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Non-Heart-Beating Organ Transplantation: Practice and Protocols (2000)

Chapter: APPENDIX B Workshop Agenda

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Suggested Citation:"APPENDIX B Workshop Agenda." Institute of Medicine. 2000. Non-Heart-Beating Organ Transplantation: Practice and Protocols. Washington, DC: The National Academies Press. doi: 10.17226/9700.
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APPENDIX B
Workshop Agenda

NON-HEART-BEATING TRANSPLANTATION II: THE SCIENTIFIC AND ETHICAL BASIS FOR PRACTICE AND PROTOCOLS

Washington, D.C., May 24–25, 1999

Monday, May 24, 1999

Introduction

Introduction to the Committee

Introduction to the Study

Institute of Medicine Study, 1997

OPO NHBD protocols 1997–1998

Policy Context

Lynn Rothberg-Wegman, Deputy Director, Division of Transplantation

Health Resources and Services Administration (HRSA)

Clinical Context: Decisions to Forgo Artificial Support

Brief review of legal/ethical basis for decisions to forgo treatment

End of Life Care and Organ Donation: The Patient and Family

Family member experiences

Short presentation; questions and answers

Bob and Nancy Curran

Peggy Schaeffer

Roundtable I. Protocol Content

Brief presentation by each program, comparing specific protocol provisions and rationale.

Washington Hospital Center, Jimmy Light, M.D.

University of Pittsburgh, Michael DeVita, M.D.

Suggested Citation:"APPENDIX B Workshop Agenda." Institute of Medicine. 2000. Non-Heart-Beating Organ Transplantation: Practice and Protocols. Washington, DC: The National Academies Press. doi: 10.17226/9700.
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University of Florida/SHANDS, Danielle Cornell, R.N., B.S.N., C.P.T.C.

New England Organ Bank, Francis Delmonico, M.D.

Gift of Life Donor Program, John Edwards, R.N., C.P.T.C.

Ohio Valley LifeCenter, David Lewis, R.N., B.S.N.

Building Consensus on Protocol Content

Committee questions

Public comments

Roundtable II. Protocol Development

Brief overview of each program’s experiences in developing a protocol for non-heart-beating organ donation.

Washington Hospital Center, Jimmy Light, M.D.

University of Pittsburgh, Michael DeVita, M.D.

University of Florida/SHANDS, Danielle Cornell, R.N., B.S.N., C.P.T.C.

New England Organ Bank, Francis Delmonico, M.D.

Gift of Life Donor Program, John Edwards, R.N., B.S.N., C.P.T.C.

Ohio Valley Life Center, David Lewis, R.N., B.S.N.

Steps in Protocol Development

Committee questions

Public comments

Roundtable III: Protocol Implementation

Transplant Coordinators

Mark Reiner, , P.A., CPTC, University of Florida OPO

North American Transplant Coordinators Association (NATCO)

Transplant Recipients

Patricia Weiskittel, R.N., M.S.N., American Nephrology Nurses’ Association

Critical Care Nursing

Jacqueline Sullivan, R.N., Ph.D., Neurosurgery Intensive Care Clinical Nurse Specialist

Rural Hospitals

Anne Freeman Cook, M.P.A., High Mountains High Plains Bioethics Project

Suggested Citation:"APPENDIX B Workshop Agenda." Institute of Medicine. 2000. Non-Heart-Beating Organ Transplantation: Practice and Protocols. Washington, DC: The National Academies Press. doi: 10.17226/9700.
×

Outcomes

Louise Jaccobi, C.P.T.C., Louisiana Organ Procurement Agency

Discussion of implementing a non-heart-beating organ procurement program and carrying out non-heart-beating organ procurement protocols: resources, outreach, education, follow-up.

Discussion: Issues in Implementation

Committee questions.

Public comments

Public Comment

Tuesday, May 25

Issues in Dissemination and Research: Declaring Death

Commissioned Paper: Stuart Youngner, M.D., Robert Arnold, M.D., and Michael DeVita, M.D.

Committee questions

Issues in Dissemination and Research: Evaluation

Commissioned paper: M. Solomon, Ph.D.

Committee questions

The Donor Family

A family-centered approach

Family information pamphlet: review and discussion

Public Comments

Suggested Citation:"APPENDIX B Workshop Agenda." Institute of Medicine. 2000. Non-Heart-Beating Organ Transplantation: Practice and Protocols. Washington, DC: The National Academies Press. doi: 10.17226/9700.
×
Page 95
Suggested Citation:"APPENDIX B Workshop Agenda." Institute of Medicine. 2000. Non-Heart-Beating Organ Transplantation: Practice and Protocols. Washington, DC: The National Academies Press. doi: 10.17226/9700.
×
Page 96
Suggested Citation:"APPENDIX B Workshop Agenda." Institute of Medicine. 2000. Non-Heart-Beating Organ Transplantation: Practice and Protocols. Washington, DC: The National Academies Press. doi: 10.17226/9700.
×
Page 97
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In 1997, the Institute of Medicine published a report entitled Non-Heart- Beating Organ Transplantation: Medical and Ethical Issues in Procurement. The findings and recommendations of that study defined the ethical and scientific basis for non-heart-beating organ donation and transplantation, and provided specific recommendations for practices that affirm patient welfare, promote patient and family choice, and avoid conflicts of interest.

Following the 1997 study, the Department of Health and Human Services requested a follow up study to promote such efforts. The central activity for this study was a workshop held in Washington, D.C., on May 24-25, 1999. The workshop provided the opportunity for extensive dialogue on non-heart-beating organ donation among hospitals and organ procurement organizations (OPOs) that are actively involved in non-heartbeating organ and tissue donation and those with concerns about whether and how to proceed.

The findings and recommendations of this report are based in large measure on the discussions and insights from that workshop. Non-Heart-Beating Organ Transplantation includes seven recommendations for developing and implementing non-heart-beating-donor protocols. These recommendations were based on the findings and recommendations from the 1997 IOM report and consensus achieved among participants at the national workshop. The committee developed these recommendations as steps towards an approach to non-heart-beating-donor organ donation and procurement consistent with underlying scientific and ethical guidelines, patient and family options and choices, and public trust in organ donation.

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