APPENDIX B
Workshop Agenda and Participants
ENHANCING DATA SYSTEMS TO IMPROVE THE QUALITY OF CANCER CARE
The National Academies
Cecil and Ida Green Building, Room 130
2001 Wisconsin Avenue, N.W.
Washington, D.C.
AGENDA
Monday, October 4 |
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8:00 a.m.–8:30 a.m. |
Continental Breakfast |
8:30 a.m.–8:45 a.m. |
Welcome and Introduction Joseph Simone |
SESSION ONE: OVERVIEW
Evidence-based measures are available to assess cancer care quality, but data systems are not yet in place to give practitioners information on their performance relative to national or regional norms. This presentation will review well-established quality measures, the need for population-based data and monitoring systems, and outstanding health services research questions that remain to be answered with quality-related data.
8:45 a.m.–9:15 a.m. |
What Do We Want? Tools for Quality Monitoring and Health Services Research Tom Smith |
SESSION TWO: USING CANCER REGISTRIES TO MONITOR THE QUALITY OF HEALTH CARE
Population-based cancer registries are the foundation of surveillance and cancer control programs. Presentations on how cancer registry data have been
and potentially might be applied to quality assessment will be followed by a status report on the Centers for Disease Control and Prevention 's National Program of Cancer Registries, the federal effort to bolster the states' cancer surveillance infrastructure. Next, National Cancer Institute staff will describe how the Surveillance, Epidemiology, and End Results (SEER) program has been used to answer important health services research questions. Brief presentations describing of some of the technical, methodological, and legal issues raised in using registry data to monitor healthcare quality will be followed by a discussion that will focus on the merits and limitations of wider applications of quality assessment using cancer registries.
9:15 a.m.–10:00 a.m. |
Using State Registry Data to Monitor Healthcare Quality
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10:00 a.m.–10:30 a.m. |
The Status of State Registries Dan Miller |
10:30 a.m.–11:00 a.m. |
Using SEER to Answer Quality-Related Health Services Research Questions Joan Warren Arnold Potosky |
11:00 a.m.–11:15 a.m. |
Coffee Break |
11:15 a.m.–12:30 p.m. |
Issues Related to Using Registry Data to Monitor Quality of Care
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12:30 p.m.–1:30 p.m. |
Lunch Break |
1:30 p.m.–2:30 p.m. |
Discussion: How Can Registry Data be Used to Monitor Quality? Tom Tucker |
SESSION THREE: CANCER CARE DATA AND ACCOUNTABILITY
Information about clinical practice can serve as a powerful tool to change physician and patient behavior and to improve the quality of care. Hospital-reported data have been used to assess patterns of care and to monitor compliance to practice guidelines. The National Cancer Data Base (NCDB), maintained by the American College of Surgeons and American Cancer Society holds promise for assessing progress toward quality improvement because it includes information on the care experience of nearly 60 percent of individuals diagnosed with cancer. The National Comprehensive Cancer Network (NCCN) is an effort on the part of large cancer centers to collect quality data and incorporate them into an ongoing quality improvement program. Presenters will review the status of these quality initiatives and discuss resources needed to assure complete coverage of individuals, their treatments, and outcomes.
The discussion will focus on the strengths and weakness of these programs, the feasibility of setting national or regional quality benchmarks, and the resources needed to ensure acceptance and quality improvement at the local level.
2:30 p.m.–3:30 p.m. |
Using Hospital-Based Data to Monitor Physicians and Hospitals
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3:30 p.m.–4:00 p.m. |
Discussion: Implementing Successful Internal Quality Monitoring J. Gale Katterhagen |
4:00 p.m.–4:15 p.m. |
Coffee break |
Six in 10 new cases of cancer occur among the elderly. Consequently, the Health Care Financing Administration (HCFA) in administering the Medicare Program has many opportunities to improve the quality of cancer care. The State-based Peer Review Organizations, for example, have conducted a number of assessments of cancer care quality.
4:15 p.m.–5:00 p.m. |
HCFA's Use of Cancer Care Quality Data Stephen Jencks |
Various professional organizations are involved in accreditation programs to enhance the quality of care. Individuals involved in three such programs will describe them and their inclusion of cancer care measures.
5:00 p.m.–5:30 p.m. |
Accreditation Programs
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Tuesday, October 5 |
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8:00 a.m.–8:30 a.m. |
Continental Breakfast |
8:30 a.m.–9:00 a.m. |
Summary of Day One Vivien Chen Tom Smith |
SESSION FOUR: DATA FOR HEALTH SERVICES RESEARCH
9:00 a.m.–10:00 a.m.
The National Center for Health Statistics, the Agency for Health Care Policy and Research, and the American Cancer Society are among the sponsors of large population-based surveys, providing a wealth of opportunities for health service researchers. Presenters will provide brief overviews of research using these resources and will discuss their strengths and weaknesses for cancer research. Next, the purpose, scope, and methods of two large cancer survivorship surveys being launched by the American Cancer Society will be described. Lastly, we will hear about NCI's HMO Cancer Research Network, an effort to facilitate collaborative research among managed care organizations. The discussion will focus on resource needs for health services research.
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National Center for Health Statistics, National Hospital Discharge Survey
Phyllis Wingo
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Agency for Health Care Policy and Research, Healthcare Cost and Utilization Project
David Morris
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American Cancer Society, Cancer Survivorship Surveys
Frank Baker
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National Cancer Institute, HMO Cancer Research Network
Martin Brown
10:00 a.m.–10:30 a.m. |
Discussion: Resource Needs for Health Services Research Tom Smith |
SESSION FIVE: CANCER CARE DATA NEEDS
10:30 a.m.–12:30 p.m. |
Discussion with NCPB Joseph Simone
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PARTICIPANTS
John Ayanian, M.D., M.P.P.
Assistant Professor
Harvard Medical School
Departments of Medicine and Health Care Policy
Frank Baker, Ph.D.
Vice President for Behavioral Research
American Cancer Society
Rachel Ballard-Barbash, M.D., M.P.H.
Chief, Applied Research Program
Division of Cancer Control and Population Sciences
National Cancer Institute
Martin Brown, Ph.D.
Chief, Health Services and Economics Branch
Applied Research Program
Division of Cancer Control and Population Sciences
National Cancer Institute
Jeffrey Crane, M.D.
Staff physician
Raleigh Hematology Oncology Clinic
Linda Harlan, Ph.D.
Epidemiologist
Applied Research Program
Division of Cancer Control and Population Sciences
National Cancer Institute
Bruce Hillner, M.D.
Professor of Medicine
Medical College of Virginia
Virginia Commonwealth University
James G. Hodge, Jr., J.D., LL.M.
Greenwall Fellow
Georgetown University Law Center
Stephen F. Jencks, M.D., M.P.H.
Senior Clinical Advisor
Health Standards and Quality Bureau
Health Care Financing Administration
J. Gale Katterhagen, M.D.
Medical Director for the Cancer Program and Breast Center
Mills-Peninsula Health Services
Medical Director for Quality
Sutter Health
Joe Lipscomb, Ph.D.
Chief, Outcomes Research Branch
Applied Research Program
Division of Cancer Control and Population Sciences
National Cancer Institute
Daniel Miller, M.D., M.P.H.
Chief, Cancer Surveillance Branch
National Center for Chronic Disease Prevention and Health Promotion
Division of Cancer Prevention and Control
Centers for Disease Control and Prevention
David Morris, M.D.
Clinical Instructor
Department of Radiation Oncology University of North Carolina
Monica Morrow, M.D.
Professor of Surgery
Northwestern University Medical School
Jay F. Piccirillo, M.D., F.A.C.S.
Associate Professor and Director
Clinical Outcomes Research Office
Department of Otolaryngology-Head and Neck Surgery
Washington University School of Medicine
Arnold Potosky, Ph.D.
Operations Research Analyst
Health Services and Economics Branch Applied Research Program
Division of Cancer Control and Population Sciences
National Cancer Institute
Tom Smith, M.D., F.A.C.P.
Associate Professor of Medicine and Health Administration
Medical College of Virginia
Virginia Commonwealth University
Tom Tucker, M.P.H.
Associate Professor
Department of Health Services
College of Allied Health Professions and Department of Preventive Medicine and Environmental Health
College of Medicine
University of Kentucky
Jane Weeks, M.D., M.Sc.
Associate Professor of Medicine
Harvard Medical School
Associate Professor
Health Policy and Management
Harvard School of Public Health
Joan Warren, Ph.D.
Epidemiologist
Health Services and Economics Branch
Applied Research Program
Division of Cancer Control and Population Sciences
National Cancer Institute
Phyllis Wingo, Ph.D., M.S.
Director of Surveillance
Department of Epidemiology and Surveillance
American Cancer Society
Roger Winn M.D.
Chief, Section of Community Oncology
Department of Internal Medical Specialties
Division of Medicine
U.T.M.D. Anderson Cancer Center