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Suggested Citation:"Appendix A: Statement of Task." National Academies of Sciences, Engineering, and Medicine. 2021. Opportunities and Challenges for Using Digital Health Applications in Oncology: Proceedings of a Workshop. Washington, DC: The National Academies Press. doi: 10.17226/26286.
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Page 49
Suggested Citation:"Appendix A: Statement of Task." National Academies of Sciences, Engineering, and Medicine. 2021. Opportunities and Challenges for Using Digital Health Applications in Oncology: Proceedings of a Workshop. Washington, DC: The National Academies Press. doi: 10.17226/26286.
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Page 50

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Appendix A Statement of Task A planning committee of the National Academies of Sciences, Engineer- ing, and Medicine will plan and host a 1.5-day public workshop that will examine opportunities and challenges, including validation, data security, and patient privacy issues, for the use of digital health applications in oncology. The workshop will feature invited presentations and panel discussions on ­topics such as:  • An overview of existing and emerging digital health applications and the potential benefits and risks associated with their use. • Strategies to validate digital health applications, regulate their use, and mitigate potential risks associated with their use. • Strategies for protecting the security of data collected using digital health applications. • Patient privacy considerations, especially given the potential for data linkage with data from other sources of personal information. • Best practices and principles for access to and consent for the use of patient data generated by digital health applications. • Ways to integrate patient-generated health data into electronic health records and clinical workflow. • Lessons learned from other industries and/or countries that could inform digital health application development and use. The planning committee will develop the agenda for the workshop ses- sions, select and invite speakers and discussants, and moderate the discus- 49 PREPUBLICATION COPY—Uncorrected Proofs

50 USING DIGITAL HEALTH APPLICATIONS IN ONCOLOGY sions. A proceedings of the presentations and discussions at the workshop will be prepared by a designated rapporteur in accordance with institutional guidelines. PREPUBLICATION COPY—Uncorrected Proofs

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Digital health encompasses a broad array of tools and strategies with the goals of advancing research, increasing health care access and quality, and making care more personalized. It encompasses health content, digital health interventions, and digital applications, such as communication tools connecting patients and clinicians (e.g., secure email in the patient portal, text, chat, video visit), remote monitoring tools, clinical decision support tools, and systems for exchanging health information. Patient-facing tools, tools for clinicians, and systems to facilitate research and care improvement are all part of this diverse landscape, and each raises unique opportunities and potential challenges.

To examine key policy issues for the effective and safe development, implementation, and use of digital health technologies in oncology research and care, the National Cancer Policy Forum of the National Academies of Sciences, Engineering, and Medicine held a virtual workshop in collaboration with the Forum on Cyber Resilience. The workshop, Opportunities and Challenges for Using Digital Health Applications in Oncology, held on July 13-14, 2020, convened a broad group of experts, including clinicians and researchers; patient advocates; and representatives of federal agencies, health professional societies, health care organizations, insurers, and the pharmaceutical and health technology industries. Many workshop speakers found the opportunities presented by digital health tools to be particularly compelling for oncology; however, capitalizing on these opportunities necessitates careful attention to the design, implementation, and use of digital health technologies. This publication summarizes the presentations and discussions from the workshop.

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