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Appendix B Public Committee Meeting Agendas The committee held three in-person meetings in June 2020, and portions of two of the meetings were open to the public. The agendas for these open sessions are included in this appendix. To inform the committeeâs deliberations, various information-gathering mechanisms were used throughout the study: 1. The committeeâs first in-person meeting in June 2020 included an open session where a representative from the Centers for Disease Control and Preventionâs SARS-CoV-2 Sequencing for Public Health Emergency Response, Epidemiology, and Surveillance (SPHERES) Program provided its perspectives on the charge to the committee and state and local monitoring of SARS-CoV-2 in order to provide additional background information and context for the study. 2. The committeeâs second in-person meeting in June 2020 included a public session where the committee heard from researchers operating in three major areas: (1) those studying genomic data, precision epidemiology, and the intersection of emerging infectious disease data sources; (2) those with in-depth knowledge regarding the considerations around the sharing, linkage, and public health application of genomic, epidemiologic, and clinical data; and (3) those who can speak to the lessons learned from previous approaches and existing initiatives. These helped the committee to better understand the nature of the data needs space, as well as the challenges experienced. PUBLIC AGENDAS Friday, June 12, 2020 Virtual Meeting OPEN SESSION PREPUBLICATION COPY: UNCORRECTED PROOFS 79
SESSION III Sponsor Briefing: Discussion of the Committeeâs Charge Objective: To hear from the sponsors of the study regarding their perspectives on the charge to the committee. 4:15 p.m. Welcome and Introductions DIANE GRIFFIN, Committee Chair Vice President National Academy of Sciences University Distinguished Service Professor W. Harry Feinstone Department of Molecular Microbiology and Immunology Johns Hopkins Bloomberg School of Public Health 4:20 p.m. Sponsor Perspective on Charge to the Committee DAVID (CHRIS) HASSELL, Sponsor Acting Principal Deputy Assistant Secretary Office of the Assistant Secretary for Preparedness and Response U.S. Department of Health and Human Services 4:30 p.m. Discussion with Committee 4:40 p.m. SARS-CoV-2 Sequencing for Public Health Emergency Response, Epidemiology, and Surveillance (SPHERES) Program DUNCAN MACCANNELL Chief Science Officer Office of Advanced Molecular Detection National Center for Emerging and Zoonotic Infectious Diseases Centers for Disease Control and Prevention 4:50 p.m. Discussion with Committee 5:00 p.m. ADJOURN OPEN SESSION Tuesday, April 24, 2018 Virtual Meeting OPEN SESSION 3:15 p.m. Welcome and Introductions DIANE GRIFFIN, Committee Chair Vice President National Academy of Sciences University Distinguished Service Professor PREPUBLICATION COPY: UNCORRECTED PROOFS 80
W. Harry Feinstone Department of Molecular Microbiology and Immunology Johns Hopkins Bloomberg School of Public Health 3:20 p.m. Speaker Session 1: Genomic Data, Precision Epidemiology, and Working at the Intersection of Emerging Infectious Disease Data Sources JOSEPH DERISI Professor, Biochemistry and Biophysics University of California, San Francisco Co-President Chan Zuckerberg Biohub ALEX GRENINGER Assistant Professor, Laboratory Medicine University of Washington School of Medicine Assistant Director, Clinical Virology Laboratory University of Washington Medical Center 3:30 p.m. Discussion with Committee 3:50 p.m. Speaker Session 2: Considerations Around the Sharing, Linkage, and Public Health Application of Genomic, Epidemiologic, and Clinical Data THERESA COLECCHIA Senior Associate General Counsel Office of the Vice President and General Counsel Johns Hopkins University CHRISTOPHER CHUTE Bloomberg Distinguished Professor of Health Informatics Professor of Medicine, Public Health, and Nursing Chief Research Information Officer, Johns Hopkins Medicine Deputy Director, Institute for Clinical and Translational Research Division of General Internal Medicine Johns Hopkins University JILL TAYLOR Director, Wadsworth Center New York State Department of Health 4:05 p.m. Discussion with Committee 4:30 p.m. Speaker Session 3: Learning from Previous Approaches and Existing Initiatives PREPUBLICATION COPY: UNCORRECTED PROOFS 81
PARDIS SABETI Professor, Immunology and Infectious Diseases Harvard T.H. Chan School of Public Health Professor, Harvard FAS Center for Systems Biology Department of Organismic and Evolutionary Biology Institute Member, Broad Institute Investigator, Howard Hughes Medical Institute EMIL LESHO Infectious Disease Specialist Rochester Regional Health Professor of Medicine Uniformed Services University of the Health Sciences 4:40 p.m. Discussion with Committee 5:00 p.m. ADJOURN OPEN SESSION PREPUBLICATION COPY: UNCORRECTED PROOFS 82