washington, DC. Patients, patient advocates, clinicians, and researchers, representatives of health care organizations, academic medical centers, insurers, and federal agencies explored the challenges of achieving effective communication in cancer care. This publication summarizes the presentations and discussions of the workshop.

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