National Academies Press: OpenBook
Suggested Citation:"Front Matter." National Academies of Sciences, Engineering, and Medicine. 2021. Addressing the Adverse Consequences of Cancer Treatment: Proceedings of a Workshop. Washington, DC: The National Academies Press. doi: 10.17226/26365.
×
Page R1
Suggested Citation:"Front Matter." National Academies of Sciences, Engineering, and Medicine. 2021. Addressing the Adverse Consequences of Cancer Treatment: Proceedings of a Workshop. Washington, DC: The National Academies Press. doi: 10.17226/26365.
×
Page R2
Suggested Citation:"Front Matter." National Academies of Sciences, Engineering, and Medicine. 2021. Addressing the Adverse Consequences of Cancer Treatment: Proceedings of a Workshop. Washington, DC: The National Academies Press. doi: 10.17226/26365.
×
Page R3
Suggested Citation:"Front Matter." National Academies of Sciences, Engineering, and Medicine. 2021. Addressing the Adverse Consequences of Cancer Treatment: Proceedings of a Workshop. Washington, DC: The National Academies Press. doi: 10.17226/26365.
×
Page R4
Suggested Citation:"Front Matter." National Academies of Sciences, Engineering, and Medicine. 2021. Addressing the Adverse Consequences of Cancer Treatment: Proceedings of a Workshop. Washington, DC: The National Academies Press. doi: 10.17226/26365.
×
Page R5
Suggested Citation:"Front Matter." National Academies of Sciences, Engineering, and Medicine. 2021. Addressing the Adverse Consequences of Cancer Treatment: Proceedings of a Workshop. Washington, DC: The National Academies Press. doi: 10.17226/26365.
×
Page R6
Suggested Citation:"Front Matter." National Academies of Sciences, Engineering, and Medicine. 2021. Addressing the Adverse Consequences of Cancer Treatment: Proceedings of a Workshop. Washington, DC: The National Academies Press. doi: 10.17226/26365.
×
Page R7
Page viii Cite
Suggested Citation:"Front Matter." National Academies of Sciences, Engineering, and Medicine. 2021. Addressing the Adverse Consequences of Cancer Treatment: Proceedings of a Workshop. Washington, DC: The National Academies Press. doi: 10.17226/26365.
×
Page R8
Suggested Citation:"Front Matter." National Academies of Sciences, Engineering, and Medicine. 2021. Addressing the Adverse Consequences of Cancer Treatment: Proceedings of a Workshop. Washington, DC: The National Academies Press. doi: 10.17226/26365.
×
Page R9
Suggested Citation:"Front Matter." National Academies of Sciences, Engineering, and Medicine. 2021. Addressing the Adverse Consequences of Cancer Treatment: Proceedings of a Workshop. Washington, DC: The National Academies Press. doi: 10.17226/26365.
×
Page R10
Suggested Citation:"Front Matter." National Academies of Sciences, Engineering, and Medicine. 2021. Addressing the Adverse Consequences of Cancer Treatment: Proceedings of a Workshop. Washington, DC: The National Academies Press. doi: 10.17226/26365.
×
Page R11
Suggested Citation:"Front Matter." National Academies of Sciences, Engineering, and Medicine. 2021. Addressing the Adverse Consequences of Cancer Treatment: Proceedings of a Workshop. Washington, DC: The National Academies Press. doi: 10.17226/26365.
×
Page R12
Page xiii Cite
Suggested Citation:"Front Matter." National Academies of Sciences, Engineering, and Medicine. 2021. Addressing the Adverse Consequences of Cancer Treatment: Proceedings of a Workshop. Washington, DC: The National Academies Press. doi: 10.17226/26365.
×
Page R13
Suggested Citation:"Front Matter." National Academies of Sciences, Engineering, and Medicine. 2021. Addressing the Adverse Consequences of Cancer Treatment: Proceedings of a Workshop. Washington, DC: The National Academies Press. doi: 10.17226/26365.
×
Page R14
Suggested Citation:"Front Matter." National Academies of Sciences, Engineering, and Medicine. 2021. Addressing the Adverse Consequences of Cancer Treatment: Proceedings of a Workshop. Washington, DC: The National Academies Press. doi: 10.17226/26365.
×
Page R15
Suggested Citation:"Front Matter." National Academies of Sciences, Engineering, and Medicine. 2021. Addressing the Adverse Consequences of Cancer Treatment: Proceedings of a Workshop. Washington, DC: The National Academies Press. doi: 10.17226/26365.
×
Page R16
Page xvii Cite
Suggested Citation:"Front Matter." National Academies of Sciences, Engineering, and Medicine. 2021. Addressing the Adverse Consequences of Cancer Treatment: Proceedings of a Workshop. Washington, DC: The National Academies Press. doi: 10.17226/26365.
×
Page R17
Page xviii Cite
Suggested Citation:"Front Matter." National Academies of Sciences, Engineering, and Medicine. 2021. Addressing the Adverse Consequences of Cancer Treatment: Proceedings of a Workshop. Washington, DC: The National Academies Press. doi: 10.17226/26365.
×
Page R18
Suggested Citation:"Front Matter." National Academies of Sciences, Engineering, and Medicine. 2021. Addressing the Adverse Consequences of Cancer Treatment: Proceedings of a Workshop. Washington, DC: The National Academies Press. doi: 10.17226/26365.
×
Page R19
Suggested Citation:"Front Matter." National Academies of Sciences, Engineering, and Medicine. 2021. Addressing the Adverse Consequences of Cancer Treatment: Proceedings of a Workshop. Washington, DC: The National Academies Press. doi: 10.17226/26365.
×
Page R20
Suggested Citation:"Front Matter." National Academies of Sciences, Engineering, and Medicine. 2021. Addressing the Adverse Consequences of Cancer Treatment: Proceedings of a Workshop. Washington, DC: The National Academies Press. doi: 10.17226/26365.
×
Page R21
Page xxii Cite
Suggested Citation:"Front Matter." National Academies of Sciences, Engineering, and Medicine. 2021. Addressing the Adverse Consequences of Cancer Treatment: Proceedings of a Workshop. Washington, DC: The National Academies Press. doi: 10.17226/26365.
×
Page R22

Below is the uncorrected machine-read text of this chapter, intended to provide our own search engines and external engines with highly rich, chapter-representative searchable text of each book. Because it is UNCORRECTED material, please consider the following text as a useful but insufficient proxy for the authoritative book pages.

Francis Amankwah, Sharyl Nass, and Margie Patlak, Rapporteurs National Cancer Policy Forum and Forum on Aging, Disability, and Independence Board on Health Care Services Health and Medicine Division PREPUBLICATION COPY—Uncorrected Proofs

THE NATIONAL ACADEMIES PRESS  500 Fifth Street, NW  Washington, DC 20001 This activity was supported by Contract No. 200-2011-38807 (Task Order No. 75D30120F00089) and Contract No. HHSN263201800029I (Task Order No. HHSN26300008) with the Centers for Disease Control and Prevention and the National Cancer Institute/National Institutes of Health, respectively, and by the American Association for Cancer Research, American Cancer Society, ­American ­College of Radiology, American Society of Clinical Oncology, Associa- tion of ­American Cancer Institutes, Association of Community Cancer Centers, Bristol Myers Squibb, Cancer Support Community, CEO Roundtable on Cancer, ­Flatiron Health, Merck, National Comprehensive Cancer Network, National Patient ­Advocate Foundation, Novartis Oncology, Oncology Nursing Society, Pfizer Inc., Sanofi, and Society for Immunotherapy of Cancer. Any opinions, findings, conclu- sions, or recommenda­tions expressed in this publication do not necessarily reflect the views of any organization or agency that provided support for the project. International Standard Book Number-13: 978-0-309-XXXXX-X International Standard Book Number-10: 0-309-XXXXX-X Digital Object Identifier: https://doi.org/10.17226/26365 Additional copies of this publication are available from the National Academies Press, 500 Fifth Street, NW, Keck 360, Washington, DC 20001; (800) 624-6242 or (202) 334-3313; http://www.nap.edu. Copyright 2021 by the National Academy of Sciences. All rights reserved. Printed in the United States of America Suggested citation: National Academies of Sciences, Engineering, and Medicine. 2021. Addressing the adverse consequences of cancer treatment: Proceedings of a workshop. ­Washington, DC: The National Academies Press. https://doi.org/10.17226/26365. PREPUBLICATION COPY—Uncorrected Proofs

The National Academy of Sciences was established in 1863 by an Act of Congress, signed by President Lincoln, as a private, nongovernmental institution to advise the nation on issues related to science and technol- ogy. Members are elected by their peers for outstanding contributions to research. Dr. Marcia McNutt is president. The National Academy of Engineering was established in 1964 under the charter of the National Academy of Sciences to bring the practices of engineering to advising the nation. Members are elected by their peers for extraordinary contributions to engineering. Dr. John L. Anderson is president. The National Academy of Medicine (formerly the Institute of Medicine) was established in 1970 under the charter of the National Academy of Sciences to advise the nation on medical and health issues. Members are elected by their peers for distinguished contributions to medicine and health. Dr. Victor J. Dzau is president. The three Academies work together as the National Academies of ­Sciences, Engineering, and Medicine to provide independent, objective analysis and advice to the nation and conduct other activities to solve complex problems and inform public policy decisions. The National Academies also encourage education and research, recognize outstanding contributions to knowledge, and increase public understanding in matters of science, engineering, and medicine. Learn more about the National Academies of Sciences, Engineering, and Medicine at www.nationalacademies.org. PREPUBLICATION COPY—Uncorrected Proofs

Consensus Study Reports published by the National Academies of Sciences, Engineering, and Medicine document the evidence-based consensus on the study’s statement of task by an authoring committee of experts. Reports typically include findings, conclusions, and recommendations based on information gathered by the committee and the committee’s deliberations. Each report has been subjected to a rigorous and independent peer-review process and it represents the position of the National Academies on the statement of task. Proceedings published by the National Academies of Sciences, Engineering, and Medicine chronicle the presentations and discussions at a workshop, symposium, or other event convened by the National Academies. The state- ments and opinions contained in proceedings are those of the participants and are not endorsed by other participants, the planning committee, or the National Academies. For information about other products and activities of the National ­Academies, please visit www.nationalacademies.org/about/whatwedo. PREPUBLICATION COPY—Uncorrected Proofs

WORKSHOP PLANNING COMMITTEE1 CATHY J. BRADLEY (Co-Chair), David F. and Margaret Turley Grohne Chair for Cancer Prevention and Control Research; Professor and Associate Dean for Research, Colorado School of Public Health; Bunn Chair of Cancer Research and Deputy Director, University of Colorado Cancer Center LISA KENNEDY SHELDON (Co-Chair), Clinical and Scientific Affairs Liaison, Oncology Nursing Society; and Oncology Nurse Practitioner, St. Joseph Hospital SMITA BHATIA, Professor and Vice Chair, Department of Pediatrics; Gay and Bew White Endowed Chair in Pediatric Oncology; Director, Institute for Cancer Outcomes and Survivorship; and Associate Director for Outcomes Research, Comprehensive Cancer Center, The University of Alabama at Birmingham JULIE BYNUM, Margaret Terpenning Collegiate Professor of Medicine and Vice Chair for Faculty Affairs, Department of Internal Medicine, Division of Geriatric and Palliative Medicine; Geriatric Center Associate Director for Health Policy and Research; and Research Scientist, Institute of Gerontology, University of Michigan Medical School GWEN DARIEN, Executive Vice President, Patient Advocacy and Engagement, National Patient Advocate Foundation LORI HOFFMAN HÖGG, Veterans Health Administration National Oncology Clinical Advisor, Office of Nursing Services, Department of Veterans Affairs, Washington, DC; and Veterans Health Administration National Program Manager, Prevention Policy, National Center for Health Promotion and Disease Prevention SAMIR N. KHLEIF, Director, Jeannie and Tony Loop Immuno- Oncology Lab; Biomedical Scholar; and Professor of Oncology, Lombardi Comprehensive Cancer Center, Georgetown University Medical Center; and Member, Society for Immunotherapy of Cancer 1 The National Academies of Sciences, Engineering, and Medicine’s planning committees are solely responsible for organizing the workshop, identifying topics, and choosing s­ peakers. The responsibility for the published Proceedings of a Workshop rests with the workshop ­rapporteurs and the institution. v PREPUBLICATION COPY—Uncorrected Proofs

WUI-JIN KOH, Senior Vice President and Chief Medical Officer, National Comprehensive Cancer Network; Medical Director, Radiation Oncology, Fred Hutchinson Cancer Research Center, Seattle Cancer Care Alliance; and Professor, Radiation Oncology, University of Washington School of Medicine J. LEONARD LICHTENFELD, Independent Consultant RANDALL A. OYER, Medical Director, Oncology, Ann B. Barshinger Cancer Institute; Medical Director, Cancer Risk Evaluation Program, Penn Medicine Lancaster General Health; and Immediate Past President, Association of Community Cancer Centers LAWRENCE N. SHULMAN, Professor of Medicine, Deputy Director for Clinical Services, and Director, Center for Global Cancer Medicine, Abramson Cancer Center, University of Pennsylvania Project Staff FRANCIS AMANKWAH, Program Officer RACHEL AUSTIN, Senior Program Assistant LORI BENJAMIN BRENIG, Research Associate MICHAEL COVINGTON, Senior Program Assistant (from September 2020–October 2020) ZARIA FYFFE, Senior Program Assistant (for October 2020) ANNALEE GONZALES, Administrative Assistant MICAH WINOGRAD, Senior Finance Business Partner TRACY LUSTIG, Director, Forum on Aging, Disability, and Independence ERIN BALOGH, Co-Director, National Cancer Policy Forum SHARYL J. NASS, Co-Director, National Cancer Policy Forum, and Senior Director, Board on Health Care Services vi PREPUBLICATION COPY—Uncorrected Proofs

NATIONAL CANCER POLICY FORUM1 EDWARD J. BENZ, JR. (Chair), President and Chief Executive Officer, Emeritus, Dana-Farber Cancer Institute; and Richard and Susan Smith Distinguished Professor of Medicine, Genetics and Pediatrics, Harvard Medical School PETER C. ADAMSON, Global Head, Oncology Development and Pediatric Innovation, Sanofi GARNET L. ANDERSON, Senior Vice President and Director, Public Health Sciences Division, Fred Hutchinson Cancer Research Center; Principal Investigator, Clinical Coordinating Center, Women’s Health Initiative; and Affiliate Professor, Department of Biostatistics, University of Washington KAREN BASEN-ENGQUIST, Annie Laurie Howard Research Distinguished Professor; Professor of Behavioral Science; and Director, Center for Energy Balance in Cancer Prevention and Survivorship, The University of Texas MD Anderson Cancer Center SMITA BHATIA, Professor and Vice Chair, Department of Pediatrics; Gay and Bew White Endowed Chair in Pediatric Oncology; Director, Institute for Cancer Outcomes and Survivorship; and Associate Director for Outcomes Research, Comprehensive Cancer Center, The University of Alabama at Birmingham CHRIS BOSHOFF, Chief Development Officer, Oncology, Global Product Development, Pfizer Inc. CATHY J. BRADLEY, David F. and Margaret Turley Grohne Chair for Cancer Prevention and Control Research; Professor and Associate Dean for Research, Colorado School of Public Health; Bunn Chair of Cancer Research and Deputy Director, University of Colorado Cancer Center OTIS W. BRAWLEY, Bloomberg Distinguished Professor, Department of Epidemiology, Bloomberg School of Public Health and Department of Oncology, School of Medicine, Sidney Kimmel Comprehensive Cancer Center, Johns Hopkins University 1 The National Academies of Sciences, Engineering, and Medicine’s forums and roundtables do not issue, review, or approve individual documents. The responsibility for the published Proceedings of a Workshop rests with the workshop rapporteurs and the institution. vii PREPUBLICATION COPY—Uncorrected Proofs

CYNTHIA BROGDON, Head, U.S. Oncology Portfolio Strategy, Bristol Myers Squibb WILLIAM G. CANCE, Chief Medical and Scientific Officer, American Cancer Society ROBERT W. CARLSON, Chief Executive Officer, National Comprehensive Cancer Network CHRISTINA CHAPMAN, Assistant Professor of Radiation Oncology, University of Michigan GWEN DARIEN, Executive Vice President, Patient Advocacy and Engagement, National Patient Advocate Foundation NANCY E. DAVIDSON, President and Executive Director, Seattle Cancer Care Alliance; Raisebeck Endowed Chair for Collaborative Research, Senior Vice President, Director, and Professor, Clinical Research Division, Fred Hutchinson Cancer Research Center; and Head, Department of Medicine, Division of Medical Oncology, University of Washington JAMES H. DOROSHOW, Director, Division of Cancer Treatment and Diagnosis; Deputy Director for Clinical and Translational Research; and Head, Oxidative Signaling and Molecular Therapeutics Group, National Cancer Institute NICOLE F. DOWLING, Associate Director for Science, Division of Cancer Prevention and Control, Centers for Disease Control and Prevention SCOT W. EBBINGHAUS, Vice President and Therapeutic Area Head, Oncology Clinical Research, Merck Research Laboratories KOJO S. J. ELENITOBA-JOHNSON, Professor, Perelman School of Medicine; and Director, Center for Personalized Diagnostics and Division of Precision and Computational Diagnostics, University of Pennsylvania STANTON L. GERSON, Interim Dean and Senior Vice President, Medical Affairs, School of Medicine; Director, Case Comprehensive Cancer Center; Professor, Department of Medicine and Department of Environmental Health Sciences; and Director, National Center for Regenerative Medicine, Case Western Reserve University JULIE R. GRALOW, Executive Vice President and Chief Medical Officer, American Society of Clinical Oncology viii PREPUBLICATION COPY—Uncorrected Proofs

ROY S. HERBST, Ensign Professor of Medicine and Professor of Pharmacology; Director, Center for Thoracic Cancers; Chief of Medical Oncology, Yale Cancer Center and Smilow Cancer Hospital; and Associate Cancer Center Director, Translational Science, Yale School of Medicine HEDVIG HRICAK, Chair, Department of Radiology, Memorial Sloan Kettering Cancer Center CHANITA HUGHES-HALBERT, Vice Chair for Research and Professor, Department of Preventive Medicine; and Associate Director for Cancer Equity, Norris Comprehensive Cancer Center, Keck School of Medicine, University of Southern California MIMI HUIZINGA, Vice President and Head, U.S. Oncology Medical, Novartis Oncology ROY A. JENSEN, Professor of Pathology and Laboratory Medicine, Anatomy and Cell Biology, and Cancer Biology; Director, University of Kansas Cancer Center; William R. Jewell, MD Distinguished Masonic Professor, University of Kansas Medical Center; and Immediate Past President, Association of American Cancer Institutes RANDY A. JONES, Professor, School of Nursing, and Assistant Director of Community Outreach Recruitment and Engagement, Emily Couric Cancer Center, University of Virginia BETH Y. KARLAN, Vice Chair, Women’s Health Research; Professor, Department of Obstetrics and Gynecology, David Geffen School of Medicine; and Director, Cancer Population Genetics, Jonsson Comprehensive Cancer Center, University of California, Los Angeles SAMIR N. KHLEIF, Director, Jeannie and Tony Loop Immuno- Oncology Lab; Biomedical Scholar and Professor of Oncology, Lombardi Comprehensive Cancer Center, Georgetown University Medical Center; and Member, Society for Immunotherapy of Cancer MIA LEVY, Chief Medical Officer, Foundation Medicine SCOTT M. LIPPMAN, Director, Moores Cancer Center; Distinguished Professor of Medicine, Senior Associate Dean, and Associate Vice Chancellor for Cancer Research and Care; and Chugai Pharmaceutical Chair in Cancer, University of California, San Diego NEAL J. MEROPOL, Vice President of Research Oncology, Flatiron Health; and Adjunct Professor, Case Comprehensive Cancer Center ix PREPUBLICATION COPY—Uncorrected Proofs

LARISSA NEKHLYUDOV, Professor of Medicine, Harvard Medical School; Internist, Brigham and Women’s Hospital; and Clinical Director, Internal Medicine for Cancer Survivors, Dana-Farber Cancer Institute RANDALL A. OYER, Medical Director, Oncology, Ann B. Barshinger Cancer Institute; Medical Director, Cancer Risk Evaluation Program, Penn Medicine Lancaster General Health; and Immediate Past President, Association of Community Cancer Centers CLEO A. SAMUEL-RYALS, Associate Professor, Department of Health Policy Management, Gillings School of Global Public Health; and Director, Centering Racial Equity in Data Science Initiative, Lineberger Comprehensive Cancer Center, University of North Carolina at Chapel Hill RICHARD L. SCHILSKY, Principal Investigator, American Society of Clinical Oncology Targeted Agent and Profiling Utilization Registry (TAPUR) Study; and Professor Emeritus, University of Chicago JULIE SCHNEIDER, Associate Director, Research Strategy and Partnership, Oncology Center of Excellence, Food and Drug Administration SUSAN M. SCHNEIDER, Associate Professor Emerita, School of Nursing, Duke University LAWRENCE N. SHULMAN, Professor of Medicine, Deputy Director for Clinical Services, and Director, Center for Global Cancer Medicine, Abramson Cancer Center, University of Pennsylvania LARA STRAWBRIDGE, Director, Division of Ambulatory Payment Models, Patient Care Models Group, Center for Medicare and Medicaid Innovation, Centers for Medicare & Medicaid Services GEORGE J. WEINER, C.E. Block Chair of Cancer Research, Professor of Internal Medicine and Pharmaceutical Science; and Director, Holden Comprehensive Cancer Center, University of Iowa ROBERT A. WINN, Director, Massey Cancer Center; Senior Associate Dean for Cancer Innovation; Professor, Pulmonary Disease and Critical Care Medicine, and Lipman Chair in Oncology, School of Medicine; Virginia Commonwealth University PHYLICIA L. WOODS, Executive Director, Cancer Policy Institute, Cancer Support Community x PREPUBLICATION COPY—Uncorrected Proofs

National Cancer Policy Forum Staff FRANCIS AMANKWAH, Program Officer RACHEL AUSTIN, Senior Program Assistant LORI BENJAMIN BRENIG, Research Associate ANNALEE GONZALES, Administrative Assistant MICAH WINOGRAD, Senior Finance Business Partner ERIN BALOGH, Co-Director, National Cancer Policy Forum SHARYL J. NASS, Co-Director, National Cancer Policy Forum, and Senior Director, Board on Health Care Services xi PREPUBLICATION COPY—Uncorrected Proofs

PREPUBLICATION COPY—Uncorrected Proofs

Reviewers This Proceedings of a Workshop was reviewed in draft form by ­individuals chosen for their diverse perspectives and technical expertise. The purpose of this independent review is to provide candid and critical comments that will assist the National Academies of Sciences, Engineering, and Medicine in mak- ing each published proceedings as sound as possible and to ensure that it meets the institutional standards for quality, objectivity, evidence, and responsiveness to the charge. The review comments and draft manuscript remain confiden- tial to protect the integrity of the process. We thank the following individuals for their review of this proceedings: WENDY DEMARK-WAHNEFRIED, The University of Alabama at Birmingham CANDACE HENLEY, The Blue Hat Foundation NANCY KEATING, Harvard Medical School and Brigham and ­Women’s Hospital KAREN SEPUCHA, Massachusetts General Hospital and Harvard Medical School Although the reviewers listed above provided many constructive com- ments and suggestions, they were not asked to endorse the content of the proceedings nor did they see the final draft before its release. The review of this proceedings was overseen by MARY S. McCABE, Independent Consul- tant. She was responsible for making certain that an independent examina- tion of this proceedings was carried out in accordance with standards of the xiii PREPUBLICATION COPY—Uncorrected Proofs

xiv REVIEWERS National Academies and that all review comments were carefully considered. Responsibility for the final content rests entirely with the rapporteurs and the National Academies. PREPUBLICATION COPY—Uncorrected Proofs

Acknowledgments Support from the many annual sponsors of the National Academies of Sciences, Engineering, and Medicine’s National Cancer Policy Forum is crucial to the work of the forum. Federal sponsors include the Centers for Disease Control and Prevention and the National Cancer Institute/National Institutes of Health. Nonfederal sponsors include the American Association for Cancer Research, American Cancer Society, American College of Radiology, American Society of Clinical Oncology, Association of American Cancer Institutes, Asso- ciation of Community Cancer Centers, Bristol Myers Squibb, Cancer Support Community, CEO Roundtable on Cancer, Flatiron Health, Merck, National Comprehensive Cancer Network, National Patient Advocate Foundation, Novartis Oncology, Oncology Nursing Society, Pfizer Inc., Sanofi, and Society for Immunotherapy of Cancer. The forum wishes to express its gratitude to the expert speakers whose presentations helped further the dialogue on the array of short- and long- term toxicities and adverse effects that patients may experience as a result of cancer treatment and on considering opportunities to improve quality of life for cancer survivors and their families. The forum also wishes to thank the members of the planning committee for their work in developing an excellent workshop agenda. xv PREPUBLICATION COPY—Uncorrected Proofs

PREPUBLICATION COPY—Uncorrected Proofs

Contents ACRONYMS AND ABBREVIATIONS xxi PROCEEDINGS OF A WORKSHOP 1 WORKSHOP OVERVIEW 1 THE CHANGING LANDSCAPE OF CANCER CARE AND SURVIVORSHIP 2 Survivors of Pediatric Cancers, 7 Survivors of Adolescent and Young Adult Cancers, 13 Older Adult Survivors of Cancer, 13 Psychological Effects of Cancer Treatment on Patients and Caregivers, 14 Financial Effects, 15 Health Inequities, 17 CHALLENGES TO ADDRESSING ADVERSE CONSEQUENCES OF CANCER TREATMENTS 17 Diversity of Patient Experiences across the Care Continuum, 17 Lack of Access to Psychosocial Services, 18 Clinician Time Constraints, 18 Lack of Financial Incentives, 19 Data Gaps and Lack of Coordinated Electronic Health Records, 20 xvii PREPUBLICATION COPY—Uncorrected Proofs

xviii CONTENTS OPPORTUNITIES TO REDUCE ADVERSE CONSEQUENCES ACROSS THE CANCER CARE CONTINUUM 20 Patient-Centered, Holistic, and Equitable Care, 20 Clinician Education, Training, and Support, 28 Data Collection, 29 Technology, 37 Policy Opportunities, 39 RESEARCH NEEDS AND POTENTIAL STRATEGIES 47 WRAP-UP 48 REFERENCES 49 APPENDIX A: STATEMENT OF TASK 59 APPENDIX B: WORKSHOP AGENDA 61 PREPUBLICATION COPY—Uncorrected Proofs

Boxes and Figures BOXES 1 Suggestions from Individual Workshop Participants to Address the Adverse Consequences of Cancer Treatment, 3 2 Patient Perspectives, 8 3 Cardio-oncology, 24 4 Surveillance, Epidemiology, and End Results (SEER) Database and Opportunities for Linkages, 31 5 Kaiser Permanente’s (KP’s) Integrated Health Network Database, 33 6 Southwest Oncology Group (SWOG)–Medicare Database Linkage, 35 FIGURES 1 Second malignancies after Hodgkin’s treatment, 11 2 Spectrum of health-related and quality-of-life outcomes among long- term survivors of childhood and adolescent cancers, 12 3 A model of a learning health care system for oncology care, 38 xix PREPUBLICATION COPY—Uncorrected Proofs

PREPUBLICATION COPY—Uncorrected Proofs

Acronyms and Abbreviations ACS American Cancer Society ASCO American Society of Clinical Oncology AYA adolescents and young adults CMMI Center for Medicare and Medicaid Innovation CMS Centers for Medicaid & Medicare Services ED emergency department EHR electronic health record KP Kaiser Permanente NCI National Cancer Institute NCPF National Cancer Policy Forum OCM Oncology Care Model PRO patient-reported outcome SEER Surveillance, Epidemiology, and End Results SWOG Southwest Oncology Group xxi PREPUBLICATION COPY—Uncorrected Proofs

PREPUBLICATION COPY—Uncorrected Proofs

Next: Proceedings of a Workshop »
Addressing the Adverse Consequences of Cancer Treatment: Proceedings of a Workshop Get This Book
×
Buy Paperback | $41.00
MyNAP members save 10% online.
Login or Register to save!
Download Free PDF

Cancer treatment can lead to an array of significant short- and long-term physical, psychosocial, and socioeconomic consequences for patients and their families. To examine the opportunities to prevent and mitigate the adverse effects of cancer treatment, the National Academies of Sciences, Engineering, and Medicine hosted a virtual workshop, Addressing the Adverse Consequences of Cancer Treatment, in November 2020. This workshop was convened by the Academies' National Cancer Policy Forum in collaboration with the Forum on Aging, Disability, and Independence. Workshop presentations and discussions described the range of adverse effects that patients with cancer may experience across the life course, and highlighted potential strategies to improve quality of life for cancer survivors and their families.

  1. ×

    Welcome to OpenBook!

    You're looking at OpenBook, NAP.edu's online reading room since 1999. Based on feedback from you, our users, we've made some improvements that make it easier than ever to read thousands of publications on our website.

    Do you want to take a quick tour of the OpenBook's features?

    No Thanks Take a Tour »
  2. ×

    Show this book's table of contents, where you can jump to any chapter by name.

    « Back Next »
  3. ×

    ...or use these buttons to go back to the previous chapter or skip to the next one.

    « Back Next »
  4. ×

    Jump up to the previous page or down to the next one. Also, you can type in a page number and press Enter to go directly to that page in the book.

    « Back Next »
  5. ×

    To search the entire text of this book, type in your search term here and press Enter.

    « Back Next »
  6. ×

    Share a link to this book page on your preferred social network or via email.

    « Back Next »
  7. ×

    View our suggested citation for this chapter.

    « Back Next »
  8. ×

    Ready to take your reading offline? Click here to buy this book in print or download it as a free PDF, if available.

    « Back Next »
Stay Connected!