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A Review of the Department of Defense's Program for Breast Cancer Research (1997)

Chapter: Appendix E: Tissue Bank Letter and Questionnaire

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Suggested Citation:"Appendix E: Tissue Bank Letter and Questionnaire." Institute of Medicine. 1997. A Review of the Department of Defense's Program for Breast Cancer Research. Washington, DC: The National Academies Press. doi: 10.17226/5808.
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APPENDIX E
Tissue Bank Letter and Questionnaire

INSTITUTE OF MEDICINE

NATIONAL ACADEMY OF SCIENCES

2101 CONSTITUTION AVENUE, N.W. WASHINGTON, D.C. 20418

COMMITTEE ON BREAST CANCER RESEARCH

PHONE (202) 334-1917

FAX (202) 334-2316

October 18, 1996

Dear Grantee,

The U.S. Army Medical Research and Materiel Command's (USAMRMC's) Breast Cancer Research Program is currently being reviewed and evaluated by an independent scientific committee appointed by the Institute of Medicine (IOM). An important part of this process is obtaining information about the tissue banks being funded by the USAMRMC Breast Cancer Research Program. You are being asked to complete the enclosed brief questionnaire. You have been asked to participate as a result of our request to the USAMRMC to identify current tissue bank projects.

Your responses will be confidential and anonymous. To protect your confidentiality, we have selected a small number of investigators from a longer list of such projects. All responses will be pooled and neither the USAMRMC nor the committee will be given your identity or the name of your project. No

Suggested Citation:"Appendix E: Tissue Bank Letter and Questionnaire." Institute of Medicine. 1997. A Review of the Department of Defense's Program for Breast Cancer Research. Washington, DC: The National Academies Press. doi: 10.17226/5808.
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identifying information will be included in any reports resulting from this survey.

Your participation is essential for identifying issues and strategies for improvement. The grantees' perspective will play an important part in the committee's deliberations. Please limit your response to two pages. Because of the short time frame for this study, we need to receive your responses no later than Tuesday, November 5, 1996. We encourage you to fax your response to 202-334-2316. If you have any questions or concerns about this survey, please call one of us at the phone numbers below. We appreciate your cooperation.

Sincerely,

Mary Poos

Study Director

Committee on Breast Cancer Research

Sincerely,

George Davatelis

Program Officer

Committee on Breast Cancer Research

Questions for Tissue Banks:

1a.)

Was the USAMRMC funding used to establish this tissue bank facility or was the facility already in existence? Do you receive other funding? Please explain in detail, and briefly itemize what the money was used for (e.g., capital expenditures, personnel, etc.).

1b.)

For programs already in existence, what impact did these additional monies have on your program (i.e., expand current services, create new services, upgrade facilities, etc.)?

2.)

Where do you get your tissue samples?

3.)

Who can use your facility? What communities do you serve?

4.)

How many requests have you gotten for samples since receiving the USAMRMC funds?

5.)

How many tissue samples have you collected?

6.)

Is there a fee for using the facility? Is it open to anybody who wants?

Suggested Citation:"Appendix E: Tissue Bank Letter and Questionnaire." Institute of Medicine. 1997. A Review of the Department of Defense's Program for Breast Cancer Research. Washington, DC: The National Academies Press. doi: 10.17226/5808.
×

7.)

Do you have guidelines for "informed consent," "discrepant opinions," and "quality assurance" Please explain what they are if you do (and include the forms/guidelines in your return answer) and why not if you do not.

Suggested Citation:"Appendix E: Tissue Bank Letter and Questionnaire." Institute of Medicine. 1997. A Review of the Department of Defense's Program for Breast Cancer Research. Washington, DC: The National Academies Press. doi: 10.17226/5808.
×
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Suggested Citation:"Appendix E: Tissue Bank Letter and Questionnaire." Institute of Medicine. 1997. A Review of the Department of Defense's Program for Breast Cancer Research. Washington, DC: The National Academies Press. doi: 10.17226/5808.
×
Page 121
Suggested Citation:"Appendix E: Tissue Bank Letter and Questionnaire." Institute of Medicine. 1997. A Review of the Department of Defense's Program for Breast Cancer Research. Washington, DC: The National Academies Press. doi: 10.17226/5808.
×
Page 122
Suggested Citation:"Appendix E: Tissue Bank Letter and Questionnaire." Institute of Medicine. 1997. A Review of the Department of Defense's Program for Breast Cancer Research. Washington, DC: The National Academies Press. doi: 10.17226/5808.
×
Page 123
Suggested Citation:"Appendix E: Tissue Bank Letter and Questionnaire." Institute of Medicine. 1997. A Review of the Department of Defense's Program for Breast Cancer Research. Washington, DC: The National Academies Press. doi: 10.17226/5808.
×
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According to current statistical data, one in eight women will be diagnosed with breast cancer. The five-year survival rate for breast cancer patients has improved in recent years, but the overall mortality rates have changed little. In 1993 Congress allocated $210 million for breast cancer research as part of the Department of Defense budget. An Institute of Medicine (IOM) committee was convened at that time to advise the U.S. Army Medical Research and Development Command on strategies for managing a breast cancer research program. This book evaluates the program's management and achievements to date. Although it is too early to evaluate the program in terms of breakthrough results and new insights produced by the funded projects or investigators, this book documents the process used to select research proposals for funding and analyzes the portfolio of funded projects in terms of their responsiveness to the recommendations and fundamental questions articulated in the 1993 IOM report.

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