Appendix A
Workshop Agenda
Keck Center of the National Academies
Room 100
500 Fifth Street, NW
Washington, DC 20001
8:30 a.m. | Opening Remarks and Charge to Workshop Speakers and Participants |
JEFFREY KAHN | |
Andreas C. Dracopoulos Director | |
Robert Henry Levi and Ryda Hecht Levi Professor of | |
Bioethics and Public Policy | |
Berman Institute of Bioethics | |
Professor | |
Health Policy and Management | |
Bloomberg School of Public Health | |
Johns Hopkins University |
SESSION I: DEVELOPING, TESTING, AND INTEGRATING NEW DIGITAL TECHNOLOGIES INTO RESEARCH AND CLINICAL CARE
Session Moderator: Bernard Lo, The Greenwall Foundation
8:45 a.m. | DEBORAH ESTRIN |
Associate Dean and Robert V. Tishman ’37 Professor Cornell NYC Tech |
|
9:00 a.m. | MICHELLE MELLO |
Professor of Law and Medicine | |
Stanford University |
SESSION II: USING ARTIFICIAL INTELLIGENCE AND MACHINE LEARNING IN RESEARCH AND CLINICAL CARE
Session Moderator: Bernard Lo, The Greenwall Foundation
9:15 a.m. | SUCHI SARIA |
John C. Malone Assistant Professor | |
Departments of Computer Science and Health Policy and Management | |
Johns Hopkins University | |
9:30 a.m. | PILAR OSSORIO |
Professor of Law and Bioethics | |
University of Wisconsin | |
9:45 a.m. | Panel Discussion with Speakers from Sessions I and II |
10:45 a.m. | Break |
SESSION III: ETHICAL QUESTIONS AROUND NONTRADITIONAL APPROACHES FOR DATA COLLECTION AND USE
Session Moderator: Camille Nebeker, University of California, San Diego
11:00 a.m. | ERIC HEKLER |
Associate Professor | |
Department of Family Medicine and Public Health | |
University of California, San Diego | |
11:15 a.m. | JOHN WILBANKS |
Chief Commons Officer | |
Sage Bionetworks | |
11:30 a.m. | Panel Discussion with Speakers and Workshop Participants |
ERIC HEKLER | |
JOHN WILBANKS | |
CAMILLE NEBEKER | |
Associate Professor | |
School of Medicine | |
University of California, San Diego | |
12:00 p.m. | Break for Lunch |
SESSION IV: UNDERSTANDING THE IMPACT OF INEQUALITY ON HEALTH, DISEASE, AND WHO PARTICIPATES IN RESEARCH
Moderator: Anita Allen, University of Pennsylvania
1:15 p.m. | DOROTHY ROBERTS |
George A. Weiss University Professor of Law and Sociology | |
Raymond Pace and Sadie Tanner Mossell Alexander | |
Professor of Civil Rights | |
University of Pennsylvania | |
1:30 p.m. | VANESSA HIRATSUKA |
Senior Researcher | |
Southcentral Foundation | |
1:45 p.m. | Panel Discussion with Speakers and Workshop Participants |
SESSION V: CHALLENGES AND OPPORTUNITIES IN THE BIOETHICS RESEARCH WORKFORCE INFRASTRUCTURE AND FOR ENSURING DIVERSITY
Session Moderator: Maria Merritt, Johns Hopkins University
2:15 p.m. | BEN WILFOND |
Director | |
Treuman Katz Center for Pediatric Bioethics | |
Seattle Children’s Hospital and Research Institute Professor and Chief | |
Division of Bioethics and Palliative Care, Department of Pediatrics | |
University of Washington School of Medicine | |
2:20 p.m. | CARLA SAENZ |
Regional Advisor on Bioethics | |
Pan American Health Organization | |
2:25 p.m. | MICHAEL SUMMERS |
Professor of Chemistry and Investigator | |
Howard Hughes Medical Institute | |
University of Maryland, Baltimore County | |
2:30 p.m. | Moderated Discussion with Panelists |
3:00 p.m. | Questions from Workshop Participants |
3:30 p.m. | Break |
SESSION VI: LOOKING TO THE FUTURE AND ANTICIPATING ETHICAL ISSUES RELATED TO BIOMEDICAL RESEARCH
SESSION OBJECTIVES:
- Discuss the action items covered during the day and what is needed to prepare for and address the challenges of emerging bioethical issues over the next 5–10 years.
Session Moderator: Jeffrey Kahn, Johns Hopkins University
3:45 p.m. | Reactions from Stakeholders |
TANIA SIMONCELLI | |
Director of Policy for Science | |
Chan Zuckerberg Initiative | |
DAN O’CONNOR | |
Head of Humanities and Social Science | |
Wellcome Trust | |
DAVID CASTLE | |
Executive-in-Residence | |
Genome Canada | |
Professor of Public Administration | |
University of Victoria | |
4:00 p.m. | Discussion with Workshop Participants |
4:30 p.m. | Insights from the Day’s Discussions |
JEFFREY KAHN | |
Andreas C. Dracopoulos Director | |
Robert Henry Levi and Ryda Hecht Levi Professor of Bioethics and Public Policy | |
Berman Institute of Bioethics | |
Professor | |
Health Policy and Management | |
Bloomberg School of Public Health | |
Johns Hopkins University | |
4:45 p.m. | Concluding Remarks |
5:00 p.m. | Adjourn |
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