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Workshop Agenda
Workshop on Lesbian Health Research Priorities
Georgetown University Conference Center
3800 Reservoir Road, N.W.
Washington, D.C.
October 6-7, 1997
Monday, October 6 |
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9:00 a.m. |
Welcome and Introductions |
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Ann Burgess, D.N.Sc., Chair, Committee on Lesbian Health Research Priorities, University of Pennsylvania |
9:30 a.m. |
An Overview of Lesbian Health: Historical and Developmental Perspectives |
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Donna Futterman, M.D., Adolescent AIDS Program, Montefiore Medical Center, and Department of Pediatrics, Albert Einstein College of Medicine |
10:00 a.m. |
Lesbians as a Diverse Population: Who Are We Talking About? |
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Moderator: Judy Bradford, Ph.D. |
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Lesbians: Defining the Population |
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Meaghan Kennedy, M.P.H., Centers for Disease Control and Prevention |
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Who Is Lesbian? (The Low Interrelationships Among Sexual Orientation, Sexual Behavior, Years Out, Disclosure of Sexual Orientation, and Participation in the Lesbian Community) |
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Esther Rothblum, Department of Psychology, University of Vermont |
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Economic Issues for Lesbians |
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Lee Badgett, University of Massachusetts and Institute for Gay and Lesbian Strategic Studies |
11:15 a.m. |
The Contextual Framework: Barriers to Conducting Research on Lesbian Health |
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Moderator: Bruce McEwen, Ph.D. |
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Ethical Issues in Conducting Research with Lesbians |
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Larry Gostin, Georgetown University Law Center |
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Research on Lesbian Health: Challenges for University |
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Researchers |
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Caitlin Ryan, Washington, D.C. |
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Researcher and Community Collaboration: Issues and Barriers to Working Together |
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Joyce Hunter, D.S.W., Community Liaison Program, HIV Center for Clinical and Behavioral Studies, and Department of Psychiatry, Columbia University |
12:15 p.m. |
LUNCH |
1:00 p.m. |
Designing Studies on Lesbian Health |
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Moderator: Larry Norton, M.D. |
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Designing Effective Studies of Lesbian Health Issues |
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Susan Cochran, Ph.D., M.S., Department of Epidemiology, University of California, Los Angeles School of Public Health |
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Challenges and Opportunities in Research Design |
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Jocelyn White, M.D., Oregon Health Sciences University |
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Health Services Research: Working with Hard-to-Reach Groups |
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Debra Rog, Ph.D., Center for Mental Health Policy, Vanderbilt Institute for Public Policy Studies |
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Research Design and Causation |
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Margaret Rosario, Ph.D., Department of Psychology, City College, City University of New York |
2:30 p.m. |
Scheduled Public Testimony |
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Methodological Issues in Research on Lesbian Health |
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Alice Dan, Ph.D., Center for Research on Women and Gender, University of Illinois at Chicago |
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Strategies for Obtaining Representative Samples/Measurement of Sexual Orientation |
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Ann Pollinger Haas, Ph.D., Department of Health Services, Lehman College, City University of New York (representing the Women's Health Survey) |
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Involving Communities in Research on Lesbian Health |
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Amelie Zurn, M.S.W., Silver Spring, Maryland |
2:50 p.m. |
Cancer and Lesbians |
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Deborah J. Bowen, Ph.D., Division of Public Health Sciences, Fred Hutchinson Cancer Research Center |
3:20 p.m. |
BREAK |
3:30 p.m. |
Scheduled Public Testimony |
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Lesbians and Cancer |
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Beverly Baker, Mautner Project for Lesbians with Cancer |
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Lesbian Experiences and Breast Cancer |
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Linda McGehee, Ph.D., R.N., Georgia State University School of Nursing |
3:45 p.m. |
Sexually Transmitted Diseases—An Issue for Lesbians? |
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Jonathan Zenilman, M.D., Infectious Disease Division, Johns Hopkins University School of Medicine |
4:15 p.m. |
The Challenges of Providing Health and Mental Health Services to Lesbians: Issues of Access and Barriers to Care |
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Moderator: Gloria Sarto, M.D. |
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Joan Waitkevicz, M.D., Gay Women's Focus, Beth Israel Medical Center, New York |
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Teresa Cuadra, M.D., Gay Women's Focus, Beth Israel Medical Center, New York |
4:45 p.m. |
Scheduled Public Testimony |
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Integrating Sexuality into Health Care and the Need for Information on Lesbian Health |
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Christopher Portelli, J.D., Sexuality Information and Education Council of the United States |
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Lesbian Health Curriculum for Medical Schools |
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Devi O'Neill, Center of Excellence for Women's Health, University of California Medical Center at San Francisco |
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Implications for Health Care Service and Delivery and Lesbians' Access to Care |
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Beverly Saunders Biddle, M.H.A., National Lesbian and Gay Health Association |
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Cultural Proficiency: A Cornerstone to the Success of Managed Care |
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Nancy Kennedy, Dr.P.H., Office of Managed Care, Center for Substance Abuse Prevention, SAMHSA |
5:15 p.m. |
Final Questions |
5:30 p.m. |
Adjourn |
Tuesday, October 7 |
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9:00 a.m. |
Opening and Welcome |
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Ann Burgess, D.N.Sc., Chair, Committee on Lesbian Health Research Priorities, University of Pennsylvania |
9:15 a.m. |
Instrumentation and Disclosure |
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Moderator: Sam Friedman, Ph.D. |
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Disclosure of Sexual Orientation in the Nurses' Health Study II |
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Patricia Case, Sc.D., Department of Social Medicine, Harvard Medical School |
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New Methods for Surveying Sensitive Behaviors |
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Charles Turner, Ph.D., Research Triangle Institute, Washington, D.C. |
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Measuring Health |
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Ronald Wilson, National Center for Health Statistics (retired) |
10:30 a.m. |
Mental Health and Substance Abuse Issues for Lesbians |
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Moderator: Cynthia Gomez, Ph.D. |
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Overview of Mental Health Issues for Lesbians |
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Marjorie Sved, M.D., Adult Psychiatry, Dorothea Dix Hospital, Raleigh, North Carolina |
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Tonda Hughes, Ph.D., R.N., University of Illinois at Chicago, College of Nursing |
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Overview of Substance Abuse Issues for Lesbians |
11:15 a.m. |
HIV/AIDS and Women Who Have Sex with Women |
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Rebecca Young, National Development and Research Institute, Inc., and Columbia University Division of Sociomedical Sciences |
11:45 a.m. |
Scheduled Public Testimony |
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Lesbians and HIV: The Invisible Crisis |
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Amber Hollibaugh, Women's Education Services/Lesbian AIDS Project, Gay Men's Health Crisis |
12:00 noon |
LUNCH |
12:45 p.m. |
Sampling Strategies for Studies on Lesbian Health |
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Moderator: Donna Brogan, Ph.D. |
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Probability Sampling for Research on Lesbian Health |
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Graham Kalton, Ph.D., Westat, Inc., Rockville, Maryland |
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Building Relationships: Sampling Methods for Diverse Communities |
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Elizabeth J. Rankow, PA-C, MHS, Consultant, Oakland, California |
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U.S. Census Data: Uses and Limitations for Research on Lesbian Health |
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Martin O'Connell, Ph.D., Fertility and Family Structure Branch, U.S. Bureau of the Census |
2:00 p.m. |
Scheduled Public Testimony and Final Discussion |
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Elisabeth Gruskin, Kaiser Permanente |
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Charlotte Patterson, Ph.D., American Psychological Association |
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Nina Carroll, Fenway Community Health Center, Boston Fenway's Research Experience |
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Winnie Stachelberg, Human Rights Campaign |
3:00 p.m. |
Adjourn |