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Improving Access to and Confidentiality of Research Data: Report of a Workshop (2000)

Chapter: Appendix A Workshop and Participants

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Suggested Citation:"Appendix A Workshop and Participants." National Research Council. 2000. Improving Access to and Confidentiality of Research Data: Report of a Workshop. Washington, DC: The National Academies Press. doi: 10.17226/9958.
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Appendixes

Suggested Citation:"Appendix A Workshop and Participants." National Research Council. 2000. Improving Access to and Confidentiality of Research Data: Report of a Workshop. Washington, DC: The National Academies Press. doi: 10.17226/9958.
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Suggested Citation:"Appendix A Workshop and Participants." National Research Council. 2000. Improving Access to and Confidentiality of Research Data: Report of a Workshop. Washington, DC: The National Academies Press. doi: 10.17226/9958.
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APPENDIX

A

Workshop Participants

Presenters

Norman Bradburn (Workshop Chair), National Opinion Research Center

Erik Austin, Inter-university Consortium for Political and Social Research

Mary Ann Baily, Institute for Ethics, American Medical Association

Robert Boruch, University of Pennsylvania

Richard Burkhauser, Cornell University

Patrick T. Collins, California Census Research Data Center, University of California, Berkeley

J. Michael Dean, University of Utah

George Duncan, Carnegie-Mellon University

Donna Eden, Office of the General Counsel, U.S. Department of Health and Human Services

Stephen E. Fienberg, Carnegie-Mellon University

Robert M. Gellman, Privacy and Information Policy Consultant, Washington, D.C.

Rachel Gordon, University of Illinois at Chicago

John Horm, National Center for Health Statistics

J. Bradford Jensen, Center for Economic Studies, Bureau of the Census

Sallie Keller-McNulty, Los Alamos National Laboratory

Arthur Kennickell, Federal Reserve Board

Paul Massell, Bureau of the Census

Mark McClellan, Stanford University

Marilyn M. McMillen, National Center for Education Statistics

Suggested Citation:"Appendix A Workshop and Participants." National Research Council. 2000. Improving Access to and Confidentiality of Research Data: Report of a Workshop. Washington, DC: The National Academies Press. doi: 10.17226/9958.
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Garnett Picot, Statistics Canada

Tom Puglisi, Office for Protection from Research Risks, National Institutes of Health

Alice Robbin, Indiana University

Latanya Sweeney, Carnegie-Mellon University

Robert Weathers, Cornell University

Finis Welch, Texas A&M University

Robert Willis, University of Michigan

Alvan Zarate, National Center for Health Statistics

Invited Guests

Paul P. Biemer, Research Triangle Institute

Lewis Berman, National Center for Health Statistics

Katharine Browning, Office of Juvenile Justice and Delinquency Prevention

Jay Casselberry, Energy Information Administration

Chris Chapman, Bureau of Labor Statistics

Stephen Cohen, Bureau of Labor Statistics

Virginia A. de Wolf, Office of Management and Budget

Cathryn Dippo, Bureau of Labor Statistics

Nancy Donovan, General Accounting Office

Patricia Doyle, Bureau of the Census

Judy Droitcour, General Accounting Office

John Eltinge, Bureau of Labor Statistics

Anastasia J. Gage, USAID

Gerald W. Gates, Bureau of the Census

Dan Gaylin, U.S. Department of Health and Human Services

Nancy Gordon, Bureau of the Census

Brian Greenberg, Social Security Administration

Easley Hoy, Disclosure Review Board, Bureau of the Census

Betsy Humphreys, National Library of Medicine

Thomas Jabine, Consultant, Committee on National Statistics

Nancy Kirkendall, Department of Education

Julia Lane, Center for Economic Studies, Bureau of the Census

Susan Lapham, Bureau of Transportation Statistics

Thomas Louis, University of Minnesota, and Member, Committee on National Statistics

David Mednick, Bureau of Transportation Statistics

Jay Meisenheimer, Bureau of Labor Statistics

Heather Miller, Office of Extramural Research, National Institutes of Health

Nancy Miller, National Institutes of Health

Joseph Moone, U.S. Department of Justice

Kristen Robinson, National Center for Health Statistics

Suggested Citation:"Appendix A Workshop and Participants." National Research Council. 2000. Improving Access to and Confidentiality of Research Data: Report of a Workshop. Washington, DC: The National Academies Press. doi: 10.17226/9958.
×

Stuart Rust, Bureau of Labor Statistics

James Scanlon, U.S. Department of Health and Human Services

Lois Schein, Social Security Administration

Eleanor Singer, University of Michigan

Edward Spar, Council of Professional Associations on Federal Statistics

James Spletzer, Bureau of Labor Statistics

Richard M. Suzman, National Institute on Aging

Louise Wideroff, National Institutes of Health

Laura Zayatz, Bureau of the Census

NRC Staff

Jamie Casey, Committee on National Statistics

Barney Cohen, Committee on Population

Kevin Kinsella, Committee on Population

Heather Koball, Committee on National Statistics

Christopher Mackie, Committee on National Statistics

Terri Scanlan, Committee on National Statistics

Miron Straf, Committee on National Statistics

Barbara Boyle Torrey, Commission on Behavioral and Social Sciences and Education

Andrew White, Committee on National Statistics

Lee Zwanziger, Institute of Medicine

Suggested Citation:"Appendix A Workshop and Participants." National Research Council. 2000. Improving Access to and Confidentiality of Research Data: Report of a Workshop. Washington, DC: The National Academies Press. doi: 10.17226/9958.
×
Page 53
Suggested Citation:"Appendix A Workshop and Participants." National Research Council. 2000. Improving Access to and Confidentiality of Research Data: Report of a Workshop. Washington, DC: The National Academies Press. doi: 10.17226/9958.
×
Page 54
Suggested Citation:"Appendix A Workshop and Participants." National Research Council. 2000. Improving Access to and Confidentiality of Research Data: Report of a Workshop. Washington, DC: The National Academies Press. doi: 10.17226/9958.
×
Page 55
Suggested Citation:"Appendix A Workshop and Participants." National Research Council. 2000. Improving Access to and Confidentiality of Research Data: Report of a Workshop. Washington, DC: The National Academies Press. doi: 10.17226/9958.
×
Page 56
Suggested Citation:"Appendix A Workshop and Participants." National Research Council. 2000. Improving Access to and Confidentiality of Research Data: Report of a Workshop. Washington, DC: The National Academies Press. doi: 10.17226/9958.
×
Page 57
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Improving Access to and Confidentiality of Research Data summarizes a workshop convened by the Committee on National Statistics (CNSTAT) to promote discussion about methods for advancing the often conflicting goals of exploiting the research potential of microdata and maintaining acceptable levels of confidentiality. This report outlines essential themes of the access versus confidentiality debate that emerged during the workshop. Among these themes are the tradeoffs and tensions between the needs of researchers and other data users on the one hand and confidentiality requirements on the other; the relative advantages and costs of data perturbation techniques (applied to facilitate public release) versus restricted access as tools for improving security; and the need to quantify disclosure risks—both absolute and relative—created by researchers and research data, as well as by other data users and other types of data.

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